Works matching IS 13518216 AND DT 2021 AND VI 27 AND IP 5

Results: 38

Identification of F8 rearrangements in carrier and non‐carrier mothers of haemophilia A patients.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e654, doi. 10.1111/hae.14394

By:

Manderstedt, Eric;
Lind‐Halldén, Christina;
Ljung, Rolf;
Astermark, Jan;
Halldén, Christer

Publication type:

Article

Quality of periprocedural care in patients with von Willebrand disease.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 830, doi. 10.1111/hae.14389

By:

Seaman, Craig D.;
Bertolet, Marnie;
Zhang, Jun;
Ragni, Margaret V.

Publication type:

Article

Quality of life of people with hereditary factor XIII deficiency treated at a reference centre.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e649, doi. 10.1111/hae.14387

By:

Drumond, Adriana;
Camelo, Ricardo Mesquita

Publication type:

Article

Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 769, doi. 10.1111/hae.14383

By:

Witkop, Michelle;
Morgan, George;
O'Hara, Jamie;
Recht, Michael;
Buckner, Tyler W.;
Nugent, Diane;
Curtis, Randall;
O'Mahony, Brian;
Skinner, Mark W.;
Mulhern, Brendan;
Cawson, Matthew;
Ali, Talaha M.;
Sawyer, Eileen K.;
Li, Nanxin

Publication type:

Article

Deep viral metagenomics in patients with haemophilia receiving plasma‐derived coagulation factor concentrates.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e645, doi. 10.1111/hae.14382

By:

Valença, Ian Nunes;
Bezerra, Rafael dos Santos;
de Oliveira, Luciana Correa Oliveira;
Covas, Dimas Tadeu;
Kashima, Simone;
Slavov, Svetoslav Nanev

Publication type:

Article

Changes in pain profile of patients with haemophilia during 1‐year follow‐up.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 783, doi. 10.1111/hae.14380

By:

Krüger, Steffen;
Herzig, Marie;
Hilberg, Thomas

Publication type:

Article

European principles of care for women and girls with inherited bleeding disorders.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 837, doi. 10.1111/hae.14379

By:

van Galen, Karin;
Lavin, Michelle;
Skouw‐Rasmussen, Naja;
Fischer, Kathelijn;
Noone, Declan;
Pollard, Debra;
Mauser‐Bunschoten, Eveline;
Khair, Kate;
Gomez, Keith;
van Loon, Ellen;
Bagot, Catherine N.;
Elfvinge, Petra;
d'Oiron, Roseline;
Abdul‐Kadir, Rezan

Publication type:

Article

An exploration of why men with severe haemophilia might not want gene therapy: The exigency study.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 760, doi. 10.1111/hae.14378

By:

Fletcher, Simon;
Jenner, Kathryn;
Holland, Michael;
Chaplin, Steve;
Khair, Kate

Publication type:

Article

Afibrinogenemia with two compound heterozygous mutations in FGA gene.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e641, doi. 10.1111/hae.14377

By:

Feugray, Guillaume;
Billoir, Paul;
Casini, Alessandro;
Neerman‐Arbez, M.;
Barbay, Virginie;
Chamouni, Pierre;
Schneider, Pascale;
Le Cam Duchez, Véronique

Publication type:

Article

Preoperative bleeding risk assessment with ISTH‐BAT and laboratory tests in patients undergoing elective surgery: A prospective cohort study.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 717, doi. 10.1111/hae.14376

By:

Ambaglio, Chiara;
Zane, Federica;
Russo, Maria Concetta;
Preti, Paola Stefania;
Scudeller, Luigia;
Klersy, Catherine;
Gamba, Gabriella;
Squizzato, Alessandro

Publication type:

Article

A full molecular picture of F8 intron 1 inversion created with optical genome mapping.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e638, doi. 10.1111/hae.14375

By:

Fahiminiya, Somayyeh;
Rivard, Georges‐Etienne;
Scott, Patrick;
Montpetit, Alexandre;
Bacot, François;
St‐Louis, Jean;
Mitchell, Grant A.;
Foulkes, William D.;
Soucy, Jean‐Francois;
Gauthier, Julie

Publication type:

Article

Acquired factor V inhibitor presenting as life threatening bleeding after initiation of apixaban.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e636, doi. 10.1111/hae.14374

By:

Fortuna, Gliceida M. Galarza;
Guerra, Veronica;
Chaaya, Gerard

Publication type:

Article

Validation of the pictorial blood loss assessment chart using modern sanitary products.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e632, doi. 10.1111/hae.14373

By:

Spence, Michaela;
de Repentigny, Kalandra;
Bowman, Mackenzie;
Hopman, Wilma;
Thibeault, Lisa;
James, Paula

Publication type:

Article

Adoption of emicizumab (Hemlibra®) for hemophilia A in Europe: Data from the 2020 European Association for Haemophilia and Allied Disorders survey.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 736, doi. 10.1111/hae.14372

By:

Krumb, Evelien;
Fijnvandraat, Karin;
Makris, Michael;
Peyvandi, Flora;
Ryan, Aislin;
Athanasopoulos, Angelos;
Hermans, Cedric

Publication type:

Article

Intracranial haemorrhage among a population of haemophilic patients in Nepal: Challenges and future direction.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e630, doi. 10.1111/hae.14371

By:

Sharma Poudyal, Bishesh;
Neupane, Niraj;
Neupane, Shila;
Kouides, Peter

Publication type:

Article

Clinical characteristics and prognostic factors of acquired haemophilia A in Korea.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e609, doi. 10.1111/hae.14370

By:

Hyun, Shin Young;
Shin, Ho‐Jin;
Yoon, Sung‐Soo;
Moon, Joon Ho;
Han, Jae Joon;
Yang, Deok‐Hwan;
Lee, Won Sik;
Bang, Soo‐Mee;
Yhim, Ho‐Young;
Kim, Sung‐Hyun;
Oh, Doyeun;
Do, Young Rok;
Park, Yong;
Choi, Chul Won;
Lee, Je‐Hwan;
Jang, Ji Eun;
Kim, Soo‐Jeong;
Hwang, Doh Yu;
Kim, Jin Seok

Publication type:

Article

Factor product utilization and health outcomes in patients with haemophilia A and B on extended half‐life concentrates: A Canadian observational study of real‐world outcomes.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 751, doi. 10.1111/hae.14369

By:

Sun, Haowei;
Yang, Ming;
Poon, Man‐Chiu;
Lee, Adrienne;
Robinson, K. Sue;
Sholzberg, Michelle;
Wu, John;
Iorio, Alfonso;
Blanchette, Victor;
Carcao, Manuel;
Klaassen, Robert J.;
Jackson, Shannon

Publication type:

Article

Quantitative measurements of haemophilic joint tissues by point‐of‐care musculoskeletal ultrasound: Associations with clinical and functional joint outcome parameters.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 866, doi. 10.1111/hae.14368

By:

Mesleh Shayeb, Akram;
Barnes, Richard F.W.;
Hanacek, Cris;
Aguero, Peter;
Steiner, Bruno;
Bailey, Cindy;
Quon, Doris;
Kruse‐Jarres, Rebecca;
von Drygalski, Annette

Publication type:

Article

Reply to: Gene therapy to cure haemophilia: Is robust scientific inquiry the missing factor?

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e628, doi. 10.1111/hae.14367

By:

Winburn, Ian;
Schulz, Martin;
LaRosa, Greg;
Azzouz, Mimoun

Publication type:

Article

Similar sports participation as the general population in Dutch persons with haemophilia; results from a nationwide study.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 876, doi. 10.1111/hae.14366

By:

Versloot, Olav;
van Balen, Erna C.;
Hassan, Shermarke;
Schols, Saskia E.M.;
Leebeek, Frank W.G.;
Eikenboom, Jeroen;
Coppens, Michiel;
van Vulpen, Lize F.D.;
Smit, Cees;
Driessens, Mariëtte H.E.;
van der Net, Janjaap;
Gouw, Samantha C.;
Fischer, Kathelijn

Publication type:

Article

Elective surgery in patients with inherited bleeding disorders: A retrospective analysis.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 744, doi. 10.1111/hae.14365

By:

Clarke, Lisa;
Dennington, Peta M;
Curnow, Jennifer

Publication type:

Article

Converting factor and nonfactor usage into a single metric to facilitate benchmarking the resources consumed for haemophilia care across jurisdictions and over time.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e596, doi. 10.1111/hae.14364

By:

Stonebraker, Jeffrey S.;
O'Mahony, Brian;
Noone, Declan;
Iorio, Alfonso

Publication type:

Article

The effect of emicizumab prophylaxis on long‐term, self‐reported physical health in persons with haemophilia A without factor VIII inhibitors in the HAVEN 3 and HAVEN 4 studies.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 854, doi. 10.1111/hae.14363

By:

Skinner, Mark W.;
Négrier, Claude;
Paz‐Priel, Ido;
Chebon, Sammy;
Jiménez‐Yuste, Victor;
Callaghan, Michael U.;
Lehle, Michaela;
Niggli, Markus;
Mahlangu, Johnny;
Shapiro, Amy;
Shima, Midori;
Campinha‐Bacote, Avrita;
Levy, Gallia G.;
Oldenburg, Johannes;
von Mackensen, Sylvia;
Pipe, Steven W.

Publication type:

Article

Corrigendum.

Published in:: Haemophilia, 2021, v. 27, n. 5, p. 887, doi. 10.1111/hae.14362
Publication type:: Article

What can we expect for adolescents and adults with haemophilia switched to low‐dose prophylaxis from episodic treatment for over 3 years? A real‐world snapshot in China.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e624, doi. 10.1111/hae.14361

By:

Liu, Sha;
Zhang, Ping‐yang;
Jin, Zhi‐bin;
Yuan, Yan‐hui;
Wu, Min;
Zhou, Rong‐fu

Publication type:

Article

Haemophilia Carriers Experience Study (CARES): A mixed method exploration into the experience of women who are carriers of Haemophilia.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 848, doi. 10.1111/hae.14360

By:

Whitaker, Sarah;
Aiston, Helen;
Hung, Wai Tung;
Pink, Ruth;
Mangles, Sarah

Publication type:

Article

Determining the approximate factor VIII level of patients with severe haemophilia A on emicizumab using in vivo global haemostasis assays.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 730, doi. 10.1111/hae.14359

By:

Kizilocak, Hande;
Marquez‐Casas, Elizabeth;
Malvar, Jemily;
Carmona, Roxana;
Young, Guy

Publication type:

Article

Management and outcomes of paediatric patients on emicizumab prophylaxis undergoing surgical procedures: Experience from a large haemophilia centre in the UK.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e620, doi. 10.1111/hae.14358

By:

Hassan, Eman;
Motwani, Jayashree

Publication type:

Article

The B‐Natural study—The outcome of immune tolerance induction therapy in patients with severe haemophilia B.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 802, doi. 10.1111/hae.14357

By:

Astermark, Jan;
Holstein, Katharina;
Abajas, Yasmina L.;
Kearney, Susan;
Croteau, Stacy E.;
Liesner, Riana;
Funding, Eva;
Kempton, Christine L.;
Acharya, Suchitra;
Lethagen, Stefan;
LeBeau, Petra;
Bowen, Joel;
Berntorp, Erik;
Shapiro, Amy D.

Publication type:

Article

Natural anticoagulants: A missing link in mild to moderate bleeding tendencies.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 701, doi. 10.1111/hae.14356

By:

Mehic, Dino;
Colling, Meaghan;
Pabinger, Ingrid;
Gebhart, Johanna

Publication type:

Article

Bleeding phenotype of patients with moderate haemophilia A and B assessed by thromboelastometry and thrombin generation.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 793, doi. 10.1111/hae.14355

By:

Måseide, Ragnhild J.;
Berntorp, Erik;
Nummi, Vuokko;
Lassila, Riitta;
Tjønnfjord, Geir E.;
Holme, Pål A.

Publication type:

Article

Corrigendum.

Published in:: Haemophilia, 2021, v. 27, n. 5, p. 886, doi. 10.1111/hae.14354
Publication type:: Article

Emicizumab prophylaxis in infants with severe haemophilia A without inhibitors: Illustrative real‐world cases to support shared decision‐making.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 724, doi. 10.1111/hae.14353

By:

Mason, Jane A.;
Young, Guy

Publication type:

Article

Monitoring of von Willebrand factor inhibitors in patients with type 3 von Willebrand disease using a quantitative assay.

Published in:: Haemophilia, 2021, v. 27, n. 5, p. 823, doi. 10.1111/hae.14352
Publication type:: Article

A survey on practice of circumcision in children with severe haemophilia in Eastern Mediterranean Region.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. e617, doi. 10.1111/hae.14351

By:

Elalfy, Mohsen Saleh;
Mostafa, Salwa;
Elalfy, Omar Mohsen;
Ghamry, Islam Reda El;
Meabed, Mohamed;
Zafar, Tahira;
Tarawah, Ahmad;
Elekiaby, Magdy

Publication type:

Article

Pharmacokinetic, efficacy and safety evaluation of B‐domain‐deleted recombinant FVIII (SCT800) for prophylactic treatment in adolescent and adult patients with severe haemophilia A.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 814, doi. 10.1111/hae.14350

By:

Xue, Feng;
Zhao, Xielan;
Sun, Jing;
Zeng, Xiaojing;
Yang, Fenge;
Xu, Ming;
Yu, Ziqiang;
Gu, Weiying;
Feng, Ying;
Li, Wenqian;
Zheng, Changcheng;
Bi, Hui;
Xie, Liangzhi;
Gai, Wenlin;
Yang, Renchi

Publication type:

Article

Use of electronic self‐administered bleeding assessment tool in diagnosis of paediatric bleeding disorders.

Published in:

Haemophilia, 2021, v. 27, n. 5, p. 710, doi. 10.1111/hae.14349

By:

Kaur, Dominder;
Kerlin, Bryce A.;
Stanek, Joseph R.;
O'Brien, Sarah H.

Publication type:

Article

Issue Information.

Published in:: Haemophilia, 2021, v. 27, n. 5, p. i, doi. 10.1111/hae.14058
Publication type:: Article