Works matching IS 13518216 AND DT 2023 AND VI 29 AND IP 1

Results: 54

Issue Information.

Published in:: Haemophilia, 2023, v. 29, n. 1, p. i, doi. 10.1111/hae.14732
Publication type:: Article

Pharmacokinetic parameters of recombinant factor IX Fc fusion protein are not influenced by factor IX antigen levels in subjects from the Phase 3 B‐LONG trial.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 404, doi. 10.1111/hae.14727

By:

Sidonio, Robert F.;
Casiano, Sandra;
Falk, Aletta;
Altincatal, Arman;
Katragadda, Suresh;
Santagostino, Elena;
Windyga, Jerzy

Publication type:

Article

Treatment of haematuria with factor concentrate in people with haemophilia is associated with low rates of complications.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 401, doi. 10.1111/hae.14726

By:

Dix, Caroline;
Kerr, Madeleine;
McFadyen, James D.;
Tran, Huyen A.

Publication type:

Article

Early changes in bleeding perception and quality of life in children and adolescents receiving emicizumab prophylaxis for severe haemophilia A without inhibitor.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 397, doi. 10.1111/hae.14724

By:

Marro, Marion;
Petit, Audrey Françoise;
Falaise, Céline;
Roche, Martine;
Gensollen, Sophie;
Hezard, Nathalie;
Boucekine, Mohamed;
Auquier, Pascal;
Chambost, Hervé;
Saultier, Paul

Publication type:

Article

Impact of COVID‐19 on professionals and patients in haemophilia care – The perspective from the EAHAD Psychosocial Working Group.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 394, doi. 10.1111/hae.14721

By:

Burgess, Christina;
Buckova, Petra;
Vandenabeele, Karen;
Golan, Gaby;
Rooney, Gloria;
Ortuño, Ana Torres;
Haverman, Lotte

Publication type:

Article

Burden on parents of children with moderate or severe von Willebrand disease: The impact of clinical data.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 390, doi. 10.1111/hae.14718

By:

Westesson, Linda Myrin;
Petrini, Pia;
Grahn, Emma Engman;
Olsson, Anna

Publication type:

Article

Chronic pain in patients with hemophilia: Influence of kinesiophobia and catastrophizing thoughts.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 386, doi. 10.1111/hae.14708

By:

Feldberg, Glenda;
Ricciardi, Janaína B.S.;
Zorzi, Alessandro R.;
Colella, Marina P.;
Yamaguti‐Hayakawa, Gabriela G.;
Ozelo, Margareth C.

Publication type:

Article

Effectiveness of monthly low dose emicizumab prophylaxis without 4‐week loading doses among patients with haemophilia A with and without inhibitors: A case series report.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 382, doi. 10.1111/hae.14707

By:

Chuansumrit, Ampaiwan;
Sirachainan, Nongnuch;
Jaovisidha, Suphaneewan;
Jiravichitchai, Tachit;
Kadegasem, Praguywan;
Kempka, Ketsuda;
Panuwannakorn, Monratta;
Rotchanapanya, Wannaphorn;
Nuntiyakul, Thunyakorn

Publication type:

Article

Gene therapy preferences and informed decision‐making: Results from a National Hemophilia Foundation Community Voices in research survey.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 51, doi. 10.1111/hae.14706

By:

Limjoco, Jacqueline;
Calatroni, Agustin;
Aristizabal, Paula;
Thornburg, Courtney D.

Publication type:

Article

ACTIVLIM‐Hemo: A new self‐reported, unidimensional and linear measure of activity limitations in persons with haemophilia.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 317, doi. 10.1111/hae.14705

By:

Lobet, Sébastien;
Lambert, Catherine;
Foubert, Anthe;
Chantrain, Valérie‐Anne;
Roussel, Nathalie;
Meeus, Mira;
Devos, Ann;
Maes, Philip;
Hermans, Cedric;
Penta, Massimo

Publication type:

Article

Real‐world prophylactic usage of recombinant factor IX Fc in Sweden: A report from the Swedish National Registry for bleeding disorders.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 377, doi. 10.1111/hae.14704

By:

Olsson, Anna;
Westesson, Linda Myrin;
Baghaei, Fariba;
Holmström, Margareta;
Olsson, Elsa;
Magnusson, Maria;
Ranta, Susanna;
Astermark, Jan;
Andersson, Nadine G.;
Thanner, Judith;
Szamosi, Johan;
Daoura, Loudin;
Sennfält, Karin

Publication type:

Article

Emicizumab assays evaluations with four different reagents in severe haemophilia A patients: Concentration from baseline to maintenance therapy.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 374, doi. 10.1111/hae.14703

By:

Launois, Amélie;
De Raucourt, Emmanuelle;
Martin‐Toutain, Isabelle;
Samdjee, Farahna;
Le Dore, Sophie;
Ferre, Emmanuelle;
Flaujac, Claire

Publication type:

Article

Activity and participation in haemophiliacs: Item response modelling based on international classification of functioning, disability and health.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 308, doi. 10.1111/hae.14702

By:

Feng, Chun;
Geng, Bao‐Feng;
Liu, Shou‐Guo;
Jiang, Zhong‐Li;
Lin, Feng

Publication type:

Article

Improving bleeding disorder treatment log adherence: An application of the information‐motivation‐behavioral skills model.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 180, doi. 10.1111/hae.14701

By:

Littner, Lisa;
Thomas, Evan;
Doyle, Julie;
Hendrickson, Julie;
Adkins, Susan;
Mooney, Laura;
Tarango, Cristina

Publication type:

Article

Clinical outcomes of low‐dose pharmacokinetic‐guided extended half‐life versus low‐dose standard half‐life factor VIII concentrate prophylaxis in haemophilia A patients.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 156, doi. 10.1111/hae.14700

By:

Rakmanotham, Arunothai;
Moonla, Chatphatai;
Sosothikul, Darintr

Publication type:

Article

A decreased and less sustained response to surrogates of haemostatic stress correlates with bleeding in type 1 von Willebrand disease.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 370, doi. 10.1111/hae.14699

By:

Kloosterman, Robert;
Zago‐Schmitt, Matteo;
Grabell, Julie;
Thibeault, Lisa;
Chaigneau, Megan;
Hinds, Megan;
Hopman, Wilma;
Bowman, Mackenzie;
Harpell, Lori;
Johri, Amer M.;
Good, David;
James, Paula

Publication type:

Article

Occurrence of familial Mediterranean fever in haemophilia patients.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 165, doi. 10.1111/hae.14698

By:

Kirkiz, Serap;
Kaya, Zühre;
Gönen, Sevim;
Yağcı, Münci;
Koçak, Ülker

Publication type:

Article

Life‐threatening complication of central venous catheter in a child with severe haemophilia A.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 367, doi. 10.1111/hae.14697

By:

Tomaszewska, Natalia;
Strzemecka, Joanna;
Królak, Aleksandra;
Zielezińska, Karolina;
Łaguna, Paweł;
Pająk, Jacek Władysław;
Urasiński, Tomasz;
Ociepa, Tomasz

Publication type:

Article

The detrimental effects of iron to the joint; aggravation by inflammation.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 365, doi. 10.1111/hae.14696

By:

van Vulpen, Lize F. D.;
van Bergen, Eline D. P.;
Pulles, Astrid E.;
Mastbergen, Simon C.

Publication type:

Article

Relationship between serum cartilage turnover biomarkers and haemophilic arthropathy severity in adult patients with severe haemophilia A in China.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 362, doi. 10.1111/hae.14695

By:

Sun, Xueyan;
Zhou, Xuan;
Zhuang, Jinmu;
Qiu, Shiqiu;
Liu, Zhuqin;
Li, Qiang;
Zhang, Yaru;
Li, Yingjia;
Du, Dong;
Sun, Jing

Publication type:

Article

Pregnancy and childbirth in women with bleeding disorders: A retrospective cohort study.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 240, doi. 10.1111/hae.14688

By:

Young, Ashli;
Lim, Ming Y.;
Sanders, Jessica;
Branch, D. Ware;
Simonsen, Sara E.

Publication type:

Article

Harmonizing patient‐reported outcome measurements in inherited bleeding disorders with PROMIS.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 357, doi. 10.1111/hae.14694

By:

van Hoorn, Evelien S.;
Teela, Lorynn;
Kuijlaars, Isolde A. R.;
Fischer, Kathelijn;
Gouw, Samantha C.;
Cnossen, Marjon H.;
Haverman, Lotte

Publication type:

Article

Drug‐associated acquired hemophilia A: an analysis based on 185 cases from the WHO pharmacovigilance database.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 186, doi. 10.1111/hae.14692

By:

Konstantinov, Konstantin;
Dolladille, Charles;
Gillet, Benjamin;
Alexandre, Joachim;
Aouba, Achille;
Deshayes, Samuel;
Repesse, Yohann

Publication type:

Article

Area under the curve: Comparing the value of factor VIII replacement therapies in haemophilia A.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 145, doi. 10.1111/hae.14691

By:

Persson, Sofie;
Berndt, Cecilia;
Engstrand, Sara;
Trinczek, Annegret;
Carlsson, Katarina Steen;
Berntorp, Erik

Publication type:

Article

Proof of concept and feasibility of a blended physiotherapy intervention for persons with haemophilic arthropathy.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 290, doi. 10.1111/hae.14690

By:

Timmer, Merel A.;
Kuijlaars, Isolde A. R.;
Kloek, Corelien;
de Kleijn, Piet;
Schutgens, Roger E. G.;
Veenhof, Cindy;
Pisters, Martijn F.

Publication type:

Article

IDEAL study: A real‐world assessment of pattern of use and clinical outcomes with recombinant coagulation factor IX albumin fusion protein (rIX‐FP) in patients with haemophilia B in Italy.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 135, doi. 10.1111/hae.14689

By:

Tagliaferri, Annarita;
Molinari, Angelo Claudio;
Peyvandi, Flora;
Coppola, Antonio;
Demartis, Francesco;
Biasoli, Chiara;
Borchiellini, Alessandra;
Cultrera, Dorina;
De Cristofaro, Raimondo;
Daniele, Filomena;
Giordano, Paola;
Marchesini, Emanuela;
Margaglione, Maurizio;
Marino, Renato;
Pollio, Berardino;
Radossi, Paolo;
Santoro, Cristina;
Santoro, Rita Carlotta;
Siragusa, Sergio;
Sottilotta, Gianluca

Publication type:

Article

Haemophilia A and B – evaluation of the Swedish prophylactic regimen by magnetic resonance imaging.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 193, doi. 10.1111/hae.14693

By:

Lundin, Björn;
Baghaei, Fariba;
Holmström, Margareta;
Petrini, Pia;
Müller, Gunilla;
Månsson, Sven;
Ljung, Rolf

Publication type:

Article

Hypertension in haemophilia: A meta‐analysis.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 352, doi. 10.1111/hae.14686

By:

Ter‐Zakarian, Anna;
Al Banaa, Kadhim;
Barnes, Richard;
von Drygalski, Annette

Publication type:

Article

Switching to emicizumab: A prospective surveillance study in haemophilia A subjects with inhibitors.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 348, doi. 10.1111/hae.14685

By:

Dubé, Evemie;
Merlen, Clémence;
Bonnefoy, Arnaud;
Pilon, Josie;
Zourikian, Nichan;
Gauthier, Julie;
St‐Louis, Jean;
Rivard, Georges‐Étienne

Publication type:

Article

Safety of FEIBA and emicizumab (SAFE): Dose escalation study evaluating the safety of in vivo administration of activated prothrombin complex concentrate in haemophilia A patients on emicizumab.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 100, doi. 10.1111/hae.14684

By:

Kizilocak, Hande;
Marquez‐Casas, Elizabeth;
Malvar, Jemily;
Young, Guy

Publication type:

Article

180‐degree immersive VR motion visualization in the treatment of haemophilic ankle arthropathy.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 282, doi. 10.1111/hae.14683

By:

Ucero‐Lozano, Roberto;
Pérez‐Llanes, Raúl;
López‐Pina, José Antonio;
Cuesta‐Barriuso, Rubén

Publication type:

Article

Diminished cortical bone density of long bones among children with haemophilic arthropathy.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 274, doi. 10.1111/hae.14682

By:

Tlacuilo‐Parra, Alberto;
Soto‐Padilla, Janet;
Toro‐Castro, Luis;
Gutierrez‐Hermosillo, Violeta;
Guevara‐Gutierrez, Elizabeth

Publication type:

Article

Increased acute care utilisation, comorbidities and mortality in adults with haemophilia: A population‐based cohort study from 2012 to 2019.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 219, doi. 10.1111/hae.14680

By:

Alam, Arafat Ul;
Goodyear, M. Dawn;
Wu, Cynthia;
Sun, Haowei

Publication type:

Article

Emicizumab dose up‐titration in case of suboptimal bleeding control in people with haemophilia A.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 90, doi. 10.1111/hae.14679

By:

Schmitt, Christophe;
Mancuso, Maria Elisa;
Chang, Tiffany;
Podolak‐Dawidziak, Maria;
Petry, Claire;
Sidonio Jr, Robert;
Yoneyama, Koichiro;
Key, Nigel S.;
Niggli, Markus;
Lehle, Michaela;
Peyvandi, Flora;
Oldenburg, Johannes

Publication type:

Article

The effect of a virtual child disease management programme on burden and social adjustment of caregivers of children with coagulation factor deficiencies.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 199, doi. 10.1111/hae.14678

By:

Rambod, Masoume;
Pasyar, Nilofar;
Irannejad Parizi, Fatemeh;
Edraki, Mitra;
Khair, Kate;
von Mackensen, Sylvia

Publication type:

Article

Prophylaxis use of clotting factor replacement products in people with non‐severe haemophilia: A review of the literature.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 33, doi. 10.1111/hae.14676

By:

Iorio, Alfonso;
Königs, Christoph;
Reding, Mark T.;
Rotellini, Dawn;
Skinner, Mark W;
Mancuso, Maria Elisa;
Berntorp, Erik

Publication type:

Article

Association of factor expression levels with annual bleeding rate in people with haemophilia B.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 115, doi. 10.1111/hae.14675

By:

Burke, Tom;
Shaikh, Anum;
Ali, Talaha M.;
Li, Nanxin;
Konkle, Barbara A.;
Noone, Declan;
O'Mahony, Brian;
Pipe, Steven;
O'Hara, Jamie

Publication type:

Article

Liver‐related complications before and after successful treatment of chronic hepatitis C virus infection in people with inherited bleeding disorders.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 106, doi. 10.1111/hae.14668

By:

Isfordink, Cas J.;
van Erpecum, Karel J.;
Fischer, Kathelijn;
van der Valk, Paul R.;
van Vulpen, Lize F. D.;
Schutgens, Roger E. G.;
Arends, Joop E.;
Mauser‐Bunschoten, Evelien P.

Publication type:

Article

Theory of change and strategic priorities of the world federation of haemophilia.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 45, doi. 10.1111/hae.14673

By:

Laliberté, Jennifer;
Coffin, Donna;
Haffar, Assad;
Mekhuzla, Salome;
Pierce, Glenn F.;
Flynn, Barry;
Márquez, Carlos Safadi;
Hermans, Cedric;
Garrido, Cesar;
Baumann, Alain

Publication type:

Article

Accessibility and visibility of genetic testing for haemophilia across Europe: Where do we stand?

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 256, doi. 10.1111/hae.14672

By:

Lannoy, Nathalie;
Hermans, Cedric

Publication type:

Article

Patients with von Willebrand disease in China: Results of an online survey.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 230, doi. 10.1111/hae.14671

By:

Yang, Wen;
Bi, Hui;
Wang, Xiuli;
Yang, Zhichun;
Wang, Yacan;
Tan, Yaxian;
Wang, Honghui;
Xie, Dongmei;
Mu, Hongli;
Yin, Lingmei;
Zhou, Zeping

Publication type:

Article

Methods for anti‐factor VIII antibody levels in haemophilia A patients – validation of a multiplex immunoassay and comparability with assays measuring non‐neutralising and neutralising antibodies (inhibitors).

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 336, doi. 10.1111/hae.14669

By:

Martin, Myriam;
Augustsson, Cecilia;
Lind, Vivian;
Al‐Sabti, Riam;
Lam, My Chi;
Andersson, Nadine G.;
Strandberg, Karin

Publication type:

Article

Applicability of the European Society of Cardiology Guidelines on the management of acute coronary syndromes to older people with haemophilia A – A modified Delphi consensus by the ADVANCE Working Group.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 21, doi. 10.1111/hae.14674

By:

Klamroth, Robert;
Ay, Cihan;
De Moerloose, Philippe;
Fontana, Pierre;
Windyga, Jerzy;
Astermark, Jan;
Berntorp, Erik;
Carvalho, Manuela;
Dolan, Gerard;
Hermans, Cedric;
Holme, Pål Andre;
Kenet, Gili;
Mancuso, Maria Elisa;
Marquardt, Natascha;
Nunez, Ramiro;
Pabinger, Ingrid;
Rodgers, Ryan;
Valk, Paul van der;
Yuste, Victor Jimenez;
Zupan, Irena Preložnik

Publication type:

Article

Peri‐operative hemostatic management of tooth extraction in patients with hemophilia A, with and without inhibitors, receiving emicizumab prophylaxis.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 172, doi. 10.1111/hae.14667

By:

Yagyuu, Takahiro;
Furukawa, Shoko;
Zaizen, Miki;
Yata, Sachiko;
Imada, Mitsuhiko;
Nogami, Keiji;
Kirita, Tadaaki

Publication type:

Article

Endothelial dysfunction and atherosclerosis related miRNA‐expression in patients with haemophilia.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 61, doi. 10.1111/hae.14658

By:

Noone, Stephanie;
Schubert, Ralf;
Fichtlscherer, Stephan;
Hilberg, Thomas;
Alesci, Sonja;
Miesbach, Wolfgang;
Klophaus, Nils;
Wehmeier, Udo F.

Publication type:

Article

Factor IX inhibitors in haemophilia B: A report of National Haemophilia Registry in China.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 123, doi. 10.1111/hae.14665

By:

Dou, Xueqing;
Zhang, Wenhui;
Poon, Man‐Chiu;
Zhang, Xinsheng;
Wu, Runhui;
Feng, Xiaoqin;
Yang, Linhua;
Cheng, Peng;
Chen, Shu;
Wang, Ying;
Zhou, Hu;
Huang, Meijuan;
Song, Yanping;
Jin, Chenghao;
Zhang, Donglei;
Chen, Lingling;
Liu, Wei;
Zhang, Lei;
Xue, Feng;
Yang, Renchi

Publication type:

Article

Emicizumab for the treatment of acquired hemophilia A: Retrospective review of a single‐institution experience.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 84, doi. 10.1111/hae.14664

By:

Chen, Evan C.;
Gibson, William;
Temoczko, Paula;
Connell, Nathan T.;
Handin, Robert;
Parnes, Aric D.

Publication type:

Article

Anti‐idiotype monoclonal antibodies against emicizumab enable accurate procoagulant and anticoagulant assays, irrespective of the test base, in the presence of emicizumab.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 329, doi. 10.1111/hae.14662

By:

Ogiwara, Kenichi;
Furukawa, Shoko;
Shinohara, Sho;
Tabuchi, Yuka;
Arai, Nobuo;
Noguchi‐Sasaki, Mariko;
Soeda, Tetsuhiro;
Shima, Midori;
Nogami, Keiji

Publication type:

Article

The evolution of physiotherapy in the multidisciplinary management of persons with haemophilia (PWH): A scoping review.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 11, doi. 10.1111/hae.14661

By:

Boccalandro, Elena A.;
Begnozzi, Valentina;
Garofalo, Sofia;
Pasca, Samantha;
Peyvandi, Flora

Publication type:

Article

Reinvestigation of unidentified causative variants in FXI‐deficient patients: Focus on gene segment deletions.

Published in:

Haemophilia, 2023, v. 29, n. 1, p. 248, doi. 10.1111/hae.14666

By:

De Mazancourt, Philippe;
Harroche, Annie;
Pouymayou, Katia;
Sigaud, Marianne;
Falaise, Céline;
Stieltjes, Natalie;
Castet, Sabine‐Marie;
Tardy, Brigitte;
Zawadzki, Christophe;
Goudemand, Jenny;
Dargaud, Yesim

Publication type:

Article