Found: 35
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Developing a fit-for-purpose composite symptom score as a symptom burden endpoint for clinical trials in patients with malignant pleural mesothelioma.
- Published in:
- Scientific Reports, 2024, v. 14, n. 1, p. 1, doi. 10.1038/s41598-024-62307-5
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- Publication type:
- Article
Validation of the novel Eosinophilic Esophagitis Impact Questionnaire.
- Published in:
- Journal of Patient-Reported Outcomes, 2023, v. 7, n. 1, p. 1, doi. 10.1186/s41687-023-00654-z
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- Publication type:
- Article
Qualitative Patient Interviews to Characterize the Human Burden of Advanced Basal Cell Carcinoma Following Hedgehog Pathway Inhibitor Treatment.
- Published in:
- Dermatology & Therapy, 2023, v. 13, n. 8, p. 1747, doi. 10.1007/s13555-023-00945-9
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- Publication type:
- Article
Developing Angelman syndrome-specific clinician-reported and caregiver-reported measures to support holistic, patient-centered drug development.
- Published in:
- Orphanet Journal of Rare Diseases, 2023, v. 18, n. 1, p. 1, doi. 10.1186/s13023-023-02729-y
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- Publication type:
- Article
Symptoms and associated impact in pre- and postmenopausal women with sexual arousal disorder: a concept elicitation study.
- Published in:
- Journal of Sexual Medicine, 2023, v. 20, n. 3, p. 277, doi. 10.1093/jsxmed/qdac043
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- Publication type:
- Article
Exploring Disease Remission and Bowel Urgency Severity Among Adults with Moderate to Severe Ulcerative Colitis: A Qualitative Study.
- Published in:
- Patient Related Outcome Measures, 2022, v. 13, p. 287, doi. 10.2147/PROM.S378759
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- Publication type:
- Article
Comparability of a provisioned device versus bring your own device for completion of patient-reported outcome measures by participants with chronic obstructive pulmonary disease: quantitative study findings.
- Published in:
- Journal of Patient-Reported Outcomes, 2022, v. 6, n. 1, p. 1, doi. 10.1186/s41687-022-00521-3
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- Publication type:
- Article
Comparability of a provisioned device versus bring your own device for completion of patient-reported outcome measures by participants with chronic obstructive pulmonary disease: qualitative interview findings.
- Published in:
- Journal of Patient-Reported Outcomes, 2022, v. 6, n. 1, p. 1, doi. 10.1186/s41687-022-00492-5
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- Publication type:
- Article
Content validity of a newly developed observer-reported measure for pediatric asthma in children aged 2–5 years.
- Published in:
- Journal of Patient-Reported Outcomes, 2022, v. 6, n. 1, p. 1, doi. 10.1186/s41687-022-00461-y
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- Publication type:
- Article
Impacts and Burden of Niemann pick Type-C: a patient and caregiver perspective.
- Published in:
- 2021
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- Publication type:
- journal article
A novel patient-reported outcome instrument assessing the symptoms of paroxysmal nocturnal hemoglobinuria, the PNH-SQ.
- Published in:
- Journal of Patient-Reported Outcomes, 2021, v. 5, n. 1, p. 1, doi. 10.1186/s41687-021-00376-0
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- Publication type:
- Article
A qualitative study to explore symptoms and impacts of pediatric and adolescent Crohn's disease from patient and caregiver perspective.
- Published in:
- Journal of Patient-Reported Outcomes, 2021, v. 5, n. 1, p. 1, doi. 10.1186/s41687-021-00321-1
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- Publication type:
- Article
Correction to: Clinical disease progression and biomarkers in Niemann-Pick disease type C: a prospective cohort study.
- Published in:
- 2021
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- Publication type:
- corrected article
Validation of the 5-domain Niemann-Pick type C Clinical Severity Scale.
- Published in:
- 2021
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- Publication type:
- journal article
Clinical disease progression and biomarkers in Niemann-Pick disease type C: a prospective cohort study.
- Published in:
- 2020
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- Publication type:
- journal article
Burden of illness of trigeminal neuralgia among patients managed in a specialist center in England.
- Published in:
- Journal of Headache & Pain, 2020, v. 21, n. 1, p. N.PAG, doi. 10.1186/s10194-020-01198-z
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- Publication type:
- Article
Qualitative research to explore the symptoms and impacts experienced by children with ulcerative colitis.
- Published in:
- Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. N.PAG, doi. 10.1186/s41687-020-00238-1
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- Publication type:
- Article
Understanding symptomatic experience, impact, and emotional response in recently diagnosed metastatic castration-resistant prostate cancer: a qualitative study.
- Published in:
- 2020
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- Publication type:
- journal article
A qualitative study exploring the health-related quality of life and symptomatic experiences of adults and adolescents with ulcerative colitis.
- Published in:
- Journal of Patient-Reported Outcomes, 2019, v. 3, n. 1, p. N.PAG, doi. 10.1186/s41687-019-0154-x
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- Publication type:
- Article
Exploring content and psychometric validity of newly developed assessment tools for itch and skin pain in atopic dermatitis.
- Published in:
- Journal of Patient-Reported Outcomes, 2019, v. 3, n. 1, p. N.PAG, doi. 10.1186/s41687-019-0128-z
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- Publication type:
- Article
Measuring the impact of trigeminal neuralgia pain: the Penn Facial Pain Scale-Revised.
- Published in:
- Journal of Pain Research, 2018, v. 11, p. 1067, doi. 10.2147/JPR.S152958
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- Publication type:
- Article
A review of muscle- and performance-based assessment instruments in DM1.
- Published in:
- 2017
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- Publication type:
- journal article
Review of patient-reported outcome measures for use in myotonic dystrophy type 1 patients.
- Published in:
- 2017
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- Publication type:
- journal article
What Outcomes are Important for Gout Patients? In-Depth Qualitative Research into the Gout Patient Experience to Determine Optimal Endpoints for Evaluating Therapeutic Interventions.
- Published in:
- Patient, 2017, v. 10, n. 1, p. 65, doi. 10.1007/s40271-016-0184-x
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- Publication type:
- Article
Validation of the Chinese Western Ontario and McMaster Universities Osteoarthritis Index in Patients From Mainland China With Osteoarthritis of the Knee.
- Published in:
- 2015
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- Publication type:
- journal article
Psychometric Properties of the Dependence Scale in Large Randomized Clinical Trials of Patients With Mild and Moderate Alzheimer’s Disease.
- Published in:
- American Journal of Alzheimer's Disease & Other Dementias, 2014, v. 29, n. 7, p. 620, doi. 10.1177/1533317514527336
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- Publication type:
- Article
Psychometric Properties of the Dependence Scale in Large Randomized Clinical Trials of Patients With Mild and Moderate Alzheimer’s Disease.
- Published in:
- 2014
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- Publication type:
- Journal Article
Assessment of sleep in patients with fibromyalgia: qualitative development of the fibromyalgia sleep diary.
- Published in:
- Health & Quality of Life Outcomes, 2014, v. 12, n. 1, p. 1, doi. 10.1186/s12955-014-0111-6
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- Publication type:
- Article
Assessment of sleep in patients with fibromyalgia: qualitative development of the fibromyalgia sleep diary.
- Published in:
- 2014
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- Publication type:
- journal article
Cumulative response curves to enhance interpretation of treatment differences on the Self-Esteem And Relationship questionnaire for men with erectile dysfunction.
- Published in:
- BJU International, 2013, v. 111, n. 3b, p. E115, doi. 10.1111/j.1464-410X.2012.11489.x
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- Publication type:
- Article
Testosterone measurement - mandatory in ALL men with ED - a response.
- Published in:
- International Journal of Clinical Practice, 2012, v. 66, n. 1, p. 113, doi. 10.1111/j.1742-1241.2011.02813.x
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- Publication type:
- Article
Correlations With Satisfaction Measures in Men Treated With Phosphodiesterase Inhibitors for Erectile Dysfunction.
- Published in:
- American Journal of Men's Health, 2011, v. 5, n. 3, p. 261, doi. 10.1177/1557988310389165
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- Publication type:
- Article
Using DCE and ranking data to estimate cardinal values for health states for deriving a preference-based single index from the sexual quality of life questionnaire.
- Published in:
- Health Economics, 2009, v. 18, n. 11, p. 1261, doi. 10.1002/hec.1426
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- Publication type:
- Article
Estimating clinically significant differences in quality of life outcomes.
- Published in:
- 2005
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- Publication type:
- journal article
Evaluating minimal clinically important differences for the acne-specific quality of life questionnaire.
- Published in:
- 2003
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- Publication type:
- journal article