Works matching DE "PATIENTS' associations"

Results: 104
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    News and Viewpoints.

    Published in:
    Chronic Illness, 2005, v. 1, n. 2, p. 97, doi. 10.1179/174239505X44808
    Publication type:
    Article
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    The ERA-EDTA Working Group on inherited kidney disorders.

    Published in:
    Nephrology Dialysis Transplantation, 2012, v. 27, n. 1, p. 67, doi. 10.1093/ndt/gfr764
    By:
    • Devuyst, Olivier;
    • Antignac, Corinne;
    • Bindels, René J.M.;
    • Chauveau, Dominique;
    • Emma, Francesco;
    • Gansevoort, Ron;
    • Maxwell, Patrick H.;
    • Ong, Albert C.M.;
    • Remuzzi, Giuseppe;
    • Ronco, Pierre;
    • Schaefer, Franz
    Publication type:
    Article
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    Neurologists and patients’ associations: alliances and conflicts.

    Published in:
    Neurological Sciences, 2006, v. 27, n. 3, p. 194, doi. 10.1007/s10072-006-0669-9
    By:
    • Gasparini, M.;
    • Bonito, V.;
    • Leonardi, M.;
    • Tarquini, D.;
    • Colombi, L.;
    • Congedo, M.;
    • Marcello, N.;
    • Causarano, R.;
    • Gasperini, M.;
    • Rizzo, M.;
    • Porteri, C.;
    • Borghi, L.;
    • Primavera, A.;
    • Defanti, C. A.
    Publication type:
    Article
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    News.

    Published in:
    British Journal of Community Nursing, 2010, v. 15, p. S30, doi. 10.12968/bjcn.2010.15.Sup1.46909
    Publication type:
    Article
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    Chronic obstructive pulmonary disease (COPD) in Spain and the different aspects of its social impact: a multidisciplinary opinion document.

    Published in:
    Revista Española de Quimioterapia, 2020, v. 33, n. 1, p. 49, doi. 10.37201/req/2064.2019
    By:
    • Bouza, Emilio;
    • Alvar, Agustí;
    • Almagro, Pere;
    • Alonso, Tamara;
    • Ancochea, Julio;
    • Barbé, Ferrán;
    • Corbella, Josep;
    • Gracia, Diego;
    • Mascarós, Enrique;
    • Melis, Joan;
    • Miravitlles, Marc;
    • Pastor, Mariano;
    • Pérez, Patricia;
    • Rudilla, David;
    • Torres, Antoni;
    • Bautista Soriano, Joan;
    • Vallano, Antoni;
    • Vargas, Franciso;
    • Palomo, Esteban
    Publication type:
    Article
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    Patients' Impatience.

    Published in:
    Applied Clinical Trials, 2005, v. 14, n. 9, p. 28
    By:
    • O'Donnell, Peter
    Publication type:
    Article
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    Patients + research = result!

    Published in:
    EMBO Reports, 2002, v. 3, n. 8, p. 707, doi. 10.1093/embo-reports/kvf166
    By:
    • Kent, Alastair
    Publication type:
    Article
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    Peer recommendations on how to improve clinical research, and Conference wrap-up.

    Published in:
    Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration, 2013, p. 67, doi. 10.3109/21678421.2013.778605
    By:
    • CHAD, DAVID A.;
    • ROWLAND, LEWIS P.;
    • ARMON, CARMEL;
    • BEDLACK, RICHARD;
    • DURHAM, HEATHER;
    • FACTOR-LITVAK, PAM;
    • HEIMAN-PATTERSON, TERRY;
    • HEITZMAN, DARAGH;
    • LACOMIS, DAVID;
    • LUDOLPH, ALBERT;
    • MARAGAKIS, NICHOLAS;
    • MILLER, ROBERT;
    • PATTEE, GARY;
    • SHOESMITH, CHRISTEN;
    • SORENSON, ERIC;
    • TURNER, MARTIN R.
    Publication type:
    Article
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    The alliance between genetic biobanks and patient organisations: the experience of the telethon network of genetic biobanks.

    Published in:
    Orphanet Journal of Rare Diseases, 2016, v. 11, p. 1, doi. 10.1186/s13023-016-0527-7
    By:
    • Baldo, Chiara;
    • Casareto, Lorena;
    • Renieri, Alessandra;
    • Merla, Giuseppe;
    • Garavaglia, Barbara;
    • Goldwurm, Stefano;
    • Pegoraro, Elena;
    • Moggio, Maurizio;
    • Mora, Marina;
    • Politano, Luisa;
    • Sangiorgi, Luca;
    • Mazzotti, Raffaella;
    • Viotti, Valeria;
    • Meloni, Ilaria;
    • Pellico, Maria Teresa;
    • Barzaghi, Chiara;
    • Wang, Chiuhui Mary;
    • Monaco, Lucia;
    • Filocamo, Mirella
    Publication type:
    Article
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    Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks.

    Published in:
    2016
    By:
    • Hollak, Carla E. M.;
    • Biegstraaten, Marieke;
    • Baumgartner, Matthias R.;
    • Belmatoug, Nadia;
    • Bembi, Bruno;
    • Bosch, Annet;
    • Brouwers, Martijn;
    • Dekker, Hanka;
    • Dobbelaere, Dries;
    • Engelen, Marc;
    • Groenendijk, Marike C.;
    • Lachmann, Robin;
    • Langendonk, Janneke G.;
    • Langeveld, Mirjam;
    • Linthorst, Gabor;
    • Morava, Eva;
    • Bwee Tien Poll-The;
    • Rahman, Shamima;
    • Rubio-Gozalbo, M. Estela;
    • Spiekerkoetter, Ute
    Publication type:
    journal article
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    Filophilia.

    Published in:
    1985
    By:
    • Northover, J. M. A.
    Publication type:
    Editorial
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    Porphyria in Sweden.

    Published in:
    Physiological Research, 2006, v. 55, p. S109
    By:
    • Thunell, Stig;
    • Floderus, Y.;
    • Henrichson, A.;
    • Harper, P.
    Publication type:
    Article
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    Consumers taking charge.

    Published in:
    Journal of Pharmaceutical Health Services Research, 2012, v. 3, n. 3, p. 127, doi. 10.1111/j.1759-8893.2012.00094.x
    By:
    • Wertheimer, Albert I.
    Publication type:
    Article
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