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"Balancing Expectations with Actual Realities": Conversations with Clinicians and Scientists in the First Year of a High-Risk Childhood Cancer Precision Medicine Trial.
Published in:
Journal of Personalized Medicine, 2020, v. 10, n. 1, p. 9, doi. 10.3390/jpm10010009
By:
- McGill, Brittany C.;
- Wakefield, Claire E.;
- Hetherington, Kate;
- Munro, Lachlan J.;
- Warby, Meera;
- Lau, Loretta;
- Tyrrell, Vanessa;
- Ziegler, David S.;
- O'Brien, Tracey A.;
- Marshall, Glenn M.;
- Malkin, David;
- Hansford, Jordan R.;
- Tucker, Katherine M.;
- Vetsch, Janine
Publication type:
Article
Understanding parents' communication experiences in childhood cancer: a qualitative exploration and model for future research.
Published in:
Supportive Care in Cancer, 2020, v. 28, n. 9, p. 4467, doi. 10.1007/s00520-019-05270-6
By:
- Baenziger, Julia;
- Hetherington, Kate;
- Wakefield, Claire E.;
- Carlson, Lauren;
- McGill, Brittany C.;
- Cohn, Richard J.;
- Michel, Gisela;
- Sansom-Daly, Ursula M.
Publication type:
Article
Decision-making in childhood cancer: parents' and adolescents' views and perceptions.
Published in:
2019
By:
- Robertson, Eden G.;
- Wakefield, Claire E.;
- Shaw, Joanne;
- Darlington, Anne-Sophie;
- McGill, Brittany C.;
- Cohn, Richard J.;
- Fardell, Joanna E.
Publication type:
journal article
Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors: "Cascade".
Published in:
2016
By:
- Wakefield, Claire;
- Sansom-Daly, Ursula;
- McGill, Brittany;
- Ellis, Sarah;
- Doolan, Emma;
- Robertson, Eden;
- Mathur, Sanaa;
- Cohn, Richard;
- Wakefield, Claire E;
- Sansom-Daly, Ursula M;
- McGill, Brittany C;
- Ellis, Sarah J;
- Doolan, Emma L;
- Robertson, Eden G;
- Cohn, Richard J
Publication type:
journal article
Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors.
Published in:
2019
By:
- Sansom‐Daly, Ursula M.;
- Wakefield, Claire E.;
- Bryant, Richard A.;
- Patterson, Pandora;
- Anazodo, Antoinette;
- Butow, Phyllis;
- Sawyer, Susan M.;
- McGill, Brittany C.;
- Evans, Holly E.;
- Cohn, Richard J.;
- Sansom-Daly, Ursula M;
- Recapture Life Working Party
Publication type:
journal article
Adolescent and young adult cancer survivors' memory and future thinking processes place them at risk for poor mental health.
Published in:
2018
By:
- Sansom‐Daly, Ursula M.;
- Wakefield, Claire E.;
- Robertson, Eden G.;
- McGill, Brittany C.;
- Wilson, Helen L.;
- Bryant, Richard A.;
- Sansom-Daly, Ursula M
Publication type:
journal article
Educational and vocational goal disruption in adolescent and young adult cancer survivors.
Published in:
Psycho-Oncology, 2018, v. 27, n. 2, p. 532, doi. 10.1002/pon.4525
By:
- Vetsch, Janine;
- Wakefield, Claire E.;
- McGill, Brittany C.;
- Cohn, Richard J.;
- Ellis, Sarah J.;
- Stefanic, Natalie;
- Sawyer, Susan M.;
- Zebrack, Brad;
- Sansom‐Daly, Ursula M.
Publication type:
Article
Author reply.
Published in:
Internal Medicine Journal, 2019, v. 49, n. 6, p. 808, doi. 10.1111/imj.14320
By:
- Sansom‐Daly, Ursula M.;
- Wakefield, Claire E.;
- Hetherington, Kate;
- Evans, Holly E.;
- Ellis, Sarah J.;
- McGill, Brittany C.;
- Cohn, Richard J.
Publication type:
Article
Something's got to give: time-cost trade-offs in site-specific research approval can negatively impact patient recruitment in multi-institutional studies.
Published in:
Internal Medicine Journal, 2017, v. 47, n. 9, p. 1088, doi. 10.1111/imj.13535
By:
- Sansom‐Daly, Ursula M.;
- Evans, Holly E.;
- Ellis, Sarah J.;
- McGill, Brittany C.;
- Hetherington, Kate;
- Wakefield, Claire E.
Publication type:
Article
How Are Families Faring? Perceived Family Functioning Among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers.
Published in:
Journal of Adolescent & Young Adult Oncology, 2021, v. 10, n. 6, p. 711, doi. 10.1089/jayao.2020.0215
By:
- Kamaladasa, Dinuli S.;
- Sansom-Daly, Ursula M.;
- Hetherington, Kate;
- McGill, Brittany C.;
- Ellis, Sarah J.;
- Kelada, Lauren;
- Donoghoe, Mark W.;
- Evans, Holly;
- Anazodo, Antoinette;
- Patterson, Pandora;
- Cohn, Richard J.;
- Wakefield, Claire E.
Publication type:
Article
"This Is the First Time I've Talked About This": Considerations When Conducting Qualitative Research Interviews with Adolescents and Young Adults with Cancer.
Published in:
Journal of Adolescent & Young Adult Oncology, 2021, v. 10, n. 5, p. 540, doi. 10.1089/jayao.2020.0122
By:
- Davies, Jane P.;
- McGill, Brittany C.;
- Sansom-Daly, Ursula M.;
- Wakefield, Claire E.;
- Kelly, Daniel M.
Publication type:
Article
Cancer-Related Genetic Testing and Personalized Medicine for Adolescents: A Narrative Review of Impact and Understanding.
Published in:
Journal of Adolescent & Young Adult Oncology, 2018, v. 7, n. 3, p. 259, doi. 10.1089/jayao.2017.0102
By:
- Vetsch, Janine;
- Wakefield, Claire E.;
- Warby, Meera;
- Tucker, Katherine;
- Patterson, Pandora;
- McGill, Brittany C.;
- Metcalfe, Alison;
- Cohn, Richard J.;
- Fardell, Joanna E.
Publication type:
Article
Adolescent and Young Adult Cancer Survivors' Experiences of the Healthcare System: A Qualitative Study.
Published in:
Journal of Adolescent & Young Adult Oncology, 2018, v. 7, n. 1, p. 88, doi. 10.1089/jayao.2017.0015
By:
- May, Elizabeth A.;
- McGill, Brittany C.;
- Robertson, Eden G.;
- Anazodo, Antoinette;
- Wakefield, Claire E.;
- Sansom-Daly, Ursula M.
Publication type:
Article
Therapeutic Alliance and Group Cohesion in an Online Support Program for Adolescent and Young Adult Cancer Survivors: Lessons from 'Recapture Life'.
Published in:
Journal of Adolescent & Young Adult Oncology, 2017, v. 6, n. 4, p. 568, doi. 10.1089/jayao.2017.0001
By:
- McGill, Brittany C.;
- Sansom-Daly, Ursula M.;
- Wakefield, Claire E.;
- Ellis, Sarah J.;
- Robertson, Eden G.;
- Cohn, Richard J.
Publication type:
Article
Health Literacy in Adolescents and Young Adults: Perspectives from Australian Cancer Survivors.
Published in:
Journal of Adolescent & Young Adult Oncology, 2017, v. 6, n. 1, p. 150, doi. 10.1089/jayao.2016.0024
By:
- Lin, Merry;
- Sansom-Daly, Ursula M.;
- Wakefield, Claire E.;
- Mcgill, Brittany C.;
- Cohn, Richard J.
Publication type:
Article
Sexual and Romantic Relationships: Experiences of Adolescent and Young Adult Cancer Survivors.
Published in:
Journal of Adolescent & Young Adult Oncology, 2016, v. 5, n. 3, p. 286, doi. 10.1089/jayao.2015.0061
By:
- Robertson, Eden G.;
- Sansom-Daly, Ursula M.;
- Wakefield, Claire E.;
- Ellis, Sarah J.;
- McGill, Brittany C.;
- Doolan, Emma L.;
- Cohn, Richard J.
Publication type:
Article
Health Literacy in Adolescents and Young Adults: An Updated Review.
Published in:
Journal of Adolescent & Young Adult Oncology, 2016, v. 5, n. 2, p. 106, doi. 10.1089/jayao.2015.0059
By:
- Sansom-Daly, Ursula M.;
- Lin, Merry;
- Robertson, Eden G.;
- Wakefield, Claire E.;
- McGill, Brittany C.;
- Girgis, Afaf;
- Cohn, Richard J.
Publication type:
Article
Quality of Life (QoL) of Children and Adolescents Participating in a Precision Medicine Trial for High-Risk Childhood Cancer.
Published in:
Cancers, 2022, v. 14, n. 21, p. 5310, doi. 10.3390/cancers14215310
By:
- Hetherington, Kate;
- Wakefield, Claire E.;
- Kunalan, Kavitha P. K.;
- Donoghoe, Mark W.;
- McGill, Brittany C.;
- Fardell, Joanna E.;
- Daly, Rebecca;
- Deyell, Rebecca J.;
- Ziegler, David S.
Publication type:
Article
Providing Psychological Support to Parents of Childhood Cancer Survivors: ' Cascade ' Intervention Trial Results and Lessons for the Future.
Published in:
Cancers, 2021, v. 13, n. 22, p. 5597, doi. 10.3390/cancers13225597
By:
- Wakefield, Claire E.;
- Sansom-Daly, Ursula M.;
- McGill, Brittany C.;
- Hetherington, Kate;
- Ellis, Sarah J.;
- Robertson, Eden G.;
- Donoghoe, Mark W.;
- McCarthy, Maria;
- Kelada, Lauren;
- Girgis, Afaf;
- King, Madeleine;
- Grootenhuis, Martha;
- Anazodo, Antoinette;
- Patterson, Pandora;
- Lowe, Cherie;
- Dalla-Pozza, Luciano;
- Miles, Gordon;
- Cohn, Richard J.
Publication type:
Article
Online, Group-Based Psychological Support for Adolescent and Young Adult Cancer Survivors: Results from the Recapture Life Randomized Trial.
Published in:
Cancers, 2021, v. 13, n. 10, p. 2460, doi. 10.3390/cancers13102460
By:
- Sansom-Daly, Ursula M.;
- Wakefield, Claire E.;
- Ellis, Sarah J.;
- McGill, Brittany C.;
- Donoghoe, Mark W.;
- Butow, Phyllis;
- Bryant, Richard A.;
- Sawyer, Susan M.;
- Patterson, Pandora;
- Anazodo, Antoinette;
- Plaster, Megan;
- Thompson, Kate;
- Holland, Lucy;
- Osborn, Michael;
- Maguire, Fiona;
- O'Dwyer, Catherine;
- De Abreu Lourenco, Richard;
- Cohn, Richard J.;
- Duijts, Saskia F.A.;
- Spelten, Evelien R.
Publication type:
Article
The psychosocial impact of childhood dementia on children and their parents: a systematic review.
Published in:
Orphanet Journal of Rare Diseases, 2023, v. 18, n. 1, p. 1, doi. 10.1186/s13023-023-02859-3
By:
- Nevin, Suzanne M.;
- McGill, Brittany C.;
- Kelada, Lauren;
- Hilton, Gail;
- Maack, Megan;
- Elvidge, Kristina L.;
- Farrar, Michelle A.;
- Baynam, Gareth;
- Katz, Naomi T.;
- Donovan, Leigh;
- Grattan, Sarah;
- Signorelli, Christina;
- Bhattacharya, Kaustuv;
- Nunn, Kenneth;
- Wakefield, Claire E.
Publication type:
Article
Communicating with families of young people with hard-to-treat cancers: Healthcare professionals' perspectives on challenges, skills, and training.
Published in:
Palliative & Supportive Care, 2024, v. 22, n. 3, p. 539, doi. 10.1017/S1478951523001992
By:
- Kelada, Lauren;
- Robertson, Eden G.;
- McKay, Skye;
- McGill, Brittany C.;
- Daly, Rebecca;
- Mazariego, Carolyn;
- Taylor, Natalie;
- Tyedmers, Elijah;
- Armitage, Nicole;
- Evans, Holly E.;
- Wakefield, Claire E.;
- Ziegler, David S.
Publication type:
Article
Psychosocial impact of genetic testing on parents of children with developmental and epileptic encephalopathy.
Published in:
Developmental Medicine & Child Neurology, 2022, v. 64, n. 1, p. 95, doi. 10.1111/dmcn.14971
By:
- Nevin, Suzanne M;
- Wakefield, Claire E;
- Barlow‐Stewart, Kristine;
- McGill, Brittany C;
- Bye, Ann;
- Palmer, Elizabeth E;
- Dale, Russell C;
- Gill, Deepak;
- Kothur, Kavitha;
- Boggs, Kirsten;
- Le Marne, Fleur;
- Beavis, Erin;
- Macintosh, Rebecca;
- Sachdev, Rani
Publication type:
Article
Online parent-targeted cognitive-behavioural therapy intervention to improve quality of life in families of young cancer survivors: study protocol for a randomised controlled trial.
Published in:
Trials, 2015, v. 16, n. 1, p. 1, doi. 10.1186/s13063-015-0681-6
By:
- Wakefield, Claire E.;
- Sansom-Daly, Ursula M.;
- McGill, Brittany C.;
- McCarthy, Maria;
- Girgis, Afaf;
- Grootenhuis, Martha;
- Barton, Belinda;
- Patterson, Pandora;
- Osborn, Michael;
- Lowe, Cherie;
- Anazodo, Antoinette;
- Miles, Gordon;
- Cohn, Richard J.
Publication type:
Article
Online parent-targeted cognitive-behavioural therapy intervention to improve quality of life in families of young cancer survivors: study protocol for a randomised controlled trial.
Published in:
2015
By:
- Wakefield, Claire E;
- Sansom-Daly, Ursula M;
- McGill, Brittany C;
- McCarthy, Maria;
- Girgis, Afaf;
- Grootenhuis, Martha;
- Barton, Belinda;
- Patterson, Pandora;
- Osborn, Michael;
- Lowe, Cherie;
- Anazodo, Antoinette;
- Miles, Gordon;
- Cohn, Richard J
Publication type:
journal article
'Like ships in the night': A qualitative investigation of the impact of childhood cancer on parents' emotional and sexual intimacy.
Published in:
Pediatric Blood & Cancer, 2022, v. 69, n. 12, p. 1, doi. 10.1002/pbc.30015
By:
- Chow, Wan Ka;
- Hetherington, Kate;
- McGill, Brittany C.;
- Sansom‐Daly, Ursula M.;
- Daly, Rebecca;
- Miles, Gordon;
- Cohn, Richard J.;
- Wakefield, Claire E.
Publication type:
Article
"I remember how I felt, but I don't remember the gene": Families' experiences of cancer-related genetic testing in childhood.
Published in:
2019
By:
- McGill, Brittany C.;
- Wakefield, Claire E.;
- Vetsch, Janine;
- Lim, Qishan;
- Warby, Meera;
- Metcalfe, Alison;
- Byrne, Jennifer A.;
- Cohn, Richard J.;
- Tucker, Katherine M.
Publication type:
journal article
The Reality of Relapse: Impact of Cancer Relapse on Survivorship Interventions and Patient-Reported Outcomes Data.
Published in:
2016
By:
- Sansom‐Daly, Ursula M.;
- McGill, Brittany C.;
- Anazodo, Antoinette C.;
- Plaster, Megan;
- Maguire, Fiona;
- O'Dwyer, Cath;
- Ellis, Sarah J.;
- Robertson, Eden G.;
- Cohn, Richard J.;
- Wakefield, Claire E.
Publication type:
Letter
Comorbidity of distress experienced by parents of childhood cancer survivors points to the importance of understanding transdiagnostic cognitive-affective mechanisms.
Published in:
2019
By:
- Vetsch, Janine;
- McGill, Brittany C.;
- Sansom-Daly, Ursula M.;
- Hetherington, Kate;
- Ellis, Sarah J.;
- Marshall, Kate H.;
- Wakefield, Claire E.
Publication type:
Letter to the Editor
Adaptación cultural mexicana del programa de intervención CASCAdE para padres de supervivientes de cáncer infantil.
Published in:
Psicooncologia, 2022, v. 19, n. 1, p. 63, doi. 10.5209/psic.80798
By:
- Sagrario Espinoza-Salgado, Fatima;
- Robles García, Rebeca;
- Wakefield, Claire E.;
- Kelada, Lauren;
- Sansom-Daly, Ursula M.;
- McGill, Brittany C.;
- Zentella Tusie, Alejandra;
- Juárez García, Francisco Lorenzo;
- Cárdenas Cardos, Rocío del Socorro;
- Zapata-Tarrés, Marta
Publication type:
Article
Genetic testing for the risk of developing late effects among survivors of childhood cancer: Consumer understanding, acceptance, and willingness to pay.
Published in:
2016
By:
- Georgiou, Gabrielle;
- Wakefield, Claire E.;
- McGill, Brittany C.;
- Fardell, Joanna E.;
- Signorelli, Christina;
- Hanlon, Lucy;
- Tucker, Kathy;
- Patenaude, Andrea F.;
- Cohn, Richard J.
Publication type:
journal article
Co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer.
Published in:
Frontiers in Medicine, 2024, p. 1, doi. 10.3389/fmed.2024.1332434
By:
- Mazariego, Carolyn G.;
- McKay, Skye;
- Tyedmers, Elijah;
- Kelada, Lauren;
- McGill, Brittany C.;
- Daly, Rebecca;
- Wakefield, Claire E.;
- Ziegler, David S.;
- Taylor, Natalie
Publication type:
Article
Parents' expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial.
Published in:
Cancer (0008543X), 2023, v. 129, n. 22, p. 3620, doi. 10.1002/cncr.34917
By:
- McGill, Brittany C.;
- Wakefield, Claire E.;
- Tucker, Katherine M.;
- Daly, Rebecca A.;
- Donoghoe, Mark W.;
- Vetsch, Janine;
- Warby, Meera;
- Fuentes‐Bolanos, Noemi A.;
- Barlow‐Stewart, Kristine;
- Kirk, Judy;
- Courtney, Eliza;
- O'Brien, Tracey A.;
- Marshall, Glenn M.;
- Pinese, Mark;
- Cowley, Mark J.;
- Tyrrell, Vanessa;
- Deyell, Rebecca J.;
- Ziegler, David S.;
- Hetherington, Kate
Publication type:
Article
How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families.
Published in:
Journal of Child & Family Studies, 2019, v. 28, n. 6, p. 1537, doi. 10.1007/s10826-019-01394-9
By:
- Kelada, Lauren;
- Wakefield, Claire E.;
- Carlson, Lauren;
- Hetherington, Kate;
- McGill, Brittany C.;
- McCarthy, Maria C.;
- Miles, Gordon;
- Cohn, Richard J.;
- Sansom-Daly, Ursula M.
Publication type:
Article

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