Works matching IS 13518216 AND DT 2024 AND VI 30

Results: 216

Assessment of joint health in females with haemophilia: The carriers ultrasound project (CUP) study.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1422, doi. 10.1111/hae.15128

By:

Corrales‐Medina, Fernando F.;
Fraga, Kelli;
D'Almeida Bastos, Maria;
Rafique, Amina;
Kempton, Christine L.;
Vijayvargia, Pooja;
Davis, Joanna A.;
Kronenfeld, Rachel S.

Publication type:

Article

Thirty Years of the Journal Haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1255, doi. 10.1111/hae.15127

By:

Lee, Christine A.

Publication type:

Article

One day at a time: Life with Glanzmann thrombasthenia – Qualitative results from the GT 360 study.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1373, doi. 10.1111/hae.15126

By:

Khair, Kate;
Fletcher, Simon;
Jenner, Kathryn;
Holland, Michael

Publication type:

Article

A core outcome set for prophylaxis and perioperative treatment of von Willebrand disease: The coreVWD initiative.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1357, doi. 10.1111/hae.15122

By:

Clearfield, Elizabeth;
Kim, Benjamin;
Ford, Sarah;
Connell, Nathan T.;
Santaella, Maria E.;
Lavin, Michelle;
Degenaar‐Dujardin, Manon E. L.;
Ayoub, Emily;
Flood, Veronica H.;
Rotellini, Dawn;
Skinner, Mark W.;
James, Paula

Publication type:

Article

The haemophilia joint health score for the assessment of joint health in patients with haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1265, doi. 10.1111/hae.15116

By:

Ay, Cihan;
Mancuso, Maria Elisa;
Matino, Davide;
Strike, Karen;
Pasta, Gianluigi

Publication type:

Article

Assessment of haemophilic joints in a low‐resourced area using clinical tools: The effect of different types of prophylaxis.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1414, doi. 10.1111/hae.15115

By:

Youssry, Ilham;
El‐Taweel, Rania;
Seif, Hadeel;
Sami, Rania;
Okasha, Karim;
Taha, Ebtehal;
Haffar, Assad;
Elhady, Marwa Abd

Publication type:

Article

Performance of instrumental activities of daily living in patients with haemophilic arthropathy. A cross‐sectional cohort study.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1406, doi. 10.1111/hae.15114

By:

Seoane‐Martín, Marta Elisa;
Cuesta‐Barriuso, Rubén;
Rodríguez‐Martínez, María Carmen

Publication type:

Article

Evaluating the impact of the self‐BAT screening tool on patient outcomes: Results of the let's talk period project.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1400, doi. 10.1111/hae.15113

By:

McDonald, Laura;
Grabell, Julie;
Leung, Jennifer;
Hopman, Wilma;
James, Paula

Publication type:

Article

A novel gene editing lexicon strategy for the haemophilia community: Research plan for development and preliminary results.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1272, doi. 10.1111/hae.15108

By:

Hermans, Cedric;
Valentino, Leonard A.;
Thornburg, Courtney D.;
Unzu, Carmen;
Kay, Mark A.;
Peyvandi, Flora;
Smith, Penni;
Miesbach, Wolfgang;
McKeown, William;
Pierce, Glenn F.;
Khair, Kate;
Pipe, Steven W.;
Starcevic, Katarina;
Pillai, Monisha;
Jones, Micheala;
Chiao, Megan;
Antonino, Ilia;
Kessler, Craig

Publication type:

Article

Haemophilia testing of young girls in Canada: Describing the current recommendations for factor level and genetic testing and the experiences of Canadian parents.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1393, doi. 10.1111/hae.15107

By:

Chaigneau, Megan;
Grabell, Julie;
Wijnker, Emil;
Bowman, Mackenzie;
James, Paula

Publication type:

Article

NXT007 does not interfere with the anticoagulant effects on tissue factor pathway inhibitor.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1435, doi. 10.1111/hae.15106

By:

Nakajima, Yuto;
Ogiwara, Kenichi;
Inaba, Keito;
Kitazawa, Takehisa;
Nogami, Keiji

Publication type:

Article

Evaluating the benefits of emicizumab prophylaxis for haemophilia A with inhibitors: A cost‐effectiveness and budget impact analysis in Thailand's upper‐middle income setting.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1288, doi. 10.1111/hae.15105

By:

Kengkla, Kirati;
Wilairat, Preyanate;
Natesirinilkul, Rungrote;
Sosothikul, Darintr;
Phisalprapa, Pochamana;
Saokaew, Surasak

Publication type:

Article

Voices of patients with hemophilia: Life‐changing gene therapy.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1444, doi. 10.1111/hae.15104

By:

Pietu, Genevieve;
Frenzel, Laurent;
Rauch, Antoine;
Chambost, Herve;
Lienhart, Anne;
Giraud, Nicolas;
Dargaud, Yesim

Publication type:

Article

Patient‐reported data on the severity of Von Willebrand disease.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1348, doi. 10.1111/hae.15103

By:

van Kwawegen, Calvin B.;
Fijnvandraat, Karin;
Kruip, Marieke J. H. A.;
de Meris, Joke;
Schols, Saskia E. M.;
Meijer, Karina;
van der Bom, Johanna G.;
Cnossen, Marjon H.;
van Galen, Karin P. M.;
Atiq, Ferdows;
Eikenboom, Jeroen;
Leebeek, Frank W. G.

Publication type:

Article

Women and girls' participation in haemophilia clinical trials.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1440, doi. 10.1111/hae.15101

By:

Fedewa, Stacey A.;
Cafuir, Lorraine;
Valentino, Leonard A.;
Koo, Andee;
Antun, Ana;
Kempton, Christine L.

Publication type:

Article

Development of the World Federation of Hemophilia Shared Decision‐Making Tool.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1298, doi. 10.1111/hae.15100

By:

Coffin, Donna;
Skinner, Mark W.;
Thornburg, Courtney D.;
Hayes, Brendan K.;
Sannié, Thomas;
Kaeser, Gwendolyn E.;
Chadwick, Julia;
Naccache, Mayss;
Pierce, Glenn F.

Publication type:

Article

Low vitamin C status and hypermobility‐related disorders in patients with bleeding disorder of unknown cause.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1366, doi. 10.1111/hae.15099

By:

Leinøe, Eva;
Fridriksdottir, Halla;
Rasmussen, Andreas Ørslev;
Funding, Eva;
Sørensen, Anne Louise Tølbøll;
Kampmann, Peter;
Lykkesfeldt, Jens;
Rossing, Maria

Publication type:

Article

Efficacy and safety of a recombinant von Willebrand factor treatment in acquired von Willebrand syndrome in case of bleeding and surgical procedures.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1341, doi. 10.1111/hae.15098

By:

Desprez, Dominique;
Pierre, Léa;
Hittinger, Xavier;
Babuty, Antoine;
Sattler, Laurent;
Ternisien, Catherine;
Herb, Agathe;
Trossaërt, Marc;
Gérout, Anne‐Cécile;
Fouassier, Marc;
Wimmer, Jordan;
Feugeas, Olivier;
Drillaud, Nicolas

Publication type:

Article

Pathogenesis of osteoarthritis, rheumatoid arthritis, and hemophilic arthropathy: The role of angiogenesis.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1256, doi. 10.1111/hae.15097

By:

Caliogna, Laura;
Berni, Micaela;
Torriani, Camilla;
Mancuso, Maria Elisa;
Di Minno, Matteo Nicola Dario;
Brancato, Alice Maria;
Jannelli, Eugenio;
Mosconi, Mario;
Pasta, Gianluigi

Publication type:

Article

Value contribution of etranacogene dezaparvovec gene therapy in moderately severe and severe haemophilia B through multi‐criteria decision analysis.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1281, doi. 10.1111/hae.15096

By:

García‐Diego, Daniel‐Aníbal;
Badia, Xavier;
Benítez‐Hidalgo, Olga;
Jiménez, Víctor;
Juárez, Juan Carlos;
Núñez, Ramiro;
Poveda, José Luis;
Trillo, José Luis;
Vallés, Joan‐Antoni

Publication type:

Article

We need better health‐related quality‐of‐life data for children with haemophilia in lower‐income countries.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1429, doi. 10.1111/hae.15095

By:

Speckert, Matthew;
Bijelić, Vid;
Simpson, Ewurabena;
Klaassen, Robert J.

Publication type:

Article

Real‐world effectiveness of eptacog beta in patients with haemophilia and inhibitors: A multi‐institutional case series.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1321, doi. 10.1111/hae.15094

By:

Youkhana, Kimberley;
Batsuli, Glaivy;
Acharya, Suchitra;
Khan, Osman;
Tran, Duc Q.;
Dvorak, Andrea;
Recht, Michael;
Young, Guy;
Sidonio, Robert;
Abajas, Yasmina

Publication type:

Article

Democratisation of physiotherapy for people with haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1432, doi. 10.1111/hae.15092

By:

Cruz‐Montecinos, Carlos;
Pérez‐Alenda, Sofía;
Núñez‐Cortés, Rodrigo;
Daffunchio, Carla

Publication type:

Article

Determination of body composition by dual x‐ray absorptiometry in persons with haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1332, doi. 10.1111/hae.15091

By:

Ransmann, Pia;
Brühl, Marius;
Hmida, Jamil;
Goldmann, Georg;
Oldenburg, Johannes;
Strauss, Anna Christina;
Hagedorn, Thorsten;
Schildberg, Frank Alexander;
Hilberg, Thomas;
Strauss, Andreas Christian

Publication type:

Article

Differences and similarities in patient‐reported outcomes among men and women with haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1383, doi. 10.1111/hae.15090

By:

Kempton, Christine L.;
Guasch, Sara A.;
Buckner, Tyler W.;
Mattis, Shanna;
Fedewa, Stacey A.

Publication type:

Article

Development of the coreHEM mental health patient‐reported outcome measure – A novel mental health outlook measure for people with haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 6, p. 1309, doi. 10.1111/hae.15085

By:

Clearfield, Elizabeth;
Chang, Hsing‐Yuan;
Janssen, Ellen M.;
Majid, Tabassum;
Messner, Donna A.;
Coffin, Donna;
Jain, Mohit;
Monahan, Paul E.;
Valentino, Leonard A.;
Witkop, Michelle;
Skinner, Mark W.

Publication type:

Article

Issue Information.

Published in:: Haemophilia, 2024, v. 30, n. 6, p. 1251, doi. 10.1111/hae.14733
Publication type:: Article

Issue Information.

Published in:: Haemophilia, 2024, v. 30, n. 5, p. 1105, doi. 10.1111/hae.15093
Publication type:: Article

Comprehensive laboratory assessment of lonoctocog alfa versus octocog alfa in severe haemophilia A.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1203, doi. 10.1111/hae.15089

By:

Müller, Jens;
Albert, Thilo;
Klein, Claudia;
Horneff, Silvia;
Rühl, Heiko;
Pötzsch, Bernd;
Goldmann, Georg;
Marquardt, Natascha;
Oldenburg, Johannes

Publication type:

Article

Driving improvement of diagnosis and awareness of heavy menstrual bleeding in women among physicians.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1185, doi. 10.1111/hae.15088

By:

Kadir, Rezan Adbul;
Tarawah, Ahmad;
Shridhar, Naveen;
Kulkarni, Roshni

Publication type:

Article

Factor V haemostatic diathesis impairing thrombin activation, membrane binding and circulating antigen level due to a novel compound heterozygous mutation, Leu1821Ser and Gly2192Cys.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1170, doi. 10.1111/hae.15087

By:

Talbot, Kimberley;
Song, Jina;
Perrier, John R.;
Jackson, Shannon;
MacGillivray, Ross T. A.;
Pryzdial, Edward L. G.

Publication type:

Article

Transitioning patients with severe haemophilia A from emicizumab prophylaxis to valoctocogene roxaparvovec gene therapy: Real‐world clinical experience.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1247, doi. 10.1111/hae.15086

By:

Klamroth, Robert;
Gottstein, Saskia

Publication type:

Article

Acute neuromuscular and perceptual responses to blood flow restriction exercise in adults with severe haemophilia: A pilot study.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1193, doi. 10.1111/hae.15084

By:

Ogrezeanu, Daniel C.;
Calatayud, Joaquín;
Rodríguez, Sergi;
Carrasco, Juan J.;
Martinez‐Valdes, Eduardo;
Casaña, José;
Cruz‐Montecinos, Carlos;
Andersen, Lars L.;
Aagaard, Per;
López‐Bueno, Rubén;
Pérez‐Alenda, Sofía

Publication type:

Article

Sexual functioning in men with haemophilia: Data from the haemophilia in the Netherlands‐6 study.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1243, doi. 10.1111/hae.15083

By:

van Gastel, Tessa C. M.;
Teela, Lorynn;
Mauser‐Bunschoten, Evelien P.;
Coppens, Michiel;
Peters, Marjolein;
Fijnvandraat, Karin C. J.;
Haverman, Lotte;
Gouw, Samantha C.

Publication type:

Article

Bioclinical features of haemophilia patients in Benin in 2023: Towards better care.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1210, doi. 10.1111/hae.15082

By:

Baglo, Tatiana;
Zohoun, Alban;
Mohamed, Falilatou Agbeille;
Araba, Ferrelle;
Houssou, Bienvenu;
Anani, Ludovic;
Kindé‐Gazard, Dorothée;
Fall, Awa Touré;
Ryman, Anne;
Gruel, Yves;
Pouplard, Claire

Publication type:

Article

Diagnosis and management of factor XI alloinhibitors in patients with congenital factor XI deficiency—A large single‐centre experience.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1155, doi. 10.1111/hae.15081

By:

Kamel, Kirollos Salah;
Riddell, Anne;
Jradeh, Bilal;
Jaslowska, Ewa;
Gomez, Keith

Publication type:

Article

Application of the PECARN head trauma rule to patients with haemophilia in the paediatric emergency department: A 15‐year retrospective study.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1238, doi. 10.1111/hae.15080

By:

Koppel, Jordanna H.;
Levy‐Mendelovich, Sarina;
Barg, Assaf A.;
Brutman Barazani, Tami;
Baruch, Shoham;
Feldman, Oren

Publication type:

Article

Efficacy of a 1:1 ratio VWF/FVIII concentrate in patients with von Willebrand disease.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1148, doi. 10.1111/hae.15079

By:

Kuppens, Geoffrey Z. L.;
Fischer, Kathelijn;
van Galen, Karin P. M.;
van Beers, Eduard J.;
Van der Valk, Paul R.;
Kremer Hovinga, Idske C. L.;
van Vulpen, Lize F. D.;
Schutgens, Roger E. G.

Publication type:

Article

Review of interventions and effectiveness for heavy menstrual bleeding in women with moderate and severe von Willebrand disease.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1177, doi. 10.1111/hae.15078

By:

Turan, Ozlem;
Gomez, Keith;
Kadir, Rezan Abdul

Publication type:

Article

Multiyear, real‐world, retrospective cohort study using a patient‐centric approach to evaluate the burden of haemophilia B in the United States.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1234, doi. 10.1111/hae.15077

By:

Burton, Arianna;
Chen, Yong;
Patel, Priya;
Alvir, Jose;
Jeng, Darren Kailung;
Kane, Anna Stachel;
Xue, Jiayin;
Cibelli, Emily;
Fogarty, Patrick F.

Publication type:

Article

Evaluation of one‐stage and chromogenic assays for the laboratory measurement of factor VIII activity following valoctocogene roxaparvovec infusion.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1221, doi. 10.1111/hae.15064

By:

Platton, Sean;
Raheja, Priyanka;
Dale, Christopher;
Guy, Susan;
Yartey, Nada;
Bowyer, Annette

Publication type:

Article

Low bleeding rates after intramuscular Covid‐19 vaccination in patients with haemophilia and von Willebrand disease: Outcome data from the Swedish haemophilia registry.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1217, doi. 10.1111/hae.15063

By:

Andersson, Nadine G.;
Brange, Hannes;
Astermark, Jan;
Axelsson, Malin;
Baghaei, Fariba;
Magnusson, Maria;
Olsson, Anna;
Olsson, Elsa;
Ranta, Susanna;
Westesson, Linda Myrin;
Holmström, Margareta

Publication type:

Article

Recombinant FVIII replacement products for haemophilia A: An updated valuation by indirect comparison measuring area under the curve.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1230, doi. 10.1111/hae.15076

By:

Persson, Sofie;
Fridhammar, Adam;
Carlsson, Katarina Steen;
Berntorp, Erik

Publication type:

Article

Emicizumab plasma levels after accelerated saturation in acquired haemophilia A.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1227, doi. 10.1111/hae.15069

By:

Kloeter, Tristan;
Keller, Maren;
Metze, Michael;
Petros, Sirak;
Pfrepper, Christian

Publication type:

Article

A case of bruising and joint hypermobility: The need to consider genetic testing for platelet disorders.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1225, doi. 10.1111/hae.15066

By:

Citla‐Sridhar, Divyaswathi;
Canonigo, Jared;
Crary, Shelley E.

Publication type:

Article

A clinical practice guideline for primary care physiotherapy in patients with haemophilia.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1115, doi. 10.1111/hae.15065

By:

Blokzijl, Johan;
Pisters, Martijn F.;
Aspdahl, Magnus;
de Boer, Wypke;
Dybvik Matlary, Ruth Elise;
Douma‐van Riet, Danielle;
de Kleijn, Piet;
Lobet, Sébastien;
Loughnane, Paula;
McLaughlin, Paul;
Bladen, Melanie;
Roche, Sheila;
Stephensen, David;
van Vlimmeren, Leo;
van Vulpen, Lize F. D.;
Timmer, Merel A.

Publication type:

Article

Real world management of individuals with severe FXI deficiency and its impact on clinical outcomes: Experience from a haemophilia treatment centre.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1164, doi. 10.1111/hae.15075

By:

Wu, S Julia;
Cacciola‐Price, Nicholas J.;
Goldberg, Ilene;
DeSancho, Maria T.

Publication type:

Article

Valoctocogene roxaparvovec gene therapy provides durable haemostatic control for up to 7 years for haemophilia A.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1138, doi. 10.1111/hae.15071

By:

Symington, Emily;
Rangarajan, Savita;
Lester, Will;
Madan, Bella;
Pierce, Glenn F.;
Raheja, Priyanka;
Millar, Carolyn;
Osmond, Dane;
Li, Mingjin;
Robinson, Tara M.

Publication type:

Article

Acquired haemophilia A in Finland: A nationwide study of incidence, treatment and outcomes.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1130, doi. 10.1111/hae.15037

By:

Nummi, Vuokko;
Hiltunen, Leena;
Szanto, Timea;
Poikonen, Eira;
Lehtinen, Anna‐Elina

Publication type:

Article

Moving towards Normalization of haemostasis and health equity: Evolving treatment goals for haemophilia A.

Published in:

Haemophilia, 2024, v. 30, n. 5, p. 1109, doi. 10.1111/hae.15031

By:

Holme, Pål André;
Blatný, Jan;
Chowdary, Pratima;
Lassila, Riitta;
O'Connell, Niamh;
Hermans, Cédric;
Álvarez Román, María Teresa;
Négrier, Claude;
Coppola, Antonio;
Oldenburg, Johannes

Publication type:

Article