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Assessing the Relationship of Patient Reported Outcome Measures With Functional Status in Dysferlinopathy: A Rasch Analysis Approach.
Published in:
Frontiers in Neurology, 2022, v. 13, p. 1, doi. 10.3389/fneur.2022.828525
By:
- Mayhew, Anna G.;
- James, Meredith K.;
- Moore, Ursula;
- Sutherland, Helen;
- Jacobs, Marni;
- Jia Feng;
- Lowes, Linda Pax;
- Alfano, Lindsay N.;
- Lofra, Robert Muni;
- Rufibach, Laura E.;
- Rose, Kristy;
- Duong, Tina;
- Bello, Luca;
- Pedrosa-Hernández, Irene;
- Holsten, Scott;
- Chikako Sakamoto;
- Canal, Aurélie;
- Práxedes, Nieves Sánchez-Aguilera;
- Thiele, Simone;
- Siener, Catherine
Publication type:
Article
Twice‐weekly glucocorticosteroids in infants and young boys with Duchenne muscular dystrophy.
Published in:
Muscle & Nerve, 2019, v. 59, n. 6, p. 650, doi. 10.1002/mus.26441
By:
- Connolly, Anne M.;
- Zaidman, Craig M.;
- Golumbek, Paul T.;
- Cradock, Mary M.;
- Flanigan, Kevin M.;
- Kuntz, Nancy L.;
- Finkel, Richard S.;
- McDonald, Craig M.;
- Iannaccone, Susan T.;
- Anand, Pallavi;
- Siener, Catherine A.;
- Florence, Julaine M.;
- Lowes, Linda P.;
- Alfano, Lindsay N.;
- Johnson, Linda B.;
- Nicorici, Alina;
- Nelson, Leslie L.;
- Mendell, Jerry R.
Publication type:
Article
Twice-weekly glucocorticosteroids in infants and young boys with Duchenne muscular dystrophy.
Published in:
2019
By:
- Connolly, Anne M;
- Zaidman, Craig M;
- Golumbek, Paul T;
- Cradock, Mary M;
- Flanigan, Kevin M;
- Kuntz, Nancy L;
- Finkel, Richard S;
- McDonald, Craig M;
- Iannaccone, Susan T;
- Anand, Pallavi;
- Siener, Catherine A;
- Florence, Julaine M;
- Lowes, Linda P;
- Alfano, Lindsay N;
- Johnson, Linda B;
- Nicorici, Alina;
- Nelson, Leslie L;
- Mendell, Jerry R;
- MDA DMD Clinical Research Network
Publication type:
journal article
Fixed dynamometry is more sensitive than vital capacity or ALS rating scale.
Published in:
2017
By:
- Andres, Patricia L.;
- Allred, Margaret (Peggy);
- Stephens, Helen E.;
- Proffitt Bunnell, Mary;
- Siener, Catherine;
- Macklin, Eric A.;
- Haines, Travis;
- English, Robert A.;
- Fetterman, Katherine A.;
- Kasarskis, Edward J.;
- Florence, Julaine;
- Simmons, Zachary;
- Cudkowicz, Merit E.
Publication type:
journal article
Clinical trial readiness in non-ambulatory boys and men with duchenne muscular dystrophy: MDA-DMD network follow-up.
Published in:
2016
By:
- Connolly, Anne M.;
- Florence, Julaine M.;
- Zaidman, Craig M.;
- Golumbek, Paul T.;
- Mendell, Jerry R.;
- Flanigan, Kevin M.;
- Karachunski, Peter I.;
- Day, John W.;
- McDonald, Craig M.;
- Darras, Basil T.;
- Kang, Peter B.;
- Siener, Catherine A.;
- Gadeken, Rebecca K.;
- Anand, Pallavi;
- Schierbecker, Jeanine R.;
- Malkus, Elizabeth C.;
- Lowes, Linda P.;
- Alfano, Lindsay N.;
- Johnson, Linda;
- Nicorici, Alina
Publication type:
journal article
Outcome reliability in non-Ambulatory Boys/Men with duchenne muscular dystrophy.
Published in:
Muscle & Nerve, 2015, v. 51, n. 4, p. 522, doi. 10.1002/mus.24346
By:
- Connolly, Anne M.;
- Malkus, Elizabeth C.;
- Mendell, Jerry R.;
- Flanigan, Kevin M.;
- Miller, J. Philip;
- Schierbecker, Jeanine R.;
- Siener, Catherine A.;
- Golumbek, Paul T.;
- Zaidman, Craig M.;
- Mcdonald, Craig M.;
- Johnson, Linda;
- Nicorici, Alina;
- Karachunski, Peter I.;
- Day, John W.;
- Kelecic, Jason M.;
- Lowes, Linda P.;
- Alfano, Lindsay N.;
- Darras, Basil T.;
- Kang, Peter B.;
- Quigley, Janet
Publication type:
Article
Developing normalized strength scores for neuromuscular research.
Published in:
Muscle & Nerve, 2013, v. 47, n. 2, p. 177, doi. 10.1002/mus.23516
By:
- Andres, Patricia L.;
- English, Robert;
- Mendoza, Michelle;
- Florence, Julaine;
- Malkus, Elizabeth;
- Schierbecker, Jeanine;
- Siener, Catherine;
- Malspeis, Susan;
- Schoenfeld, David A.;
- Munsat, Theodore L.;
- Cudkowicz, Merit E.
Publication type:
Article
Qualitative and quantitative skeletal muscle ultrasound in late-onset acid maltase deficiency.
Published in:
Muscle & Nerve, 2011, v. 44, n. 3, p. 418, doi. 10.1002/mus.22088
By:
- Zaidman, Craig M.;
- Malkus, Elizabeth C.;
- Siener, Catherine;
- Florence, Julaine;
- Pestronk, Alan;
- Al-Lozi, Muhammad
Publication type:
Article
Knee Strength and Ankle Range of Motion Impacts on Timed Function Tests in Duchenne Muscular Dystrophy: In the Era of Glucocorticoids.
Published in:
Journal of Neuromuscular Diseases, 2022, v. 9, n. 1, p. 147, doi. 10.3233/JND-210724
By:
- Duong, Tina;
- Canbek, Jennifer;
- Fernandez-Fernandez, Alicia;
- Henricson, Erik;
- Birkmeier, Marisa;
- Siener, Catherine;
- Tesi Rocha, Carolina;
- McDonald, Craig;
- Gordish-Dressman, Heather
Publication type:
Article
The Minimal Clinical Important Difference (MCID) in Annual Rate of Change of Timed Function Tests in Boys with DMD.
Published in:
Journal of Neuromuscular Diseases, 2021, v. 8, n. 6, p. 939, doi. 10.3233/JND-210646
By:
- Duong, Tina;
- Canbek, Jennifer;
- Birkmeier, Marisa;
- Nelson, Leslie;
- Siener, Catherine;
- Fernandez-Fernandez, Alicia;
- Henricson, Erik;
- McDonald, Craig M.;
- Gordish-Dressman, Heather
Publication type:
Article
Assessing Dysferlinopathy Patients Over Three Years With a New Motor Scale.
Published in:
2021
By:
- Jacobs, Marni B.;
- James, Meredoith K.;
- Lowes, Linda P.;
- Alfano, Lindsay N.;
- Eagle, Michelle;
- Muni Lofra, Robert;
- Moore, Ursula;
- Feng, Jia;
- Rufibach, Laura E.;
- Rose, Kristy;
- Duong, Tina;
- Bello, Luca;
- Pedrosa‐Hernández, Irene;
- Holsten, Scott;
- Sakamoto, Chikako;
- Canal, Aurélie;
- Sanchez‐Aguilera Práxedes, Nieves;
- Thiele, Simone;
- Siener, Catherine;
- Vandevelde, Bruno
Publication type:
journal article
Physical Frailty and Body Composition in Obese Elderly Men and Women<sup>**</sup>.
Published in:
Obesity (19307381), 2004, v. 12, n. 6, p. 913, doi. 10.1038/oby.2004.111
By:
- Villareal, Dennis T.;
- Banks, Marian;
- Siener, Catherine;
- Sinacore, David R.;
- Klein, Samuel
Publication type:
Article

Found: 12