Works matching IS 13518216 AND DT 2020 AND VI 26

Results: 254

Determining meaningful health‐related quality‐of‐life improvement in persons with haemophilia A using the Haemophilia Quality of Life Questionnaire for Adults (Haem‐A‐QoL).
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 1019, doi. 10.1111/hae.14184
By:
- Mackensen, Sylvia;
- Catalani, Olivier;
- Asikanius, Elina;
- Paz‐Priel, Ido;
- Lehle, Michaela;
- Trask, Peter
Publication type:
Article
Patient satisfaction with US Hemophilia Treatment Center Care, Teams and Services: The First National Survey.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 991, doi. 10.1111/hae.14176
By:
- Riske, Brenda;
- Shearer, Rick;
- Baker, Judith R.
Publication type:
Article
Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 1072, doi. 10.1111/hae.14180
By:
- Kuijlaars, Isolde A.R.;
- Net, Janjaap;
- Feldman, Brian M.;
- Aspdahl, Magnus;
- Bladen, Melanie;
- Boer, Wypke;
- Cuesta‐Barriuso, Rubén;
- Matlary, Ruth E.D.;
- Funk, Sharon M.;
- Hilliard, Pamela;
- John, Judy A.;
- Kempton, Christine L.;
- Kleijn, Piet;
- Manco‐Johnson, Marilyn;
- Petrini, Pia;
- Poonnoose, Pradeep;
- St‐Louis, Jean;
- Thomas, Sylvia;
- Timmer, Merel A.;
- Trakymiene, Sonata Saulyte
Publication type:
Article
The challenge of genetically unresolved haemophilia A patients: Interest of the combination of whole F8 gene sequencing and functional assays.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 1056, doi. 10.1111/hae.14179
By:
- Lassalle, Fanny;
- Jourdy, Yohann;
- Jouan, Loubna;
- Swystun, Laura;
- Gauthier, Julie;
- Zawadzki, Christophe;
- Goudemand, Jenny;
- Susen, Sophie;
- Rivard, Georges‐Etienne;
- Lillicrap, David
Publication type:
Article
Quality of electronic treatment records and adherence to prophylaxis in haemophilia and von Willebrand disease: Systematic assessments from an electronic diary.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 999, doi. 10.1111/hae.14178
By:
- Tiede, Andreas;
- Bonanad, Santiago;
- Santamaria, Amparo;
- Goldmann, Georg;
- Canaro, Mariana;
- Palomero, Antonio;
- Frade, Luis J. G.;
- Eduardo Megias‐Vericat, Juan;
- Martinez, Fernanda;
- Garcia Candel, Faustino;
- Jimenez Yuste, Victor;
- Sparber‐Sauer, Monika;
- Halimeh, Susan;
- Adolf, Daniela;
- Hukauf, Martin;
- Reichmann, Jan;
- Oldenburg, Johannes
Publication type:
Article
Effects of Emicizumab on APTT, FVIII assays and FVIII Inhibitor assays using different reagents: Results of a UK NEQAS proficiency testing exercise.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 1087, doi. 10.1111/hae.14177
By:
- Lowe, Anna;
- Kitchen, Steve;
- Jennings, Ian;
- Kitchen, Dianne P.;
- Woods, Tim A. L.;
- Walker, Isobel D.
Publication type:
Article
Health‐related quality of life and caregiver burden of emicizumab in children with haemophilia A and factor VIII inhibitors—Results from the HAVEN 2 study.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 1009, doi. 10.1111/hae.14183
By:
- Mancuso, Maria Elisa;
- Mahlangu, Johnny;
- Sidonio, Robert;
- Trask, Peter;
- Uguen, Marianne;
- Chang, Tiffany;
- Shima, Midori;
- Young, Guy;
- Oldenburg, Johannes;
- Mackensen, Sylvia
Publication type:
Article
Bleeding of unknown cause and unclassified bleeding disorders; diagnosis, pathophysiology and management.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 946, doi. 10.1111/hae.14174
By:
- Thomas, Will;
- Downes, Kate;
- Desborough, Michael J. R.
Publication type:
Article
Management of patients with severe haemophilia a without inhibitors on prophylaxis with emicizumab: AICE recommendations with focus on emergency in collaboration with SIBioC, SIMEU, SIMEUP, SIPMeL and SISET.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 937, doi. 10.1111/hae.14172
By:
- Coppola, Antonio;
- Castaman, Giancarlo;
- Santoro, Rita C.;
- Mancuso, Maria Elisa;
- Franchini, Massimo;
- Marino, Renato;
- Rivolta, Gianna Franca;
- Santoro, Cristina;
- Zanon, Ezio;
- Sciacovelli, Laura;
- Manca, Salvatore;
- Lubrano, Riccardo;
- Golato, Maria;
- Tripodi, Armando;
- Rocino, Angiola;
- Bernardini, Sergio;
- Biasoli, Chiara;
- Borchiellini, Alessandra;
- Cultrera, Dorina;
- De Cristofaro, Raimondo
Publication type:
Article
Cross‐reacting recombinant porcine FVIII inhibitors in patients with acquired haemophilia A.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 1181, doi. 10.1111/hae.14162
By:
- Bowyer, Annette;
- Shepherd, Fiona;
- Platton, Sean;
- Guy, Susan;
- Kitchen, Steve;
- Maclean, Rhona
Publication type:
Article
Low rate of subclinical venous thrombosis in patients with haemophilia undergoing major orthopaedic surgery in the absence of pharmacological thromboprophylaxis.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 1064, doi. 10.1111/hae.14161
By:
- Verstraete, Géraldine;
- Lambert, Catherine;
- Hammer, Frank;
- Hermans, Cedric
Publication type:
Article
Telehealth for delivery of haemophilia comprehensive care during the COVID‐19 pandemic.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 984, doi. 10.1111/hae.14156
By:
- O'Donovan, Mairead;
- Buckley, Catherine;
- Benson, Julie;
- Roche, Sheila;
- McGowan, Mark;
- Parkinson, Laura;
- Byrne, Patricia;
- Rooney, Gloria;
- Bergin, Catherine;
- Walsh, Deirdre;
- Bird, Rachel;
- McGroarty, Feargal;
- Fogarty, Helen;
- Smyth, Elizabeth;
- Ahmed, Saad;
- O'Donnell, James S.;
- Ryan, Kevin;
- O'Mahony, Brian;
- Dougall, Alison;
- O'Connell, Niamh M.
Publication type:
Article
3D gait analysis, haemophilia joint health score, leg muscle laterality and biomarkers of joint damage: A cross‐sectional comparative assessment of haemophilic arthropathy.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e323, doi. 10.1111/hae.14154
By:
- Putz, Peter;
- Durstberger, Sebastian;
- Kaufmann, Christina;
- Klinger, Meike;
- Plessl, Kerstin;
- Rejtö, Judit;
- Widhalm, Klaus;
- Male, Christoph;
- Pabinger, Ingrid
Publication type:
Article
Real‐world data demonstrate improved bleed control and extended dosing intervals for patients with haemophilia B after switching to recombinant factor IX Fc fusion protein (rFIXFc) for up to 5 years.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 975, doi. 10.1111/hae.14152
By:
- Shapiro, Amy;
- Chaudhury, Ateefa;
- Wang, Michael;
- Escobar, Miguel;
- Tsao, Elisa;
- Barnowski, Christopher;
- Feng, Jing;
- Jain, Nisha;
- Quon, Doris V.
Publication type:
Article
Acupuncture as a therapeutic resource for treatment of chronic pain in people with haemophilia.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e315, doi. 10.1111/hae.14151
By:
- Oliveira, Karen Cristina Pires;
- Ricciardi, Janaina Bosso da Silva;
- Grillo, Cassia Maria;
- Montebello, Maria Imaculada de Lima;
- Sato, Jorge Eji;
- Sousa, Maria da Luz Rosário
Publication type:
Article
Treatment of pelvic haemophilic pseudotumour: A retrospective study.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e308, doi. 10.1111/hae.14148
By:
- Zheng, Jianxiong;
- Chen, Keyu;
- Liu, Fei;
- Deng, Yihang;
- Mao, Zexiong;
- Lv, Jiaxin;
- Xu, Yaowen;
- Chen, Bin
Publication type:
Article
Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 966, doi. 10.1111/hae.14144
By:
- Hay, Charles R. M.;
- Shima, Midori;
- Makris, Michael;
- Jiménez‐Yuste, Victor;
- Oldenburg, Johannes;
- Fischer, Kathelijn;
- Iorio, Alfonso;
- Skinner, Mark W.;
- Santagostino, Elena;
- Mackensen, Sylvia;
- Kessler, Craig M.
Publication type:
Article
National registry of haemophilia and other coagulopathies: A multisector initiative in the Colombian Health System.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e254, doi. 10.1111/hae.14138
By:
- Alvis, Luisa Fernanda;
- Sánchez, Patricia;
- Acuña, Lizbeth;
- Escobar, Germán;
- Linares, Adriana;
- Solano, María Helena;
- Robledo, Sergio
Publication type:
Article
Patient and caregiver preferences for haemophilia A treatments: A discrete choice experiment.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e291, doi. 10.1111/hae.14137
By:
- Su, Jun;
- Li, Nanxin;
- Joshi, Namita;
- Ng, Xinyi;
- Botteman, Marc;
- Shah, Rachel;
- Jain, Nisha;
- Lyn, Nicole;
- Preblick, Ronald
Publication type:
Article
Primary prophylaxis was associated with lower arthropathy in Colombian men with haemophilia B: A longitudinal analysis (2015‐2019).
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e282, doi. 10.1111/hae.14136
By:
- Hernández Vargas, Juliana Alexandra;
- Linares, Adriana;
- Solano, María Helena;
- Valbuena, Ana María;
- Acuña, Lizbeth
Publication type:
Article
Initiation of emicizumab prophylaxis in an infant with haemophilia A and subdural haemorrhage.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e353, doi. 10.1111/hae.14133
By:
- Bush, Kelly A.;
- Lucas, Tiffany L.;
- Haley, Kristina M.;
- Thornburg, Courtney D.
Publication type:
Article
Management of previously untreated patients with severe haemophilia A preferentially treated with recombinant factor VIII products: Two French centres' real‐life experience.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e349, doi. 10.1111/hae.14132
By:
- Drillaud, Nicolas;
- Babuty, Antoine;
- Rugeri, Lucia;
- Fouassier, Marc;
- Lienhart, Anne;
- Béné, Marie‐C;
- Lefranc, Carole;
- Ternisien, Catherine;
- Chamouard, Valérie;
- Sigaud, Marianne;
- Pennetier, Martine;
- Trossaërt, Marc;
- Meunier, Sandrine
Publication type:
Article
Gene therapy to cure haemophilia: Is robust scientific inquiry the missing factor?
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 931, doi. 10.1111/hae.14131
By:
- Pierce, Glenn F.;
- Kaczmarek, Radoslaw;
- Noone, Declan;
- O'Mahony, Brian;
- Page, David;
- Skinner, Mark W.
Publication type:
Article
Impact of COVID‐19 pandemic on mental health of patients with inherited bleeding disorders in Germany.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e272, doi. 10.1111/hae.14130
By:
- Mackensen, Sylvia;
- Halimeh, Susan;
- Siebert, Manuela;
- Wermes, Cornelia;
- Hassenpflug, Wolf;
- Holstein, Katharina;
- Olivieri, Martin
Publication type:
Article
Weather changes leading to bleeding in arthropathic joints among individuals with haemophilia: Symptoms of meteoropathy?
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e346, doi. 10.1111/hae.14126
By:
- Fujii, Teruhisa;
- Saito, Seiji;
- Yamasaki, Naoya;
- Fujii, Tomie
Publication type:
Article
Arthroplasty in haemophilia: Double‐edged sword in low/middle‐income countries.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e344, doi. 10.1111/hae.14124
By:
- Sharma Poudyal, Bishesh;
- Marahatta, Suman;
- Solimeno, Luigi;
- Forsyth, Angela;
- Tuladhar, Sampurna;
- Prajapati, Vimal;
- Rayamajhi, Sachita;
- Poudel, Bishal;
- Bajrachrya, Malika;
- Neupane, Samir;
- Rayamajhi, Anuj;
- RC, Dirgha Raj;
- Kouides, Peter
Publication type:
Article
Emerging benefits of Fc fusion technology in the context of recombinant factor VIII replacement therapy.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 958, doi. 10.1111/hae.14123
By:
- Meeks, Shannon L.;
- Lacroix‐Desmazes, Sébastien
Publication type:
Article
Bleeding complications during pregnancy and delivery in haemophilia carriers and their neonates in Western France: An observational study.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 1046, doi. 10.1111/hae.14117
By:
- Nau, Alice;
- Gillet, Benjamin;
- Guillet, Benoît;
- Beurrier, Philippe;
- Ardillon, Laurent;
- Cussac, Vincent;
- Guillou, Sophie;
- Raj, Leela;
- Trossaërt, Marc;
- Horvais, Valérie;
- Bayart, Sophie;
- Potin, Jérôme;
- Rose, Johan;
- Macchi, Laurent;
- Couturaud, Francis;
- Lacut, Karine;
- Pan‐Petesch, Brigitte
Publication type:
Article
Case report of a fatal rectal haemorrhage in a person with severe haemophilia A receiving emicizumab and high‐dose bypassing agents in the HAVEN 1 study.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e340, doi. 10.1111/hae.14110
By:
- Khoo, Liane;
- Matthews, Stephen;
- Kershaw, Geoffrey;
- Pidcock, Michael;
- Phipps, Alex;
- Kiialainen, Anna;
- Chang, Tiffany
Publication type:
Article
Management of haemophilia patients in the COVID‐19 pandemic: Experience in Wuhan and Tianjin, two differently affected cities in China.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 1031, doi. 10.1111/hae.14108
By:
- Zhang, Ai;
- Liu, Wei;
- Poon, Man‐Chiu;
- Liu, Aiguo;
- Luo, Xiaoping;
- Chen, Lingling;
- Hu, Qun;
- Yang, Renchi
Publication type:
Article
Acquired haemophilia A after alemtuzumab therapy.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e337, doi. 10.1111/hae.14107
By:
- Zwan, Marieke;
- Leebeek, Frank W. G.;
- Sandberg, Yorick;
- Kruip, Marieke J. H. A.;
- Hesselink, Dennis A.
Publication type:
Article
Optimal trough levels in haemophilia B: Raising expectations.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e334, doi. 10.1111/hae.14098
By:
- Walsh, Christopher;
- Coppens, Michiel;
- Escobar, Miguel;
- Wang, Michael
Publication type:
Article
Portal vein thrombosis in a patient known for congenital afibrinogenemia.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e331, doi. 10.1111/hae.14092
By:
- Greenblatt, Matthew;
- Cloutier, Stéphanie;
- Lemelin, Valery
Publication type:
Article
Clinical utility of sample preheat treatment in a modified Nijmegen‐Bethesda assay (mNBA) for inhibitor monitoring in congenital and acquired haemophilia A: A single‐centre four‐year experience.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e300, doi. 10.1111/hae.14090
By:
- Gandhi, Tejas;
- Lawler, Pura;
- Foxton, Eleanor;
- Chowdary, Pratima;
- Riddell, Anne
Publication type:
Article
Effect of emicizumab on thrombin generation: A case report of breakthrough bleeding during emicizumab treatment.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e327, doi. 10.1111/hae.14085
By:
- Valke, Lars L. F. G.;
- Beckers, Erik A. M.;
- Blijlevens, Nicole M. A.;
- Heerde, Waander L.;
- Schols, Saskia E. M.
Publication type:
Article
Long‐term safety and sustained efficacy for up to 5 years of treatment with recombinant factor IX Fc fusion protein in subjects with haemophilia B: Results from the B‐YOND extension study.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e262, doi. 10.1111/hae.14036
By:
- Pasi, K. John;
- Fischer, Kathelijn;
- Ragni, Margaret;
- Kulkarni, Roshni;
- Ozelo, Margareth C.;
- Mahlangu, Johnny;
- Shapiro, Amy;
- P'Ng, Stephanie;
- Chambost, Hervé;
- Nolan, Beatrice;
- Bennett, Carolyn;
- Matsushita, Tadashi;
- Winding, Bent;
- Fruebis, Joachim;
- Yuan, Huixing;
- Rudin, Dan;
- Oldenburg, Johannes
Publication type:
Article
A neonate bearing a novel genetic variant within the factor XIII active site presenting with severe umbilical haemorrhage.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. e324, doi. 10.1111/hae.14074
By:
- Strumph, Kaitlin;
- Davila, Jennifer;
- Mitchell, William B.
Publication type:
Article
An international survey to evaluate systemic bevacizumab for chronic bleeding in hereditary haemorrhagic telangiectasia.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 1038, doi. 10.1111/hae.14034
By:
- Al‐Samkari, Hanny;
- Albitar, Hasan A.;
- Olitsky, Scott E.;
- Clancy, Marianne S.;
- Iyer, Vivek N.
Publication type:
Article
Adherence is a human behaviour, assessing it requires multimethod evaluation with validated measures: Comment on Guedes VG et al (2019).
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 934, doi. 10.1111/hae.14022
By:
- Duncan, Natalie A.;
- Kronenberger, William G.;
- Roberson, Christopher P.;
- Janson, Isaac A.;
- Shapiro, Amy D.
Publication type:
Article
Issue Information.
Published in:
Haemophilia, 2020, v. 26, n. 6, p. 925, doi. 10.1111/hae.13798
Publication type:
Article
Growing success and ambitions of the Chinese edition of Haemophilia.
Published in:
Haemophilia, 2020, v. 26, n. 5, p. 750, doi. 10.1111/hae.14164
By:
- Hermans, Cedric;
- Yang, Renchi
Publication type:
Article
Identification of new F8 deep intronic variations in patients with haemophilia A.
Published in:
Haemophilia, 2020, v. 26, n. 5, p. 847, doi. 10.1111/hae.14134
By:
- Dericquebourg, Amy;
- Jourdy, Yohann;
- Fretigny, Mathilde;
- Lienhart, Anne;
- Claeyssens, Ségolène;
- Ternisien, Catherine;
- Boisseau, Pierre;
- Rohrlich, Pierre‐Simon;
- Négrier, Claude;
- Vinciguerra, Christine
Publication type:
Article
Paediatric patients with blood‐induced ankle joint arthritis demonstrate physiological foot joint mechanics and energetics during walking.
Published in:
Haemophilia, 2020, v. 26, n. 5, p. 907, doi. 10.1111/hae.14128
By:
- Tijskens, Dorien;
- Lobet, Sébastien;
- Eerdekens, Maarten;
- Peerlinck, Kathelijne;
- Hermans, Cédric;
- Van Damme, An;
- Staes, Filip;
- Deschamps, Kevin
Publication type:
Article
Low bone mass and hypovitaminosis D in haemophilia: A single‐centre study in patients with severe and moderate haemophilia A and B.
Published in:
Haemophilia, 2020, v. 26, n. 5, p. 898, doi. 10.1111/hae.14127
By:
- Linari, Silvia;
- Melchiorre, Daniela;
- Pieri, Lisa;
- Tofani, Lorenzo;
- Fanelli, Alessandra;
- Brogi, Marco;
- Castaman, Giancarlo
Publication type:
Article
Haemostatic efficacy of single‐dose factor administration in neonates with severe haemophilia undergoing circumcision.
Published in:
Haemophilia, 2020, v. 26, n. 5, p. 786, doi. 10.1111/hae.14122
By:
- Swaminathan, Neeraja;
- Thatcher, Collin;
- Staber, Janice M.
Publication type:
Article
Illness cognitions associated with health‐related quality of life in young adult men with haemophilia.
Published in:
Haemophilia, 2020, v. 26, n. 5, p. 793, doi. 10.1111/hae.14120
By:
- Limperg, Perrine F.;
- Maurice‐Stam, Heleen;
- Heesterbeek, Madelief R.;
- Peters, Marjolein;
- Coppens, Michiel;
- Kruip, Marieke J. H. A.;
- Eikenboom, Jeroen;
- Grootenhuis, Martha A.;
- Haverman, Lotte
Publication type:
Article
Comparing clotting factors attributes across different methods of preference elicitation in haemophilia patients.
Published in:
Haemophilia, 2020, v. 26, n. 5, p. 817, doi. 10.1111/hae.14119
By:
- Tegenge, Million A.;
- Belov, Artur;
- Moncur, Megan;
- Forshee, Richard;
- Irony, Telba
Publication type:
Article
Complications of total knee arthroplasty in patients with haemophilia compared with osteoarthritis and rheumatoid arthritis: A 20‐year single‐surgeon cohort.
Published in:
Haemophilia, 2020, v. 26, n. 5, p. 861, doi. 10.1111/hae.14115
By:
- Li, Zeng;
- Feng, Bin;
- Du, Yan;
- Wang, Yingjie;
- Bian, Yanyan;
- Weng, Xisheng
Publication type:
Article
Joint health and treatment modalities in Nordic patients with moderate haemophilia A and B – The MoHem study.
Published in:
Haemophilia, 2020, v. 26, n. 5, p. 891, doi. 10.1111/hae.14114
By:
- Måseide, Ragnhild J.;
- Berntorp, Erik;
- Astermark, Jan;
- Olsson, Anna;
- Bruzelius, Maria;
- Frisk, Tony;
- Nummi, Vuokko;
- Lassila, Riitta;
- Tjønnfjord, Geir E.;
- Holme, Pål A.
Publication type:
Article
Early wound complications after orthopaedic surgery for haemophilia: What can we do more.
Published in:
Haemophilia, 2020, v. 26, n. 5, p. 882, doi. 10.1111/hae.14113
By:
- Feng, Bin;
- Li, Zeng;
- Feng, Cheng;
- Zeng, Ang;
- Gao, Peng;
- Liu, Yong;
- Weng, Xisheng
Publication type:
Article