Found: 20
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A qualitative interview study to determine barriers and facilitators of implementing automated decision support tools for genomic data access.
- Published in:
- BMC Medical Ethics, 2024, v. 25, n. 1, p. 1, doi. 10.1186/s12910-024-01050-y
- By:
- Publication type:
- Article
Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi.
- Published in:
- Journal of Law & the Biosciences, 2023, v. 10, n. 2, p. 1, doi. 10.1093/jlb/lsad022
- By:
- Publication type:
- Article
Enhancing Reciprocity, Equity and Quality of Ethics Review for Multisite Research During Public Health Crises: The Experience of the COVID-19 Clinical Research Coalition Ethics Working Group.
- Published in:
- Journal of Law, Medicine & Ethics, 2023, v. 51, n. 2, p. 258, doi. 10.1017/jme.2023.75
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- Publication type:
- Article
Passive monitoring by smart toilets for precision health.
- Published in:
- Science Translational Medicine, 2023, v. 15, n. 681, p. 1, doi. 10.1126/scitranslmed.abk3489
- By:
- Publication type:
- Article
A mixed-methods protocol to develop and validate a stewardship maturity matrix for human genomic data in the cloud.
- Published in:
- Frontiers in Genetics, 2022, v. 13, p. 1, doi. 10.3389/fgene.2022.876869
- By:
- Publication type:
- Article
A systematic literature review to identify ethical, legal, and social responsibilities of nonprofit organizations when funding clinical trials in pediatric cancer.
- Published in:
- 2022
- By:
- Publication type:
- journal article
Insights for Teaching During a Pandemic: Lessons From a Pre-COVID-19 International Synchronous Hybrid Learning Experience.
- Published in:
- 2022
- By:
- Publication type:
- journal article
Institutional Review Board Use of Outside Experts: What Do We Know?
- Published in:
- Ethics & Human Research, 2022, v. 44, n. 2, p. 26, doi. 10.1002/eahr.500121
- By:
- Publication type:
- Article
Assessing the quality of deliberative stakeholder consultations involving allied health professionals in pediatric palliative care and hematology/oncology in Canada.
- Published in:
- BMC Palliative Care, 2021, v. 20, n. 1, p. 1, doi. 10.1186/s12904-021-00884-2
- By:
- Publication type:
- Article
Assessing the quality of deliberative stakeholder consultations involving allied health professionals in pediatric palliative care and hematology/oncology in Canada.
- Published in:
- BMC Palliative Care, 2021, v. 20, n. 1, p. 1, doi. 10.1186/s12904-021-00884-2
- By:
- Publication type:
- Article
A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada.
- Published in:
- 2021
- By:
- Publication type:
- journal article
Communication of Pharmacogenomic test results and treatment plans in pediatric oncology: deliberative stakeholder consultations with parents.
- Published in:
- BMC Palliative Care, 2021, v. 20, n. 1, p. 1, doi. 10.1186/s12904-021-00709-2
- By:
- Publication type:
- Article
Ethics and informatics in the age of COVID-19: challenges and recommendations for public health organization and public policy.
- Published in:
- Journal of the American Medical Informatics Association, 2021, v. 28, n. 1, p. 184, doi. 10.1093/jamia/ocaa188
- By:
- Publication type:
- Article
Deliberative stakeholder consultations: creating insights into effective practice-change in family medicine.
- Published in:
- 2018
- By:
- Publication type:
- journal article
Key Implications of Data Sharing in Pediatric Genomics.
- Published in:
- JAMA Pediatrics, 2018, v. 172, n. 5, p. 476, doi. 10.1001/jamapediatrics.2017.5500
- By:
- Publication type:
- Article
Statement of principles on the return of research results and incidental findings in paediatric research: a multi-site consultative process<sup>1</sup>.
- Published in:
- Genome, 2015, v. 58, n. 12, p. 541, doi. 10.1139/gen-2015-0092
- By:
- Publication type:
- Article
Promoting an ethic of engagement in pediatric palliative care research.
- Published in:
- BMC Palliative Care, 2015, v. 14, p. 1, doi. 10.1186/s12904-015-0048-5
- By:
- Publication type:
- Article
To disclose, or not to disclose? Context matters.
- Published in:
- European Journal of Human Genetics, 2015, v. 23, n. 3, p. 279, doi. 10.1038/ejhg.2014.108
- By:
- Publication type:
- Article
Genetics and primary care: where are we headed?
- Published in:
- 2014
- By:
- Publication type:
- Ballad
Genetics and primary care: where are we headed?
- Published in:
- 2014
- By:
- Publication type:
- editorial