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Expert Evaluation of Strategies to Modernize Newborn Screening in the United States.
Published in:
JAMA Network Open, 2021, v. 4, n. 12, p. e2140998, doi. 10.1001/jamanetworkopen.2021.40998
By:
- Bailey Jr, Donald B.;
- Porter, Katherine Ackerman;
- Andrews, Sara M.;
- Raspa, Melissa;
- Gwaltney, Angela Y.;
- Peay, Holly L.
Publication type:
Article
Preparing newborn screening for the future: a collaborative stakeholder engagement exploring challenges and opportunities to modernizing the newborn screening system.
Published in:
2022
By:
- Andrews, Sara M.;
- Porter, Katherine Ackerman;
- Bailey Jr, Donald B.;
- Peay, Holly L.;
- Bailey, Donald B Jr
Publication type:
journal article
Neglect, Sexual Abuse, and Witnessing Intimate Partner Violence During Childhood Predicts Later Life Violent Attitudes Against Children Among Kenyan Women: Evidence of Intergenerational Risk Transmission From Cross-Sectional Data.
Published in:
Journal of Interpersonal Violence, 2020, v. 35, n. 3/4, p. 623, doi. 10.1177/0886260516689777
By:
- Goodman, Michael L.;
- Hindman, Andrea;
- Keiser, Philip H.;
- Gitari, Stanley;
- Ackerman Porter, Katherine;
- Raimer, Ben G.
Publication type:
Article
Use of a web‐based portal to return normal individual research results in Early Check: Exploring user behaviors and attitudes.
Published in:
Clinical Genetics, 2023, v. 103, n. 6, p. 672, doi. 10.1111/cge.14325
By:
- Cope, Heidi;
- Lincoln‐Boyea, Beth;
- Gwaltney, Angela You;
- Biesecker, Barbara B.;
- Moultrie, Rebecca;
- Alexander, Amir A.;
- King, Nancy M. P.;
- Check, Jennifer;
- Corbo, Allyson;
- Tzeng, Janice;
- Porter, Katherine Ackerman;
- Peay, Holly L.
Publication type:
Article
Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome.
Published in:
Journal of Patient-Reported Outcomes, 2022, v. 6, n. 1, p. 1, doi. 10.1186/s41687-022-00447-w
By:
- Porter, Katherine Ackerman;
- O'Neill, Cara;
- Drake, Elise;
- Andrews, Sara M.;
- Delaney, Kathleen;
- Parker, Samantha;
- Escolar, Maria L.;
- Montgomery, Stacey;
- Moon, William;
- Worrall, Carolyn;
- Peay, Holly L.
Publication type:
Article
Education and Consent for Population-Based DNA Screening: A Mixed-Methods Evaluation of the Early Check Newborn Screening Pilot Study.
Published in:
Frontiers in Genetics, 2022, v. 13, p. 1, doi. 10.3389/fgene.2022.891592
By:
- Peay, Holly L.;
- Gwaltney, Angela You;
- Moultrie, Rebecca;
- Cope, Heidi;
- Boyea, Beth Lincoln‐;
- Porter, Katherine Ackerman;
- Duparc, Martin;
- Alexander, Amir A.;
- Biesecker, Barbara B.;
- Isiaq, Aminah;
- Check, Jennifer;
- Gehtland, Lisa;
- Bailey Jr, Donald B.;
- King, Nancy M. P.
Publication type:
Article
How do Kenyan orphan girls experience less meaningful lives and how much does it matter for 'health'?
Published in:
2017
By:
- Goodman, Michael;
- Johnson, Thomas;
- Guillot-Wright, Shannon;
- Porter, Katherine;
- Keiser, Philip;
- Gitari, Stanley;
- Goodman, Michael L;
- Johnson, Thomas M;
- Porter, Katherine Ackerman;
- Keiser, Philip H
Publication type:
journal article
Parent Experiences of Sanfilippo Syndrome Impact and Unmet Treatment Needs: A Qualitative Assessment.
Published in:
Neurology & Therapy, 2021, v. 10, n. 1, p. 197, doi. 10.1007/s40120-020-00226-z
By:
- Porter, Katherine Ackerman;
- O'Neill, Cara;
- Drake, Elise;
- Parker, Samantha;
- Escolar, Maria L.;
- Montgomery, Stacey;
- Moon, William;
- Worrall, Carolyn;
- Peay, Holly L.
Publication type:
Article

Found: 8