Works matching AU McBeth, Macy

Results: 1
    1

    Developing a community-led rare disease ELSI research agenda.

    Published in:
    Orphanet Journal of Rare Diseases, 2024, v. 19, n. 1, p. 1, doi. 10.1186/s13023-023-02986-x
    By:
    • Berrios, Courtney;
    • McBeth, Macy;
    • Bradley-Ewing, Andrea;
    • Schuetz, Nikolaus;
    • Campbell, Annette;
    • Talebizadeh, Zohreh;
    • Garrett, Jeremy R.;
    • Falicov, Tamara;
    • Martinez, Francisco;
    • Rare Voices Advisory Group;
    • Adams, Jensen;
    • Akpan, Jewel;
    • Baesel-Freund, Kelly L.;
    • Biyala, Urvi;
    • Cramer, Emily;
    • Freeman, Kimberly;
    • Gallagher, Terrence;
    • Jarrar, Ada;
    • Jones, Linda Vaughn;
    • Lewis, Tamorah
    Publication type:
    Article