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The development and validation of a revised version of the Medical Outcomes Study Sleep Scale (MOS Sleep-R).
- Published in:
- Journal of Patient-Reported Outcomes, 2021, v. 5, n. 1, p. 1, doi. 10.1186/s41687-021-00311-3
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- Article
Content validation of a self-report daily diary in patients with sickle cell disease.
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- Journal of Patient-Reported Outcomes, 2021, v. 5, n. 1, p. 1, doi. 10.1186/s41687-021-00337-7
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- Article
Patient-reported burden of hereditary transthyretin amyloidosis on functioning and well-being.
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- Journal of Patient-Reported Outcomes, 2021, v. 5, n. 1, p. 1, doi. 10.1186/s41687-020-00273-y
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- Article
Treatment Tolerability in Patients with Immunoglobulin Light-Chain Amyloidosis.
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- American Health & Drug Benefits, 2018, v. 11, n. 8, p. 430
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- Article
The burden of amyloid light chain amyloidosis on health-related quality of life.
- Published in:
- 2017
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- Publication type:
- journal article
Patient-reported treatment-related symptom burden for patients with advanced melanoma in Canada.
- Published in:
- 2019
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- Publication type:
- journal article
Humanistic burden of disease for patients with advanced melanoma in Canada.
- Published in:
- 2018
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- Publication type:
- journal article
Long-term Follow-up of Cytologically Indeterminate Thyroid Nodules Found Benign on Molecular Testing: A Validation Study.
- Published in:
- OTO Open: The Official Open Access Journal of the American Academy of Otolaryngology Head & Neck Surgery Foundation, 2022, v. 6, n. 1, p. 1, doi. 10.1177/2473974X221083542
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- Article
Cardiac biomarkers and health‐related quality of life in patients with light chain (AL) amyloidosis.
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- British Journal of Haematology, 2019, v. 185, n. 5, p. 998, doi. 10.1111/bjh.15693
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- Article
A longitudinal evaluation of health-related quality of life in patients with AL amyloidosis: associations with health outcomes over time.
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- British Journal of Haematology, 2017, v. 179, n. 3, p. 461, doi. 10.1111/bjh.14889
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- Article
Burden of hereditary transthyretin amyloidosis on quality of life.
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- 2019
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- Publication type:
- journal article
Adolescents' perceptions of friends during substance abuse treatment: A qualitative study.
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- Contemporary Drug Problems, 2008, v. 35, n. 1, p. 99, doi. 10.1177/009145090803500105
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- Article
Light Chain (AL) Amyloidosis: The Journey to Diagnosis.
- Published in:
- Patient, 2018, v. 11, n. 2, p. 207, doi. 10.1007/s40271-017-0273-5
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- Article
Reliability and Validity of the Persian HIT-6 Questionnaire in Migraine and Tension-type Headache.
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- Pain Practice, 2014, v. 14, n. 7, p. 625, doi. 10.1111/papr.12120
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- Article
Content validation of observer-reported sickle cell pain diaries (SCPD-CS and SCPD-CN): results from interviews with caregivers.
- Published in:
- 2021
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- Publication type:
- journal article
Inotersen preserves or improves quality of life in hereditary transthyretin amyloidosis.
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- Journal of Neurology, 2020, v. 267, n. 4, p. 1070, doi. 10.1007/s00415-019-09671-9
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- Publication type:
- Article
Qualitative research with patients and caregivers of patients with PIK3CA related overgrowth spectrum: content validity of clinical outcome assessments.
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- Journal of Patient-Reported Outcomes, 2022, v. 6, n. 1, p. 1, doi. 10.1186/s41687-022-00481-8
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- Publication type:
- Article
Development of the SF-6Dv2 health utility survey: comprehensibility and patient preference.
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- Journal of Patient-Reported Outcomes, 2022, v. 6, n. 1, p. 1, doi. 10.1186/s41687-022-00455-w
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- Publication type:
- Article
Health-Related Quality of Life Instruments for Clinical Trials in AL Amyloidosis: Report from the Amyloidosis Forum HRQOL Working Group.
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- Patient Related Outcome Measures, 2023, v. 14, p. 153, doi. 10.2147/PROM.S399658
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- Article
Work Outcomes Among Patients with Light Chain (AL) Amyloidosis: Findings from Three Patient Cohorts.
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- Patient Related Outcome Measures, 2021, v. 12, p. 339, doi. 10.2147/PROM.S337676
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- Article
Content Validation of the ATTR Amyloidosis Patient Symptom Survey: Findings from Patient and Clinician Cognitive Debriefing Interviews.
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- Patient Related Outcome Measures, 2020, v. 11, p. 149, doi. 10.2147/PROM.S264034
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- Publication type:
- Article
Psychometric validation of the SF-36 Health Survey in light chain amyloidosis: results from community-based and clinic-based samples.
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- Patient Related Outcome Measures, 2017, v. 8, p. 157, doi. 10.2147/PROM.S146849
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- Article
Health-related quality of life (HRQL) for individuals with self-reported chronic physical and/or mental health conditions: panel survey of an adult sample in the United States.
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- Health & Quality of Life Outcomes, 2012, v. 10, n. 1, p. 154, doi. 10.1186/1477-7525-10-154
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- Article
The Construct and Predictive Validity of Different Approaches to Combining Urine and Self-Reported Drug Use Measures among Older Adolescents after Substance Abuse Treatment.
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- American Journal on Addictions, 2006, v. 15, p. 92, doi. 10.1080/10550490601006089
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- Article
Employment and Adolescent Alcohol and Drug Treatment and Recovery: An Exploratory Study.
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- American Journal on Addictions, 2006, v. 15, p. 137, doi. 10.1080/10550490601006295
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- Article
Employment and adolescent alcohol and drug treatment and recovery: an exploratory study.
- Published in:
- 2006
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- Publication type:
- journal article
The construct and predictive validity of different approaches to combining urine and self-reported drug use measures among older adolescents after substance abuse treatment.
- Published in:
- 2006
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- Publication type:
- journal article
Development of Duchenne Video Assessment scorecards to evaluate ease of movement among those with Duchenne muscular dystrophy.
- Published in:
- PLoS ONE, 2022, v. 17, n. 4, p. 1, doi. 10.1371/journal.pone.0266845
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- Publication type:
- Article
Patient Experience With Fatigue and Qualitative Interview-Based Evidence of Content Validation of The FACIT-Fatigue in Systemic Lupus Erythematosus.
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- Rheumatology & Therapy, 2021, v. 8, n. 1, p. 541, doi. 10.1007/s40744-021-00292-1
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- Article
The relationship between frequency and severity of vaso-occlusive crises and health-related quality of life and work productivity in adults with sickle cell disease.
- Published in:
- 2020
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- Publication type:
- journal article
Adapting traditional content validation methods to fit purpose: an example with a novel video assessment and training materials in Duchenne muscular dystrophy (DMD).
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- 2019
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- Publication type:
- journal article
A meta-analytic review of measurement equivalence study findings of the SF-36® and SF-12® Health Surveys across electronic modes compared to paper administration.
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- 2018
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- journal article
Measuring the health status burden in hemodialysis patients using the SF-36® health survey.
- Published in:
- 2011
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- Publication type:
- journal article
Psychometric validation of the Perceived Deficits Questionnaire-Depression (PDQ-D) instrument in US and UK respondents with major depressive disorder.
- Published in:
- Neuropsychiatric Disease & Treatment, 2018, v. 14, p. 2861, doi. 10.2147/NDT.S175188
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- Article