Found: 113
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Perspectives of pediatric oncologists on referral for CAR-T therapy: a mixed methods pilot study.
- Published in:
- JNCI Cancer Spectrum, 2024, v. 8, n. 4, p. 1, doi. 10.1093/jncics/pkae063
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- Publication type:
- Article
Research on Medical Practices: Why Patients Consider Participating and the Investigational Misconception.
- Published in:
- IRB: Ethics & Human Research, 2017, v. 39, n. 4, p. 10
- By:
- Publication type:
- Article
Research on Medical Practices (ROMP): Attitudes of IRB Personnel about Randomization and Informed Consent.
- Published in:
- IRB: Ethics & Human Research, 2017, v. 39, n. 1, p. 10
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- Publication type:
- Article
Points to Consider: The Research Ethics Consultation Service and the IRB.
- Published in:
- IRB: Ethics & Human Research, 2009, v. 31, n. 6, p. 1
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- Publication type:
- Article
Public attitudes toward an authorization for contact program for clinical research.
- Published in:
- 2021
- By:
- Publication type:
- journal article
How Do Institutional Review Boards Apply the Federal Risk and Benefit Standards for Pediatric Research?
- Published in:
- JAMA: Journal of the American Medical Association, 2004, v. 291, n. 4, p. 476, doi. 10.1001/jama.291.4.476
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- Publication type:
- Article
Limitations of Direct-to-Consumer Advertising for Clinical Genetic Testing.
- Published in:
- JAMA: Journal of the American Medical Association, 2002, v. 288, n. 14, p. 1762, doi. 10.1001/jama.288.14.1762
- By:
- Publication type:
- Article
Refining a Multifaceted Model of Perceived Utility of Genomic Sequencing Results.
- Published in:
- Public Health Genomics, 2023, v. 26, n. 1, p. 135, doi. 10.1159/000531782
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- Publication type:
- Article
Assessment of willingness to pay for expanded carrier screening among women and couples undergoing preconception carrier screening.
- Published in:
- PLoS ONE, 2018, v. 13, n. 7, p. 1, doi. 10.1371/journal.pone.0200139
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- Publication type:
- Article
Enhancing Children against Unhealthy Behaviors—An Ethical and Policy Assessment of Using a Nicotine Vaccine.
- Published in:
- Public Health Ethics, 2013, v. 6, n. 2, p. 197, doi. 10.1093/phe/pht006
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- Publication type:
- Article
Medical interpreter‐mediated genetic counseling for Spanish preferring adults at risk for a hereditary cancer syndrome.
- Published in:
- Journal of Genetic Counseling, 2023, v. 32, n. 4, p. 870, doi. 10.1002/jgc4.1695
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- Publication type:
- Article
Measuring high‐risk parents' opinions about direct‐to‐consumer genetic testing for adult‐onset inherited cancer syndromes in their adolescent and young adult children.
- Published in:
- Journal of Genetic Counseling, 2023, v. 32, n. 4, p. 768, doi. 10.1002/jgc4.1685
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- Publication type:
- Article
Barriers to family history knowledge and family communication among LGBTQ+ individuals in the context of hereditary cancer risk assessment.
- Published in:
- Journal of Genetic Counseling, 2022, v. 31, n. 1, p. 230, doi. 10.1002/jgc4.1476
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- Publication type:
- Article
Time Costs for Genetic Counseling in Preconception Carrier Screening with Genome Sequencing.
- Published in:
- Journal of Genetic Counseling, 2018, v. 27, n. 4, p. 823, doi. 10.1007/s10897-017-0205-5
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- Publication type:
- Article
Reasons for Declining Preconception Expanded Carrier Screening Using Genome Sequencing.
- Published in:
- Journal of Genetic Counseling, 2017, v. 26, n. 5, p. 971, doi. 10.1007/s10897-017-0074-y
- By:
- Publication type:
- Article
'Is It Worth Knowing?' Focus Group Participants' Perceived Utility of Genomic Preconception Carrier Screening.
- Published in:
- Journal of Genetic Counseling, 2016, v. 25, n. 1, p. 135, doi. 10.1007/s10897-015-9851-7
- By:
- Publication type:
- Article
Informed consent: Old and new challenges in the context of the COVID-19 pandemic.
- Published in:
- Journal of Clinical & Translational Science, 2021, v. 5, n. 1, p. 1, doi. 10.1017/cts.2021.401
- By:
- Publication type:
- Article
Research on Medical Practices and the Patient-Physician Relationship: What Can Regulators Learn from Patients?
- Published in:
- AMA Journal of Ethics, 2015, v. 17, n. 12, p. 1160, doi. 10.1001/journalofethics.2015.17.12.pfor2-1512
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- Publication type:
- Article
Ethical challenges in research with orphans and vulnerable children: a qualitative study of researcher experiences.
- Published in:
- International Health (1876-3413), 2016, v. 8, n. 3, p. 187, doi. 10.1093/inthealth/ihw020
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- Publication type:
- Article
An ethics framework for consolidating and prioritizing COVID-19 clinical trials.
- Published in:
- Clinical Trials, 2021, v. 18, n. 2, p. 226, doi. 10.1177/1740774520988669
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- Publication type:
- Article
Barriers and facilitators to clinical trial participation among parents of children with pediatric neuromuscular disorders.
- Published in:
- Clinical Trials, 2018, v. 15, n. 2, p. 139, doi. 10.1177/1740774517751118
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- Publication type:
- Article
A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent.
- Published in:
- Clinical Trials, 2017, v. 14, n. 1, p. 94, doi. 10.1177/1740774516669352
- By:
- Publication type:
- Article
A comparison of institutional review board professionals’ and patients’ views on consent for research on medical practices.
- Published in:
- Clinical Trials, 2016, v. 13, n. 5, p. 555, doi. 10.1177/1740774516648907
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- Publication type:
- Article
Commentary on Kim Miller.
- Published in:
- Clinical Trials, 2015, v. 12, n. 6, p. 564, doi. 10.1177/1740774515607368
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- Publication type:
- Article
The ethics and regulatory landscape of including vulnerable populations in pragmatic clinical trials.
- Published in:
- Clinical Trials, 2015, v. 12, n. 5, p. 503, doi. 10.1177/1740774515597701
- By:
- Publication type:
- Article
Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.
- Published in:
- Patient, 2022, v. 15, n. 3, p. 317, doi. 10.1007/s40271-021-00558-4
- By:
- Publication type:
- Article
Consent Forms and the Therapeutic Misconception: The Example of Gene Transfer Research.
- Published in:
- IRB: Ethics & Human Research, 2005, v. 27, n. 1, p. 1, doi. 10.2307/3563865
- By:
- Publication type:
- Article
Recruitment Approaches for Family Studies: Attitudes of Index Patients and Their Relatives.
- Published in:
- IRB: Ethics & Human Research, 2004, v. 26, n. 4, p. 12, doi. 10.2307/3563699
- By:
- Publication type:
- Article
Genetic Research Involving Human Biological Materials: A Need to Tailor Consent Forms.
- Published in:
- IRB: Ethics & Human Research, 2004, v. 26, n. 3, p. 1, doi. 10.2307/3563748
- By:
- Publication type:
- Article
Severe hemolytic anemia associated with vitamin E deficiency in infants with cystic fibrosis.
- Published in:
- Clinical Pediatrics, 1994, v. 33, n. 1, p. 2, doi. 10.1177/000992289403300101
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- Publication type:
- Article
"What Would Give Her the Best Life?": Understanding Why Families Decline Pediatric Home Ventilation.
- Published in:
- Journal of Palliative Medicine, 2023, v. 26, n. 7, p. 930, doi. 10.1089/jpm.2022.0426
- By:
- Publication type:
- Article
From Monochromatic to Technicolor: Parent Perspectives on Challenges and Approaches to Seeing Children with Severe Neurological Impairment Holistically.
- Published in:
- Journal of Palliative Medicine, 2022, v. 25, n. 3, p. 437, doi. 10.1089/jpm.2021.0344
- By:
- Publication type:
- Article
Longitudinal adherence to breast cancer surveillance following cancer genetic testing in an integrated health care system.
- Published in:
- Breast Cancer Research & Treatment, 2023, v. 201, n. 3, p. 461, doi. 10.1007/s10549-023-07007-w
- By:
- Publication type:
- Article
1078. Therapeutic Misconception in Early Phase Gene Transfer Trials
- Published in:
- 2005
- By:
- Publication type:
- Abstract
Uncertain benefit: investigators' views and communications in early phase gene transfer trials
- Published in:
- Molecular Therapy, 2004, v. 10, n. 2, p. 225, doi. 10.1016/j.ymthe.2004.05.013
- By:
- Publication type:
- Article
Responding to Adolescents with Cancer who Refuse Sperm Banking: When 'No' Should Not Be the Last Word.
- Published in:
- Journal of Adolescent & Young Adult Oncology, 2011, v. 1, n. 3, p. 114
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- Publication type:
- Article
National policy development for the clinical application of genetic diagnostic technologies.
- Published in:
- JAMA: Journal of the American Medical Association, 1993, v. 270, n. 24, p. 2948, doi. 10.1001/jama.1993.03510240060033
- By:
- Publication type:
- Article
Values in health care.
- Published in:
- 1993
- By:
- Publication type:
- Book Review
Addressing racism in the healthcare encounter: The role of clinical ethics consultants.
- Published in:
- Bioethics, 2022, v. 36, n. 3, p. 313, doi. 10.1111/bioe.13008
- By:
- Publication type:
- Article
Adaptation and early implementation of the PREdiction model for gene mutations (PREMM<sub>5</sub>™) for lynch syndrome risk assessment in a diverse population.
- Published in:
- Familial Cancer, 2022, v. 21, n. 2, p. 167, doi. 10.1007/s10689-021-00243-3
- By:
- Publication type:
- Article
Factors That Impact Hospital‐Specific Enrollment Rates for a Neonatal Clinical Trial: An Analysis of the HEAL Study.
- Published in:
- Ethics & Human Research, 2023, v. 45, n. 1, p. 29, doi. 10.1002/eahr.500154
- By:
- Publication type:
- Article
Creating a Research Ethics Consultation Service: Issues to Consider.
- Published in:
- Ethics & Human Research, 2021, v. 43, n. 5, p. 18, doi. 10.1002/eahr.500101
- By:
- Publication type:
- Article
Enrolling Children in Clinical Trials for Genetic Neurodevelopmental Conditions: Ethics, Parental Decisions, and Children's Identities.
- Published in:
- Ethics & Human Research, 2021, v. 43, n. 4, p. 27, doi. 10.1002/eahr.500097
- By:
- Publication type:
- Article
Participant Engagement in Translational Genomics Research: Respect for Persons—and Then Some.
- Published in:
- Ethics & Human Research, 2019, v. 41, n. 5, p. 2, doi. 10.1002/eahr.500029
- By:
- Publication type:
- Article
A case for expanding carrier testing to include actionable X‐linked disorders.
- Published in:
- 2018
- By:
- Publication type:
- Case Study
LETTERS.
- Published in:
- 2001
- By:
- Publication type:
- Letter
Hereditary hemochromatosis.
- Published in:
- JAMA: Journal of the American Medical Association, 1998, v. 280, n. 2, p. 172, doi. 10.1001/jama.280.2.172
- By:
- Publication type:
- Article
Building trust and improving communication with parents of children with Trisomy 13 and 18: A mixed-methods study.
- Published in:
- Palliative Medicine, 2020, v. 34, n. 3, p. 262, doi. 10.1177/0269216319860662
- By:
- Publication type:
- Article
Clinical Trials and Medical Care: Defining the Therapeutic Misconception.
- Published in:
- PLoS Medicine, 2007, v. 4, n. 11, p. e324, doi. 10.1371/journal.pmed.0040324
- By:
- Publication type:
- Article
Current issues in neonatal screening for cystic fibrosis and implications of the CF gene discovery.
- Published in:
- Pediatric Pulmonology, 1991, v. 11, n. S7, p. 11, doi. 10.1002/ppul.1950110704
- By:
- Publication type:
- Article