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Comment on "Reflections on patient engagement by patient partners: How it can go wrong".
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00534-2
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Recommended characteristics and processes for writing lay summaries of healthcare evidence: a co-created scoping review and consultation exercise.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00531-5
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£25 and a biscuit: Women's Health Research and Public Engagement in the UK.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00519-1
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#HowNotToDoPatientEngagement: the engaging with purpose patient engagement framework based on a twitter analysis of community perspectives on patient engagement.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00527-1
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Engaging communities to inform the development of a diverse cohort of cancer survivors: formative research for the eat move sleep study (EMOVES).
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00529-z
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Opening up ideas: an advent calendar for patient and public engagement in clinical trials research.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00530-6
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Evaluating the impact of engaging older adults and service providers as research partners in the co-design of a community mobility-promoting program: a mixed methods developmental evaluation study.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00523-5
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Patient Engagement in Research Scale (PEIRS-22): Danish translation, applicability, and user experiences.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00526-2
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Striking the right balance: co-designing the Health4Me healthy lifestyle digital health intervention with adolescents.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00524-4
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Implementation and evaluation of participatory advisory boards in mental health research: a research protocol of the 'PART-Beirat' project.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00522-6
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Create to Collaborate: using creative activity and participatory performance in online workshops to build collaborative research relationships.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00512-8
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'Building bridges': reflections and recommendations for co-producing health research.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00528-0
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What matters to you? Engaging with children in the James Lind Alliance Children's Cancer Priority Setting Partnership.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00518-2
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Using the UK standards for public involvement to evaluate the public involvement sections of annual reports from NIHR managed research centres.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00517-3
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Enhancing evidence-informed policymaking in medicine and healthcare: stakeholder involvement in the Commons Project for rare diseases in Japan.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00515-5
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Young patients' involvement in a composite endpoint method development on acceptability for paediatric oral dosage forms.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00520-8
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Exploring patient and caregiver perceptions of the meaning of the patient partner role: a qualitative study.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00511-9
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Embedding formal and experiential public and patient involvement training in a structured PhD programme: process and impact evaluation.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00516-4
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A community-based approach to identifying and prioritising young people's mental health needs in their local communities.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00510-w
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Adapting co-design methodology to a virtual environment: co-designing a communication intervention for adult patients in critical care.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00514-6
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Incorporation of patient and public involvement in statistical methodology research: development of an animation.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00513-7
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World Cafés as a participatory approach to understanding research agendas in primary care with underserved communities: reflections, challenges and lessons learned.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00509-3
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Incorporation of patient and public involvement in statistical methodology research: a survey assessing current practices and attitudes of researchers.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00507-5
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The INSIGHT project: reflections on the co-production of a quality recognition programme to showcase excellence in public involvement in health and care research.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00508-4
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The value of co-creating a clinical outcome assessment strategy for clinical trial research: process and lessons learnt.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00505-7
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Demonstrating the learning and impact of embedding participant involvement in a pandemic research study: the experience of the SARS-CoV-2 immunity & reinfection evaluation (SIREN) study UK, 2020–2023.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00506-6
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Developing a national strategy of consumer and community involvement (CCI) for women's health research.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00504-8
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Assessing the impact of university students' involvement in the first year of Nurture-U: a national student wellbeing research project.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00478-7
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Encouraging diversity in family engagement in research: Reflections on the development of knowledge translation tools.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00486-7
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Hidden gems: a pilot project to solicit and reward patients' and caregivers' ideas for research.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00473-y
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Involving patients in healthcare research is well documented but can it work in lab-based research?
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00500-y
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Development of the Strengths, Skills, and Goals Matrix: a tool for facilitating strengths-based adolescent and young adult engagement in research.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00502-w
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Youth and family involvement in the development of a plain language trial results communication tool: CommuniKIDS.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00499-2
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Dementia resources for eating, activity, and meaningful inclusion (DREAM) toolkit co-development: process, output, and lessons learned.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00497-4
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Co-creation of a patient engagement strategy in cancer research funding.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00501-x
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Awe and anxiety for cancer cells: connecting scientists and patients in a holistic approach of metastasis research.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00498-3
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Co-producing principles to guide health research: an illustrative case study from an eating disorder research clinic.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00460-3
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Co-creating active communities: processes and outcomes of linking public rehabilitation programs with civic engagement for active living in a Danish municipality.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00495-6
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"Why involve older people in research?" Revisiting Alan Walker's earlier editorial based on recent experiences from the UserAge research programme.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00493-8
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Lessons from conducting a participatory evaluation of a kinship navigator program.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00487-6
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Recognizing patient partner contributions to health research: a systematic review of reported practices.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00488-5
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Working collaboratively with an online advisory group of people with learning disabilities in covid-times: carrier pigeons, cats and drones.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00494-7
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Supporting families and caregivers of children with disabilities through a parent peer mentor (PPM): experiences from a patient-oriented research network.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00481-y
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Finding connection "while everything is going to crap": experiences in Recovery Colleges during the COVID-19 pandemic.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00489-4
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Inclusive approaches to involvement of community groups in health research: the co-produced CHICO guidance.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00492-9
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Engaging community members to ensure culturally specific language is used in research: should I use gay, queer, MSM, or this other new acronym?
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00463-0
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The development of the People with Aphasia and Other Layperson Involvement (PAOLI) framework for guiding patient and public involvement (PPI) in aphasia research.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00484-9
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Patient and public involvement in Nordic healthcare research: a scoping review of contemporary practice.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00490-x
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Evaluating the impacts of patient engagement on a national health research network: results of a case study of the Chronic Pain Network.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00491-w
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Patient and public involvement to inform priorities and practice for research using existing healthcare data for children's and young people's cancers.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00485-8
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