Works matching Hemophilia

Results: 5000
    1

    European principles of inhibitor management in patients with haemophilia.

    Published in:
    2018
    By:
    • Giangrande, P. L. F.;
    • Hermans, C.;
    • O'Mahony, B.;
    • de Kleijn, P.;
    • Bedford, M.;
    • Batorova, A.;
    • Blatný, J.;
    • Jansone, K.;
    • on behalf of the European Haemophilia Consortium (EHC) and the European Association for Haemophilia and Allied Disorders (EAHAD);
    • European Haemophilia Consortium (EHC) and the European Association for Haemophilia and Allied Disorders (EAHAD)
    Publication type:
    journal article
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    Principles of haemophilia care: The Asia‐Pacific perspective.

    Published in:
    Haemophilia, 2018, v. 24, n. 3, p. 366, doi. 10.1111/hae.13425
    By:
    • the Asia‐Pacific Haemophilia Working Group (APHWG);
    • Dunkley, S.;
    • Srivastava, A.;
    • Lam, J. C. M.;
    • John, M. J.;
    • Wong, R. S. M.;
    • Tran, H.;
    • Yang, R.;
    • Nair, S. C.;
    • Shima, M.;
    • Street, A.
    Publication type:
    Article
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    Hämophilie-Behandlung in Österreich.

    Published in:
    Wiener Klinische Wochenschrift, 2024, v. 136, p. 75, doi. 10.1007/s00508-024-02370-0
    By:
    • Male, Christoph;
    • Ay, Cihan;
    • Crevenna, Richard;
    • Eichinger, Sabine;
    • Feistritzer, Clemens;
    • Füller, Robert;
    • Haushofer, Alexander;
    • Kurringer, Andreas;
    • Neumeister, Peter;
    • Puchner, Stephan;
    • Rettl, Thomas;
    • Schindl, Thomas;
    • Schuster, Gerhard;
    • Schwarz, Gerhard;
    • Sohm, Michael;
    • Streif, Werner;
    • Thom, Katharina;
    • Wagner, Barbara;
    • Wissmann, Eva;
    • Zwiauer, Karl
    Publication type:
    Article
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    European principles of inhibitor management in patients with haemophilia: implications of new treatment options.

    Published in:
    2020
    By:
    • Hermans, C.;
    • Giangrande, P. L. F.;
    • O'Mahony, B.;
    • de Kleijn, P.;
    • Bedford, M.;
    • Batorova, A.;
    • Blatný, J.;
    • Jansone, K.;
    • on behalf of the European Haemophilia Consortium (EHC) and the European Association for Haemophilia and Allied Disorders (EAHAD);
    • Astermark, J.;
    • Crato, M.;
    • d'Oiron, R.;
    • Dougall, A.;
    • Fijnvandraat, K.;
    • Grønhaug, S.;
    • Jiménez-Yuste, V.;
    • Jokić, M.;
    • Lobet, S.;
    • Nolan, B.;
    • Peyvandi, F.
    Publication type:
    Letter
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    Bleeding pattern and consumption of factor VIII concentrate in adult patients with haemophilia A without inhibitors in the Czech Republic between 2013 and 2021 (Czech National Haemophilia Programme registry data).

    Published in:
    Annals of Hematology, 2023, v. 102, n. 11, p. 3261, doi. 10.1007/s00277-023-05453-6
    By:
    • Romanová, Gabriela;
    • Smejkal, Petr;
    • Ovesná, Petra;
    • Drbohlavová, Eva;
    • Dulíček, Petr;
    • Hajšmanová, Zdeňka;
    • Hluší, Antonín;
    • Hrdličková, Radka;
    • Ullrychová, Jana;
    • Vonke, Ivan;
    • Blatný, Jan;
    • Čermáková, Zuzana;
    • Zápotocká, Ester;
    • Penka, Miroslav
    Publication type:
    Article
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    Intracranial haemorrhage in children and adolescents with severe haemophilia A or B - the impact of prophylactic treatment.

    Published in:
    British Journal of Haematology, 2017, v. 179, n. 2, p. 298, doi. 10.1111/bjh.14844
    By:
    • Andersson, Nadine G.;
    • Auerswald, Günter;
    • Barnes, Chris;
    • Carcao, Manuel;
    • Dunn, Amy L.;
    • Fijnvandraat, Karin;
    • Hoffmann, Marianne;
    • Kavakli, Kaan;
    • Kenet, Gili;
    • Kobelt, Rainer;
    • Kurnik, Karin;
    • Liesner, Ri;
    • Mäkipernaa, Anne;
    • Manco‐Johnson, Marilyn J.;
    • Mancuso, Maria E.;
    • Molinari, Angelo C.;
    • Nolan, Beatrice;
    • Perez Garrido, Rosario;
    • Petrini, Pia;
    • Platokouki, Helen E.
    Publication type:
    Article
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    Canadian clinical experience on switching from standard half‐life recombinant factor VIII (rFVIII), octocog alfa, to extended half‐life rFVIII, damoctocog alfa pegol, in persons with haemophilia A ≥ 12 years followed in a Comprehensive Hemophilia Care Program in Canada

    Published in:
    Haemophilia, 2024, v. 30, n. 2, p. 345, doi. 10.1111/hae.14960
    By:
    • Matino, Davide;
    • Germini, Federico;
    • Chan, Anthony K. C.;
    • Decker, Kay;
    • Iserman, Emma;
    • Chelle, Pierre;
    • Edginton, Andrea N.;
    • Oladoyinbo, Olayide;
    • Trinari, Elisabetta;
    • Keepanasseril, Arun;
    • Iorio, Alfonso
    Publication type:
    Article
    28

    The value‐based healthcare approach to haemophilia: Development of outcome measures for the evaluation of care of people with haemophilia.

    Published in:
    Haemophilia, 2024, v. 30, n. 2, p. 437, doi. 10.1111/hae.14943
    By:
    • Cortesi, Paolo Angelo;
    • Fornari, Carla;
    • Conti, Sara;
    • Pollio, Berardino;
    • Boccalandro, Elena;
    • Buzzi, Andrea;
    • Carulli, Christian;
    • Coppola, Antonio;
    • De Cristofaro, Raimondo;
    • Di Minno, Matteo Nicola Dario;
    • Dolan, Gerard;
    • Ferri Grazzi, Enrico;
    • Fornari, Arianna;
    • Gualtierotti, Roberta;
    • Hermans, Cedric;
    • Jiménez‐Juste, Victor;
    • Kenet, Gili;
    • Lupi, Angelo;
    • Martinoli, Carlo;
    • Mansueto, Maria Francesca
    Publication type:
    Article
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    Impact of mild to severe hemophilia on engagement in recreational activities by US men, women, and children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.

    Published in:
    European Journal of Haematology, 2017, v. 98, p. 25, doi. 10.1111/ejh.12852
    By:
    • Baumann, Kimberly;
    • Hernandez, Grace;
    • Witkop, Michelle;
    • Peltier, Skye;
    • Dunn, Spencer;
    • Cutter, Susan;
    • Frick, Neil;
    • Haugstad, Kimberly;
    • Guelcher, Christine;
    • Frey, Mary Jane;
    • Rotellini, Dawn;
    • Clark, David B.;
    • Iyer, Neeraj N.;
    • Cooper, David L.
    Publication type:
    Article
    32

    Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B- HERO-S) study.

    Published in:
    European Journal of Haematology, 2017, v. 98, p. 5, doi. 10.1111/ejh.12854
    By:
    • Buckner, Tyler W.;
    • Witkop, Michelle;
    • Guelcher, Christine;
    • Frey, Mary Jane;
    • Hunter, Susan;
    • Peltier, Skye;
    • Recht, Michael;
    • Walsh, Christopher;
    • Kessler, Craig M.;
    • Owens, Wendy;
    • Clark, David B.;
    • Frick, Neil;
    • Rice, Michelle;
    • Iyer, Neeraj N.;
    • Holot, Natalia;
    • Cooper, David L.;
    • Sidonio, Robert
    Publication type:
    Article
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    Clinical conditions and risk factors for inhibitor‐development in patients with haemophilia: A decade‐long prospective cohort study in Japan, J‐HIS2 (Japan Hemophilia Inhibitor Study 2).

    Published in:
    Haemophilia, 2022, v. 28, n. 5, p. 745, doi. 10.1111/hae.14602
    By:
    • Nogami, Keiji;
    • Taki, Masashi;
    • Matsushita, Tadashi;
    • Kojima, Tetsuhito;
    • Oka, Toshiaki;
    • Ohga, Shouichi;
    • Kawakami, Kiyoshi;
    • Sakai, Michio;
    • Suzuki, Takashi;
    • Higasa, Satoshi;
    • Horikoshi, Yasuo;
    • Shinozawa, Keiko;
    • Tamura, Shogo;
    • Yada, Koji;
    • Imaizumi, Masue;
    • Ohtsuka, Yoshitoshi;
    • Iwasaki, Fuminori;
    • Kobayashi, Masao;
    • Takamatsu, Junki;
    • Takedani, Hideyuki
    Publication type:
    Article
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