Works matching IS 25098020 AND DT 2024 AND VI 8

Results: 154
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    How patient-reported outcomes and experience measures (PROMs and PREMs) are implemented in healthcare professional and patient organizations? An environmental scan.

    Published in:
    Journal of Patient-Reported Outcomes, 2024, v. 8, n. 1, p. 1, doi. 10.1186/s41687-024-00795-9
    By:
    • Lowry, Véronique;
    • Tremblay-Vaillancourt, Vanessa;
    • Beaupré, Priscilla;
    • Poirier, Marie-Dominique;
    • Perron, Marie-Ève;
    • Bernier, Jessica;
    • Morin, Anaëlle;
    • Cormier, Caroline;
    • Haggerty, Jeannie;
    • Ahmed, Sara;
    • Brodeur, Magaly;
    • David, Geneviève;
    • Lambert, Sylvie;
    • Laberge, Maude;
    • Zidarov, Diana;
    • Visca, Regina;
    • Poder, Thomas G.;
    • Zomahoun, Hervé Tchala Vignon;
    • Sasseville, Maxime;
    • Poitras, Marie-Eve
    Publication type:
    Article
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    Switching treatment to cipaglucosidase alfa plus miglustat positively affects patient-reported outcome measures in patients with late-onset Pompe disease.

    Published in:
    Journal of Patient-Reported Outcomes, 2024, v. 8, n. 1, p. 1, doi. 10.1186/s41687-024-00805-w
    By:
    • Kishnani, Priya S.;
    • Byrne, Barry J.;
    • Claeys, Kristl G.;
    • Díaz-Manera, Jordi;
    • Dimachkie, Mazen M.;
    • Kushlaf, Hani;
    • Mozaffar, Tahseen;
    • Roberts, Mark;
    • Schoser, Benedikt;
    • Hummel, Noemi;
    • Kopiec, Agnieszka;
    • Holdbrook, Fred;
    • Shohet, Simon;
    • Toscano, Antonio;
    • Sebok, Agnes;
    • Pestronk, Alan;
    • Dominovic-Kovacevic, Aleksandra;
    • Khan, Aneal;
    • Koritnik, Blaž;
    • Tard, Celine
    Publication type:
    Article
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    International study to develop a patient-reported outcome measure to evaluate outcomes of gender-affirming care - the GENDER-Q.

    Published in:
    Journal of Patient-Reported Outcomes, 2024, v. 8, n. 1, p. 1, doi. 10.1186/s41687-024-00785-x
    By:
    • Kaur, Manraj N.;
    • Morrison, Shane D.;
    • Kennedy, Shelby L.;
    • van de Grift, Tim C.;
    • Højgaard, Astrid;
    • Jacobsen, Amalie Lind;
    • Johnson, Natasha;
    • Mullender, Margriet G.;
    • Poulsen, Lotte;
    • Satterwhite, Thomas;
    • Santucci, Richard;
    • Semple, John;
    • Rae, Charlene;
    • Savard, Kinusan;
    • Sørensen, Jens Ahm;
    • Young-Afat, Danny;
    • Pusic, Andrea L.;
    • Klassen, Anne F.
    Publication type:
    Article
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    Experience of Service Questionnaire (ESQ) in children and adolescents: factor structure, reliability, validity, item parameters and interpretability of the parent version for practical use in Greece.

    Published in:
    Journal of Patient-Reported Outcomes, 2024, v. 8, n. 1, p. 1, doi. 10.1186/s41687-024-00798-6
    By:
    • Kotsis, Konstantinos;
    • Mitropoulou, Andromachi;
    • Tzotzi, Alexandra;
    • Marchionatti, Lauro Estivalete;
    • Hoffmann, Mauricio Scopel;
    • Schafer, Julia Luiza;
    • Casella, Caio B.;
    • Simioni, André;
    • Papanikolaou, Katerina;
    • Basta, Maria;
    • Serdari, Aspasia;
    • Koumoula, Anastasia;
    • Salum, Giovanni Abrahão
    Publication type:
    Article
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    Associations between symptom-based long COVID clusters and long-term quality of life, work and daily activities among individuals testing positive for SARS-CoV-2 at a national retail pharmacy.

    Published in:
    Journal of Patient-Reported Outcomes, 2024, v. 8, n. 1, p. 1, doi. 10.1186/s41687-024-00797-7
    By:
    • Di Fusco, Manuela;
    • Cappelleri, Joseph C.;
    • Yehoshua, Alon;
    • Craig, Kelly J. Thomas;
    • Alvarez, Mary B.;
    • Allen, Kristen E.;
    • Porter, Thomas M.;
    • Lopez, Santiago M.C.;
    • Puzniak, Laura;
    • Sun, Xiaowu
    Publication type:
    Article
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