Found: 25
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Co-ordinated care for people affected by rare diseases: the CONCORD mixed-methods study.
- Published in:
- Health & Social Care Delivery Research (HSDR), 2022, v. 10, n. 6, p. vii, doi. 10.3310/LNZZ5321
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- Publication type:
- Article
Co-ordinated care for people affected by rare diseases: the CONCORD mixed-methods study.
- Published in:
- Health & Social Care Delivery Research (HSDR), 2022, v. 10, n. 5, p. 7, doi. 10.3310/LNZZ5321
- By:
- Publication type:
- Article
Evaluating the role of Cardiac Genetics Nurses in inherited cardiac conditions services using a Maturity Matrix.
- Published in:
- 2014
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- Publication type:
- Journal Article
Psychometrics and Measurement Invariance of the Emotional and Behavioral Screener.
- Published in:
- Behavioral Disorders, 2014, v. 39, n. 2, p. 89, doi. 10.1177/019874291303900205
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- Publication type:
- Article
How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study.
- Published in:
- 2021
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- Publication type:
- journal article
Comparing effects of different writing activities on reading comprehension: A meta-analysis.
- Published in:
- Reading & Writing, 2013, v. 26, n. 1, p. 111, doi. 10.1007/s11145-012-9386-3
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- Publication type:
- Article
Feasibility and Acceptability of a Telephone-Based Chaplaincy Intervention to Decrease Parental Spiritual Struggle.
- Published in:
- Journal of Religion & Health, 2019, v. 58, n. 6, p. 2065, doi. 10.1007/s10943-019-00921-8
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- Publication type:
- Article
Factors affecting overall care experience for people living with rare conditions in the UK: exploratory analysis of a quantitative patient experience survey.
- Published in:
- Orphanet Journal of Rare Diseases, 2024, v. 19, n. 1, p. 1, doi. 10.1186/s13023-024-03081-5
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- Publication type:
- Article
Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals.
- Published in:
- Orphanet Journal of Rare Diseases, 2023, v. 18, n. 1, p. 1, doi. 10.1186/s13023-023-02934-9
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- Publication type:
- Article
PPARalpha and PPARbeta are reduced in the aged rat heart following ischemia and reperfusion injury.
- Published in:
- FASEB Journal, 2007, v. 21, n. 6, p. A1223, doi. 10.1096/fasebj.21.6.a1223-a
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- Publication type:
- Article
ER alpha distribution in the female myocardium: impact of senescence and estradiol levels.
- Published in:
- FASEB Journal, 2007, v. 21, n. 6, p. A1222
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- Publication type:
- Article
Behavioral and Emotional Outcomes of an In-Home Parent Training Intervention for Young Children.
- Published in:
- Journal of At-Risk Issues, 2011, v. 16, n. 2, p. 1
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- Publication type:
- Article
Mental health care for rare disease in the UK - recommendations from a quantitative survey and multi-stakeholder workshop.
- Published in:
- 2022
- By:
- Publication type:
- journal article
FROM THE MILITARY TO THE CIVILIAN WORK FORCE: Addressing Veteran Career Development Concerns.
- Published in:
- Career Planning & Adult Development Journal, 2009, v. 25, n. 1, p. 177
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- Publication type:
- Article
Development of an evidence-informed in-home family services model for families and children at risk of abuse and neglect.
- Published in:
- Child & Family Social Work, 2015, v. 20, n. 2, p. 139, doi. 10.1111/cfs.12061
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- Publication type:
- Article
Developing a taxonomy of care coordination for people living with rare conditions: a qualitative study.
- Published in:
- 2022
- By:
- Publication type:
- journal article
Development of models of care coordination for rare conditions: a qualitative study.
- Published in:
- 2022
- By:
- Publication type:
- journal article
Investigation into the effect of skin tone modulators and exogenous stress on skin pigmentation utilizing a novel bioengineered skin equivalent.
- Published in:
- Bioengineering & Translational Medicine, 2023, v. 8, n. 2, p. 1, doi. 10.1002/btm2.10415
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- Publication type:
- Article
Quantitative morphometric analysis of intrinsic and extrinsic skin ageing in individuals with Fitzpatrick skin types II–III.
- Published in:
- Experimental Dermatology, 2023, v. 32, n. 5, p. 620, doi. 10.1111/exd.14754
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- Publication type:
- Article
Defining Coordinated Care for People with Rare Conditions: A Scoping Review.
- Published in:
- International Journal of Integrated Care (IJIC), 2020, v. 20, n. 2, p. 1, doi. 10.5334/ijic.5464
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- Publication type:
- Article
Claiming Our Portion of the Sun and Wind: A Reflection on Azar Nafisi's Reading Lolita in Tehran.
- Published in:
- Confluence: The Journal of Graduate Liberal Studies, 2024, v. 30, n. 1, p. 79
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- Publication type:
- Article
Adrenal Insufficiency in Young Children: a Mixed Methods Study of Parents’ Experiences.
- Published in:
- Journal of Genetic Counseling, 2018, v. 27, n. 6, p. 1447, doi. 10.1007/s10897-018-0278-9
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- Publication type:
- Article
Increased Placental Cell Senescence and Oxidative Stress in Women with Pre-Eclampsia and Normotensive Post-Term Pregnancies.
- Published in:
- International Journal of Molecular Sciences, 2021, v. 22, n. 14, p. 7295, doi. 10.3390/ijms22147295
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- Publication type:
- Article
Preferences for coordinated care for rare diseases: discrete choice experiment.
- Published in:
- Orphanet Journal of Rare Diseases, 2024, v. 19, n. 1, p. 1, doi. 10.1186/s13023-024-03353-0
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- Publication type:
- Article
Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.
- Published in:
- 2017
- By:
- Publication type:
- journal article