Works by Symonds, Tara

Results: 44

Validation of the 5-domain Niemann-Pick type C Clinical Severity Scale.

Published in:

2021

By:

Patterson, Marc C.;
Lloyd-Price, Lucy;
Guldberg, Christina;
Doll, Helen;
Burbridge, Claire;
Chladek, Michael;
íDali, Christine;
Mengel, Eugen;
Symonds, Tara

Publication type:

journal article

Clinical disease progression and biomarkers in Niemann-Pick disease type C: a prospective cohort study.

Published in:

2020

By:

Mengel, Eugen;
Bembi, Bruno;
del Toro, Mireia;
Deodato, Federica;
Gautschi, Matthias;
Grunewald, Stephanie;
Grønborg, Sabine;
Héron, Bénédicte;
Maier, Esther M.;
Roubertie, Agathe;
Santra, Saikat;
Tylki-Szymanska, Anna;
Day, Simon;
Symonds, Tara;
Hudgens, Stacie;
Patterson, Marc C.;
Guldberg, Christina;
Ingemann, Linda;
Petersen, Nikolaj H. T.;
Kirkegaard, Thomas

Publication type:

journal article

Understanding symptomatic experience, impact, and emotional response in recently diagnosed metastatic castration-resistant prostate cancer: a qualitative study.

Published in:

2020

By:

Burbridge, Claire;
Randall, Jason A.;
Lawson, Joe;
Symonds, Tara;
Dearden, Lindsay;
Lopez-Gitlitz, Angela;
Espina, Byron;
McQuarrie, Kelly

Publication type:

journal article

Qualitative Patient Interviews to Characterize the Human Burden of Advanced Basal Cell Carcinoma Following Hedgehog Pathway Inhibitor Treatment.

Published in:

Dermatology & Therapy, 2023, v. 13, n. 8, p. 1747, doi. 10.1007/s13555-023-00945-9

By:

Konidaris, Gerasimos;
Rofail, Diana;
Randall, Jason;
LaFontaine, Patrick R.;
Chen, Chieh-I.;
Bury, Denise;
Geiger, Ashley;
Sasane, Medha;
Symonds, Tara

Publication type:

Article

Developing a fit-for-purpose composite symptom score as a symptom burden endpoint for clinical trials in patients with malignant pleural mesothelioma.

Published in:

Scientific Reports, 2024, v. 14, n. 1, p. 1, doi. 10.1038/s41598-024-62307-5

By:

Cleeland, Charles S.;
Keating, Karen N.;
Cuffel, Brian;
Elbi, Cem;
Siegel, Jonathan M.;
Gerlinger, Christoph;
Symonds, Tara;
Sloan, Jeff A.;
Dueck, Amylou C.;
Bottomley, Andrew;
Wang, Xin Shelley;
Williams, Loretta A.;
Mendoza, Tito R.

Publication type:

Article

Developing Angelman syndrome-specific clinician-reported and caregiver-reported measures to support holistic, patient-centered drug development.

Published in:

Orphanet Journal of Rare Diseases, 2023, v. 18, n. 1, p. 1, doi. 10.1186/s13023-023-02729-y

By:

Connor-Ahmad, Siobhan;
Tjeertes, Jorrit;
Chladek, Michael;
Newton, Louise;
Symonds, Tara;
Clinch, Susanne;
Vincenzi, Brenda;
McDougall, Fiona

Publication type:

Article

Assessment of sleep in patients with fibromyalgia: qualitative development of the fibromyalgia sleep diary.

Published in:

Health & Quality of Life Outcomes, 2014, v. 12, n. 1, p. 1, doi. 10.1186/s12955-014-0111-6

By:

Kleinman, Leah;
Mannix, Sally;
Arnold, Lesley M.;
Burbridge, Claire;
Howard, Kellee;
McQuarrie, Kelly;
Pitman, Verne;
Resnick, Malca;
Roth, Tom;
Symonds, Tara

Publication type:

Article

Assessment of sleep in patients with fibromyalgia: qualitative development of the fibromyalgia sleep diary.

Published in:

2014

By:

Kleinman, Leah;
Mannix, Sally;
Arnold, Lesley M;
Burbridge, Claire;
Howard, Kellee;
McQuarrie, Kelly;
Pitman, Verne;
Resnick, Malca;
Roth, Tom;
Symonds, Tara

Publication type:

journal article

Estimating clinically significant differences in quality of life outcomes.

Published in:

2005

By:

Wyrwich, Kathleen W.;
Bullinger, Monika;
Aaronson, Neil;
Hays, Ron D.;
Patrick, Donald L.;
Symonds, Tara;
Clinical Significance Consensus Meeting Group

Publication type:

journal article

A review of muscle- and performance-based assessment instruments in DM1.

Published in:

2017

By:

Symonds, Tara;
Campbell, Patrick;
Randall, Jason A.

Publication type:

journal article

Review of patient-reported outcome measures for use in myotonic dystrophy type 1 patients.

Published in:

2017

By:

Symonds, Tara;
Randall, Jason A.;
Campbell, Patrick

Publication type:

journal article

Symptoms and associated impact in pre- and postmenopausal women with sexual arousal disorder: a concept elicitation study.

Published in:

Journal of Sexual Medicine, 2023, v. 20, n. 3, p. 277, doi. 10.1093/jsxmed/qdac043

By:

Symonds, Tara;
Kingsberg, Sheryl A;
Simon, James A;
Kroll, Robin;
Althof, Stanley E;
Parish, Sharon J;
Cornell, Katherine A;
Johnson, Isabella F;
Goldstein, Andrew T

Publication type:

Article

Psychometric Properties of the Dependence Scale in Large Randomized Clinical Trials of Patients With Mild and Moderate Alzheimer’s Disease.

Published in:

2014

By:

Wyrwich, Kathleen W.;
Auguste, Priscilla;
Buchanan, Jacqui;
Rudell, Katja;
Lacey, Loretto;
Leibman, Christopher;
Symonds, Tara;
Brashear, H. Robert

Publication type:

Journal Article

Psychometric Properties of the Dependence Scale in Large Randomized Clinical Trials of Patients With Mild and Moderate Alzheimer’s Disease.

Published in:

American Journal of Alzheimer's Disease & Other Dementias, 2014, v. 29, n. 7, p. 620, doi. 10.1177/1533317514527336

By:

Wyrwich, Kathleen W.;
Auguste, Priscilla;
Buchanan, Jacqui;
Rudell, Katja;
Lacey, Loretto;
Leibman, Christopher;
Symonds, Tara;
Brashear, H. Robert

Publication type:

Article

Comparisons and correlations of 1-month recall vs 24-hour recall in patient-reported outcomes of an exploratory, phase 2b, randomized, double-blind, placebo-controlled clinical trial of sildenafil cream, 3.6% for the treatment of female sexual arousal disorder

Published in:

Journal of Sexual Medicine, 2024, v. 21, n. 9, p. 787, doi. 10.1093/jsxmed/qdae086

By:

Johnson, Isabella;
Thurman, Andrea Ries;
Cornell, Katherine A;
Symonds, Tara;
Hatheway, Jessica;
Friend, David R;
Goldstein, Andrew

Publication type:

Article

A qualitative study exploring the health-related quality of life and symptomatic experiences of adults and adolescents with ulcerative colitis.

Published in:

Journal of Patient-Reported Outcomes, 2019, v. 3, n. 1, p. N.PAG, doi. 10.1186/s41687-019-0154-x

By:

Newton, Louise;
Randall, Jason A.;
Hunter, Theresa;
Keith, Shannon;
Symonds, Tara;
Secrest, Roberta J.;
Komocsar, Wendy J.;
Curtis, Sarah E.;
Abetz-Webb, Linda;
Kappelman, Michael;
Naegeli, April N.

Publication type:

Article

Exploring content and psychometric validity of newly developed assessment tools for itch and skin pain in atopic dermatitis.

Published in:

Journal of Patient-Reported Outcomes, 2019, v. 3, n. 1, p. N.PAG, doi. 10.1186/s41687-019-0128-z

By:

Newton, Louise;
DeLozier, Amy M.;
Griffiths, Philip C.;
Hill, Jennifer N.;
Hudgens, Stacie;
Symonds, Tara;
Gable, Jonathon C.;
Paik, Jim;
Wyrwich, Kathleen W.;
Eichenfield, Lawrence F.;
Abetz-Webb, Linda;
Silverberg, Jonathan I.

Publication type:

Article

Cumulative response curves to enhance interpretation of treatment differences on the Self-Esteem And Relationship questionnaire for men with erectile dysfunction.

Published in:

BJU International, 2013, v. 111, n. 3b, p. E115, doi. 10.1111/j.1464-410X.2012.11489.x

By:

Cappelleri, Joseph C.;
Zou, Kelly H.;
Bushmakin, Andrew G.;
Carlsson, Martin O.;
Symonds, Tara

Publication type:

Article

Measuring the impact of trigeminal neuralgia pain: the Penn Facial Pain Scale-Revised.

Published in:

Journal of Pain Research, 2018, v. 11, p. 1067, doi. 10.2147/JPR.S152958

By:

Symonds, Tara;
Randall, Jason A;
Hoffman, Deborah L;
Zakrzewska, Joanna M;
Gehringer, William;
Lee, John YK

Publication type:

Article

Exploring Disease Remission and Bowel Urgency Severity Among Adults with Moderate to Severe Ulcerative Colitis: A Qualitative Study.

Published in:

Patient Related Outcome Measures, 2022, v. 13, p. 287, doi. 10.2147/PROM.S378759

By:

Dubinsky, Marla C;
Newton, Louise;
Delbecque, Laure;
Hunter, Theresa;
Guobyte, Aiste;
Naegeli, April N;
McFadden, Shehan;
Donaldson, Jill;
Symonds, Tara;
Lewis, James D

Publication type:

Article

Burden of illness of trigeminal neuralgia among patients managed in a specialist center in England.

Published in:

Journal of Headache & Pain, 2020, v. 21, n. 1, p. N.PAG, doi. 10.1186/s10194-020-01198-z

By:

O'Callaghan, Lasair;
Floden, Lysbeth;
Vinikoor-Imler, Lisa;
Symonds, Tara;
Giblin, Kathryn;
Hartford, Chris;
Zakrzewska, Joanna M.

Publication type:

Article

What Outcomes are Important for Gout Patients? In-Depth Qualitative Research into the Gout Patient Experience to Determine Optimal Endpoints for Evaluating Therapeutic Interventions.

Published in:

Patient, 2017, v. 10, n. 1, p. 65, doi. 10.1007/s40271-016-0184-x

By:

Tatlock, Sophi;
Rüdell, Katja;
Panter, Charlotte;
Arbuckle, Rob;
Harrold, Leslie;
Taylor, William;
Symonds, Tara

Publication type:

Article

Using DCE and ranking data to estimate cardinal values for health states for deriving a preference-based single index from the sexual quality of life questionnaire.

Published in:

Health Economics, 2009, v. 18, n. 11, p. 1261, doi. 10.1002/hec.1426

By:

Ratcliffe, Julie;
Brazier, John;
Tsuchiya, Aki;
Symonds, Tara;
Brown, Martin

Publication type:

Article

Development and refinement of the Clinical Global Impression of Improvement for Non-seizure Symptoms measure in Dravet syndrome and Lennox-Gastaut syndrome.

Published in:

Journal of Patient-Reported Outcomes, 2025, v. 9, n. 1, p. 1, doi. 10.1186/s41687-024-00829-2

By:

Andrews, J. Scott;
Shah, Drishti;
Nacson, Alise;
Symonds, Tara;
Hughes, Sophie;
Asgharnejad, Mahnaz;
Benitez, Arturo;
Sams, Lara

Publication type:

Article

Validation of the novel Eosinophilic Esophagitis Impact Questionnaire.

Published in:

Journal of Patient-Reported Outcomes, 2023, v. 7, n. 1, p. 1, doi. 10.1186/s41687-023-00654-z

By:

McCann, Eilish;
Chehade, Mirna;
Spergel, Jonathan M.;
Yaworsky, Andrew;
Symonds, Tara;
Stokes, Jonathan;
Tilton, Sarette T.;
Sun, Xian;
Kamat, Siddhesh

Publication type:

Article

Evaluating minimal clinically important differences for the acne-specific quality of life questionnaire.

Published in:

2003

By:

McLeod, Lori D.;
Fehnel, Sheri E.;
Brandrnan, Jane;
Symonds, Tara;
Brandman, Jane

Publication type:

journal article

Development of a questionnaire on sexual quality of life in women.

Published in:

2005

By:

Symonds, Tara;
Boolell, Mitra;
Quirk, Frances

Publication type:

journal article

A methodology study to validate a structured diagnostic method used to diagnose female sexual dysfunction and its subtypes in postmenopausal women.

Published in:

2005

By:

Utian, Wulf H;
MacLean, David B;
Symonds, Tara;
Symons, James;
Somayaji, Veena;
Sisson, Melanie

Publication type:

Journal Article

Development of a Questionnaire on Sexual Quality of Life in Women.

Published in:

Journal of Sex & Marital Therapy, 2005, v. 31, n. 5, p. 385, doi. 10.1080/00926230591006502

By:

Symonds, Tara;
Boolell, Mitra;
Quirk, Frances

Publication type:

Article

A Methodology Study to Validate a Structured Diagnostic Method Used to Diagnose Female Sexual Dysfunction and Its Subtypes in Postmenopausal Women.

Published in:

Journal of Sex & Marital Therapy, 2005, v. 31, n. 4, p. 271, doi. 10.1080/00926230590950190

By:

Utian, WulfH.;
Maclean, DavidB.;
Symonds, Tara;
Symons, James;
Somayaji, Veena;
Sisson, Melanie

Publication type:

Article

Outcome measurement in female sexual dysfunction clinical trials: review and recommendations.

Published in:

2005

By:

Althof, Stanley E;
Rosen, Raymond C;
DeRogatis, Leonard;
Corty, Eric;
Quirk, Frances;
Symonds, Tara

Publication type:

journal article

Outcome Measurement in Female Sexual Dysfunction Clinical Trials: Review and Recommendations.

Published in:

Journal of Sex & Marital Therapy, 2005, v. 31, n. 2, p. 153, doi. 10.1080/00926230590909989

By:

ALTHOF, STANLEYE.;
ROSEN, RAYMONDC.;
ROGATIS, LEONARDDåE;
CORTY, ERIC;
QUIRK, FRANCES;
SYMONDS, TARA

Publication type:

Article

Development of a novel patient-reported outcome measure for disseminated coccidioidomycosis (valley fever).

Published in:

Journal of Antimicrobial Chemotherapy (JAC), 2025, v. 80, n. 3, p. 657, doi. 10.1093/jac/dkae453

By:

Harvey, Emma;
Clegg, Jennifer;
Bresnik, Mark;
Blatt, Elliott;
Hughes, Sophie;
Umanzor-Figueroa, Cindy;
Purdie, Rob;
Thompson, George R;
Symonds, Tara

Publication type:

Article

Comparability of a provisioned device versus bring your own device for completion of patient-reported outcome measures by participants with chronic obstructive pulmonary disease: quantitative study findings.

Published in:

Journal of Patient-Reported Outcomes, 2022, v. 6, n. 1, p. 1, doi. 10.1186/s41687-022-00521-3

By:

Hudgens, Stacie;
Newton, Louise;
Eremenco, Sonya;
Crescioni, Mabel;
Symonds, Tara;
Griffiths, Philip C. G.;
Reasner, David S.;
Byrom, Bill;
O'Donohoe, Paul;
Vallow, Susan

Publication type:

Article

Comparability of a provisioned device versus bring your own device for completion of patient-reported outcome measures by participants with chronic obstructive pulmonary disease: qualitative interview findings.

Published in:

Journal of Patient-Reported Outcomes, 2022, v. 6, n. 1, p. 1, doi. 10.1186/s41687-022-00492-5

By:

Newton, Louise;
Knight-West, Oliver;
Eremenco, Sonya;
Hudgens, Stacie;
Crescioni, Mabel;
Symonds, Tara;
Reasner, David S.;
Byrom, Bill;
O'Donohoe, Paul;
Vallow, Susan

Publication type:

Article

Content validity of a newly developed observer-reported measure for pediatric asthma in children aged 2–5 years.

Published in:

Journal of Patient-Reported Outcomes, 2022, v. 6, n. 1, p. 1, doi. 10.1186/s41687-022-00461-y

By:

Zhang, Yi;
Clegg, Jennifer L.;
Keith, Shannon;
McFadden, Shehan;
Symonds, Tara;
Kumar, Rajesh;
Khan, Asif H.;
Kamat, Siddhesh;
Chao, Jingdong

Publication type:

Article

A novel patient-reported outcome instrument assessing the symptoms of paroxysmal nocturnal hemoglobinuria, the PNH-SQ.

Published in:

Journal of Patient-Reported Outcomes, 2021, v. 5, n. 1, p. 1, doi. 10.1186/s41687-021-00376-0

By:

Daly, R. Paola;
Jalbert, Jessica J.;
Keith, Shannon;
Symonds, Tara;
Shammo, Jamile

Publication type:

Article

A qualitative study to explore symptoms and impacts of pediatric and adolescent Crohn's disease from patient and caregiver perspective.

Published in:

Journal of Patient-Reported Outcomes, 2021, v. 5, n. 1, p. 1, doi. 10.1186/s41687-021-00321-1

By:

Newton, Louise;
Delbecque, Laure;
Coşkun, Ufuk;
Symonds, Tara;
Clegg, Jennifer;
Hunter, Theresa

Publication type:

Article

Qualitative research to explore the symptoms and impacts experienced by children with ulcerative colitis.

Published in:

Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00238-1

By:

Randall, Jason A.;
Guobyte, Aiste;
Delbecque, Laure;
Newton, Louise;
Symonds, Tara;
Hunter, Theresa

Publication type:

Article

Testosterone measurement - mandatory in ALL men with ED - a response.

Published in:

International Journal of Clinical Practice, 2012, v. 66, n. 1, p. 113, doi. 10.1111/j.1742-1241.2011.02813.x

By:

Kirby, Michael G.;
Schnetzler, Gabriel;
Zou, Kelly H.;
Symonds, Tara

Publication type:

Article

Validation of the Chinese Western Ontario and McMaster Universities Osteoarthritis Index in Patients From Mainland China With Osteoarthritis of the Knee.

Published in:

2015

By:

Symonds, Tara;
Hughes, Bernadette;
Liao, Shanmei;
Ang, Qiuqing;
Bellamy, Nicholas

Publication type:

journal article

Correlations With Satisfaction Measures in Men Treated With Phosphodiesterase Inhibitors for Erectile Dysfunction.

Published in:

American Journal of Men's Health, 2011, v. 5, n. 3, p. 261, doi. 10.1177/1557988310389165

By:

Mulhall, John P.;
Kaminetsky, Jed C.;
Althof, Stanley E.;
Goldstein, Irwin;
Creanga, Dana L.;
Marfatia, Aditya;
Symonds, Tara;
Budhwani, Meeta

Publication type:

Article

Impacts and Burden of Niemann pick Type-C: a patient and caregiver perspective.

Published in:

2021

By:

Mengel, Eugen;
Patterson, Marc C.;
Chladek, Michael;
Guldberg, Christina;
í Dali, Christine;
Symonds, Tara;
Lloyd-Price, Lucy;
Mathieson, Toni;
Crowe, Joslyn;
Burbridge, Claire;
Í Dali, Christine

Publication type:

journal article

Correction to: Clinical disease progression and biomarkers in Niemann-Pick disease type C: a prospective cohort study.

Published in:

2021

By:

Mengel, Eugen;
Bembi, Bruno;
del Toro, Mireia;
Deodato, Federica;
Gautschi, Matthias;
Grunewald, Stephanie;
Grønborg, Sabine;
Héron, Bénédicte;
Maier, Esther M.;
Roubertie, Agathe;
Santra, Saikat;
Tylki-Szymanska, Anna;
Day, Simon;
Symonds, Tara;
Hudgens, Stacie;
Patterson, Marc C.;
Guldberg, Christina;
Ingemann, Linda;
Petersen, Nikolaj H. T.;
Kirkegaard, Thomas

Publication type:

corrected article