Works matching IS 13518216 AND DT 2024 AND VI 30 AND IP 6

Results: 27

Assessment of joint health in females with haemophilia: The carriers ultrasound project (CUP) study.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1422, doi. 10.1111/hae.15128

By:

Corrales‐Medina, Fernando F.;
Fraga, Kelli;
D'Almeida Bastos, Maria;
Rafique, Amina;
Kempton, Christine L.;
Vijayvargia, Pooja;
Davis, Joanna A.;
Kronenfeld, Rachel S.

Publication type:

Article

Thirty Years of the Journal Haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1255, doi. 10.1111/hae.15127

By:

Lee, Christine A.

Publication type:

Article

One day at a time: Life with Glanzmann thrombasthenia – Qualitative results from the GT 360 study.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1373, doi. 10.1111/hae.15126

By:

Khair, Kate;
Fletcher, Simon;
Jenner, Kathryn;
Holland, Michael

Publication type:

Article

A core outcome set for prophylaxis and perioperative treatment of von Willebrand disease: The coreVWD initiative.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1357, doi. 10.1111/hae.15122

By:

Clearfield, Elizabeth;
Kim, Benjamin;
Ford, Sarah;
Connell, Nathan T.;
Santaella, Maria E.;
Lavin, Michelle;
Degenaar‐Dujardin, Manon E. L.;
Ayoub, Emily;
Flood, Veronica H.;
Rotellini, Dawn;
Skinner, Mark W.;
James, Paula

Publication type:

Article

The haemophilia joint health score for the assessment of joint health in patients with haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1265, doi. 10.1111/hae.15116

By:

Ay, Cihan;
Mancuso, Maria Elisa;
Matino, Davide;
Strike, Karen;
Pasta, Gianluigi

Publication type:

Article

Assessment of haemophilic joints in a low‐resourced area using clinical tools: The effect of different types of prophylaxis.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1414, doi. 10.1111/hae.15115

By:

Youssry, Ilham;
El‐Taweel, Rania;
Seif, Hadeel;
Sami, Rania;
Okasha, Karim;
Taha, Ebtehal;
Haffar, Assad;
Elhady, Marwa Abd

Publication type:

Article

Performance of instrumental activities of daily living in patients with haemophilic arthropathy. A cross‐sectional cohort study.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1406, doi. 10.1111/hae.15114

By:

Seoane‐Martín, Marta Elisa;
Cuesta‐Barriuso, Rubén;
Rodríguez‐Martínez, María Carmen

Publication type:

Article

Evaluating the impact of the self‐BAT screening tool on patient outcomes: Results of the let's talk period project.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1400, doi. 10.1111/hae.15113

By:

McDonald, Laura;
Grabell, Julie;
Leung, Jennifer;
Hopman, Wilma;
James, Paula

Publication type:

Article

A novel gene editing lexicon strategy for the haemophilia community: Research plan for development and preliminary results.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1272, doi. 10.1111/hae.15108

By:

Hermans, Cedric;
Valentino, Leonard A.;
Thornburg, Courtney D.;
Unzu, Carmen;
Kay, Mark A.;
Peyvandi, Flora;
Smith, Penni;
Miesbach, Wolfgang;
McKeown, William;
Pierce, Glenn F.;
Khair, Kate;
Pipe, Steven W.;
Starcevic, Katarina;
Pillai, Monisha;
Jones, Micheala;
Chiao, Megan;
Antonino, Ilia;
Kessler, Craig

Publication type:

Article

Haemophilia testing of young girls in Canada: Describing the current recommendations for factor level and genetic testing and the experiences of Canadian parents.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1393, doi. 10.1111/hae.15107

By:

Chaigneau, Megan;
Grabell, Julie;
Wijnker, Emil;
Bowman, Mackenzie;
James, Paula

Publication type:

Article

NXT007 does not interfere with the anticoagulant effects on tissue factor pathway inhibitor.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1435, doi. 10.1111/hae.15106

By:

Nakajima, Yuto;
Ogiwara, Kenichi;
Inaba, Keito;
Kitazawa, Takehisa;
Nogami, Keiji

Publication type:

Article

Evaluating the benefits of emicizumab prophylaxis for haemophilia A with inhibitors: A cost‐effectiveness and budget impact analysis in Thailand's upper‐middle income setting.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1288, doi. 10.1111/hae.15105

By:

Kengkla, Kirati;
Wilairat, Preyanate;
Natesirinilkul, Rungrote;
Sosothikul, Darintr;
Phisalprapa, Pochamana;
Saokaew, Surasak

Publication type:

Article

Voices of patients with hemophilia: Life‐changing gene therapy.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1444, doi. 10.1111/hae.15104

By:

Pietu, Genevieve;
Frenzel, Laurent;
Rauch, Antoine;
Chambost, Herve;
Lienhart, Anne;
Giraud, Nicolas;
Dargaud, Yesim

Publication type:

Article

Patient‐reported data on the severity of Von Willebrand disease.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1348, doi. 10.1111/hae.15103

By:

van Kwawegen, Calvin B.;
Fijnvandraat, Karin;
Kruip, Marieke J. H. A.;
de Meris, Joke;
Schols, Saskia E. M.;
Meijer, Karina;
van der Bom, Johanna G.;
Cnossen, Marjon H.;
van Galen, Karin P. M.;
Atiq, Ferdows;
Eikenboom, Jeroen;
Leebeek, Frank W. G.

Publication type:

Article

Women and girls' participation in haemophilia clinical trials.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1440, doi. 10.1111/hae.15101

By:

Fedewa, Stacey A.;
Cafuir, Lorraine;
Valentino, Leonard A.;
Koo, Andee;
Antun, Ana;
Kempton, Christine L.

Publication type:

Article

Development of the World Federation of Hemophilia Shared Decision‐Making Tool.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1298, doi. 10.1111/hae.15100

By:

Coffin, Donna;
Skinner, Mark W.;
Thornburg, Courtney D.;
Hayes, Brendan K.;
Sannié, Thomas;
Kaeser, Gwendolyn E.;
Chadwick, Julia;
Naccache, Mayss;
Pierce, Glenn F.

Publication type:

Article

Low vitamin C status and hypermobility‐related disorders in patients with bleeding disorder of unknown cause.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1366, doi. 10.1111/hae.15099

By:

Leinøe, Eva;
Fridriksdottir, Halla;
Rasmussen, Andreas Ørslev;
Funding, Eva;
Sørensen, Anne Louise Tølbøll;
Kampmann, Peter;
Lykkesfeldt, Jens;
Rossing, Maria

Publication type:

Article

Efficacy and safety of a recombinant von Willebrand factor treatment in acquired von Willebrand syndrome in case of bleeding and surgical procedures.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1341, doi. 10.1111/hae.15098

By:

Desprez, Dominique;
Pierre, Léa;
Hittinger, Xavier;
Babuty, Antoine;
Sattler, Laurent;
Ternisien, Catherine;
Herb, Agathe;
Trossaërt, Marc;
Gérout, Anne‐Cécile;
Fouassier, Marc;
Wimmer, Jordan;
Feugeas, Olivier;
Drillaud, Nicolas

Publication type:

Article

Pathogenesis of osteoarthritis, rheumatoid arthritis, and hemophilic arthropathy: The role of angiogenesis.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1256, doi. 10.1111/hae.15097

By:

Caliogna, Laura;
Berni, Micaela;
Torriani, Camilla;
Mancuso, Maria Elisa;
Di Minno, Matteo Nicola Dario;
Brancato, Alice Maria;
Jannelli, Eugenio;
Mosconi, Mario;
Pasta, Gianluigi

Publication type:

Article

Value contribution of etranacogene dezaparvovec gene therapy in moderately severe and severe haemophilia B through multi‐criteria decision analysis.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1281, doi. 10.1111/hae.15096

By:

García‐Diego, Daniel‐Aníbal;
Badia, Xavier;
Benítez‐Hidalgo, Olga;
Jiménez, Víctor;
Juárez, Juan Carlos;
Núñez, Ramiro;
Poveda, José Luis;
Trillo, José Luis;
Vallés, Joan‐Antoni

Publication type:

Article

We need better health‐related quality‐of‐life data for children with haemophilia in lower‐income countries.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1429, doi. 10.1111/hae.15095

By:

Speckert, Matthew;
Bijelić, Vid;
Simpson, Ewurabena;
Klaassen, Robert J.

Publication type:

Article

Real‐world effectiveness of eptacog beta in patients with haemophilia and inhibitors: A multi‐institutional case series.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1321, doi. 10.1111/hae.15094

By:

Youkhana, Kimberley;
Batsuli, Glaivy;
Acharya, Suchitra;
Khan, Osman;
Tran, Duc Q.;
Dvorak, Andrea;
Recht, Michael;
Young, Guy;
Sidonio, Robert;
Abajas, Yasmina

Publication type:

Article

Democratisation of physiotherapy for people with haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1432, doi. 10.1111/hae.15092

By:

Cruz‐Montecinos, Carlos;
Pérez‐Alenda, Sofía;
Núñez‐Cortés, Rodrigo;
Daffunchio, Carla

Publication type:

Article

Determination of body composition by dual x‐ray absorptiometry in persons with haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1332, doi. 10.1111/hae.15091

By:

Ransmann, Pia;
Brühl, Marius;
Hmida, Jamil;
Goldmann, Georg;
Oldenburg, Johannes;
Strauss, Anna Christina;
Hagedorn, Thorsten;
Schildberg, Frank Alexander;
Hilberg, Thomas;
Strauss, Andreas Christian

Publication type:

Article

Differences and similarities in patient‐reported outcomes among men and women with haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1383, doi. 10.1111/hae.15090

By:

Kempton, Christine L.;
Guasch, Sara A.;
Buckner, Tyler W.;
Mattis, Shanna;
Fedewa, Stacey A.

Publication type:

Article

Development of the coreHEM mental health patient‐reported outcome measure – A novel mental health outlook measure for people with haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1309, doi. 10.1111/hae.15085

By:

Clearfield, Elizabeth;
Chang, Hsing‐Yuan;
Janssen, Ellen M.;
Majid, Tabassum;
Messner, Donna A.;
Coffin, Donna;
Jain, Mohit;
Monahan, Paul E.;
Valentino, Leonard A.;
Witkop, Michelle;
Skinner, Mark W.

Publication type:

Article

Issue Information.

Published in:: Haemophilia, 2024, v. 30, n. 6, p. 1251, doi. 10.1111/hae.14733
Publication type:: Article