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Outcomes for clinical trials involving adults with chronic kidney disease: a multinational Delphi survey involving patients, caregivers and health professionals.
Published in:
Nephrology Dialysis Transplantation, 2024, v. 39, n. 8, p. 1310, doi. 10.1093/ndt/gfae010
By:
- Gonzalez, Andrea Matus;
- Evangelidis, Nicole;
- Howell, Martin;
- Jaure, Allison;
- Sautenet, Benedicte;
- Madero, Magdalena;
- Ashuntantang, Gloria;
- Anumudu, Samaya;
- Bernier-Jean, Amelie;
- Dunn, Louese;
- Cho, Yeoungjee;
- Sanabria, Laura Cortes;
- Boer, Ian H de;
- Fung, Samuel;
- Gallego, Daniel;
- Guha, Chandana;
- Levey, Andrew S;
- Levin, Adeera;
- Lorca, Eduardo;
- Okpechi, Ikechi G
Publication type:
Article
Patient and caregiver perspectives on blood pressure in children with chronic kidney disease.
Published in:
Nephrology Dialysis Transplantation, 2022, v. 37, n. 7, p. 1330, doi. 10.1093/ndt/gfab194
By:
- Wu, Justin Guang-Ao;
- Tong, Allison;
- Evangelidis, Nicole;
- Manera, Karine E;
- Hanson, Camilla S;
- Baumgart, Amanda;
- Amir, Noa;
- Sinha, Aditi;
- Dart, Allison;
- Eddy, Allison A;
- Guha, Chandana;
- Gipson, Debbie S;
- Bockenhauer, Detlef;
- Yap, Hui-Kim;
- Groothoff, Jaap;
- Zappitelli, Michael;
- Alexander, Stephen I;
- Furth, Susan L;
- Samuel, Susan;
- Carter, Simon A
Publication type:
Article
Perspectives on mental health among patients receiving dialysis.
Published in:
Nephrology Dialysis Transplantation, 2021, v. 36, n. 7, p. 1317, doi. 10.1093/ndt/gfaa346
By:
- Nataatmadja, Melissa;
- Evangelidis, Nicole;
- Manera, Karine E;
- Cho, Yeoungjee;
- Johnson, David W;
- Craig, Jonathan C;
- Baumgart, Amanda;
- Hanson, Camilla S;
- Shen, Jenny;
- Guha, Chandana;
- Scholes-Robertson, Nicole;
- Tong, Allison;
- SONG-PD, for SONG-HD and
Publication type:
Article
Longitudinal associations between socioeconomic position and overall health of children with chronic kidney disease and their carers.
Published in:
Pediatric Nephrology, 2024, v. 39, n. 5, p. 1533, doi. 10.1007/s00467-023-06236-x
By:
- Shingde, Rashmi;
- Guha, Chandana;
- van Zwieten, Anita;
- Kim, Siah;
- Walker, Amanda;
- Francis, Anna;
- Didsbury, Madeleine;
- Teixeira-Pinto, Armando;
- Prestidge, Chanel;
- Lancsar, Emily;
- Mackie, Fiona;
- Kwon, Joseph;
- Howard, Kirsten;
- Howell, Martin;
- Jaure, Allison;
- Hayes, Alison;
- Raghunandan, Rakhee;
- Petrou, Stavros;
- Lah, Suncica;
- McTaggart, Steven
Publication type:
Article
School attendance and sport participation amongst children with chronic kidney disease: a cross-sectional analysis from the Kids with CKD (KCAD) study.
Published in:
Pediatric Nephrology, 2024, v. 39, n. 4, p. 1229, doi. 10.1007/s00467-023-06198-0
By:
- Hudson, Adam C.;
- van Zwieten, Anita;
- Mallitt, Kylie-Ann;
- Durkan, Anne;
- Hahn, Deirdre;
- Guha, Chandana;
- Khalid, Rabia;
- Didsbury, Madeleine;
- Francis, Anna;
- McTaggart, Steven;
- Mackie, Fiona E.;
- Prestidge, Chanel;
- Teixeira-Pinto, Armando;
- Lah, Suncica;
- Howell, Martin;
- Howard, Kirsten;
- Nassar, Natasha;
- Jaure, Allison;
- Craig, Jonathan C.;
- Wong, Germaine
Publication type:
Article
Baseline characteristics of participants in the NAVKIDS<sup>2</sup> trial: a patient navigator program in children with chronic kidney disease.
Published in:
Pediatric Nephrology, 2023, v. 38, n. 5, p. 1577, doi. 10.1007/s00467-022-05772-2
By:
- Guha, Chandana;
- Khalid, Rabia;
- van Zwieten, Anita;
- Francis, Anna;
- Hawley, Carmel M.;
- Jauré, Allison;
- Teixeira-Pinto, Armando;
- Mallard, Alistair R.;
- Bernier-Jean, Amelie;
- Johnson, David W.;
- Hahn, Deirdre;
- Reidlinger, Donna;
- Pascoe, Elaine M.;
- Ryan, Elizabeth G.;
- Mackie, Fiona;
- McCarthy, Hugh J.;
- Craig, Jonathan C.;
- Varghese, Julie;
- Kiriwandeniya, Charani;
- Howard, Kirsten
Publication type:
Article
Harnessing hope: Key to engaging patients and families in research.
Published in:
2020
By:
- Guha, Chandana
Publication type:
journal article
A practical guide to interpreting and applying systematic reviews of qualitative studies in rheumatology.
Published in:
International Journal of Rheumatic Diseases, 2021, v. 24, n. 1, p. 28, doi. 10.1111/1756-185X.14014
By:
- Sumpton, Daniel;
- Kelly, Ayano;
- Tunnicliffe, David;
- Craig, Jonathan C.;
- Guha, Chandana;
- Hassett, Geraldine;
- Tong, Allison
Publication type:
Article
Kidney transplant recipient perspectives on telehealth during the COVID‐19 pandemic.
Published in:
Transplant International, 2021, v. 34, n. 8, p. 1517, doi. 10.1111/tri.13934
By:
- Huuskes, Brooke M;
- Scholes‐Robertson, Nicole;
- Guha, Chandana;
- Baumgart, Amanda;
- Wong, Germaine;
- Kanellis, John;
- Chadban, Steve;
- Barraclough, Katherine A.;
- Viecelli, Andrea K;
- Hawley, Carmel M.;
- Kerr, Peter G.;
- Toby Coates, Patrick;
- Amir, Noa;
- Tong, Allison
Publication type:
Article
Suspension and resumption of kidney transplant programmes during the COVID‐19 pandemic: perspectives from patients, caregivers and potential living donors – a qualitative study.
Published in:
Transplant International, 2020, v. 33, n. 11, p. 1481, doi. 10.1111/tri.13697
By:
- Guha, Chandana;
- Tong, Allison;
- Baumgart, Amanda;
- Scholes‐Robertson, Nicole;
- Isbel, Nicole;
- Kanellis, John;
- Campbell, Scott;
- Coates, Toby;
- Chadban, Steven
Publication type:
Article
Caring for the peritoneal dialysis catheter: Reflections on catheter and exit site care in peritoneal dialysis.
Published in:
2023
By:
- Rossiter, Brad;
- Guha, Chandana;
- Manera, Karine
Publication type:
Editorial
Partnering with patients and caregivers to enrich research and care in kidney disease: values and strategies.
Published in:
Clinical Kidney Journal, 2023, v. 16, p. i57, doi. 10.1093/ckj/sfad063
By:
- Cazzolli, Rosanna;
- Sluiter, Amanda;
- Guha, Chandana;
- Huuskes, Brooke;
- Wong, Germaine;
- Craig, Jonathan C;
- Jaure, Allison;
- Scholes-Robertson, Nicole
Publication type:
Article
Qualitative research methods and its application in nephrology.
Published in:
Nephrology, 2021, v. 26, n. 10, p. 755, doi. 10.1111/nep.13888
By:
- Guha, Chandana;
- Viecelli, Andrea K.;
- Wong, Germaine;
- Manera, Karine;
- Tong, Allison
Publication type:
Article
Standardised Outcomes in Nephrology - Chronic Kidney Disease (SONG-CKD): a protocol for establishing a core outcome set for adults with chronic kidney disease who do not require kidney replacement therapy.
Published in:
2021
By:
- Evangelidis, Nicole;
- Sautenet, Benedicte;
- Madero, Magdalena;
- Tong, Allison;
- Ashuntantang, Gloria;
- Sanabria, Laura Cortes;
- de Boer, Ian H.;
- Fung, Samuel;
- Gallego, Daniel;
- Levey, Andrew S.;
- Levin, Adeera;
- Lorca, Eduardo;
- Okpechi, Ikechi G.;
- Rossignol, Patrick;
- Sola, Laura;
- Usherwood, Tim;
- Wheeler, David C.;
- Cho, Yeoungjee;
- Howell, Martin;
- Guha, Chandana
Publication type:
journal article
Experiences and Perspectives of Transgender Youths in Accessing Health Care: A Systematic Review.
Published in:
JAMA Pediatrics, 2021, v. 175, n. 11, p. 1159, doi. 10.1001/jamapediatrics.2021.2061
By:
- Chong, Lauren S. H.;
- Kerklaan, Jasmijn;
- Clarke, Simon;
- Kohn, Michael;
- Baumgart, Amanda;
- Guha, Chandana;
- Tunnicliffe, David J.;
- Hanson, Camilla S.;
- Craig, Jonathan C.;
- Tong, Allison
Publication type:
Article
NAV-KIDS<sup>2</sup> trial: protocol for a multi-centre, staggered randomised controlled trial of a patient navigator intervention in children with chronic kidney disease.
Published in:
2019
By:
- van Zwieten, Anita;
- Caldwell, Patrina;
- Howard, Kirsten;
- Tong, Allison;
- Craig, Jonathan C.;
- Alexander, Stephen;
- Howell, Martin;
- Armando, Teixeira-Pinto;
- Hawley, Carmel;
- Jesudason, Shilpa;
- Walker, Amanda;
- Mackie, Fiona;
- Kennedy, Sean;
- McTaggart, Steve;
- McCarthy, Hugh;
- Carter, Simon;
- Kim, Siah;
- Crafter, Sam;
- Woodleigh, Reginald;
- Guha, Chandana
Publication type:
journal article
Patient and caregiver perspectives on sleep in dialysis.
Published in:
Journal of Sleep Research, 2021, v. 30, n. 4, p. 1, doi. 10.1111/jsr.13221
By:
- De Silva, Iresha;
- Evangelidis, Nicole;
- Hanson, Camilla S.;
- Manera, Karine;
- Guha, Chandana;
- Scholes‐Robertson, Nicole;
- Craig, Jonathan C.;
- Johnson, David;
- Cho, Yeoungiee;
- Viecelli, Andrea K.;
- Tong, Allison
Publication type:
Article
Perspectives on ability to work from patients' receiving dialysis and caregivers: analysis of data from the global SONG initiative.
Published in:
Journal of Nephrology (JNonline), 2022, v. 35, n. 1, p. 255, doi. 10.1007/s40620-021-01105-y
By:
- Rajkumar, Ramya;
- Baumgart, Amanda;
- Martin, Adam;
- Tong, Allison;
- Evangelidis, Nicole;
- Manera, Karine E.;
- Cho, Yeoungjee;
- Johnson, David W.;
- Viecelli, Andrea;
- Shen, Jenny;
- Guha, Chandana;
- Scholes-Robertson, Nicole;
- Howell, Martin;
- Craig, Jonathan C.
Publication type:
Article

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