Works matching DE "GENETIC privacy"

Results: 230

Are You Willing to Share Your DNA With Us? An Exploratory Insight Into the Privacy Calculus of Direct‐To‐Consumer Genetic Testing.

Published in:

Journal of Consumer Affairs, 2025, v. 59, n. 2, p. 1, doi. 10.1111/joca.70008

By:

Raeiro, Inês;
Nilsson, Jonas;
Li, Xuexin;
Carlsson Hauff, Jeanette

Publication type:

Article

REFUTING THE RIGHT NOT TO KNOW.

Published in:

Journal of Health Care Law & Policy, 2017, v. 19, n. 1, p. 1

By:

BERKMAN, BENJAMIN E.

Publication type:

Article

OLFACTORY SUBLIME.

Published in:

LA+: Interdisciplinary Journal of Landscape Architecture, 2025, n. 21, p. 32

By:

JIA HUI LEE

Publication type:

Article

Curiosity and Uncertainty Resolution: Inflating the Perceived Utility of Genetic Information.

Published in:

American Journal of Bioethics, 2023, v. 23, n. 7, p. 53, doi. 10.1080/15265161.2023.2207518

By:

Furrer, Rémy;
Barlevy, Dorit;
Pereira, Stacey;
Lázaro-Muñoz, Gabriel

Publication type:

Article

Respecting Autonomy and Balancing Benefits by Disclosing the Secondary Finding of Klinefelter's.

Published in:

American Journal of Bioethics, 2022, v. 22, n. 10, p. 89, doi. 10.1080/15265161.2022.2110974

By:

Miner, Skye Adell;
Hester, D. Micah

Publication type:

Article

Response to Open Peer Commentaries on Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases.

Published in:

2022

By:

Dupras, Charles;
Bunnik, Eline M.

Publication type:

Letter to the Editor

Capacities and Limitations of Using Polygenic Risk Scores for Reproductive Decision Making.

Published in:

American Journal of Bioethics, 2022, v. 22, n. 2, p. 42, doi. 10.1080/15265161.2021.2013983

By:

Barlevy, Dorit;
Lencz, Todd;
Carmi, Shai;
Kostick-Quenet, Kristin Marie;
Mukherjee, Meghna;
Pereira, Stacey;
Lázaro-Muñoz, Gabriel

Publication type:

Article

Exceptionalism, Information Categories and the Relevance of Gender.

Published in:

American Journal of Bioethics, 2021, v. 21, n. 12, p. 65, doi. 10.1080/15265161.2021.1991045

By:

Chadwick, Ruth

Publication type:

Article

Scrutinizing Privacy in Multi-Omics Research: How to Provide Ethical Grounding for the Identification of Privacy-Relevant Data Properties.

Published in:

American Journal of Bioethics, 2021, v. 21, n. 12, p. 73, doi. 10.1080/15265161.2021.1991041

By:

Safarlou, C. W.;
Bredenoord, A. L.;
Vermeulen, R.;
Jongsma, K. R.

Publication type:

Article

Ownership of Genetic Data: Between Universalism and Contextualism?

Published in:

American Journal of Bioethics, 2021, v. 21, n. 12, p. 75, doi. 10.1080/15265161.2021.1991033

By:

Stoeklé, Henri-Corto;
Hervé, Christian

Publication type:

Article

Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases.

Published in:

American Journal of Bioethics, 2021, v. 21, n. 12, p. 46, doi. 10.1080/15265161.2020.1863516

By:

Dupras, Charles;
Bunnik, Eline M.

Publication type:

Article

Measuring Understanding and Respecting Trust in Biobank Consent.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 5, p. 29, doi. 10.1080/15265161.2019.1587034

By:

Kasperbauer, T.J.;
Schwartz, Peter H.

Publication type:

Article

Ethical Guidelines for DNA Testing in Migrant Family Reunification.

Published in:

2019

By:

Farahany, Nita;
Chodavadia, Saheel;
Katsanis, Sara H.

Publication type:

Editorial

Is Genetic Exceptionalism Past Its Sell-By Date? On Genomic Diaries, Context, and Content.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 13, doi. 10.1080/15265161.2018.1552038

By:

Murray, Thomas H.

Publication type:

Article

Genetic Contextualism and the Value of a Structured Process.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 72, doi. 10.1080/15265161.2018.1546351

By:

Botkin, Jeffrey R.

Publication type:

Article

It’s the Idiom, Stupid: A Plea for Formal Rhetorical Analysis in Bioethics.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 67, doi. 10.1080/15265161.2018.1546350

By:

Garrett, Jeremy R.

Publication type:

Article

Genomes in Context.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 66, doi. 10.1080/15265161.2018.1544323

By:

Burke, Wylie

Publication type:

Article

How Can We Integrate Interests and Reasoned Arguments in Bioethics?

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 64, doi. 10.1080/15265161.2018.1544322

By:

Condit, Celeste M.

Publication type:

Article

“DNA Is Information, and Genetics Is Information Technology”: Reconsidering the Genetic Code.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 75, doi. 10.1080/15265161.2018.1544321

By:

Pereira, Stacey

Publication type:

Article

Genomic Contextualism, Genetic Determinism, and Causal Models.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 73, doi. 10.1080/15265161.2018.1544317

By:

Boyce, Angie

Publication type:

Article

Unpacking the Concept of a Genomic Result.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 70, doi. 10.1080/15265161.2018.1544316

By:

Horton, Rachel;
Lucassen, Anneke;
Fenwick, Angela

Publication type:

Article

Toward Broader Genetic Contextualism: Genetic Testing Enters the Age of Evidence-Based Medicine.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 77, doi. 10.1080/15265161.2018.1544315

By:

Laberge, Anne-Marie;
Richer, Julie;
Ravitsky, Vardit

Publication type:

Article

Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 51, doi. 10.1080/15265161.2018.1544304

By:

Garrison, Nanibaa' A.;
Brothers, Kyle B.;
Goldenberg, Aaron J.;
Lynch, John A.

Publication type:

Article

Diversity Beyond Race and Ethnicity: Enhancing Inclusion With an Expanded Definition of Diversity.

Published in:

American Journal of Bioethics, 2018, v. 18, n. 4, p. 47, doi. 10.1080/15265161.2018.1431705

By:

Quinn, Gwendolyn P.;
Gwede, Clement K.;
Meade, Cathy D.

Publication type:

Article

Biometric Tracking From Professional Athletes to Consumers.

Published in:

American Journal of Bioethics, 2017, v. 17, n. 1, p. 72, doi. 10.1080/15265161.2016.1251652

By:

Purcell, Ryan H.;
Rommelfanger, Karen S.

Publication type:

Article

The Legality of Biometric Screening of Professional Athletes.

Published in:

American Journal of Bioethics, 2017, v. 17, n. 1, p. 65, doi. 10.1080/15265161.2016.1251647

By:

Roberts, Jessica L.;
Cohen, I. Glenn;
Deubert, Christopher R.;
Lynch, Holly Fernandez

Publication type:

Article

Collegiate Sports: Professionals All But in Name Raise Unique Bioethics Concerns in the Collection of Biometric Data.

Published in:

American Journal of Bioethics, 2017, v. 17, n. 1, p. 70, doi. 10.1080/15265161.2016.1251646

By:

Lazan, Ariela;
Greenbaum, Dov

Publication type:

Article

Tracking U.S. Professional Athletes: The Ethics of Biometric Technologies.

Published in:

American Journal of Bioethics, 2017, v. 17, n. 1, p. 45, doi. 10.1080/15265161.2016.1251633

By:

Karkazis, Katrina;
Fishman, Jennifer R.

Publication type:

Article

Direct-to-Consumer Genomics Companies Should Provide Guidance to Their Customers on (Not) Sharing Personal Genomic Information.

Published in:

American Journal of Bioethics, 2014, v. 14, n. 11, p. 55, doi. 10.1080/15265161.2014.959320

By:

Garrison, Nanibaa' A.;
Non, Amy L.

Publication type:

Article

Beyond Social Media: Inadvertent Acquisition of Genetic Information in Medical Certifications.

Published in:

American Journal of Bioethics, 2014, v. 14, n. 11, p. 48, doi. 10.1080/15265161.2014.957624

By:

Prince, Anya E. R.

Publication type:

Article

Protecting Posted Genes: Social Networking and the Limits of GINA.

Published in:

American Journal of Bioethics, 2014, v. 14, n. 11, p. 32, doi. 10.1080/15265161.2014.957417

By:

Lee, Sandra Soo-Jin;
Borgelt, Emily

Publication type:

Article

GINA's Limits or Something More? The Need for Greater Protection of Employee Health-Related Information.

Published in:

American Journal of Bioethics, 2014, v. 14, n. 11, p. 45, doi. 10.1080/15265161.2014.957625

By:

Roberts, Jessica L.

Publication type:

Article

Sharing Genetic Information Online: An Exploration of GINA's 2.0 Frontier.

Published in:

American Journal of Bioethics, 2014, v. 14, n. 11, p. 53, doi. 10.1080/15265161.2014.957620

By:

Ragoussis, Vassilis;
Feze, Ida Ngueng;
Joly, Yann

Publication type:

Article

Policy and the Inevitability of Sharing: GINA and Social Media.

Published in:

American Journal of Bioethics, 2014, v. 14, n. 11, p. 57, doi. 10.1080/15265161.2014.957422

By:

Yu, Joon-Ho;
Engrav, Rebecca S.

Publication type:

Article

Genetic Privacy and Data Protection: A Review of Chinese Direct-to-Consumer Genetic Test Services.

Published in:

Frontiers in Genetics, 2020, v. 11, p. 1, doi. 10.3389/fgene.2020.00416

By:

Du, Li;
Wang, Meng

Publication type:

Article

Developments in Genetic and Epigenetic Data Protection in Behavioral and Mental Health Spaces.

Published in:

2015

By:

Terry, Nicolas

Publication type:

journal article

Preserving privacy, preventing discrimination becomes the province of genetics experts.

Published in:

2002

By:

Friedrich, M J

Publication type:

journal article

Protecting the privacy of family members in survey and pedigree research.

Published in:

2001

By:

Botkin, Jeffrey R.;
Botkin, J

Publication type:

journal article

Genetic test information fears unfounded.

Published in:

1999

By:

Stephenson, Joan;
Stephenson, J

Publication type:

journal article

Ethics group drafts guidelines for control of genetic material and information.

Published in:

1998

By:

Stephenson, Joan;
Stephenson, J

Publication type:

journal article

Genetic testing and informed consent.

Published in:

1997

By:

Page, D L;
Jensen, R A

Publication type:

commentary

Support Seeking or Familial Obligation: An Investigation of Motives for Disclosing Genetic Test Results.

Published in:

Health Communication, 2016, v. 31, n. 6, p. 668, doi. 10.1080/10410236.2014.989384

By:

Greenberg, Marisa;
Smith, Rachel A.

Publication type:

Article

The United States Should Take a Page Out of Canadian Law When It Comes to Privacy, Genetic and Otherwise.

Published in:

University of Miami Inter-American Law Review, 2023, v. 54, n. 2, p. 95

By:

Rahaim, Ashley

Publication type:

Article

Consumer Willingness to Share Personal Digital Information for Health-Related Uses.

Published in:

JAMA Network Open, 2022, v. 5, n. 1, p. e2144787, doi. 10.1001/jamanetworkopen.2021.44787

By:

Grande, David;
Mitra, Nandita;
Iyengar, Raghuram;
Merchant, Raina M.;
Asch, David A.;
Sharma, Meghana;
Cannuscio, Carolyn C.

Publication type:

Article

Predictive Health Information and Employment Discrimination under the ADA and GINA.

Published in:

Journal of Law, Medicine & Ethics, 2020, v. 48, n. 3, p. 595, doi. 10.1177/1073110520958887

By:

Rothstein, Mark A.

Publication type:

Article

The Future of DTC Genomics and the Law.

Published in:

Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 151, doi. 10.1177/1073110520917003

By:

Greely, Henry T.;
Wolf, Susan M.;
Clayton, Ellen Wright;
Lawrenz, Frances

Publication type:

Article

Protecting Participants in Genomic Research: Understanding the "Web of Protections" Afforded by Federal and State Law.

Published in:

Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 126, doi. 10.1177/1073110520917000

By:

Wolf, Leslie E.;
Hammack, Catherine M.;
Brown, Erin Fuse;
Brelsford, Kathleen M.;
Beskow, Laura M.;
Wolf, Susan M.;
Clayton, Ellen Wright;
Lawrenz, Frances

Publication type:

Article

Genomic Data-Sharing Practices.

Published in:

Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 31, doi. 10.1177/1073110519840482

By:

Villanueva, Angela G.;
Cook-Deegan, Robert;
Robinson, Jill O.;
McGuire, Amy L.;
Majumder, Mary A.

Publication type:

Article

Compelled Disclosures of Health Records: Updated Estimates.

Published in:

Journal of Law, Medicine & Ethics, 2017, v. 45, n. 1, p. 149, doi. 10.1177/1073110517703109

By:

Rothstein, Mark A.;
Talbott, Meghan K.

Publication type:

Article

Raising Genomic Citizens: Adolescents and the Return of Secondary Genomic Findings.

Published in:

Journal of Law, Medicine & Ethics, 2016, v. 44, n. 2, p. 292, doi. 10.1177/1073110516654123

By:

Sabatello, Maya;
Appelbaum, Paul S.

Publication type:

Article