Works in Research Involvement & Engagement, 2022, Vol 8, Issue 1

Results: 78

A scoping review of methods to measure and evaluate citizen engagement in health research.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00405-2

By:

Shahid, Anmol;
Lalani, Inara N.;
Rosgen, Brianna K.;
Sept, Bonnie G.;
Longmore, Shelly;
Parsons Leigh, Jeanna;
Stelfox, Henry T.;
Fiest, Kirsten M.

Publication type:

Article

Peer researchers' experiences of a co-produced research project on supported decision-making.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00406-1

By:

Webb, Paul;
Falls, David;
Keenan, Fionnuala;
Norris, Barbara;
Owens, Aine;
Davidson, Gavin;
Edge, Rosalie;
Kelly, Berni;
McLaughlin, Aisling;
Montgomery, Lorna;
Mulvenna, Christine;
Irvine, Rebecca Shea

Publication type:

Article

Embedding research codesign knowledge and practice: Learnings from researchers in a new research institute in Australia.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00392-4

By:

Javanparast, Sara;
Robinson, Sally;
Kitson, Alison;
Arciuli, Joanne

Publication type:

Article

Actualizing community–academic partnerships in research: a case study on rural perinatal peer support.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00407-0

By:

Hards, April;
Cameron, Audrey;
Sullivan, Eva;
Kornelsen, Jude

Publication type:

Article

Approaches to co-production of research in care homes: a scoping review.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00408-z

By:

Hallam-Bowles, F. V.;
Logan, P. A.;
Timmons, S.;
Robinson, K. R.

Publication type:

Article

Building capacity in quantitative research and data storytelling to enhance knowledge translation: a training curriculum for peer researchers.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00390-6

By:

Lo Hog Tian, Jason M.;
Watson, James R.;
Deyman, Megan;
Tran, Billy;
Kerber, Paul;
Nanami, Kajiko;
Norris, Deborah;
Samson, Kim;
Cioppa, Lynne;
Murphy, Michael;
Mcgee, A.;
Ajiboye, Monisola;
Chambers, Lori A.;
Worthington, Catherine;
Rourke, Sean B.

Publication type:

Article

A Blueprint for Involvement: Reflections of lived experience co-researchers and academic researchers on working collaboratively.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00404-3

By:

The Blueprint Writing Collective;
Fraser, Claire;
Carrington, Bekah;
Crooks, Jodie;
Diffey, James;
Evans, Nicola;
Kirk, Sue;
Lane, Rhiannon;
McGowan, Rose;
Naughton, Georgia;
Pryjmachuk, Steven;
Saund, Keeya;
Temple, Rachel

Publication type:

Article

The role of patient and public involvement in rapid qualitative studies: Can we carry out meaningful PPIE with time pressures?

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00402-5

By:

Gilchrist, Katie;
Iqbal, Syka;
Vindrola-Padros, Cecilia

Publication type:

Article

Developing and testing the ExerciseGuide UK website for people with lung cancer: reflections on the added value of patient and public involvement within a doctoral degree.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00395-1

By:

Curry, Jordan;
Roberts, Helen;
Smith, Alan;
Riley, Diane;
Pearson, Mark;
Forbes, Cynthia C.

Publication type:

Article

Co-creation of new knowledge: Good fortune or good management?

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00394-2

By:

Pearce, Tania;
Maple, Myfanwy;
McKay, Kathy;
Shakeshaft, Anthony;
Wayland, Sarah

Publication type:

Article

'Getting our voices heard in research: a review of peer researcher's roles and experiences on a qualitative study of adult safeguarding policy.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00403-4

By:

Montgomery, Lorna;
Kelly, Berni;
Campbell, Ursula;
Davidson, Gavin;
Gibson, Leanne;
Hughes, Louise;
Menham, Jadzia;
McKendry, Linda;
Newton, Leslie-Anne;
Parkinson, Alex;
Redmond, Ethan;
Turnbull, Joseph;
Webb, Paul;
Wood, Lisamarie

Publication type:

Article

Stakeholder engagement in eight comparative effectiveness trials in African Americans and Latinos with asthma.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00399-x

By:

Dy, Tiffany;
Hamilton, Winifred J.;
Kramer, C. Bradley;
Apter, Andrea;
Krishnan, Jerry A.;
Stout, James W.;
Teach, Stephen J.;
Federman, Alex;
Elder, John;
Bryant-Stephens, Tyra;
Bruhl, Rebecca J.;
Jackson, Shawni;
Sumino, Kaharu

Publication type:

Article

Exploring the "how" in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00400-7

By:

Nguyen, Linda;
van Oort, Bente;
Davis, Hanae;
van der Meulen, Eline;
Dawe-McCord, Claire;
Franklin, Anita;
Gorter, Jan Willem;
Morris, Christopher;
Ketelaar, Marjolijn

Publication type:

Article

Experiences of caregivers of community-dwelling older persons with moderate to advanced dementia in adapting the Namaste Care program: a qualitative descriptive study.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00401-6

By:

Yous, Marie-Lee;
Ploeg, Jenny;
Kaasalainen, Sharon;
McAiney, Carrie

Publication type:

Article

Co-designing person-centred quality indicator implementation for primary care in Alberta: a consensus study.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00397-z

By:

Manalili, Kimberly;
Scott, Catherine M.;
Hemmelgarn, Brenda;
O'Beirne, Maeve;
Bailey, Allan L.;
Haener, Michel K.;
Banerjee, Cyrene;
Peters, Sue P.;
Chiodo, Mirella;
Aghajafari, Fariba;
Santana, Maria J.

Publication type:

Article

Digital participatory workshops with patients and health professionals to develop an intervention for the management of polypharmacy: results from a mixed-methods evaluation and methodological conclusions.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00387-1

By:

Engler, Jennifer;
Brosse, Franziska;
Dinh, Truc Sophia;
Klein, Astrid-Alexandra;
Brueckle, Maria-Sophie;
Petermann, Jenny;
Muth, Christiane;
Mergenthal, Karola;
van den Akker, Marjan;
Voigt, Karen

Publication type:

Article

Stroke survivors partner in research: a case example of collaborative processes.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00386-2

By:

Kwok, Alyson;
Cheung, Deacon;
Gordon, Maysyn;
Mudryk, Evan;
Manns, Patricia J.

Publication type:

Article

Codesigning simulations and analyzing the process to ascertain principles of authentic and meaningful research engagement in childhood disability research.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00398-y

By:

Micsinszki, Samantha K.;
Tanel, Nadia L.;
Kowal, Julia;
King, Gillian;
Menna-Dack, Dolly;
Chu, Angel;
Phoenix, Michelle

Publication type:

Article

Remote working in public involvement: findings from a mixed methods study.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00396-0

By:

Jones, Elisa;
Frith, Lucy;
Gabbay, Mark;
Tahir, Naheed;
Hossain, Muhammad;
Goodall, Mark;
Bristow, Katie;
Hassan, Shaima

Publication type:

Article

A health promotion intervention to address youth violence among students in a technical college in Sri Lanka guided by the participatory action research approach: a study protocol.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00393-3

By:

Rathnayake, Nadeeka;
Abhayasinghe, Kalpani;
De Silva, Jayamal;
Guruge, G. N. Duminda

Publication type:

Article

Patient-identified priorities for successful partnerships in patient-oriented research.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00384-4

By:

Santana, Maria J.;
Duquette, D'Arcy;
Fairie, Paul;
Nielssen, Ingrid;
Bele, Sumedh;
Ahmed, Sadia;
Barbosa, Tiffany;
Zelinsky, Sandra

Publication type:

Article

The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00381-7

By:

Nicholls, Stuart G.;
Fox, Grace;
Monfaredi, Zarah;
Poole, Evelyn;
Garritty, Chantelle;
Maybee, Alies;
Presseau, Justin;
Shea, Beverley;
Fergusson, Dean A.

Publication type:

Article

Development and implementation of an online community as a strategy for mixed methods research during a pandemic.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00383-5

By:

Shea, Lisa;
Bushen, Jennifer;
Ahmad, Nina;
Geonnotti, Gabrielle;
LaMori, Joy;
Terrey, Stephanie;
Gonzalez, Pepa;
Shuman, Jill

Publication type:

Article

Weaving a new blanket together: lessons on compassionate leadership and engagement from a virtual regional summit on early childhood wellness in northern communities of British Columbia, Canada.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00391-5

By:

Koopmans, Erica;
Provencher, Lisa;
Irving, Lauren;
Sanders, Caroline

Publication type:

Article

The experience of patient partners in research: a qualitative systematic review and thematic synthesis.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00388-0

By:

Lauzon-Schnittka, Jonathan;
Audette-Chapdelaine, Sophie;
Boutin, Denis;
Wilhelmy, Catherine;
Auger, Anne-Marie;
Brodeur, Magaly

Publication type:

Article

The realities and expectations of community involvement in COVID-19 research: a Consumer Reference Group perspective.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00389-z

By:

Adams, Claire;
Albert, Paul;
Benson, Tim;
Cordingley, Anne;
Daniels, Barbara;
Fynn, Noreen;
Gurgone, Mary;
Jeffery, Chris;
White, Ann;
Strobel, Natalie

Publication type:

Article

Experienced based co design: nursing preceptorship educational programme.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00385-3

By:

Hardie, Philip;
Murray, Aidan;
Jarvis, Suzi;
Redmond, Catherine;
Co Design Team;
Bough, Ashley;
Bourke, Louise;
Brereton, Siobhan;
Darley, Andrew;
Fahy, Trish;
Fitzgerald, Jade;
Fogarty, Liam;
Gilmartin, Brenda;
Guilfoyle, Caoimhe;
Gilmore, John;
Hennessy, Dawn;
Kazimierowiska, Julia;
Langan, Lisa;
McEvoy, Eoin;
Melbourne, Joy

Publication type:

Article

The views of people living with chronic stroke and aphasia on their potential involvement as research partners: a thematic analysis.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00379-1

By:

Charalambous, Marina;
Kountouri, Alexia;
Phylactou, Phivos;
Triantafyllidou, Ioanna;
Annoni, Jean-Marie;
Kambanaros, Maria

Publication type:

Article

Recognizing patient partner contributions to health research: a mixed methods research protocol.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00354-w

By:

Fox, Grace;
Fergusson, Dean A.;
Nicholls, Stuart G.;
Smith, Maureen;
Stacey, Dawn;
Lalu, Manoj M.

Publication type:

Article

Public Interest Group on Cancer Research: a successful patient–researcher partnership in Newfoundland and Labrador.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00380-8

By:

Savas, Sevtap;
Etchegary, Holly;
Stuckless, Teri;
Whitten, Cindy;
Wiseman, Jason;
Bishop, Derrick;
King, John;
Cutting, Janine;
Peddle, Darrell

Publication type:

Article

Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiences.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00376-4

By:

Chudyk, Anna Maria;
Stoddard, Roger;
McCleary, Nicola;
Duhamel, Todd A.;
Shimmin, Carolyn;
Hickes, Serena;
Schultz, Annette S. H.

Publication type:

Article

Construct validation of the Research Engagement Survey Tool (REST).

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00360-y

By:

Goodman, Melody S.;
Ackermann, Nicole;
Haskell-Craig, Zoé;
Jackson, Sherrill;
Bowen, Deborah J.;
Sanders Thompson, Vetta L.

Publication type:

Article

Co-production: a kind revolution.

Published in:

2022

By:

Staniszewska, Sophie;
Hickey, Gary;
Coutts, Pippa;
Thurman, Ben;
Coldham, Tina

Publication type:

Editorial

Evolution of a research team: the patient partner perspective.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00377-3

By:

Madison, Suzanne;
Colon-Moya, Alex D.;
Morales-Cosme, Wilfredo;
Lorenzi, Margie;
Diaz, Aracelis;
Hickson, Bridget;
Monteiro, Kathy;
Muniz Ruiz, Alexander;
Perez, Addie;
Redondo, Richard;
Reid, Dennis;
Robles, Janet;
Santiago, Marsha;
Thompson, Opal;
Wade, Joyce;
White, Mary;
Castillo, Graciela;
Valenzuela, Cristian

Publication type:

Article

Patient and public involvement in mobile health-based research for hay fever: a qualitative study of patient and public involvement implementation process.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00382-6

By:

Fujio, Kenta;
Inomata, Takenori;
Fujisawa, Kumiko;
Sung, Jaemyoung;
Nakamura, Masahiro;
Iwagami, Masao;
Muto, Kaori;
Ebihara, Nobuyuki;
Okano, Mitsuhiro;
Akasaki, Yasutsugu;
Okumura, Yuichi;
Ide, Takuma;
Nojiri, Shuko;
Nagao, Masashi;
Fujimoto, Keiichi;
Hirosawa, Kunihiko;
Murakami, Akira

Publication type:

Article

Engaging with patients in research on knowledge translation/implementation science methods: a self study.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00375-5

By:

MacLeod, Martha L. P.;
Leese, Jenny;
Garraway, Leana;
Oelke, Nelly D.;
Munro, Sarah;
Bailey, Sacha;
Hoens, Alison M.;
Loo, Sunny;
Valdovinos, Ana;
Wick, Ursula;
Zimmer, Peter;
Li, Linda C.

Publication type:

Article

Developing and testing guidance to support researchers engaging patient partners in health-related research.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00378-2

By:

Finderup, Jeanette;
Buur, Louise Engelbrecht;
Tscherning, Sarah Cecilie;
Jensen, Annesofie Lunde;
Kristensen, Anne Wilhøft;
Petersen, Anne Poder;
Toft, Bente Skovsby;
Rasmussen, Gitte Susanne;
Skovlund, Pernille;
Vedelø, Tina Wang;
Rodkjær, Lotte Ørneborg

Publication type:

Article

Laying the foundations of community engagement in Aboriginal health research: establishing a community reference group and terms of reference in a novel research field.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00365-7

By:

O'Brien, Penny;
Prehn, Ryan;
Rind, Naz;
Lin, Ivan;
Choong, Peter F. M.;
Bessarab, Dawn;
Coffin, Juli;
Mason, Toni;
Dowsey, Michelle M.;
Bunzli, Samantha

Publication type:

Article

Fantastic perspectives and where to find them: involving patients and citizens in digital health research.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00374-6

By:

Osmanlliu, Esli;
Paquette, Jesseca;
Grenier, Annie-Danielle;
Lewis, Paul;
Bouthillier, Marie-Eve;
Bédard, Sylvain;
Pomey, Marie-Pascale

Publication type:

Article

Nothing about us, without us: is for us.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00372-8

By:

Rahman, Aamnah;
Nawaz, Salma;
Khan, Eisha;
Islam, Shahid

Publication type:

Article

Applicability of a national strategy for patient-oriented research to people who use(d) substances: a Canadian experience.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00351-z

By:

Pauly, Bernadette;
Sullivan, Ginger;
Inglis, Dakota;
Cameron, Fred;
Phillips, Jack;
Rosen, Conor;
Bullock, Bill;
Cartwright, Jennifer;
Hainstock, Taylor;
Trytten, Cindy;
Urbanoski, Karen

Publication type:

Article

The codesign of implementation strategies for children's growth assessment guidelines in the dental setting.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00356-8

By:

Villarosa, Amy Ruth;
Maneze, Della;
Ramjan, Lucie Michelle;
Kong, Ariana;
George, Ajesh

Publication type:

Article

Co-designing a cancer care intervention: reflections of participants and a doctoral researcher on roles and contributions.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00373-7

By:

Tanay, Mary Anne Lagmay;
Armes, Jo;
Oakley, Catherine;
Sage, Lesley;
Tanner, Deb;
Roca, Jose;
Bryson, Liz;
Greenall, Barbara;
Urwin, Lauren;
Wyatt, Toni;
Robert, Glenn

Publication type:

Article

Publisher Correction to: Developing guideline-based key performance indicators for recurrent miscarriage care: lessons from a multi-stage consensus process with a diverse stakeholder group.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00355-9

By:

Hennessy, Marita;
Linehan, Laura;
Dennehy, Rebecca;
Devane, Declan;
Rice, Rachel;
Meaney, Sarah;
O'Donoghue, Keelin

Publication type:

Article

Developing guideline-based key performance indicators for recurrent miscarriage care: lessons from a multi-stage consensus process with a diverse stakeholder group.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00355-9

By:

Hennessy, Marita;
Linehan, Laura;
Dennehy, Rebecca;
Devane, Declan;
Rice, Rachel;
Meaney, Sarah;
O'Donoghue, Keelin

Publication type:

Article

Developing catalyst films of health experiences: an analysis of a robust multi-stakeholder involvement journey.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00369-3

By:

Davis, Sarah;
Pandhi, Nancy;
Warren, Barbara;
Grevious, Njeri;
Crowder, Madison;
Ingersoll, Haley;
Perry, Elizabeth;
Sussman, Andrew;
Grob, Rachel

Publication type:

Article

Supporting successful recruitment in a randomized control trial comparing clinic and home-based exercise among adults with multiple sclerosis.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00366-6

By:

Tracy, Tracy Flemming;
Young, Hui-Ju;
Lai, Byron;
Layton, Beverly;
Stokes, Dolly;
Fry, Mark;
Mehta, Tapan;
Riser, Emily S.;
Rimmer, James

Publication type:

Article

Standardised data on initiatives—STARDIT: Beta version.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00363-9

By:

Nunn, Jack S.;
Shafee, Thomas;
Chang, Steven;
Stephens, Richard;
Elliott, Jim;
Oliver, Sandy;
John, Denny;
Smith, Maureen;
Orr, Neil;
Preston, Jennifer;
Borthwick, Josephine;
van Vlijmen, Thijs;
Ansell, James;
Houyez, Francois;
de Sousa, Maria Sharmila Alina;
Plotz, Roan D.;
Oliver, Jessica L.;
Golumbic, Yaela;
Macniven, Rona;
Wines, Samuel

Publication type:

Article

Insights on conducting digital patient and public involvement in dementia research during the COVID-19 pandemic: supporting the development of an "E-nabling digital co-production" framework.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00371-9

By:

Molinari-Ulate, Mauricio;
Woodcock, Rebecca;
Smith, Isabelle;
van der Roest, Henriëtte G.;
Franco-Martín, Manuel A.;
Craven, Michael P.

Publication type:

Article

Bringing the patient voice into the operating room: engaging patients in surgical safety research with the Operating Room Black Box<sup>®</sup>.

Published in:

Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00367-5

By:

Etherington, Cole;
Lê, Maxime;
Proulx, Laurie;
Boet, Sylvain

Publication type:

Article