Works matching DE "PATIENTS' associations"

Results: 105

A systematic review and secondary analysis of two studies identifying demographic and medical characteristics determining patient-centeredness in endometriosis care as experienced by patients.

Published in:

Human Reproduction Open, 2020, v. 2020, n. 3, p. 1, doi. 10.1093/hropen/hoaa041

By:

Schreurs, A M F;
Dancet, E A F;
Apers, S;
Wijsard, M van Hoefen;
Kuchenbecker, W K H;
Ven, P M van de;
Lambalk, C B;
Nelen, W L D M;
Houwen, L E E van der;
Mijatovic, V

Publication type:

Article

Disease-specific clinical trials networks: the example of cystic fibrosis.

Published in:

2016

By:

Boeck, Kris;
Bulteel, Veerle;
Fajac, Isabelle;
De Boeck, Kris

Publication type:

journal article

Consumers taking charge.

Published in:

Journal of Pharmaceutical Health Services Research, 2012, v. 3, n. 3, p. 127, doi. 10.1111/j.1759-8893.2012.00094.x

By:

Wertheimer, Albert I.

Publication type:

Article

The alliance between genetic biobanks and patient organisations: the experience of the telethon network of genetic biobanks.

Published in:

Orphanet Journal of Rare Diseases, 2016, v. 11, p. 1, doi. 10.1186/s13023-016-0527-7

By:

Baldo, Chiara;
Casareto, Lorena;
Renieri, Alessandra;
Merla, Giuseppe;
Garavaglia, Barbara;
Goldwurm, Stefano;
Pegoraro, Elena;
Moggio, Maurizio;
Mora, Marina;
Politano, Luisa;
Sangiorgi, Luca;
Mazzotti, Raffaella;
Viotti, Valeria;
Meloni, Ilaria;
Pellico, Maria Teresa;
Barzaghi, Chiara;
Wang, Chiuhui Mary;
Monaco, Lucia;
Filocamo, Mirella

Publication type:

Article

Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks.

Published in:

2016

By:

Hollak, Carla E. M.;
Biegstraaten, Marieke;
Baumgartner, Matthias R.;
Belmatoug, Nadia;
Bembi, Bruno;
Bosch, Annet;
Brouwers, Martijn;
Dekker, Hanka;
Dobbelaere, Dries;
Engelen, Marc;
Groenendijk, Marike C.;
Lachmann, Robin;
Langendonk, Janneke G.;
Langeveld, Mirjam;
Linthorst, Gabor;
Morava, Eva;
Bwee Tien Poll-The;
Rahman, Shamima;
Rubio-Gozalbo, M. Estela;
Spiekerkoetter, Ute

Publication type:

journal article

The involvement of patient organisations in rare disease research: a mixed methods study in Australia.

Published in:

2016

By:

Pinto, Deirdre;
Martin, Dominique;
Chenhall, Richard

Publication type:

journal article

Patientorganisationer i Danmark og Norge: Karakteristika og strategier for interessevaretagelse.

Published in:

Politica: Tidsskrift for Politisk Videnskab, 2010, v. 42, n. 1, p. 90, doi. 10.7146/politica.v42i1.69796

By:

Vrangbæk, Karsten;
Rommetvedt, Hilmar;
Opedal, Ståle

Publication type:

Article

The ERA-EDTA Working Group on inherited kidney disorders.

Published in:

Nephrology Dialysis Transplantation, 2012, v. 27, n. 1, p. 67, doi. 10.1093/ndt/gfr764

By:

Devuyst, Olivier;
Antignac, Corinne;
Bindels, René J.M.;
Chauveau, Dominique;
Emma, Francesco;
Gansevoort, Ron;
Maxwell, Patrick H.;
Ong, Albert C.M.;
Remuzzi, Giuseppe;
Ronco, Pierre;
Schaefer, Franz

Publication type:

Article

The husband as an informal caregiver of a chronically ill wife. Analysis of men's representations in features on breast cancer in the women's magazines.

Published in:

Family Upbringing / Wychowanie w Rodzinie, 2018, n. 3, p. 273, doi. 10.61905/wwr/170523

By:

ZIERKIEWICZ, Edyta

Publication type:

Article

The role of patients' associations in assisted reproduction treatment.

Published in:

Reproductive BioMedicine Online (Reproductive Healthcare Limited), 2006, v. 13, n. 3, p. 447, doi. 10.1016/S1472-6483(10)61451-4

By:

Cohen, Jean

Publication type:

Article

Writing for patients -- plenty of opportunities for freelance medical writers.

Published in:

Medical Writing, 2017, v. 26, n. 2, p. 80

By:

Sala, Elisa

Publication type:

Article

Medical Communications.

Published in:

Medical Writing, 2015, v. 24, n. 1, p. 43, doi. 10.1179/2047480614Z.000000000259

By:

Chamberlain-James, Lisa;
Kingdom, Wendy

Publication type:

Article

The impact of patient advocacy: the case of innovative breast cancer drug reimbursement.

Published in:

2011

By:

Nahuis, Roel;
Boon, Wouter P. C.

Publication type:

Journal Article

Who rules rare disease associations? A framework to understand their action.

Published in:

2009

By:

Huyard C

Publication type:

Journal Article

Patient's Rights Charter in IRAN.

Published in:

Acta Medica Iranica, 2014, v. 52, n. 1, p. 24

By:

Parsapoor, Alireza;
Bagheri, Alireza;
Larijani, Bagher

Publication type:

Article

The British Polio Fellowship: its contribution to the development of inclusivity for disabled people.

Published in:

Dynamis, 2012, v. 32, n. 2, p. 361, doi. 10.4321/S0211-95362012000200005

By:

North, Barry

Publication type:

Article

Patients + research = result!

Published in:

EMBO Reports, 2002, v. 3, n. 8, p. 707, doi. 10.1093/embo-reports/kvf166

By:

Kent, Alastair

Publication type:

Article

II. ADVOCATES FOR CHANGE IN TB TREATMENT AND CONTROL.

Published in:

American Journal of Public Health, 1971, v. 61, n. 12, p. 2384, doi. 10.2105/AJPH.61.12.2384

By:

Gray, Nancy K. Adadow;
Reagan, W. Paul

Publication type:

Article

I. PURPOSE AND HISTORY--THE ALUMNI-PATIENT COUNCIL.

Published in:

American Journal of Public Health, 1971, v. 61, n. 12, p. 2383, doi. 10.2105/AJPH.61.12.2382

By:

Rouse, Laura L.;
Hood, Wanda;
Allen, Louis T.

Publication type:

Article

Repositioning the Patient: Patient Organizations, Consumerism, and Autonomy in Britain during the 1960s and 1970s.

Published in:

Bulletin of the History of Medicine, 2013, v. 87, n. 2, p. 225, doi. 10.1353/bhm.2013.0022

By:

MOLD, ALEX

Publication type:

Article

News and Viewpoints.

Published in:: Chronic Illness, 2005, v. 1, n. 2, p. 97, doi. 10.1179/174239505X44808
Publication type:: Article

The relevance of different trust models for representation in patient organizations: conceptual considerations.

Published in:

2017

By:

Gerhards, Helene;
Jongsma, Karin;
Schicktanz, Silke

Publication type:

journal article

"Small Wins" for those with Lyme Disease in Canada: Patients in an Embodied Health Movement.

Published in:

Zoonotic Diseases (2813-0227), 2024, v. 4, n. 1, p. 22, doi. 10.3390/zoonoticdis4010004

By:

Cox, Marilyn;
Levesque, Mario

Publication type:

Article

A new model for cancer research in France.

Published in:

2006

By:

Khayat, David;
Kerr, David

Publication type:

review

Assessing Patient Organization Participation in Health Policy: A Comparative Study in France and Italy.

Published in:

International Journal of Health Policy & Management, 2018, v. 7, n. 1, p. 48, doi. 10.15171/ijhpm.2017.44

By:

Souliotis, Kyriakos;
Agapidaki, Eirini;
Peppou, Lily Evangelia;
Tzavara, Chara;
Varvaras, Dimitrios;
Buonomo, Oreste Claudio;
Debiais, Dominique;
Hasurdjiev, Stanimir;
Sarkozy, Francois

Publication type:

Article

Peer recommendations on how to improve clinical research, and Conference wrap-up.

Published in:

Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration, 2013, p. 67, doi. 10.3109/21678421.2013.778605

By:

CHAD, DAVID A.;
ROWLAND, LEWIS P.;
ARMON, CARMEL;
BEDLACK, RICHARD;
DURHAM, HEATHER;
FACTOR-LITVAK, PAM;
HEIMAN-PATTERSON, TERRY;
HEITZMAN, DARAGH;
LACOMIS, DAVID;
LUDOLPH, ALBERT;
MARAGAKIS, NICHOLAS;
MILLER, ROBERT;
PATTEE, GARY;
SHOESMITH, CHRISTEN;
SORENSON, ERIC;
TURNER, MARTIN R.

Publication type:

Article

Funding agencies and disease organizations: Resources and recommendations to facilitate ALS clinical research.

Published in:

Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration, 2013, p. 62, doi. 10.3109/21678421.2013.778588

By:

CHAD, DAVID A.;
BIDICHANDANI, SANJAY;
BRUIJN, LUCIE;
CAPRA, J. DONALD;
DICKIE, BRIAN;
FERGUSON, JOHN;
FIGLEWICZ, DENISE;
FORSYTHE, MELISSA;
KAUFMANN, PETRA;
KIRSHNER, ANNETTE;
MONTI, WILLIAM

Publication type:

Article

The Role of Patients and Patient Advocacy Groups in Educating Patients on the Importance of Legitimate Scientific Research.

Published in:

American Journal of Bioethics, 2010, v. 10, n. 5, p. 49, doi. 10.1080/15265161003769179

By:

Foster, Susan

Publication type:

Article

Updated Guide to Information for Families with Inherited Skin Disorders.

Published in:

Pediatric Dermatology, 2001, v. 18, n. 1, p. 77, doi. 10.1046/j.1525-1470.2001.018001077.x

By:

Sybert, Virginia P.

Publication type:

Article

Drivers of cost and health-related quality of life in patients with systemic lupus erythematosus (SLE): a Swedish nationwide study based on patient reports.

Published in:

Lupus, 2013, v. 22, n. 8, p. 793, doi. 10.1177/0961203313491849

By:

Bexelius, C;
Wachtmeister, K;
Skare, P;
Jönsson, L;
Vollenhoven, R van

Publication type:

Article

PARTICIPATION AND HEALTHCARE: A SURVEY INVESTIGATING CURRENT AND DESIRED LEVELS OF COLLABORATION BETWEEN PATIENT ORGANIZATIONS AND HOSPITALS.

Published in:

Journal of Social Intervention: Theory & Practice, 2018, v. 27, n. 4, p. 4, doi. 10.18352/jsi.572

By:

CASTRO, EVA MARIE;
VAN REGENMORTEL, TINE;
VAN WANSEELE, CARINE;
SERMEUS, WALTER;
VANHAECHT, KRIS

Publication type:

Article

EDITORIAL.

Published in:

Journal of Social Intervention: Theory & Practice, 2018, v. 27, n. 4, p. 1, doi. 10.18352/jsi.571

By:

WITTE, TOBY;
EIJKEMANS, YKE

Publication type:

Article

The Internet and Medicine: Building a Community for Patients With Rare Diseases.

Published in:

JAMA: Journal of the American Medical Association, 2001, v. 285, n. 6, p. 805, doi. 10.1001/jama.285.6.805-JMS0214-2-1

By:

Patsos, Mary

Publication type:

Article

Patient-centred healthcare and safety.

Published in:: WHO Drug Information, 2006, v. 20, n. 1, p. 29
Publication type:: Article

Chronic obstructive pulmonary disease (COPD) in Spain and the different aspects of its social impact: a multidisciplinary opinion document.

Published in:

Revista Española de Quimioterapia, 2020, v. 33, n. 1, p. 49, doi. 10.37201/req/2064.2019

By:

Bouza, Emilio;
Alvar, Agustí;
Almagro, Pere;
Alonso, Tamara;
Ancochea, Julio;
Barbé, Ferrán;
Corbella, Josep;
Gracia, Diego;
Mascarós, Enrique;
Melis, Joan;
Miravitlles, Marc;
Pastor, Mariano;
Pérez, Patricia;
Rudilla, David;
Torres, Antoni;
Bautista Soriano, Joan;
Vallano, Antoni;
Vargas, Franciso;
Palomo, Esteban

Publication type:

Article

Supporting the patient and family with mucopolysaccharidosis disorders: the role of patient organizations.

Published in:

Acta Paediatrica, 2007, p. 87, doi. 10.1111/j.1651-2227.2007.00217.x

By:

Lavery, Christine;
Ramaswami, Uma

Publication type:

Article

Supporting the patient and family with Fabry disease.

Published in:

Acta Paediatrica, 2007, p. 88, doi. 10.1111/j.1651-2227.2007.00218.x

By:

Romero, Miguel-Ángel Barba;
Milligan, Allan;
Briva, Jordi;
Basalla, Ditmar

Publication type:

Article

Strategies for disseminating recommendations or guidelines to patients: a systematic review.

Published in:

2016

By:

Schipper, K.;
Bakker, M.;
De Wit, M.;
Ket, J. C. F.;
Abma, T. A.

Publication type:

journal article

The disease olympics.

Published in:

Nature Medicine, 2013, v. 19, n. 3, p. 257, doi. 10.1038/nm0313-257

By:

Hughes, Virginia

Publication type:

Article

Organisations for Epilepsy Patients in Europe.

Published in:: Epilepsia (Series 4), 2003, v. 44, p. 66, doi. 10.1046/j.1528-1157.44.s6.28.x
Publication type:: Article

VP165 Landscape Assessment: Patient Engagement In Health Technology Assessment.

Published in:

2017

By:

Harris, Jason;
Labkoff, Nicole;
Perfetto, Eleanor;
Ziadeh, Manal;
El-Gendi, Sarah;
Ghorashi, Bahareh;
Boutin, Marc;
Oehrlein, Elisabeth

Publication type:

Abstract

VP60 The Importance Of Patient Organizations Involvement In Health Technology Assessment.

Published in:

2017

By:

Makaroff, Lydia;
De Lorenzo, Francesco;
Florindi, Francesco;
Apostolidis, Kathi

Publication type:

Abstract

WILLINGNESS TO PAY FOR LUNG CANCER TREATMENT: PATIENT VERSUS GENERAL PUBLIC VALUES-ERRATUM.

Published in:: 2015
Publication type:: corrected article

POTENTIAL FOR PATIENTS AND PATIENT-DRIVEN ORGANIZATIONS TO IMPROVE EVIDENCE FOR HEALTH TECHNOLOGY ASSESSMENT.

Published in:

2015

By:

Low, Eric

Publication type:

journal article

Patient participation in collective healthcare decision making: the Dutch model.

Published in:

Health Expectations, 2010, v. 13, n. 1, p. 73, doi. 10.1111/j.1369-7625.2009.00567.x

By:

Van De Bovenkamp, Hester M.;
Trappenburg, Margo J.;
Grit, Kor J.

Publication type:

Article

Patient Power: The Politics of Patients’ Associations in Britain and America.

Published in:

2001

By:

Hayes, A

Publication type:

Book Review

The use of evidence by health care user organizations.

Published in:

Health Expectations, 1998, v. 1, n. 1, p. 14, doi. 10.1046/j.1369-6513.1998.00002.x

By:

Glenton, Claire;
Oxman, Andrew D.;
Oxman, Andy

Publication type:

Article

Correction to: Communicating Adverse Drug Reaction Insights Through Patient Organizations: Experiences from a Pilot Study in the Netherlands.

Published in:

2020

By:

Härmark, Linda;
Weits, Gerda;
Meijer, Rietje;
Santoro, Federica;
Norén, G. Niklas;
van Hunsel, Florence

Publication type:

Correction Notice

Communicating Adverse Drug Reaction Insights Through Patient Organizations: Experiences from a Pilot Study in the Netherlands.

Published in:

Drug Safety, 2020, v. 43, n. 8, p. 745, doi. 10.1007/s40264-020-00932-5

By:

Härmark, Linda;
Weits, Gerda;
Meijer, Rietje;
Santoro, Federica;
Norén, G. Niklas;
van Hunsel, Florence

Publication type:

Article

Guide of good practice for cooperation between doctors and patient associations for chronic neurological disorders in Europe.

Published in:

2009

By:

Bisdorff, A.;
Baker, M.

Publication type:

Letter