Works matching IS 25098020 AND DT 2020 AND VI 4

Results: 105

Correction to: Content validity of a sleep numerical rating scale and a sleep diary in adults and adolescents with moderate-to-severe atopic dermatitis.

Published in:

2020

By:

Dias-Barbosa, Carla;
Matos, Rodolfo;
Vernon, Margaret;
Carney, Colleen E.;
Krystal, Andrew;
Puelles, Jorge

Publication type:

Correction Notice

Establishing a common metric for patient-reported outcomes in cancer patients: linking patient reported outcomes measurement information system (PROMIS), numerical rating scale, and patient-reported outcomes version of the common terminology criteria for adverse events (PRO-CTCAE)

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00271-0

By:

Lee, Minji K.;
Schalet, Benjamin D.;
Cella, David;
Yost, Kathleen J.;
Dueck, Amy C.;
Novotny, Paul J.;
Sloan, Jeff A.

Publication type:

Article

Selection and validation of a classification system for a child-centred preference-based measure of oral health-related quality of life specific to dental caries.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00268-9

By:

Rogers, Helen J.;
Gilchrist, Fiona;
Marshman, Zoe;
Rodd, Helen D.;
Rowen, Donna

Publication type:

Article

Validity and analysis of the Diabetes Injection Device Preference Questionnaire (DID-PQ).

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00266-x

By:

Boye, Kristina S.;
Matza, Louis S.;
Currie, Brooke M.;
Coyne, Karin S.

Publication type:

Article

Development and internal validation of a predictive risk model for anxiety after completion of treatment for early stage breast cancer.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00267-w

By:

Harris, Jenny;
Purssell, Edward;
Cornelius, Victoria;
Ream, Emma;
Jones, Anne;
Armes, Jo

Publication type:

Article

Patient experiences with hypertrophic cardiomyopathy: a conceptual model of symptoms and impacts on quality of life.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00269-8

By:

Zaiser, Erica;
Sehnert, Amy J.;
Duenas, Ashley;
Saberi, Sara;
Brookes, Ella;
Reaney, Matthew

Publication type:

Article

Selecting, implementing and evaluating patient-reported outcome measures for routine clinical use in cancer: the Cancer Care Ontario approach.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00270-1

By:

Montgomery, Nicole;
Howell, Doris;
Ismail, Zahra;
Bartlett, Susan J.;
Brundage, Michael;
Bryant-Lukosius, Denise;
Krzyzanowska, Monika;
Moody, Lesley;
Snyder, Claire;
Barbera, Lisa;
The Cancer Care Ontario Patient Reported Outcome Advisory Committee;
Pottie, Patricia;
Dupras, Lianne;
Staley, Monica;
Martelli, Lorraine

Publication type:

Article

Content validity of a sleep numerical rating scale and a sleep diary in adults and adolescents with moderate-to-severe atopic dermatitis.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00265-y

By:

Dias-Barbosa, Carla;
Matos, Rodolfo;
Vernon, Margaret;
Carney, Colleen E.;
Krystal, Andrew;
Puelles, Jorge

Publication type:

Article

Psychometric evaluation of the DAILY EATS questionnaire in individuals living with obesity.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00259-w

By:

Fastenau, John;
Rozjabek, Heather;
Qin, Shanshan;
McLeod, Lori;
Nelson, Lauren;
Ma, Jia;
Harris, Nimanee

Publication type:

Article

PROMIS® Health Organization (PHO) 2020 Conference Toward Patient-Centered Care: PROMIS Implementations and Advances Abstracts: Virtual. 25-27 October 2020.

Published in:: 2020
Publication type:: Abstract

Ecological momentary assessment versus retrospective assessment for measuring change in health-related quality of life following cardiac intervention.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00261-2

By:

Oreel, Tom H.;
Delespaul, Philippe;
Hartog, Iris D.;
Henriques, José P. S.;
Netjes, Justine E.;
Vonk, Alexander B. A.;
Lemkes, Jorrit;
Scherer-Rath, Michael;
van Laarhoven, Hanneke W. M.;
Sprangers, Mirjam A. G.;
Nieuwkerk, Pythia T.

Publication type:

Article

Validation of a menstrual pictogram and a daily bleeding diary for assessment of uterine fibroid treatment efficacy in clinical studies.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00263-0

By:

Haberland, Claudia;
Filonenko, Anna;
Seitz, Christian;
Börner, Matthias;
Gerlinger, Christoph;
Doll, Helen;
Wessiepe, Dorothea

Publication type:

Article

The needs of key-stakeholders for evaluating client's experienced quality of home care: a qualitative approach.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00260-3

By:

Haex, Roy;
Thoma-Lürken, Theresa;
Zwakhalen, Sandra;
Beurskens, Anna

Publication type:

Article

Symptom burden and health-related quality of life impacts of smoldering multiple myeloma: the patient perspective.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00253-2

By:

Jean-Baptiste, Milenka;
Gries, Katharine S.;
Lenderking, William R.;
Fastenau, John

Publication type:

Article

Validity and reliability testing of the Toddler and Infant (TANDI) Health Related Quality of Life instrument for very young children.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00251-4

By:

Verstraete, Janine;
Ramma, Lebogang;
Jelsma, Jennifer

Publication type:

Article

Quality of life among patients seeking treatment for substance use disorder, as measured with the EQ-5D-3L.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00247-0

By:

Rand, Kim;
Arnevik, Espen Ajo;
Walderhaug, Espen

Publication type:

Article

Development of a patient-reported outcome measure (PROM) and change measure for use in early recovery following hip or knee replacement.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00262-1

By:

Strickland, Louise H.;
Murray, David W.;
Pandit, Hemant G.;
Jenkinson, Crispin

Publication type:

Article

The relationship of personal budgets with independence, participation and quality of life; a secondary analysis of survey data using propensity score matching.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00258-x

By:

Marangos, Anna Maria;
Iedema, Jurjen;
de Klerk, Mirjam;
Woittiez, Isolde;
Groenewegen, Peter P.

Publication type:

Article

Good practices for the translation, cultural adaptation, and linguistic validation of clinician-reported outcome, observer-reported outcome, and performance outcome measures.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00248-z

By:

McKown, Shawn;
Acquadro, Catherine;
Anfray, Caroline;
Arnold, Benjamin;
Eremenco, Sonya;
Giroudet, Christelle;
Martin, Mona;
Weiss, Dana

Publication type:

Article

The use of patient-reported outcomes to detect adverse events in metastatic melanoma patients receiving immunotherapy: a randomized controlled pilot trial.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00255-0

By:

Tolstrup, Lærke K.;
Bastholt, Lars;
Dieperink, Karin B.;
Möller, Sören;
Zwisler, Ann-Dorthe;
Pappot, Helle

Publication type:

Article

User experiences on implementation of patient reported outcome measures (PROMs)in a Haematological outpatient clinic.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00256-z

By:

Thestrup Hansen, Stine;
Kjerholt, Mette;
Friis Christensen, Sarah;
Brodersen, John;
Hølge-Hazelton, Bibi

Publication type:

Article

Psychometric assessment of the PROMIS Fatigue Short Form 6a in women with moderate-to-severe endometriosis-associated pain.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00257-y

By:

Pokrzywinski, Robin;
Soliman, Ahmed M.;
Surrey, Eric;
Snabes, Michael C.;
Coyne, Karin S.

Publication type:

Article

Capturing patient experience: does quality-of-life appraisal entail a new class of measurement?

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00254-1

By:

Schwartz, Carolyn E.;
Stark, Roland B.;
Rapkin, Bruce D.

Publication type:

Article

Development and evaluation of the Singapore Caregiver Quality of Life Scale - Dementia.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00252-3

By:

Cheung, Yin Bun;
Teo, Irene;
Lim, Wee Shiong;
Hum, Allyn;
Neo, Shirlyn H. S.;
Yang, Grace M.;
Lee, Geok Ling;
Tan, Gretchen;
Seow, Dennis C. C.

Publication type:

Article

Use of the patient-reported outcomes measurement information system (PROMIS®) to assess late-onset Pompe disease severity.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00245-2

By:

Harfouche, Melodi;
Kishnani, Priya S.;
Krusinska, Eva;
Gault, Jamie;
Sitaraman, Sheela;
Sowinski, Amanda;
Katz, Irina;
Austin, Stephanie;
Goldstein, Margi;
Mulberg, Andrew E.

Publication type:

Article

Reliability and validity of the elements of desire questionnaire in premenopausal women with hypoactive sexual desire disorder.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00241-6

By:

Revicki, Dennis A.;
Althof, Stanley E.;
Derogatis, Leonard R.;
Kingsberg, Sheryl A.;
Wilson, Hilary;
Sadiq, Amama;
Krop, Julie;
Jordan, Robert;
Lucas, Johna

Publication type:

Article

Dutch translation and linguistic validation of the U.S. National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE™).

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00249-y

By:

Veldhuijzen, Evalien;
Walraven, Iris;
Mitchell, Sandra A.;
Moore, Elizabeth Yohe;
McKown, Shawn M.;
Lauritzen, Matthew;
Kim, Katherine J.;
Belderbos, José S. A.;
Aaronson, Neil K.

Publication type:

Article

Development and content validation of the Pediatric Oral Medicines Acceptability Questionnaires (P-OMAQ): patient-reported and caregiver-reported outcome measures.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00246-1

By:

Turner-Bowker, Diane M.;
An Haack, Kristina;
Krohe, Meaghan;
Yaworsky, Andrew;
Vivas, Norma;
Kelly, Masami;
Chatterjee, Godhuli;
Chaston, Emily;
Mann, Erin;
Reaney, Matthew

Publication type:

Article

The validity and reliability of the patient enablement instrument (PEI) after GP appointments in Finnish health care centres.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00243-4

By:

Tolvanen, Elina;
Koskela, Tuomas H.;
Helminen, Mika;
Kosunen, Elise

Publication type:

Article

Collection and use of EQ-5D for follow-up, decision-making, and quality improvement in health care - the case of the Swedish National Quality Registries.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00231-8

By:

Ernstsson, Olivia;
Janssen, Mathieu F.;
Heintz, Emelie

Publication type:

Article

Core outcome sets in cancer and their approaches to identifying and selecting patient-reported outcome measures: a systematic review.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00244-3

By:

Ramsey, Imogen;
Eckert, Marion;
Hutchinson, Amanda D.;
Marker, Julie;
Corsini, Nadia

Publication type:

Article

"'You lose your hair, what's the big deal?' I was so embarrassed, I was so self-conscious, I was so depressed:" a qualitative interview study to understand the psychosocial burden of alopecia areata.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00240-7

By:

Aldhouse, Natalie V. J.;
Kitchen, Helen;
Knight, Sarah;
Macey, Jake;
Nunes, Fabio P.;
Dutronc, Yves;
Mesinkovska, Natasha;
Ko, Justin M.;
King, Brett A.;
Wyrwich, Kathleen W.

Publication type:

Article

Qualitative research to explore the symptoms and impacts experienced by children with ulcerative colitis.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00238-1

By:

Randall, Jason A.;
Guobyte, Aiste;
Delbecque, Laure;
Newton, Louise;
Symonds, Tara;
Hunter, Theresa

Publication type:

Article

Using a digital patient powered research network to identify outcomes of importance to patients with multiple myeloma.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00242-5

By:

Gries, Katharine S.;
Fastenau, John

Publication type:

Article

Changes in the ability to participate in and satisfaction with social roles and activities in patients in outpatient rehabilitation.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00236-3

By:

Tamminga, Sietske J.;
van Vree, Félicie M.;
Volker, Gerard;
Roorda, Leo D.;
Terwee, Caroline B.;
Goossens, Paulien H.;
Vliet Vlieland, Thea P. M.

Publication type:

Article

Exploring the influence of socio-cultural factors and environmental resources on the health related quality of life of children and adolescents after congenital heart disease surgery: parental perspectives from a low middle income country.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00239-0

By:

Ladak, Laila A.;
Gallagher, Robyn;
Hasan, Babar S.;
Awais, Khadija;
Abdullah, Ahmed;
Gullick, Janice

Publication type:

Article

Delphi survey to inform patient-reported symptom monitoring after ovarian cancer treatment.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00237-2

By:

Shearsmith, Leanne;
Kennedy, Fiona;
Lindner, Oana C.;
Velikova, Galina

Publication type:

Article

Measuring the impact of chronic low back pain on everyday functioning: content validity of the Roland Morris disability questionnaire.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00234-5

By:

Burbridge, Claire;
Randall, Jason A.;
Abraham, Lucy;
Bush, Elizabeth Nicole

Publication type:

Article

Content validity of patient-reported outcomes for use in lower-risk myelodysplastic syndromes.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00235-4

By:

Trudeau, Jeremiah J.;
He, Jianming;
Rose, Esther;
Panter, Charlotte;
Randhawa, Sharan;
Gater, Adam

Publication type:

Article

What is an estimand & how does it relate to quantifying the effect of treatment on patient-reported quality of life outcomes in clinical trials?

Published in:

2020

By:

Lawrance, Rachael;
Degtyarev, Evgeny;
Griffiths, Philip;
Trask, Peter;
Lau, Helen;
D'Alessio, Denise;
Griebsch, Ingolf;
Wallenstein, Gudrun;
Cocks, Kim;
Rufibach, Kaspar

Publication type:

Letter

Psychometric validation of a Saudi Arabian version of the sf-36v2 health survey and norm data for Saudi Arabia.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00233-6

By:

AboAbat, Ahmad;
Qannam, Hazem;
Bjorner, Jakob Bue;
Al-Tannir, Mohamad

Publication type:

Article

Patient-reported outcome measures for retinoblastoma: a scoping review.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00232-7

By:

Janic, Ana;
Bowden, Sylvie;
Levy, Sarah;
Stinson, Jennifer;
Dimaras, Helen

Publication type:

Article

Patients' experiences of Parkinson's disease: a qualitative study in glucocerebrosidase and idiopathic Parkinson's disease.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00230-9

By:

Bonner, N.;
Bozzi, S.;
Morgan, L.;
Mason, B.;
Peterschmitt, M. J.;
Fischer, T. Z.;
Arbuckle, R.;
Reaney, M.

Publication type:

Article

Symptoms and impacts in anemia of chronic kidney disease.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00215-8

By:

Mathias, Susan D.;
Blum, Steven I.;
Sikirica, Vanja;
Johansen, Kirsten L.;
Colwell, Hilary H.;
Okoro, Tony

Publication type:

Article

Intensive care unit (ICU) diaries and the experiences of patients' families: a grounded theory approach in a lower middle-income country (LMIC).

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00229-2

By:

Tripathy, Swagata;
Acharya, Swati Priyadarshini;
Sahoo, Alok Kumar;
Mitra, Jayanta Kumar;
Goel, Kishen;
Ahmad, Suma Rabab;
Hansdah, Upendra

Publication type:

Article

First stage psychometric testing of a new instrument for adolescents with visual impairment: the Participation and Activity Inventory for Children and Youth (PAI-CY) 13–17 years.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00228-3

By:

Elsman, Ellen B. M.;
van Nispen, Ruth M. A.;
van Rens, Gerardus H. M. B.

Publication type:

Article

Patient-reported quality-of-life outcomes in relation to provider-assessed adverse events during head and neck radiotherapy.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00227-4

By:

Niska, Joshua R.;
Thorpe, Cameron S.;
Halyard, Michele Y.;
Tan, Angelina D.;
Atherton, Pamela J.;
Dueck, Amylou C.;
Patel, Samir H.;
Sloan, Jeff A.

Publication type:

Article

Health-related quality of life, self-reported impairments and activities of daily living in relation to muscle function in post-polio syndrome.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00226-5

By:

Gocheva, Vanya;
Hafner, Patricia;
Orsini, Anna-Lena;
Schmidt, Simone;
Schaedelin, Sabine;
Rueedi, Nicole;
Rubino-Nacht, Daniela;
Weber, Peter;
Fischer, Dirk

Publication type:

Article

Psychometric properties of a custom Patient-Reported Outcomes Measurement Information System (PROMIS) physical function short form and worst stiffness numeric rating scale in tenosynovial giant cell tumors.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00217-6

By:

Speck, Rebecca M.;
Ye, Xin;
Bernthal, Nicholas M.;
Gelhorn, Heather L.

Publication type:

Article

Patient-reported outcome instruments used in immune-checkpoint inhibitor clinical trials in oncology: a systematic review.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00210-z

By:

Colomer-Lahiguera, Sara;
Bryant-Lukosius, Denise;
Rietkoetter, Sarah;
Martelli, Lorraine;
Ribi, Karin;
Fitzpatrick-Lewis, Donna;
Sherifali, Diana;
Orcurto, Angela;
Juergens, Rosalyn;
Eicher, Manuela

Publication type:

Article