Works by Kwakkenbos, Linda

Results: 71
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    Fatigue levels and associated factors in systemic sclerosis: a cross-sectional study of 2385 SPIN Cohort participants Open Access.

    Published in:
    Rheumatology, 2025, v. 64, n. 5, p. 2810, doi. 10.1093/rheumatology/keae570
    By:
    • Kwakkenbos, Linda;
    • Levis, Brooke;
    • Henry, Richard S;
    • Virgili-Gervais, Gabrielle;
    • Carrier, Marie-Eve;
    • Bartlett, Susan J;
    • Gietzen, Amy;
    • Gottesman, Karen;
    • Guillot, Geneviève;
    • Lawrie-Jones, Amanda;
    • Hummers, Laura K;
    • Malcarne, Vanessa L;
    • Mayes, Maureen D;
    • Richard, Michelle;
    • Wojeck, Robyn K;
    • Worron-Sauvé, Maureen;
    • Hudson, Marie;
    • Mouthon, Luc;
    • Benedetti, Andrea;
    • Thombs, Brett D
    Publication type:
    Article
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    Factors associated with physical function among people with systemic sclerosis: a SPIN cohort cross-sectional study.

    Published in:
    Rheumatology, 2024, v. 63, n. 10, p. 2660, doi. 10.1093/rheumatology/keae162
    By:
    • Santo, Tiffany Dal;
    • Rice, Danielle B;
    • Carrier, Marie-Eve;
    • Virgili-Gervais, Gabrielle;
    • Levis, Brooke;
    • Kwakkenbos, Linda;
    • Golberg, Meira;
    • Bartlett, Susan J;
    • Gietzen, Amy;
    • Gottesman, Karen;
    • Guillot, Geneviève;
    • Hudson, Marie;
    • Hummers, Laura K;
    • Malcarne, Vanessa L;
    • Mayes, Maureen D;
    • Mouthon, Luc;
    • Richard, Michelle;
    • Sauvé, Maureen;
    • Wojeck, Robyn K;
    • Geoffroy, Marie-Claude
    Publication type:
    Article
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    Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study.

    Published in:
    2023
    By:
    • Kwakkenbos, Linda;
    • Thombs, Brett D;
    • Khanna, Dinesh;
    • Carrier, Marie-Eve;
    • Baron, Murray;
    • Furst, Daniel E;
    • Gottesman, Karen;
    • van den Hoogen, Frank;
    • Malcarne, Vanessa L;
    • Mayes, Maureen D;
    • Mouthon, Luc;
    • Nielson, Warren R;
    • Poiraudeau, Serge;
    • Riggs, Robert;
    • Sauvé, Maureen;
    • Wigley, Fredrick;
    • Hudson, Marie;
    • Bartlett, Susan J
    Publication type:
    Correction Notice
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    Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study.

    Published in:
    Rheumatology, 2017, v. 56, n. 8, p. 1302, doi. 10.1093/rheumatology/kex055
    By:
    • Kwakkenbos, Linda;
    • Thombs, Brett D.;
    • Khanna, Dinesh;
    • Carrier, Marie-Eve;
    • Baron, Murray;
    • Furst, Daniel E.;
    • Gottesman, Karen;
    • van den Hoogen, Frank;
    • Malcarne, Vanessa L.;
    • Mayes, Maureen D.;
    • Mouthon, Luc;
    • Nielson, Warren R.;
    • Poiraudeau, Serge;
    • Riggs, Robert;
    • Sauvé, Maureen;
    • Wigley, Fredrick;
    • Hudson, Marie;
    • Bartlett, Susan J.
    Publication type:
    Article
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    Exercise habits and factors associated with exercise in systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

    Published in:
    Disability & Rehabilitation, 2018, v. 40, n. 17, p. 1997, doi. 10.1080/09638288.2017.1323023
    By:
    • Azar, Marleine;
    • Rice, Danielle B.;
    • Kwakkenbos, Linda;
    • Carrier, Marie-Eve;
    • Shrier, Ian;
    • Bartlett, Susan J.;
    • Hudson, Marie;
    • Mouthon, Luc;
    • Poiraudeau, Serge;
    • van den Ende, Cornelia H. M.;
    • Johnson, Sindhu R.;
    • Rodriguez Reyna, Tatiana Sofia;
    • Schouffoer, Anne A.;
    • Welling, Joep;
    • Thombs, Brett D.;
    • SPIN investigators
    Publication type:
    Article
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    Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (SPIN-SSLED) Program.

    Published in:
    2019
    By:
    • Thombs, Brett D.;
    • Aguila, Kylene;
    • Dyas, Laura;
    • Carrier, Marie-Eve;
    • Fedoruk, Claire;
    • Horwood, Linda;
    • Cañedo-Ayala, Mara;
    • Sauvé, Maureen;
    • Kwakkenbos, Linda;
    • Malcarne, Vanessa L.;
    • El-Baalbaki, Ghassan;
    • Peláez, Sandra;
    • Connolly, Kerri;
    • Hudson, Marie;
    • Platt, Robert W.;
    • SPIN-SSLED Support Group Advisory Team;
    • Elrod, Stephen;
    • Fortuné, Catherine;
    • Gottesman, Karen;
    • Nielsen, Karen
    Publication type:
    journal article
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    Randomized controlled trial of an individual blended cognitive behavioral therapy to reduce psychological distress among distressed colorectal cancer survivors: The COloRectal canceR distrEss reduCTion trial.

    Published in:
    Psycho-Oncology, 2024, v. 33, n. 1, p. 1, doi. 10.1002/pon.6270
    By:
    • Custers, José A. E.;
    • Kwakkenbos, Linda;
    • Levis, Brooke;
    • Döking, Sarah;
    • van der Hoeven, Yvonne C. W.;
    • Leermakers, Lynn;
    • de Wilt, Johannes H. W.;
    • Thewes, Belinda;
    • Braamse, Annemarie M. J.;
    • Dekker, Joost;
    • Prins, Judith B.
    Publication type:
    Article
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    Moderators of Loneliness Trajectories in People with Systemic Sclerosis During the COVID-19 Pandemic: A SPIN COVID-19 Cohort Longitudinal Study.

    Published in:
    International Journal of Behavioral Medicine, 2024, v. 31, n. 3, p. 352, doi. 10.1007/s12529-023-10248-0
    By:
    • Rapoport, Chelsea S.;
    • Choi, Alyssa K.;
    • Kwakkenbos, Linda;
    • Carrier, Marie-Eve;
    • Henry, Richard S.;
    • Levis, Brooke;
    • Bartlett, Susan J.;
    • Gietzen, Amy;
    • Gottesman, Karen;
    • Guillot, Geneviève;
    • Lawrie-Jones, Amanda;
    • Mayes, Maureen D.;
    • Mouthon, Luc;
    • Richard, Michelle;
    • Worron-Sauvé, Maureen;
    • Benedetti, Andrea;
    • Roesch, Scott C.;
    • Thombs, Brett D.;
    • Malcarne, Vanessa L.;
    • Fortuné, Catherine
    Publication type:
    Article
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    The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial.

    Published in:
    Trials, 2021, v. 22, n. 1, p. 1, doi. 10.1186/s13063-021-05827-z
    By:
    • Nordlund, Julia;
    • Henry, Richard S.;
    • Kwakkenbos, Linda;
    • Carrier, Marie-Eve;
    • Levis, Brooke;
    • Nielson, Warren R.;
    • Bartlett, Susan J.;
    • Dyas, Laura;
    • Tao, Lydia;
    • Fedoruk, Claire;
    • Nielsen, Karen;
    • Hudson, Marie;
    • Pope, Janet;
    • Frech, Tracy;
    • Gholizadeh, Shadi;
    • Johnson, Sindhu R.;
    • Piotrowski, Pamela;
    • Jewett, Lisa R.;
    • Gordon, Jessica;
    • Chung, Lorinda
    Publication type:
    Article
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    Prospective longitudinal study on fear of cancer recurrence in patients newly diagnosed with head and neck cancer: Course, trajectories, and associated factors.

    Published in:
    Head & Neck, 2022, v. 44, n. 4, p. 914, doi. 10.1002/hed.26985
    By:
    • Deuning‐Smit, Esther;
    • Custers, José A. E.;
    • Miroševič, Špela;
    • Takes, Robert P.;
    • Jansen, Femke;
    • Langendijk, Johannes A.;
    • Terhaard, Chris H. J.;
    • Baatenburg de Jong, Robert J.;
    • Leemans, C. René;
    • Smit, Johannes H.;
    • Kwakkenbos, Linda;
    • Verdonck‐de Leeuw, Irma M.;
    • Prins, Judith B.
    Publication type:
    Article
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    The ethics of 'Trials within Cohorts' (TwiCs): 2nd international symposium.

    Published in:
    2017
    By:
    • Relton, Clare;
    • Burbach, Maarten;
    • Collett, Clive;
    • Flory, James;
    • Gerlich, Sophie;
    • Holm, Soren;
    • Hunn, Amanda;
    • Kim, Scott Y.;
    • Kwakkenbos, Linda;
    • May, Anne;
    • Nicholl, Jon;
    • Young-Afat, Danny;
    • Treweek, Shaun;
    • Uher, Rudolf;
    • Staa, Tjeerd van;
    • van der Velden, Joanne;
    • Verkooijen, Helena;
    • Vickers, Andrew;
    • Welch, Sophie;
    • Zwarenstein, Merrick
    Publication type:
    Proceeding
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    Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND).

    Published in:
    PeerJ, 2022, p. 1, doi. 10.7717/peerj.13471
    By:
    • Kwakkenbos, Linda;
    • Carrier, Marie-Eve;
    • Welling, Joep;
    • Turner, Kimberly A.;
    • Cumin, Julie;
    • Pépin, Mia;
    • van den Ende, Cornelia;
    • Schouffoer, Anne A.;
    • Hudson, Marie;
    • van Breda, Ward;
    • Sauve, Maureen;
    • Mayes, Maureen D.;
    • Malcarne, Vanessa L.;
    • Nielson, Warren R.;
    • Nguyen, Christelle;
    • Boutron, Isabelle;
    • Rannou, François;
    • Thombs, Brett D.;
    • Mouthon, Luc
    Publication type:
    Article
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    Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program.

    Published in:
    Pilot & Feasibility Studies, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40814-022-00994-5
    By:
    • Kwakkenbos, Linda;
    • Østbø, Nora;
    • Carrier, Marie-Eve;
    • Nielson, Warren R.;
    • Fedoruk, Claire;
    • Levis, Brooke;
    • Henry, Richard S.;
    • Pope, Janet;
    • Frech, Tracy;
    • Gholizadeh, Shadi;
    • Johnson, Sindhu R.;
    • Piotrowski, Pamela;
    • Jewett, Lisa R.;
    • Gordon, Jessica;
    • Chung, Lorinda;
    • Bilsker, Dan;
    • Tao, Lydia;
    • Turner, Kimberly A.;
    • Cumin, Julie;
    • Welling, Joep
    Publication type:
    Article
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    Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience: the SPIN-CLEAR Trials.

    Published in:
    Trials, 2025, v. 26, n. 1, p. 1, doi. 10.1186/s13063-025-08846-2
    By:
    • Thombs, Brett D.;
    • Adams, Claire;
    • Nassar, Elsa-Lynn;
    • Carrier, Marie-Eve;
    • Golberg, Meira;
    • Bharthi, Kanika;
    • Wurz, Amanda;
    • South, Annabelle;
    • Kwakkenbos, Linda;
    • Hoa, Sabrina;
    • Rice, Danielle B.;
    • Guillot, Geneviève;
    • Lawrie-Jones, Amanda;
    • Sauvé, Maureen;
    • Bartlett, Susan J.;
    • Fortune, Catherine;
    • Gietzen, Amy;
    • Gottesman, Karen;
    • Hudson, Marie;
    • Hummers, Laura K.
    Publication type:
    Article
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    Protocol for the development of a tool to map systemic sclerosis pain sources, patterns, and management experiences: a Scleroderma Patient-centered Intervention Network patient-researcher partnership.

    Published in:
    BMC Rheumatology, 2024, v. 8, n. 1, p. 1, doi. 10.1186/s41927-024-00398-3
    By:
    • Dal Santo, Tiffany;
    • Golberg, Meira;
    • Nassar, Elsa-Lynn;
    • Carrier, Marie-Eve;
    • Hu, Sophie;
    • Kwakkenbos, Linda;
    • Bartlett, Susan J.;
    • Fox, Rina S.;
    • Lee, Yvonne C.;
    • Varga, John;
    • Benedetti, Andrea;
    • Thombs, Brett D.;
    • Lapointe McKenzie, Jo-Ann;
    • Lawrie-Jones, Amanda;
    • Mieszczak, Tracy;
    • Petrozza, Silvia;
    • Sauve, Maureen;
    • Wixson, Gayle
    Publication type:
    Article
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    Synthetic Progestins in Breast Tumor Cells.

    Published in:
    Annals of the New York Academy of Sciences, 1993, v. 684, n. 1, p. 220, doi. 10.1111/j.1749-6632.1993.tb32290.x
    By:
    • KALKHOVEN, ERIC;
    • KWAKKENBOS-ISBRÜCKER, LINDA;
    • LAAT, SIEGFRIED W.;
    • BURG, BART
    Publication type:
    Article
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    Oral health in systemic sclerosis: A scoping review.

    Published in:
    Journal of Scleroderma & Related Disorders, 2025, v. 10, n. 1, p. 13, doi. 10.1177/23971983241252899
    By:
    • Gagarine, Maria;
    • Cañedo-Ayala, Mara;
    • Cook, Vanessa;
    • Discepola, Marie-Nicole;
    • Guillot, Genevieve;
    • Leader, David M;
    • Lim, Mathew AWT;
    • Yap, Tami;
    • Furst, Daniel E;
    • Gietzen, Amy;
    • Lapointe McKenzie, Jo-Ann;
    • Van Pelt, Shelley;
    • Vidiricaire, Louise;
    • Carrier, Marie-Eve;
    • Krishnan, Ankur;
    • Tao, Lydia;
    • Kwakkenbos, Linda;
    • Thombs, Brett D
    Publication type:
    Article
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    Changes in work and adequacy of financial resources during COVID-19 among people with systemic sclerosis: A Scleroderma Patient-centered Intervention Network study.

    Published in:
    Journal of Scleroderma & Related Disorders, 2024, v. 9, n. 3, p. 242, doi. 10.1177/23971983241262655
    By:
    • Adams, Claire;
    • Nassar, Elsa-Lynn;
    • Carrier, Marie-Eve;
    • Kwakkenbos, Linda;
    • Henry, Richard S;
    • Virgili-Gervais, Gabrielle;
    • Hu, Sophie;
    • Bartlett, Susan J;
    • Fortuné, Catherine;
    • Gietzen, Amy;
    • Gottesman, Karen;
    • Guillot, Geneviève;
    • Hudson, Marie;
    • Lawrie-Jones, Amanda;
    • Lewis, Nancy;
    • Malcarne, Vanessa;
    • Mayes, Maureen D;
    • Patten, Scott B;
    • Richard, Michelle;
    • Sauvé, Maureen
    Publication type:
    Article
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    Differential Item Functioning on the Cochin Hand Function Scale Among People With Systemic Sclerosis by Language, Sex, and Disease Subtype: A Scleroderma Patient‐Centered Intervention Network (SPIN) Cohort Study.

    Published in:
    Arthritis Care & Research, 2025, v. 77, n. 3, p. 393, doi. 10.1002/acr.25199
    By:
    • Xu, Mingyao;
    • Harel, Daphna;
    • Carrier, Marie‐Eve;
    • Kwakkenbos, Linda;
    • Bartlett, Susan J.;
    • Gottesman, Karen;
    • Guillot, Geneviève;
    • Hummers, Laura;
    • Malcarne, Vanessa L.;
    • Richard, Michelle;
    • Thombs, Brett D.;
    • Gietzen, Amy;
    • Hudson, Marie;
    • Lawrie‐Jones, Amanda;
    • Mayes, Maureen D.;
    • Nielson, Warren R.;
    • Sauvé, Maureen;
    • Wojeck, Robyn K.;
    • Adams, Claire Elizabeth;
    • Henry, Richard S.
    Publication type:
    Article