Found: 28
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Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan.
- Published in:
- 2016
- By:
- Publication type:
- journal article
Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era.
- Published in:
- 2016
- By:
- Publication type:
- journal article
How should the legal framework for the protection of human genomic data be formulated?-Implications from the revision processes of the Act on the Protection of Personal Information (PPI Act).
- Published in:
- Journal of Human Genetics, 2015, v. 60, n. 4, p. 225, doi. 10.1038/jhg.2014.121
- By:
- Publication type:
- Article
Human genetic research, race, ethnicity and the labeling of populations: recommendations based on an interdisciplinary workshop in Japan.
- Published in:
- BMC Medical Ethics, 2014, v. 15, n. 1, p. 1, doi. 10.1186/1472-6939-15-33
- By:
- Publication type:
- Article
Human genetic research, race, ethnicity and the labeling of populations: recommendations based on an interdisciplinary workshop in Japan.
- Published in:
- 2014
- By:
- Publication type:
- research
Evaluating standards for 'serious' disease for preimplantation genetic testing: a multi-case study on regulatory frameworks in Japan, the UK, and Western Australia.
- Published in:
- Human Genomics, 2022, v. 16, n. 1, p. 1, doi. 10.1186/s40246-022-00390-3
- By:
- Publication type:
- Article
Access, autonomy, and affordability: ethical and human rights issues surrounding multigene panel testing for cancer in Japan and Switzerland.
- Published in:
- Frontiers in Genetics, 2024, p. 1, doi. 10.3389/fgene.2024.1343720
- By:
- Publication type:
- Article
Framework and Practical Guidance for the Ethical Use of Electronic Methods for Communication With Participants in Medical Research.
- Published in:
- 2022
- By:
- Publication type:
- journal article
Landscape of Participant-Centric Initiatives for Medical Research in the United States, the United Kingdom, and Japan: Scoping Review.
- Published in:
- 2020
- By:
- Publication type:
- journal article
Participant-Centric Initiatives and Medical Research: Scoping Review Protocol.
- Published in:
- Journal of Medical Internet Research, 2017, v. 19, n. 12, p. 1, doi. 10.2196/resprot.7407
- By:
- Publication type:
- Article
Why does it take so long for rare disease patients to get an accurate diagnosis?—A qualitative investigation of patient experiences of hereditary angioedema.
- Published in:
- PLoS ONE, 2022, v. 17, n. 3, p. 1, doi. 10.1371/journal.pone.0265847
- By:
- Publication type:
- Article
High-resolution characterization of a hepatocellular carcinoma genome.
- Published in:
- Nature Genetics, 2011, v. 43, n. 5, p. 464, doi. 10.1038/ng.804
- By:
- Publication type:
- Article
Analysis of an ADTKD family with a novel frameshift mutation in MUC1 reveals characteristic features of mutant MUC1 protein.
- Published in:
- Nephrology Dialysis Transplantation, 2017, v. 32, n. 12, p. 2010, doi. 10.1093/ndt/gfx083
- By:
- Publication type:
- Article
Multimedia Presentations on the Human Genome.
- Published in:
- Biochemistry & Molecular Biology Education, 2008, v. 36, n. 6, p. 395, doi. 10.1002/bmb.20231
- By:
- Publication type:
- Article
Tissue Distribution of N-myc Expression in the Early Organogenesis Period of the Mouse Embryo.
- Published in:
- Development, Growth & Differentiation, 1991, v. 33, n. 1, p. 29, doi. 10.1111/j.1440-169X.1991.00029.x
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- Publication type:
- Article
Institutional and Social Issues Surrounding Genetic Counselors in Japan: Current Challenges and Implications for the Global Community.
- Published in:
- Frontiers in Genetics, 2021, v. 11, p. N.PAG, doi. 10.3389/fgene.2021.646177
- By:
- Publication type:
- Article
The International Cancer Genome Consortium's evolving data-protection policies.
- Published in:
- Nature Biotechnology, 2014, v. 32, n. 6, p. 519, doi. 10.1038/nbt.2926
- By:
- Publication type:
- Article
The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project.
- Published in:
- Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00253-6
- By:
- Publication type:
- Article
Challenges raised by gene editing.
- Published in:
- 2016
- By:
- Publication type:
- Letter to the Editor
Stem cell research policy and iPS cells.
- Published in:
- 2010
- By:
- Publication type:
- Opinion
Ethical, legal and social implications of human genome studies in radiation research: a workshop report for studies on atomic bomb survivors at the Radiation Effects Research Foundation.
- Published in:
- Journal of Radiation Research, 2021, v. 62, n. 4, p. 656, doi. 10.1093/jrr/rrab043
- By:
- Publication type:
- Article
Survey of hereditary angioedema episodes and quality of life impairment through a patient-participatory registry.
- Published in:
- Journal of Cutaneous Immunology & Allergy, 2024, p. 1, doi. 10.3389/jcia.2024.12626
- By:
- Publication type:
- Article
Genetic discrimination: introducing the Asian perspective to the debate.
- Published in:
- NPJ Genomic Medicine, 2021, v. 6, n. 1, p. 1, doi. 10.1038/s41525-021-00218-4
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- Publication type:
- Article
Key challenges in bringing CRISPR-mediated somatic cell therapy into the clinic.
- Published in:
- Genome Medicine, 2017, v. 9, p. 1, doi. 10.1186/s13073-017-0475-4
- By:
- Publication type:
- Article
Social and Communicative Functions of Informed Consent Forms in East Asia and Beyond.
- Published in:
- Frontiers in Genetics, 2017, p. 1, doi. 10.3389/fgene.2017.00099
- By:
- Publication type:
- Article
Public attitudes in Japan toward participation in whole genome sequencing studies.
- Published in:
- Human Genomics, 2018, v. 12, n. 1, p. N.PAG, doi. 10.1186/s40246-018-0153-7
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- Publication type:
- Article
Including all voices in international data-sharing governance.
- Published in:
- Human Genomics, 2018, v. 12, p. 1, doi. 10.1186/s40246-018-0143-9
- By:
- Publication type:
- Article
Reflections on the Cost of "Low-Cost" Whole Genome Sequencing: Framing the Health Policy Debate.
- Published in:
- PLoS Biology, 2013, v. 11, n. 11, p. 1, doi. 10.1371/journal.pbio.1001699
- By:
- Publication type:
- Article