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Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation.
Published in:
Journal of Personalized Medicine, 2021, v. 11, n. 7, p. 646, doi. 10.3390/jpm11070646
By:
- Majumder, Mary A.;
- Blank, Matthew L.;
- Geary, Janis;
- Bollinger, Juli M.;
- Guerrini, Christi J.;
- Robinson, Jill Oliver;
- Canfield, Isabel;
- Cook-Deegan, Robert;
- McGuire, Amy L.
Publication type:
Article
Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.
Published in:
Patient, 2022, v. 15, n. 3, p. 317, doi. 10.1007/s40271-021-00558-4
By:
- Smith, Hadley Stevens;
- Morain, Stephanie R.;
- Robinson, Jill Oliver;
- Canfield, Isabel;
- Malek, Janet;
- Rubanovich, Caryn Kseniya;
- Bloss, Cinnamon S.;
- Ackerman, Sara L.;
- Biesecker, Barbara;
- Brothers, Kyle B.;
- Goytia, Crispin N.;
- Horowitz, Carol R.;
- Knight, Sara J.;
- Koenig, Barbara;
- Kraft, Stephanie A.;
- Outram, Simon;
- Rini, Christine;
- Shipman, Kelly J.;
- Waltz, Margaret;
- Wilfond, Benjamin
Publication type:
Article
Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project: A Randomized Clinical Trial.
Published in:
JAMA Pediatrics, 2021, v. 175, n. 11, p. 1132, doi. 10.1001/jamapediatrics.2021.2829
By:
- Pereira, Stacey;
- Smith, Hadley Stevens;
- Frankel, Leslie A.;
- Christensen, Kurt D.;
- Islam, Rubaiya;
- Robinson, Jill Oliver;
- Genetti, Casie A.;
- Blout Zawatsky, Carrie L.;
- Zettler, Bethany;
- Parad, Richard B.;
- Waisbren, Susan E.;
- Beggs, Alan H.;
- Green, Robert C.;
- Holm, Ingrid A.;
- McGuire, Amy L.
Publication type:
Article
Participants and Study Decliners’ Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing.
Published in:
Journal of Empirical Research on Human Research Ethics, 2016, v. 11, n. 1, p. 21, doi. 10.1177/1556264615624078
By:
- Robinson, Jill Oliver;
- Carroll, Thomas M.;
- Feuerman, Lindsay Z.;
- Perry, Denise L.;
- Hoffman-Andrews, Lily;
- Walsh, Rebecca C.;
- Christensen, Kurt D.;
- Green, Robert C.;
- McGuire, Amy L.
Publication type:
Article
PARTICIPANTS' RECALL AND UNDERSTANDING OF GENOMIC AND LARGE-SCALE DATA SHARING RESEARCH.
Published in:
Journal of Empirical Research on Human Research Ethics, 2013, v. 8, n. 4, p. 42, doi. 10.1525/jer.2013.8.4.42
By:
- ROBINSON, JILL OLIVER;
- SLASHINSKI, MELODY J.;
- WANG, TAO;
- HILSENBECK, SUSAN G.;
- McGUIRE, AMY L.
Publication type:
Article
Parental Attitudes Toward Standard Newborn Screening and Newborn Genomic Sequencing: Findings From the BabySeq Study.
Published in:
Frontiers in Genetics, 2022, v. 13, p. 1, doi. 10.3389/fgene.2022.867371
By:
- Armstrong, Brittan;
- Christensen, Kurt D.;
- Genetti, Casie A.;
- Parad, Richard B.;
- Robinson, Jill Oliver;
- Blout Zawatsky, Carrie L.;
- Zettler, Bethany;
- Beggs, Alan H.;
- Holm, Ingrid A.;
- Green, Robert C.;
- McGuire, Amy L.;
- Smith, Hadley Stevens;
- Pereira, Stacey
Publication type:
Article
Do privacy and security regulations need a status update? Perspectives from an intergenerational survey.
Published in:
PLoS ONE, 2017, v. 12, n. 9, p. 1, doi. 10.1371/journal.pone.0184525
By:
- Pereira, Stacey;
- Robinson, Jill Oliver;
- Peoples, Hayley A.;
- Gutierrez, Amanda M.;
- Majumder, Mary A.;
- Mcguire, Amy L.;
- Rothstein, Mark A.
Publication type:
Article
Researchers' Ethical Concerns About Using Adaptive Deep Brain Stimulation for Enhancement.
Published in:
Frontiers in Human Neuroscience, 2022, v. 16, p. 1, doi. 10.3389/fnhum.2022.813922
By:
- Kostick-Quenet, Kristin;
- Kalwani, Lavina;
- Koenig, Barbara;
- Torgerson, Laura;
- Sanchez, Clarissa;
- Munoz, Katrina;
- Hsu, Rebecca L.;
- Sierra-Mercado, Demetrio;
- Robinson, Jill Oliver;
- Outram, Simon;
- Pereira, Stacey;
- McGuire, Amy;
- Zuk, Peter;
- Lazaro-Munoz, Gabriel
Publication type:
Article

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