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Patient involvement in medical research: what patients and physicians learn from each other.
Published in:
2019
By:
- Young, Kalen;
- Kaminstein, Dana;
- Olivos, Ana;
- Burroughs, Cristina;
- Castillo-Lee, Celeste;
- Kullman, Joyce;
- McAlear, Carol;
- Shaw, Dianne G.;
- Sreih, Antoine;
- Casey, George;
- Merkel, Peter A.;
- Vasculitis Patient-Powered Research Network
Publication type:
journal article
Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study.
Published in:
2017
By:
- Krischer, Jeffrey;
- Cronholm, Peter F.;
- Burroughs, Cristina;
- McAlear, Carol A.;
- Borchin, Renee;
- Easley, Ebony;
- Davis, Trocon;
- Kullman, Joyce;
- Carette, Simon;
- Khalidi, Nader;
- Koening, Curry;
- Langford, Carol A.;
- Monach, Paul;
- Moreland, Larry;
- Pagnoux, Christian;
- Specks, Ulrich;
- Sreih, Antoine G.;
- Ytterberg, Steven;
- Merkel, Peter A.;
- Vasculitis Clinical Research Consortium
Publication type:
journal article
Diagnostic delays in vasculitis and factors associated with time to diagnosis.
Published in:
2021
By:
- Sreih, Antoine G.;
- Cronin, Keri;
- Shaw, Dianne G.;
- Young, Kalen;
- Burroughs, Cristina;
- Kullman, Joyce;
- Machireddy, Kirthi;
- McAlear, Carol A.;
- Merkel, Peter A.;
- Vasculitis Patient-Powered Research Network
Publication type:
journal article
Improving Care in Eosinophil-Associated Diseases: A Charter.
Published in:
Advances in Therapy, 2022, v. 39, n. 6, p. 2323, doi. 10.1007/s12325-022-02110-8
By:
- Jackson, David J.;
- Akuthota, Praveen;
- Andradas, Rebeca;
- Bredenoord, Albert J.;
- Cordell, Amanda;
- Gray, Sarah;
- Kullman, Joyce;
- Mathur, Sameer K.;
- Pavord, Ian;
- Roufosse, Florence;
- Rubio, Christian;
- Rusek, Irena Clisson;
- Simon, Dagmar;
- Strobel, Mary Jo;
- Winders, Tonya
Publication type:
Article
Effects of the COVID‐19 Pandemic on Patients Living With Vasculitis.
Published in:
ACR Open Rheumatology, 2021, v. 3, n. 1, p. 17, doi. 10.1002/acr2.11204
By:
- Banerjee, Shubhasree;
- George, Michael;
- Young, Kalen;
- Venkatachalam, Shilpa;
- Gordon, Jennifer;
- Burroughs, Cristina;
- Curtis, David;
- Ferrada, Marcela;
- Gavigan, Kelly;
- Grayson, Peter C.;
- Kullman, Joyce;
- Danila, Maria I.;
- Curtis, Jeffrey R.;
- Shaw, Dianne G.;
- Benjamin Nowell, W.;
- Merkel, Peter A.
Publication type:
Article
Reproductive Outcomes for Women With Vasculitis.
Published in:
Journal of Rheumatology, 2024, v. 51, n. 10, p. 1003, doi. 10.3899/jrheum.2023-1246
By:
- Sims, Catherine A.;
- Eudy, Amanda M.;
- Larson, Kalen;
- Yeung, Christine;
- Tam, Heather;
- Kullman, Joyce;
- Borchin, Renée L.;
- Burroughs, Cristina;
- Merkel, Peter A.;
- Clowse, Megan E. B.
Publication type:
Article
Exploring Reproductive Experiences With Women Enrolled in the International Vasculitis Pregnancy Registry.
Published in:
Journal of Rheumatology, 2024, v. 51, n. 10, p. 997, doi. 10.3899/jrheum.2023-1055
By:
- Sims, Catherine A.;
- Perry, Brian;
- Yeung, Christine;
- Tam, Heather;
- Kullman, Joyce;
- Borchin, Renée L.;
- Burroughs, Cristina;
- Merkel, Peter A.;
- Clowse, Megan E. B.
Publication type:
Article
A study of implementation factors for a novel approach to clinical trials: constructs for consideration in the coordination of direct-to-patient online-based medical research.
Published in:
BMC Medical Research Methodology, 2024, v. 24, n. 1, p. 1, doi. 10.1186/s12874-024-02352-w
By:
- Cronholm, Peter F.;
- Applequist, Janelle;
- Krischer, Jeffrey;
- Fontenot, Ebony;
- Davis, Trocon;
- Burroughs, Cristina;
- McAlear, Carol A.;
- Borchin, Renée;
- Kullman, Joyce;
- Carette, Simon;
- Khalidi, Nader;
- Koening, Curry;
- Langford, Carol A.;
- Monach, Paul;
- Moreland, Larry;
- Pagnoux, Christian;
- Specks, Ulrich;
- Sreih, Antoine G.;
- Ytterberg, Steven R.;
- Merkel, Peter A.
Publication type:
Article
140. The vasculitis pregnancy registry (VPREG): baseline information for the first 3 years.
Published in:
2019
By:
- Golenbiewski, Jon;
- Young, Kalen;
- Burroughs, Cristina;
- Kullman, Joyce;
- Merkel, Peter;
- Clowse, Megan
Publication type:
Abstract
122. Diagnostic Delays in Vasculitis and Factors Associated with Time to Diagnosis.
Published in:
2019
By:
- Sreih, Antoine G;
- Shaw, Dianne;
- Young, Kalen;
- Burroughs, Cristina;
- Kullman, Joyce;
- Machireddy, Kirthi;
- McAlear, Carol A;
- Casey, George;
- Merkel, Peter A
Publication type:
Abstract

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