Works matching DE "RESEARCH funding"


Results: 5000
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    What are patient perspectives on privacy and trust in digital genomic tools? A qualitative study.

    Published in:
    Journal of Genetic Counseling, 2025, v. 34, n. 3, p. 1, doi. 10.1002/jgc4.70025
    By:
    • Jha, Vedika;
    • Saeedi, Saumeh;
    • Clausen, Marc;
    • Assamad, Daniel;
    • Grewal, Sonya;
    • Hirjikaka, Daena;
    • Lee, Whiwon;
    • Luca, Stephanie;
    • Shaw, Angela;
    • Hayeems, Robin;
    • Bombard, Yvonne;
    • Aronson, Melyssa;
    • Bernier, Francois;
    • Brudno, Michael;
    • Carroll, June C.;
    • Chad, Lauren;
    • Cohn, Ronald;
    • Costain, Gregory;
    • Dhalla, Irfan;
    • Faghfoury, Hanna
    Publication type:
    Article
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    Genetic counselors outside of the genetics clinic: Roles, practices, and ethico‐legal implications in light of lagging legal recognition across Canada.

    Published in:
    Journal of Genetic Counseling, 2025, v. 34, n. 3, p. 1, doi. 10.1002/jgc4.1943
    By:
    • Rojas, Samantha K.;
    • Adam, Shelin;
    • Austin, Jehanine;
    • Knoppers, Bartha;
    • Lynd, Larry D.;
    • Dey, Alivia;
    • Bansback, Nick;
    • Birch, Patricia;
    • Clarke, Lorne;
    • Dragojlovic, Nick;
    • Friedman, Jan;
    • Lambert, Debby;
    • Pullman, Daryl;
    • Virani, Alice;
    • Wasserman, Wyeth;
    • Elliott, Alison M.;
    • Zawati, Ma'n H.
    Publication type:
    Article
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    Evaluation of the Health‐Related Quality of Life and Mental Health of Parents With Children and Adolescents With a Rare Disease Based on the Results of a Randomized Controlled Trial to Investigate a Family‐Based Intervention and an Online Intervention for Affected Families (CARE‐FAM‐NET)

    Published in:
    Family Process, 2025, v. 64, n. 2, p. 1, doi. 10.1111/famp.70041
    By:
    • Steinberg, Antonia;
    • Boettcher, Johannes;
    • Leidger, Anna;
    • Muntau, Ania C.;
    • Denecke, Jonas;
    • Kaiser, Nicole;
    • Daubmann, Anne;
    • Zapf, Antonia;
    • Wegscheider, Karl;
    • Ozga, Ann Kathrin;
    • Suling, Anna Isabella;
    • Bullinger, Monika;
    • Quitmann, Julia;
    • Dirmaier, Jörg;
    • Witt, Stefanie;
    • Rezvani, Farhad;
    • Mundlos, Christine;
    • Biehl, Lisa;
    • Rassenhofer, Miriam;
    • Fegert, Jörg M.
    Publication type:
    Article
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