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Relation Between Religious Perspectives and Views on Sickle Cell Disease Research and Associated Public Health Interventions in Ghana.
- Published in:
- Journal of Genetic Counseling, 2019, v. 28, n. 1, p. 102, doi. 10.1007/s10897-018-0296-7
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- Publication type:
- Article
Sickle cell disease and H3Africa: enhancing genomic research on cardiovascular diseases in African patients.
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- Cardiovascular Journal of Africa, 2015, p. S50, doi. 10.5830/CVJA-2015-040
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- Publication type:
- Article
Impact of elosulfase alfa in patients with morquio A syndrome who have limited ambulation: An open-label, phase 2 study.
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- American Journal of Medical Genetics. Part A, 2017, v. 173, n. 2, p. 375, doi. 10.1002/ajmg.a.38014
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- Publication type:
- Article
Safety and physiological effects of two different doses of elosulfase alfa in patients with morquio a syndrome: A randomized, double-blind, pilot study.
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- American Journal of Medical Genetics. Part A, 2015, v. 167A, n. 10, p. 2272, doi. 10.1002/ajmg.a.37172
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- Publication type:
- Article
Mortality in adults with sickle cell disease: Results from the sickle cell disease implementation consortium (SCDIC) registry.
- Published in:
- American Journal of Hematology, 2024, v. 99, n. 5, p. 900, doi. 10.1002/ajh.27279
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- Publication type:
- Article
Pregnancy outcomes with hydroxyurea use in women with sickle cell disease.
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- American Journal of Hematology, 2022, v. 97, n. 5, p. 603, doi. 10.1002/ajh.26495
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- Publication type:
- Article
Patient‐reported neurocognitive symptoms influence instrumental activities of daily living in sickle cell disease.
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- American Journal of Hematology, 2021, v. 96, n. 11, p. 1396, doi. 10.1002/ajh.26315
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- Publication type:
- Article
Practice Guidelines for the Assessment of Children With Sickle Cell Pain.
- Published in:
- Journal for Specialists in Pediatric Nursing, 1999, v. 4, n. 2, p. 61, doi. 10.1111/j.1744-6155.1999.tb00036.x
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- Publication type:
- Article
Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me℠.
- Published in:
- 2017
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- Publication type:
- journal article
A Simple Model to Assess and Improve Adherence to Iron Chelation Therapy with Deferoxamine in Patients with Thalassemia.
- Published in:
- Annals of the New York Academy of Sciences, 2005, v. 1054, n. 1, p. 486, doi. 10.1196/annals.1345.065
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- Publication type:
- Article
Quality of Life in Patients with Thalassemia Intermedia Compared to Thalassemia Major.
- Published in:
- Annals of the New York Academy of Sciences, 2005, v. 1054, n. 1, p. 457, doi. 10.1196/annals.1345.059
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- Publication type:
- Article
Using quality improvement strategies to enhance pediatric pain assessment.
- Published in:
- 2002
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- Publication type:
- journal article
Using quality improvement strategies to enhance pediatric pain assessment.
- Published in:
- International Journal for Quality in Health Care, 2002, v. 14, n. 1, p. 39, doi. 10.1093/intqhc/14.1.39
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- Publication type:
- Article
Autonomic reactivity and clinical severity in children with sickle cell disease.
- Published in:
- Clinical Autonomic Research, 2005, v. 15, n. 6, p. 400, doi. 10.1007/s10286-005-0300-9
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- Publication type:
- Article
Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium.
- Published in:
- PLoS ONE, 2021, v. 16, n. 10, p. 1, doi. 10.1371/journal.pone.0258638
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- Publication type:
- Article
A National Measurement Framework to Assess and Improve Sickle Cell Care in 4 US Regions.
- Published in:
- Public Health Reports, 2020, v. 135, n. 4, p. 442, doi. 10.1177/0033354920935068
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- Publication type:
- Article
The effect of an adapted digital mental health intervention for sickle cell disease on engagement: a pilot randomized controlled trial.
- Published in:
- BMC Digital Health, 2023, v. 1, n. 1, p. 1, doi. 10.1186/s44247-023-00051-y
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- Publication type:
- Article
Examining Mental Health, Education, Employment, and Pain in Sickle Cell Disease.
- Published in:
- JAMA Network Open, 2023, v. 6, n. 5, p. e2314070, doi. 10.1001/jamanetworkopen.2023.14070
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- Publication type:
- Article
Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations.
- Published in:
- Frontiers in Genetics, 2019, p. 1, doi. 10.3389/fgene.2019.00943
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- Publication type:
- Article
Annual Academy of Sickle Cell and Thalassaemia (ASCAT) conference: a summary of the proceedings.
- Published in:
- BMC Proceedings, 2020, v. 14, p. 1, doi. 10.1186/s12919-020-00204-1
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- Publication type:
- Article
Using Formative Research to Develop a Counselor Training Program for Newborn Screening in Ghana.
- Published in:
- Journal of Genetic Counseling, 2015, v. 24, n. 2, p. 267, doi. 10.1007/s10897-014-9759-7
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- Publication type:
- Article
Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care.
- Published in:
- JAMA Network Open, 2020, v. 3, n. 5, p. e206016, doi. 10.1001/jamanetworkopen.2020.6016
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- Publication type:
- Article
Health Care Disparities Among Adolescents and Adults With Sickle Cell Disease: A Community-Based Needs Assessment to Inform Intervention Strategies.
- Published in:
- Journal of Clinical Outcomes Management, 2020, v. 27, n. 5, p. 213, doi. 10.12788/jcom.0019
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- Publication type:
- Article
Emotional Distress, Barriers to Care, and Health-Related Quality of Life in Sickle Cell Disease.
- Published in:
- Journal of Clinical Outcomes Management, 2015, v. 22, n. 1, p. 10
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- Publication type:
- Article
A Quality Improvement Initiative to Improve Emergency Department Care for Pediatric Patients with Sickle Cell Disease.
- Published in:
- Journal of Clinical Outcomes Management, 2014, v. 21, n. 2, p. 62
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- Publication type:
- Article
Stepping Systematically Forward Toward Health Equity in Sickle Cell Disease.
- Published in:
- 2024
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- Publication type:
- Opinion
Impact of Medicaid expansion on access and healthcare among individuals with sickle cell disease.
- Published in:
- 2020
- By:
- Publication type:
- journal article
Pediatric residents' perceived barriers to opioid use in sickle cell disease pain management.
- Published in:
- Pediatric Blood & Cancer, 2019, v. 66, n. 2, p. N.PAG, doi. 10.1002/pbc.27535
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- Publication type:
- Article
Virtual reality as complementary pain therapy in hospitalized patients with sickle cell disease.
- Published in:
- 2019
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- Publication type:
- journal article
Pediatric residents' perceived barriers to opioid use in sickle cell disease pain management.
- Published in:
- 2018
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- Publication type:
- journal article
Emergency department utilization by Californians with sickle cell disease, 2005-2014.
- Published in:
- 2017
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- Publication type:
- journal article
Population based surveillance in sickle cell disease: Methods, findings and implications from the California registry and surveillance system in hemoglobinopathies project (RuSH).
- Published in:
- Pediatric Blood & Cancer, 2014, v. 61, n. 12, p. 2271, doi. 10.1002/pbc.25208
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- Publication type:
- Article
Population Based Surveillance in Sickle Cell Disease: Methods, Findings and Implications From the California Registry and Surveillance System in Hemoglobinopathies Project (RuSH).
- Published in:
- Pediatric Blood & Cancer, 2014, v. 61, p. 2271, doi. 10.1002/pbc.25208
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- Publication type:
- Article
Patient reports of health outcome for adults living with sickle cell disease: development and testing of ASCQ-Me item banks.
- Published in:
- Health & Quality of Life Outcomes, 2014, v. 12, n. 1, p. 1, doi. 10.1186/s12955-014-0125-0
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- Publication type:
- Article
Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks.
- Published in:
- 2014
- By:
- Publication type:
- journal article
Patient‐reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium.
- Published in:
- American Journal of Hematology, 2020, v. 95, n. 9, p. 1066, doi. 10.1002/ajh.25880
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- Publication type:
- Article
The sickle cell disease implementation consortium: Translating evidence‐based guidelines into practice for sickle cell disease.
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- American Journal of Hematology, 2018, v. 93, n. 12, p. E391, doi. 10.1002/ajh.25282
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- Publication type:
- Article
Barriers and facilitators to research participation among adults, and parents of children with sickle cell disease: A trans-regional survey.
- Published in:
- American Journal of Hematology, 2016, v. 91, n. 10, p. E461, doi. 10.1002/ajh.24483
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- Publication type:
- Article
Transition from pediatric to adult care in sickle cell disease: Establishing evidence-based practice and directions for research.
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- American Journal of Hematology, 2011, v. 86, n. 1, p. 116, doi. 10.1002/ajh.21880
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- Publication type:
- Article
Barriers to Pediatric Sickle Cell Disease Guideline Recommendations.
- Published in:
- Global Pediatric Health, 2019, v. 6, p. 1, doi. 10.1177/2333794X19847026
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- Publication type:
- Article
Barriers to Pediatric Sickle Cell Disease Guideline Recommendations.
- Published in:
- Global Pediatric Health, 2019, v. 6, p. N.PAG, doi. 10.1177/2333794X19847026
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- Publication type:
- Article
Barriers to hydroxyurea use from the perspectives of providers, individuals with sickle cell disease, and families: Report from a U.S. regional collaborative.
- Published in:
- Frontiers in Genetics, 2022, v. 13, p. 1, doi. 10.3389/fgene.2022.921432
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- Publication type:
- Article
CureSCi Metadata Catalog–Making sickle cell studies findable.
- Published in:
- PLoS ONE, 2022, v. 17, n. 12, p. 1, doi. 10.1371/journal.pone.0256248
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- Publication type:
- Article
What does it mean to be affiliated with care?: Delphi consensus on the definition of "unaffiliation" and "specialist" in sickle cell disease.
- Published in:
- PLoS ONE, 2022, v. 17, n. 11, p. 1, doi. 10.1371/journal.pone.0272204
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- Publication type:
- Article
Perspectives of individuals with sickle cell disease on barriers to care.
- Published in:
- PLoS ONE, 2022, v. 17, n. 3, p. 1, doi. 10.1371/journal.pone.0265342
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- Publication type:
- Article
Social and Psychological Factors Associated With Health Care Transition for Young Adults Living With Sickle Cell Disease.
- Published in:
- Journal of Transcultural Nursing, 2021, v. 32, n. 1, p. 21, doi. 10.1177/1043659619896837
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- Publication type:
- Article
The mediating effects of family functioning on psychosocial outcomes in healthy siblings of children with sickle cell disease.
- Published in:
- Pediatric Blood & Cancer, 2011, v. 57, n. 6, p. 1055, doi. 10.1002/pbc.22933
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- Publication type:
- Article
Education and employment status of children and adults with thalassemia in North America.
- Published in:
- Pediatric Blood & Cancer, 2010, v. 55, n. 4, p. 678, doi. 10.1002/pbc.22565
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- Publication type:
- Article
Barriers to adherence of deferoxamine usage in sickle cell disease.
- Published in:
- Pediatric Blood & Cancer, 2005, v. 44, n. 5, p. 500, doi. 10.1002/pbc.20290
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- Publication type:
- Article
Self-efficacy and readiness for transition from pediatric to adult care in sickle cell disease.
- Published in:
- 2016
- By:
- Publication type:
- journal article