Works matching DE "GENETIC privacy"

Results: 226

Proposing a Plan for the Integration of Precision Medicine into the Medical Curriculum.

Published in:

2024

By:

Shrivastava, Saurabh RamBihariLal;
Gajbe, Ujwal;
Bobhate, Prateek Sudhakar;
Petkar, Prithvi Brahmanand;
Tiwade, Yugeshwari

Publication type:

Letter

Privacy implications of the new "omic" technologies in law enforcement.

Published in:

Wiley Interdisciplinary Reviews: Forensic Science, 2022, v. 4, n. 3, p. 1, doi. 10.1002/wfs2.1445

By:

Roffey, Paul;
Scudder, Nathan

Publication type:

Article

Genetic Privacy.

Published in:

Indiana Law Journal, 2025, v. 100, n. 2, p. 583

By:

AJUNWA, IFEOMA;
BRISCOE, FORREST

Publication type:

Article

Can Genetic Nondiscrimination Laws Save Lives?

Published in:

Hastings Center Report, 2021, v. 51, n. 1, p. 6, doi. 10.1002/hast.1204

By:

Rothstein, Mark A.

Publication type:

Article

Genetic Data Aren't So Special: Causes and Implications of Reidentification.

Published in:

Hastings Center Report, 2020, v. 50, n. 5, p. 30, doi. 10.1002/hast.1183

By:

Kasperbauer, T.J.;
Schwartz, Peter H.

Publication type:

Article

Qualitative Research on Expanded Prenatal and Newborn Screening: Robust but Marginalized.

Published in:

Hastings Center Report, 2019, v. 49, p. S72, doi. 10.1002/hast.1019

By:

Grob, Rachel

Publication type:

Article

Laypeople Are Strategic Essentialists, Not Genetic Essentialists.

Published in:

Hastings Center Report, 2019, v. 49, p. S27, doi. 10.1002/hast.1014

By:

Condit, Celeste M.

Publication type:

Article

Genomic Essentialism: Its Provenance and Trajectory as an Anticipatory Ethical Concern.

Published in:

Hastings Center Report, 2019, v. 49, p. S10, doi. 10.1002/hast.1012

By:

Sabatello, Maya;
Juengst, Eric

Publication type:

Article

On What We Have Learned and Still Need to Learn about the Psychosocial Impacts of Genetic Testing.

Published in:

Hastings Center Report, 2019, v. 49, p. S2, doi. 10.1002/hast.1011

By:

Parens, Erik;
Appelbaum, Paul S.

Publication type:

Article

Qualitative Research on Expanded Prenatal and Newborn Screening: Robust but Marginalized.

Published in:

Hastings Center Report, 2019, v. 49, p. S72, doi. 10.1002/hast.1019

By:

Grob, Rachel

Publication type:

Article

Assessing the Psychological Impact of Genetic Susceptibility Testing.

Published in:

Hastings Center Report, 2019, v. 49, p. S38, doi. 10.1002/hast.1015

By:

Roberts, J. Scott

Publication type:

Article

Laypeople Are Strategic Essentialists, Not Genetic Essentialists.

Published in:

Hastings Center Report, 2019, v. 49, p. S27, doi. 10.1002/hast.1014

By:

Condit, Celeste M.

Publication type:

Article

Genomic Essentialism: Its Provenance and Trajectory as an Anticipatory Ethical Concern.

Published in:

Hastings Center Report, 2019, v. 49, p. S10, doi. 10.1002/hast.1012

By:

Sabatello, Maya;
Juengst, Eric

Publication type:

Article

On What We Have Learned and Still Need to Learn about the Psychosocial Impacts of Genetic Testing.

Published in:

Hastings Center Report, 2019, v. 49, p. S2, doi. 10.1002/hast.1011

By:

Parens, Erik;
Appelbaum, Paul S.

Publication type:

Article

Commercial Interests, the Technological Imperative, and Advocates: Three Forces Driving Genomic Sequencing in Newborns.

Published in:

Hastings Center Report, 2018, v. 48, p. S43, doi. 10.1002/hast.885

By:

Pereira, Stacey;
Clayton, Ellen Wright

Publication type:

Article

The Legal Dimensions of Genomic Sequencing in Newborn Screening.

Published in:

Hastings Center Report, 2018, v. 48, p. S39, doi. 10.1002/hast.884

By:

Zacharias, Rachel L.;
Smith, Monica E.;
King, Jaime S.

Publication type:

Article

A New Era, New Strategies: Education and Communication Strategies to Manage Greater Access to Genomic Information.

Published in:

Hastings Center Report, 2018, v. 48, p. S25, doi. 10.1002/hast.880

By:

Lewis, Megan A.;
Bonhomme, Natasha;
Bloss, Cinnamon S.

Publication type:

Article

Incidental Findings in Low‐Resource Settings.

Published in:

Hastings Center Report, 2018, v. 48, n. 3, p. 20, doi. 10.1002/hast.851

By:

Sullivan, Haley K.;
Berkman, Benjamin E.

Publication type:

Article

Genetic Information, the Principle of Rescue, and Special Obligations.

Published in:

Hastings Center Report, 2018, v. 48, n. 3, p. 18, doi. 10.1002/hast.850

By:

Liao, S. Matthew;
Mackenzie, Jordan

Publication type:

Article

Genetic Privacy, Disease Prevention, and the Principle of Rescue.

Published in:

Hastings Center Report, 2018, v. 48, n. 3, p. 10, doi. 10.1002/hast.849

By:

Kilbride, Madison K.

Publication type:

Article

GINA at Ten and the Future of Genetic Nondiscrimination Law.

Published in:

Hastings Center Report, 2018, v. 48, n. 3, p. 5, doi. 10.1002/hast.847

By:

Rothstein, Mark A.

Publication type:

Article

Confidentiality of Medical Records and Worker Health Information in the Occupational Health Setting.

Published in:: Workplace Health & Safety, 2022, v. 70, n. 5, p. 262, doi. 10.1177/2165079920983734
Publication type:: Article

Understanding GINA and How GINA Affects Nurses.

Published in:

Workplace Health & Safety, 2015, v. 63, n. 11, p. 480, doi. 10.1177/2165079915585434

By:

Delk, Kayla L.

Publication type:

Article

Genetic privacy and the use of archival human material in genetic studies - current perspectives.

Published in:

Medicolegal & Bioethics, 2015, v. 5, p. 43, doi. 10.2147/MB.S56057

By:

Jones, D. Gareth

Publication type:

Article

Child Welfare Journal -- About this Special Issue.

Published in:: Child Welfare, 2018, v. 96, n. 2, p. v
Publication type:: Article

Parent Perspectives Towards Genetic and Epigenetic Testing for Autism Spectrum Disorder.

Published in:

Journal of Autism & Developmental Disorders, 2020, v. 50, n. 9, p. 3114, doi. 10.1007/s10803-019-03990-6

By:

Wagner, Kayla E.;
McCormick, Jennifer B.;
Barns, Sarah;
Carney, Molly;
Middleton, Frank A.;
Hicks, Steven D.

Publication type:

Article

Race, Gender, and Genetic Privacy in Kay Redfield Jamison's An Unquiet Mind and Meri Nana-Ama Danquah's Willow Weep for Me.

Published in:

Literature & Medicine, 2024, v. 42, n. 2, p. 438, doi. 10.1353/lm.2024.a951027

By:

Hagaman, Sarah;
Clayton, Jay

Publication type:

Article

The living experience of losing genetic continuity: Concealment tendency in Chinese recipients of donor-assisted conception.

Published in:

Journal of Health Psychology, 2021, v. 26, n. 4, p. 525, doi. 10.1177/1359105318820667

By:

Tsui, Elaine Yin-Ling;
Cheng, Joanna Oi Yue

Publication type:

Article

Strict Liability for Genetic Privacy Violations in the Age of Big Data.

Published in:

University of Memphis Law Review, 2019, v. 49, n. 3, p. 759

By:

SUNDHOLM, BENJAMIN

Publication type:

Article

Study: Pain Research Can Harm Participants.

Published in:

OB/GYN Clinical Alert, 2018, v. 34, n. 10, p. 86

By:

AHC MEDIA

Publication type:

Article

Parental disclosure of positive BRCA1/2 mutation status to children 10 years after genetic testing.

Published in:

Psychology, Health & Medicine, 2020, v. 25, n. 6, p. 756, doi. 10.1080/13548506.2019.1659981

By:

Troïan, Jaïs;
Apostolidis, Thémis;
Touzani, Rajae;
Mouret-Fourme, Emmanuelle;
Stoppa-Lyonnet, Dominique;
Lasset, Christine;
Berthet, Pascaline;
Julian-Reynier, Claire;
Mancini, Julien;
Noguès, Catherine;
Bouhnik, Anne-Déborah

Publication type:

Article

PROTECTING PRIVACY TO PREVENT DISCRIMINATION.

Published in:

William & Mary Law Review, 2015, v. 56, n. 6, p. 2097

By:

ROBERTS, JESSICA L.

Publication type:

Article

Between Openness and Privacy in Genomics.

Published in:

2016

By:

Vayena, Effy;
Gasser, Urs

Publication type:

journal article

THE CHALLENGES OF FORENSIC GENEALOGY: DIRTY DATA, ELECTRONIC EVIDENCE, AND PRIVACY CONCERNS.

Published in:

Denver Law Review, 2020, v. 98, n. 1, p. 157

By:

RAMJEE, DIVYA;
RINGROS, KATELYN

Publication type:

Article

Predictive Health Information and Employment Discrimination under the ADA and GINA.

Published in:

Journal of Law, Medicine & Ethics, 2020, v. 48, n. 3, p. 595, doi. 10.1177/1073110520958887

By:

Rothstein, Mark A.

Publication type:

Article

The Future of DTC Genomics and the Law.

Published in:

Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 151, doi. 10.1177/1073110520917003

By:

Greely, Henry T.;
Wolf, Susan M.;
Clayton, Ellen Wright;
Lawrenz, Frances

Publication type:

Article

Protecting Participants in Genomic Research: Understanding the "Web of Protections" Afforded by Federal and State Law.

Published in:

Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 126, doi. 10.1177/1073110520917000

By:

Wolf, Leslie E.;
Hammack, Catherine M.;
Brown, Erin Fuse;
Brelsford, Kathleen M.;
Beskow, Laura M.;
Wolf, Susan M.;
Clayton, Ellen Wright;
Lawrenz, Frances

Publication type:

Article

Genomic Data-Sharing Practices.

Published in:

Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 31, doi. 10.1177/1073110519840482

By:

Villanueva, Angela G.;
Cook-Deegan, Robert;
Robinson, Jill O.;
McGuire, Amy L.;
Majumder, Mary A.

Publication type:

Article

Compelled Disclosures of Health Records: Updated Estimates.

Published in:

Journal of Law, Medicine & Ethics, 2017, v. 45, n. 1, p. 149, doi. 10.1177/1073110517703109

By:

Rothstein, Mark A.;
Talbott, Meghan K.

Publication type:

Article

Raising Genomic Citizens: Adolescents and the Return of Secondary Genomic Findings.

Published in:

Journal of Law, Medicine & Ethics, 2016, v. 44, n. 2, p. 292, doi. 10.1177/1073110516654123

By:

Sabatello, Maya;
Appelbaum, Paul S.

Publication type:

Article

How Genetics Might Affect Real Property Rights.

Published in:

Journal of Law, Medicine & Ethics, 2016, v. 44, n. 1, p. 216, doi. 10.1177/1073110516644212

By:

Rothstein, Mark A.;
Rothstein, Laura

Publication type:

Article

Biobanking Research and Privacy Laws in the United States.

Published in:

Journal of Law, Medicine & Ethics, 2016, v. 44, n. 1, p. 106, doi. 10.1177/1073110516644203

By:

Harrell, Heather L.;
Rothstein, Mark A.

Publication type:

Article

Privacy Laws and Biobanking in Germany.

Published in:

Journal of Law, Medicine & Ethics, 2016, v. 44, n. 1, p. 35, doi. 10.1177/1073110516644188

By:

Hoppe, Nils

Publication type:

Article

Biobanking in Estonia.

Published in:

Journal of Law, Medicine & Ethics, 2016, v. 44, n. 1, p. 20, doi. 10.1177/1073110516644186

By:

Keis, Aime

Publication type:

Article

Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.

Published in:

Journal of Law, Medicine & Ethics, 2015, v. 43, n. 3, p. 476, doi. 10.1111/jlme.12290

By:

Amendola, Laura M.;
Horike-Pyne, Martha;
Trinidad, Susan B.;
Fullerton, Stephanie M.;
Evans, Barbara J.;
Burke, Wylie;
Jarvik, Gail P.

Publication type:

Article

Returning a Research Participant's Genomic Results to Relatives: Perspectives from Managers of Two Distinct Research Biobanks.

Published in:

Journal of Law, Medicine & Ethics, 2015, v. 43, n. 3, p. 523, doi. 10.1111/jlme.12294

By:

Petersen, Gloria M.;
Van Ness, Brian

Publication type:

Article

Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject.

Published in:

Journal of Law, Medicine & Ethics, 2015, v. 43, n. 3, p. 529, doi. 10.1111/jlme.12295

By:

Scollon, Sarah;
Bergstrom, Katie;
McCullough, Laurence B.;
McGuire, Amy L.;
Gutierrez, Stephanie;
Kerstein, Robin;
Parsons, D. Williams;
Plon, Sharon E.

Publication type:

Article

How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?

Published in:

Journal of Law, Medicine & Ethics, 2015, v. 43, n. 3, p. 538, doi. 10.1111/jlme.12296

By:

Clayton, Ellen Wright

Publication type:

Article

Return of Results from Research Using Newborn Screening Dried Blood Samples.

Published in:

Journal of Law, Medicine & Ethics, 2015, v. 43, n. 3, p. 559, doi. 10.1111/jlme.12299

By:

Lewis, Michelle Huckaby;
Goldenberg, Aaron J.

Publication type:

Article

International Policies on Sharing Genomic Research Results with Relatives: Approaches to Balancing Privacy with Access.

Published in:

Journal of Law, Medicine & Ethics, 2015, v. 43, n. 3, p. 576, doi. 10.1111/jlme.12301

By:

Branum, Rebecca;
Wolf, Susan M.

Publication type:

Article