EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders.

Published in:

Orphanet Journal of Rare Diseases, 2024, v. 19, n. 1, p. 1, doi. 10.1186/s13023-024-03059-3

By:

• Atalaia, Antonio;
• Wandrei, Dagmar;
• Lalout, Nawel;
• Thompson, Rachel;
• Tassoni, Adrian;
• 't Hoen, Peter A. C.;
• Athanasiou, Dimitrios;
• Baker, Suzie-Ann;
• Sakellariou, Paraskevi;
• Paliouras, Georgios;
• D'Angelo, Carla;
• Horvath, Rita;
• Mancuso, Michelangelo;
• van der Beek, Nadine;
• Kornblum, Cornelia;
• Kirschner, Janbernd;
• Pareyson, Davide;
• Bassez, Guillaume;
• Blacas, Laura;
• Jacoupy, Maxime

Publication type:

Article