Works matching DE "SICKNESS Impact Profile"


Results: 367
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    Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in Europe.

    Published in:
    2016
    By:
    • Angelis, Aris;
    • Kanavos, Panos;
    • López-Bastida, Julio;
    • Linertová, Renata;
    • Oliva-Moreno, Juan;
    • Serrano-Aguilar, Pedro;
    • Posada-de-la-Paz, Manuel;
    • Taruscio, Domenica;
    • Schieppati, Arrigo;
    • Iskrov, Georgi;
    • Brodszky, Valentin;
    • Schulenburg, Johann;
    • Chevreul, Karine;
    • Persson, Ulf;
    • Fattore, Giovanni;
    • von der Schulenburg, Johann Matthias Graf;
    • BURQOL-RD Research Network
    Publication type:
    journal article
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    Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe.

    Published in:
    2016
    By:
    • Chevreul, Karine;
    • Michel, Morgane;
    • Brigham, Karen;
    • López-Bastida, Julio;
    • Linertová, Renata;
    • Oliva-Moreno, Juan;
    • Serrano-Aguilar, Pedro;
    • Posada-de-la-Paz, Manuel;
    • Taruscio, Domenica;
    • Schieppati, Arrigo;
    • Iskrov, Georgi;
    • Péntek, Márta;
    • Schulenburg, Johann;
    • Kanavos, Panos;
    • Persson, Ulf;
    • Fattore, Giovani;
    • Brigham, Karen Berg;
    • von der Schulenburg, Johann Matthias Graf;
    • BURQOL-RD Research Network
    Publication type:
    journal article
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    Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe.

    Published in:
    2016
    By:
    • Cavazza, Marianna;
    • Kodra, Yllka;
    • Armeni, Patrizio;
    • Santis, Marta;
    • López-Bastida, Julio;
    • Linertová, Renata;
    • Oliva-Moreno, Juan;
    • Serrano-Aguilar, Pedro;
    • Posada-de-la-Paz, Manuel;
    • Taruscio, Domenica;
    • Schieppati, Arrigo;
    • Iskrov, Georgi;
    • Péntek, Márta;
    • Schulenburg, Johann;
    • Kanavos, Panos;
    • Chevreul, Karine;
    • Persson, Ulf;
    • Fattore, Giovanni;
    • De Santis, Marta;
    • von der Schulenburg, Johann Matthias Graf
    Publication type:
    journal article
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    Social/economic costs and quality of life in patients with haemophilia in Europe.

    Published in:
    2016
    By:
    • Cavazza, Marianna;
    • Kodra, Yllka;
    • Armeni, Patrizio;
    • De Santis, Marta;
    • López-Bastida, Julio;
    • Linertová, Renata;
    • Oliva-Moreno, Juan;
    • Serrano-Aguilar, Pedro;
    • Posada-de-la-Paz, Manuel;
    • Taruscio, Domenica;
    • Schieppati, Arrigo;
    • Iskrov, Georgi;
    • Gulácsi, László;
    • Schulenburg, Johann;
    • Kanavos, Panos;
    • Chevreul, Karine;
    • Persson, Ulf;
    • Fattore, Giovanni;
    • von der Schulenburg, Johann Matthias Graf;
    • BURQOL-RD Research Network
    Publication type:
    journal article
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    Social/economic costs and health-related quality of life in patients with fragile X syndrome in Europe.

    Published in:
    2016
    By:
    • Chevreul, Karine;
    • Gandré, Coralie;
    • Brigham, Karen;
    • López-Bastida, Julio;
    • Linertová, Renata;
    • Oliva-Moreno, Juan;
    • Serrano-Aguilar, Pedro;
    • Posada-de-la-Paz, Manuel;
    • Taruscio, Domenica;
    • Schieppati, Arrigo;
    • Iskrov, Georgi;
    • Gulácsi, László;
    • Schulenburg, Johann;
    • Kanavos, Panos;
    • Persson, Ulf;
    • Fattore, Giovani;
    • Brigham, Karen Berg;
    • von der Schulenburg, Johann Matthias Graf;
    • BURQOL-RD Research Network
    Publication type:
    journal article
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    Social/economic costs and health-related quality of life of mucopolysaccharidosis patients and their caregivers in Europe.

    Published in:
    2016
    By:
    • Péntek, Márta;
    • Gulácsi, László;
    • Brodszky, Valentin;
    • Baji, Petra;
    • Boncz, Imre;
    • Pogány, Gábor;
    • López-Bastida, Julio;
    • Linertová, Renata;
    • Oliva-Moreno, Juan;
    • Serrano-Aguilar, Pedro;
    • Posada-de-la-Paz, Manuel;
    • Taruscio, Domenica;
    • Iskrov, Georgi;
    • Schieppati, Arrigo;
    • Schulenburg, Johann;
    • Kanavos, Panos;
    • Chevreul, Karine;
    • Persson, Ulf;
    • Fattore, Giovanni;
    • von der Schulenburg, Johann Matthias Graf
    Publication type:
    journal article
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    Social/economic costs and health-related quality of life in patients with scleroderma in Europe.

    Published in:
    2016
    By:
    • López-Bastida, Julio;
    • Linertová, Renata;
    • Oliva-Moreno, Juan;
    • Serrano-Aguilar, Pedro;
    • Posada-de-la-Paz, Manuel;
    • Kanavos, Panos;
    • Taruscio, Domenica;
    • Schieppati, Arrigo;
    • Iskrov, Georgi;
    • Péntek, Márta;
    • Delgado, Claudia;
    • Schulenburg, Johann;
    • Persson, Ulf;
    • Chevreul, Karine;
    • Fattore, Giovanni;
    • von der Schulenburg, Johann Mathias;
    • BURQOL-RD Research Network
    Publication type:
    journal article
    12

    Social/economic costs and health-related quality of life in patients with histiocytosis in Europe.

    Published in:
    2016
    By:
    • Iskrov, Georgi;
    • Astigarraga, Itziar;
    • Stefanov, Rumen;
    • López-Bastida, Julio;
    • Linertová, Renata;
    • Oliva-Moreno, Juan;
    • Serrano-Aguilar, Pedro;
    • Posada-de-la-Paz, Manuel;
    • Schieppati, Arrigo;
    • Taruscio, Domenica;
    • Péntek, Márta;
    • Schulenburg, Johann;
    • Kanavos, Panos;
    • Chevreul, Karine;
    • Persson, Ulf;
    • Fattore, Giovanni;
    • von der Schulenburg, Johann Matthias Graf;
    • BURQOL-RD Research Network
    Publication type:
    journal article
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    QUALIDADE DE VIDA DOS PORTADORES DE DOENÇA FALCIFORME.

    Published in:
    Journal of Nursing UFPE / Revista de Enfermagem UFPE, 2019, v. 13, n. 2, p. 424, doi. 10.5205/1981-8963-v13i2a237424p424-430-2019
    By:
    • Leão Lima, Kamila Tuany Lacerda;
    • Ferreira Pereira, João Otávio;
    • de Melo Reis, Paulo Roberto;
    • Correia de Alcântara, Keila;
    • Melo Rodrigues, Flávia
    Publication type:
    Article
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