Works by Iskrov, Georgi

Results: 41

Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in Europe.

Published in:

2016

By:

Angelis, Aris;
Kanavos, Panos;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Brodszky, Valentin;
Schulenburg, Johann;
Chevreul, Karine;
Persson, Ulf;
Fattore, Giovanni;
von der Schulenburg, Johann Matthias Graf;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe.

Published in:

2016

By:

Chevreul, Karine;
Michel, Morgane;
Brigham, Karen;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Péntek, Márta;
Schulenburg, Johann;
Kanavos, Panos;
Persson, Ulf;
Fattore, Giovani;
Brigham, Karen Berg;
von der Schulenburg, Johann Matthias Graf;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe.

Published in:

2016

By:

Cavazza, Marianna;
Kodra, Yllka;
Armeni, Patrizio;
Santis, Marta;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Péntek, Márta;
Schulenburg, Johann;
Kanavos, Panos;
Chevreul, Karine;
Persson, Ulf;
Fattore, Giovanni;
De Santis, Marta;
von der Schulenburg, Johann Matthias Graf

Publication type:

journal article

Social/economic costs and quality of life in patients with haemophilia in Europe.

Published in:

2016

By:

Cavazza, Marianna;
Kodra, Yllka;
Armeni, Patrizio;
De Santis, Marta;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Gulácsi, László;
Schulenburg, Johann;
Kanavos, Panos;
Chevreul, Karine;
Persson, Ulf;
Fattore, Giovanni;
von der Schulenburg, Johann Matthias Graf;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and health-related quality of life in patients with fragile X syndrome in Europe.

Published in:

2016

By:

Chevreul, Karine;
Gandré, Coralie;
Brigham, Karen;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Gulácsi, László;
Schulenburg, Johann;
Kanavos, Panos;
Persson, Ulf;
Fattore, Giovani;
Brigham, Karen Berg;
von der Schulenburg, Johann Matthias Graf;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and health-related quality of life of mucopolysaccharidosis patients and their caregivers in Europe.

Published in:

2016

By:

Péntek, Márta;
Gulácsi, László;
Brodszky, Valentin;
Baji, Petra;
Boncz, Imre;
Pogány, Gábor;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Taruscio, Domenica;
Iskrov, Georgi;
Schieppati, Arrigo;
Schulenburg, Johann;
Kanavos, Panos;
Chevreul, Karine;
Persson, Ulf;
Fattore, Giovanni;
von der Schulenburg, Johann Matthias Graf

Publication type:

journal article

Social/economic costs and health-related quality of life in patients with Prader-Willi syndrome in Europe.

Published in:

2016

By:

López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Posada-de-la-Paz, Manuel;
Serrano-Aguilar, Pedro;
Kanavos, Panos;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Baji, Petra;
Delgado, Claudia;
Schulenburg, Johann;
Persson, Ulf;
Chevreul, Karine;
Fattore, Giovanni;
von der Schulenburg, Johann Matthias Graf;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and health-related quality of life in patients with scleroderma in Europe.

Published in:

2016

By:

López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Kanavos, Panos;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Péntek, Márta;
Delgado, Claudia;
Schulenburg, Johann;
Persson, Ulf;
Chevreul, Karine;
Fattore, Giovanni;
von der Schulenburg, Johann Mathias;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and health-related quality of life in patients with histiocytosis in Europe.

Published in:

2016

By:

Iskrov, Georgi;
Astigarraga, Itziar;
Stefanov, Rumen;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Schieppati, Arrigo;
Taruscio, Domenica;
Péntek, Márta;
Schulenburg, Johann;
Kanavos, Panos;
Chevreul, Karine;
Persson, Ulf;
Fattore, Giovanni;
von der Schulenburg, Johann Matthias Graf;
BURQOL-RD Research Network

Publication type:

journal article

Prospects for Expansion of Universal Newborn Screening in Bulgaria: A Survey among Medical Professionals.

Published in:

International Journal of Neonatal Screening (IJNS), 2023, v. 9, n. 4, p. 57, doi. 10.3390/ijns9040057

By:

Iskrov, Georgi;
Angelova, Vyara;
Bochev, Boyan;
Valchinova, Vaska;
Gencheva, Teodora;
Dzhuleva, Desislava;
Dichev, Julian;
Nedkova, Tanya;
Palkova, Mariya;
Tyutyukova, Anelia;
Hristova, Maria;
Hristova-Atanasova, Eleonora;
Stefanov, Rumen

Publication type:

Article

Health systems for rare diseases: financial sustainability.

Published in:

Annali dell'Istituto Superiore di Sanita, 2019, v. 55, n. 3, p. 270, doi. 10.4415/ANN_19_03_13

By:

Iskrov, Georgi;
Stefanov, Rumen;
Ferrelli, Rita Maria

Publication type:

Article

Health Economic Data in Reimbursement of New Medical Technologies: Importance of the Socio-Economic Burden as a Decision-Making Criterion.

Published in:

2016

By:

Iskrov, Georgi;
Dermendzhiev, Svetlan;
Miteva-Katrandzhieva, Tsonka;
Stefanov, Rumen

Publication type:

Opinion

Using New Instruments of Clustering Policy in the Health Care System. The Case of Poland.

Published in:

Frontiers in Pharmacology, 2016, p. 1, doi. 10.3389/fphar.2016.00177

By:

Romaniuk, Piotr;
Holecki, Tomasz;
Woźniak-Holecka, Joanna;
Iskrov, Georgi;
Kocic, Sanja Sava

Publication type:

Article

Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project.

Published in:

Frontiers in Psychiatry, 2021, v. 12, p. 1, doi. 10.3389/fpsyt.2021.614102

By:

Micai, Martina;
Ciaramella, Antonio;
Salvitti, Tommaso;
Fulceri, Francesca;
Fatta, Laura Maria;
Poustka, Luise;
Diehm, Robert;
Iskrov, Georgi;
Stefanov, Rumen;
Guillon, Quentin;
Rogé, Bernadette;
Staines, Anthony;
Sweeney, Mary Rose;
Boilson, Andrew Martin;
Leósdóttir, Thora;
Saemundsen, Evald;
Moilanen, Irma;
Ebeling, Hanna;
Yliherva, Anneli;
Gissler, Mika

Publication type:

Article

Expenditure trends of orphan drugs in Serbia: 8-year analysis of orphan drug market in Serbia.

Published in:

Hospital Pharmacology: International Multidisciplinary Journal, 2016, v. 3, n. 3, p. 422, doi. 10.5937/hpimj1603422p

By:

Pejčić, Ana V.;
Iskrov, Georgi G.

Publication type:

Article

European Network of Rare Disease Help Lines (ENRDHLs) – caller profile analysis 2013

Published in:

Orphanet Journal of Rare Diseases, 2014, v. 9, n. 1, p. O13, doi. 10.1186/1750-1172-9-S1-O13

By:

Iskrov, Georgi;
Houÿez, François

Publication type:

Article

Autistic Adult Services Availability, Preferences, and User Experiences: Results From the Autism Spectrum Disorder in the European Union Survey.

Published in:

Frontiers in Psychiatry, 2022, v. 13, p. 1, doi. 10.3389/fpsyt.2022.919234

By:

Micai, Martina;
Fulceri, Francesca;
Salvitti, Tommaso;
Romano, Giovanna;
Poustka, Luise;
Diehm, Robert;
Iskrov, Georgi;
Stefanov, Rumen;
Guillon, Quentin;
Rogé, Bernadette;
Staines, Anthony;
Sweeney, Mary Rose;
Boilson, Andrew Martin;
Leósdóttir, Thora;
Saemundsen, Evald;
Moilanen, Irma;
Ebeling, Hanna;
Yliherva, Anneli;
Gissler, Mika;
Parviainen, Tarja

Publication type:

Article

An Evaluation of Rare Cancer Policies in Europe: A Survey Among Healthcare Providers.

Published in:

Cancers, 2025, v. 17, n. 2, p. 164, doi. 10.3390/cancers17020164

By:

Kostadinov, Kostadin;
Iskrov, Georgi;
Musurlieva, Nina;
Stefanov, Rumen

Publication type:

Article

Availability and Access to Orphan Drugs for Rare Cancers in Bulgaria: Analysis of Delays and Public Expenditures.

Published in:

Cancers, 2024, v. 16, n. 8, p. 1489, doi. 10.3390/cancers16081489

By:

Kostadinov, Kostadin;
Popova-Sotirova, Ivelina;
Marinova, Yuliyana;
Musurlieva, Nina;
Iskrov, Georgi;
Stefanov, Rumen

Publication type:

Article

Budgetary Impact of Medicinal Therapies for Rare Diseases in Bulgaria.

Published in:

Folia Medica, 2018, v. 60, n. 1, p. 79, doi. 10.2478/folmed-2018-0015

By:

Iskrov, Georgi G.;
Jakovljevic, Mihajlo (Michael);
Stefanov, Rumen S.

Publication type:

Article

Economic Burden And Health-Related Quality Of Life Of Patients With Cystic Fibrosis In Bulgaria.

Published in:

Folia Medica, 2015, v. 57, n. 1, p. 56, doi. 10.1515/folmed-2015-0020

By:

Iskrov, Georgi G.;
Stefanov, Rumen S.;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro

Publication type:

Article

INSIGHT INTO REIMBURSEMENT DECISION-MAKING CRITERIA IN BULGARIA: IMPLICATIONS FOR ORPHAN DRUGS.

Published in:

Folia Medica, 2013, v. 55, n. 3/4, p. 80, doi. 10.2478/folmed-2013-0032

By:

Iskrov, Georgi G.;
Raycheva, Ralitsa D.;
Stefanov, Rumen S.

Publication type:

Article

Willingness to pay for cancer prevention, screening, diagnosis, and treatment: a systematic review.

Published in:

Expert Review of Pharmacoeconomics & Outcomes Research, 2023, v. 23, n. 3, p. 281, doi. 10.1080/14737167.2023.2167713

By:

Ben-Aharon, Omer;
Iskrov, Georgi;
Sagy, Iftach;
Greenberg, Dan

Publication type:

Article

Authors' reply to Rare diseases in Romania - a response to 'Transposition and implementation of EU rare diseases policy in Eastern Europe'.

Published in:

2018

By:

Pejcic, Ana V.;
Iskrov, Georgi;
Stefanov, Rumen

Publication type:

Letter

Transposition and implementation of EU rare disease policy in Eastern Europe.

Published in:

2017

By:

Pejcic, Ana V.;
Iskrov, Georgi;
Raycheva, Ralitsa;
Stefanov, Rumen;
Jakovljevic, Mihajlo (Michael)

Publication type:

journal article

Willingness to pay for an mRNA-based anti-cancer treatment: results from a contingent valuation study in Israel.

Published in:

Israel Journal of Health Policy Research, 2024, v. 13, p. 1, doi. 10.1186/s13584-024-00594-z

By:

Ben-Aharon, Omer;
Sergienko, Ruslan;
Iskrov, Georgi;
Greenberg, Dan

Publication type:

Article

Schooling of Children with Rare Diseases and Disability in Europe.

Published in:

International Journal of Disability, Development & Education, 2019, v. 66, n. 4, p. 362, doi. 10.1080/1034912X.2018.1562159

By:

Linertová, Renata;
González-Guadarrama, Javier;
Serrano-Aguilar, Pedro;
Posada-De-la-Paz, Manuel;
Péntek, Márta;
Iskrov, Georgi;
Ballester, Marta

Publication type:

Article

Preeclampsia Management and Maternal Ophthalmic Artery Doppler Measurements between 19 and 23 Weeks of Gestation.

Published in:

Journal of Clinical Medicine, 2024, v. 13, n. 4, p. 950, doi. 10.3390/jcm13040950

By:

Gyokova, Elitsa;
Hristova-Atanasova, Eleonora;
Iskrov, Georgi

Publication type:

Article

Criteria for Drug Reimbursement Decision-Making: An Emerging Public Health Challenge in Bulgaria.

Published in:

Balkan Medical Journal, 2016, v. 33, n. 1, p. 27, doi. 10.5152/balkanmedj.2015.15185

By:

Iskrov, Georgi;
Stefanov, Rumen

Publication type:

Article

Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences.

Published in:

Journal of Autism & Developmental Disorders, 2022, v. 52, n. 4, p. 1623, doi. 10.1007/s10803-021-05038-0

By:

Micai, Martina;
Ciaramella, Antonio;
Salvitti, Tommaso;
Fulceri, Francesca;
Fatta, Laura Maria;
Poustka, Luise;
Diehm, Robert;
Iskrov, Georgi;
Stefanov, Rumen;
Guillon, Quentin;
Rogé, Bernadette;
Staines, Anthony;
Sweeney, Mary Rose;
Boilson, Andrew Martin;
Leósdóttir, Thora;
Saemundsen, Evald;
Moilanen, Irma;
Ebeling, Hanna;
Yliherva, Anneli;
Gissler, Mika

Publication type:

Article

Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study.

Published in:

Journal of Autism & Developmental Disorders, 2021, v. 51, n. 11, p. 4129, doi. 10.1007/s10803-021-04873-5

By:

Scattoni, Maria Luisa;
Micai, Martina;
Ciaramella, Antonio;
Salvitti, Tommaso;
Fulceri, Francesca;
Fatta, Laura Maria;
Poustka, Luise;
Diehm, Robert;
Iskrov, Georgi;
Stefanov, Rumen;
Guillon, Quentin;
Rogé, Bernadette;
Staines, Anthony;
Sweeney, Mary Rose;
Boilson, Andrew Martin;
Leósdóttir, Thora;
Saemundsen, Evald;
Moilanen, Irma;
Ebeling, Hanna;
Yliherva, Anneli

Publication type:

Article

Practice Patterns for Early Screening and Evaluation for Autism Spectrum Disorder Diagnosis in Bulgaria.

Published in:

Journal of Autism & Developmental Disorders, 2021, v. 51, n. 3, p. 778, doi. 10.1007/s10803-019-04170-2

By:

Iskrov, Georgi;
Vasilev, Georgi;
Mitev, Martin;
Nikolova, Ralitsa;
Stoykova, Mariya;
Stefanov, Rumen

Publication type:

Article

National Registries of Rare Diseases in Europe: An Overview of the Current Situation and Experiences.

Published in:

Public Health Genomics, 2015, v. 18, n. 1, p. 20, doi. 10.1159/000365897

By:

Taruscio, Domenica;
Vittozzi, Luciano;
Choquet, Remy;
Heimdal, Ketil;
Iskrov, Georgi;
Kodra, Yllka;
Landais, Paul;
Posada, Manuel;
Stefanov, Rumen;
Steinmueller, Christiane;
Swinnen, Elfriede;
Van Oyen, Herman

Publication type:

Article

Landscape analysis of available European data sources amenable for machine learning and recommendations on usability for rare diseases screening.

Published in:

Orphanet Journal of Rare Diseases, 2024, v. 19, n. 1, p. 1, doi. 10.1186/s13023-024-03162-5

By:

Raycheva, Ralitsa;
Kostadinov, Kostadin;
Mitova, Elena;
Iskrov, Georgi;
Stefanov, Georgi;
Vakevainen, Merja;
Elomaa, Kaisa;
Man, Yuen-Sum;
Gross, Edith;
Zschüntzsch, Jana;
Röttger, Richard;
Stefanov, Rumen

Publication type:

Article

Are the European reference networks for rare diseases ready to embrace machine learning? A mixed-methods study.

Published in:

Orphanet Journal of Rare Diseases, 2024, v. 19, n. 1, p. 1, doi. 10.1186/s13023-024-03047-7

By:

Iskrov, Georgi;
Raycheva, Ralitsa;
Kostadinov, Kostadin;
Gillner, Sandra;
Blankart, Carl Rudolf;
Gross, Edith Sky;
Gumus, Gulcin;
Mitova, Elena;
Stefanov, Stefan;
Stefanov, Georgi;
Stefanov, Rumen

Publication type:

Article

What is the awareness of rare diseases among medical students? A survey in Bulgaria.

Published in:

Orphanet Journal of Rare Diseases, 2023, p. 1, doi. 10.1186/s13023-023-02820-4

By:

Hristova-Atanasova, Eleonora;
Iskrov, Georgi;
Atanasov, Ivan;
Genc, Atilla;
Stefanov, Rumen

Publication type:

Article

The Socio-Economic Burden of Spinal Muscular Atrophy: A Cost-of-Illness Study in Bulgaria.

Published in:

Healthcare (2227-9032), 2025, v. 13, n. 4, p. 401, doi. 10.3390/healthcare13040401

By:

Dzhambazova, Elizabet;
Kostadinov, Kostadin;
Tsenkova-Toncheva, Lilia;
Galabova, Fani;
Ezeldin, Fares;
Iskrov, Georgi;
Stefanov, Rumen

Publication type:

Article

Family Planning and Preconception Care Service Management: The Key Role of Bulgarian GPs.

Published in:

Healthcare (2227-9032), 2024, v. 12, n. 11, p. 1096, doi. 10.3390/healthcare12111096

By:

Hristova-Atanasova, Eleonora;
Iskrov, Georgi;
Stefanov, Rumen

Publication type:

Article

Navigating Gene Therapy Access: The Case of Bulgaria in the Context of the EU Regulatory Landscape.

Published in:

Healthcare (2227-9032), 2024, v. 12, n. 4, p. 458, doi. 10.3390/healthcare12040458

By:

Kostadinov, Kostadin;
Marinova, Yuliyana;
Dimitrov, Kostadin;
Hristova-Atanasova, Eleonora;
Iskrov, Georgi;
Stefanov, Rumen

Publication type:

Article

Preconception-Health-Related Attitudes of Bulgarian Women of Reproductive Age.

Published in:

Healthcare (2227-9032), 2023, v. 11, n. 7, p. 989, doi. 10.3390/healthcare11070989

By:

Hristova-Atanasova, Eleonora;
Iskrov, Georgi;
Raycheva, Ralitsa;
Mandova, Viktoriya;
Stefanov, Rumen

Publication type:

Article

PP071 Health Technology Assessment In Bulgaria: A Review Of The First Fifteen Reports Assessed.

Published in:

2017

By:

Iskrov, Georgi;
Stefanov, Rumen;
Raycheva, Ralitsa

Publication type:

Abstract