Found: 104
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The Impact of Specialist Care on Teenage and Young Adult Patient-Reported Outcomes in England: A BRIGHTLIGHT Study.
- Published in:
- Journal of Adolescent & Young Adult Oncology, 2024, v. 13, n. 3, p. 492, doi. 10.1089/jayao.2023.0141
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- Publication type:
- Article
A systematic review of early phase studies for children and young people with relapsed and refractory rhabdomyosarcoma: The REFoRMS‐SR project.
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- International Journal of Cancer, 2024, v. 154, n. 7, p. 1235, doi. 10.1002/ijc.34808
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- Publication type:
- Article
Being a child with intellectual disabilities in hospital: The need for an individualised approach to care.
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- Journal of Applied Research in Intellectual Disabilities, 2024, v. 37, n. 1, p. 1, doi. 10.1111/jar.13153
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- Publication type:
- Article
The ethical and legal considerations of young people and their parents using a hospital patient portal: Hospital Ethics Committee members perspectives.
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- Clinical Ethics, 2023, v. 18, n. 4, p. 442, doi. 10.1177/14777509221094475
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- Publication type:
- Article
What matters to you? Engaging with children in the James Lind Alliance Children's Cancer Priority Setting Partnership.
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- Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00518-2
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- Publication type:
- Article
10 Delivering Acceptance and Commitment Therapy remotely for children and young people with neurological conditions: experiences of Clinical Psychologists.
- Published in:
- 2023
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- Publication type:
- Abstract
Shared decision-making experiences in child long-term ventilation: a systematic review.
- Published in:
- European Respiratory Review, 2023, v. 32, n. 169, p. 1, doi. 10.1183/16000617.0098-2023
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- Publication type:
- Article
The Development of Ambulatory Cancer Care in the UK: A Scoping Review of the Literature.
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- European Journal of Cancer Care, 2023, p. 1, doi. 10.1155/2023/4589362
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- Publication type:
- Article
Effective transition of young people with long-term conditions into adult services.
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- Nursing Children & Young People, 2023, v. 35, n. 1, p. 34, doi. 10.7748/ncyp.2022.e1439
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- Publication type:
- Article
Parent values and preferences underpinning treatment decision-making in poor-prognosis childhood cancer: a scoping review.
- Published in:
- 2022
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- Publication type:
- journal article
Nutritional assessment and dietetic resource for children and young people with cancer in the United Kingdom.
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- Pediatric Blood & Cancer, 2022, v. 69, n. 9, p. 1, doi. 10.1002/pbc.29743
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- Publication type:
- Article
Equal access to hospital care for children with learning disabilities and their families: a mixed-methods study.
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- Health & Social Care Delivery Research (HSDR), 2022, v. 10, n. 13/14, p. v, doi. 10.3310/NWKT5206
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- Publication type:
- Article
Associations between diagnostic time intervals and health-related quality of life, clinical anxiety and depression in adolescents and young adults with cancer: cross-sectional analysis of the BRIGHTLIGHT cohort.
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- British Journal of Cancer, 2022, v. 126, n. 12, p. 1725, doi. 10.1038/s41416-022-01698-6
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- Publication type:
- Article
Associations between diagnostic time intervals and health-related quality of life, clinical anxiety and depression in adolescents and young adults with cancer: cross-sectional analysis of the BRIGHTLIGHT cohort.
- Published in:
- 2022
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- Publication type:
- journal article
Developing, Nurturing, and Sustaining an Adolescent and Young Adult-Centered Culture of Care.
- Published in:
- Qualitative Health Research, 2022, v. 32, n. 6, p. 956, doi. 10.1177/10497323221084910
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- Publication type:
- Article
Systematic review of gastrostomy complications and outcomes in pediatric cancer and bone marrow transplant.
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- Nutrition in Clinical Practice, 2021, v. 36, n. 6, p. 1185, doi. 10.1002/ncp.10724
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- Publication type:
- Article
Specialist cancer services for teenagers and young adults in England: BRIGHTLIGHT research programme.
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- Programme Grants for Applied Research (PGfAR), 2021, v. 9, n. 12, p. vii, doi. 10.3310/pgfar09120
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- Publication type:
- Article
Reporting the whole story: Analysis of the 'out‐of‐scope' questions from the James Lind Alliance Teenage and Young Adult Cancer Priority Setting Partnership Survey.
- Published in:
- Health Expectations, 2021, v. 24, n. 5, p. 1593, doi. 10.1111/hex.13276
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- Publication type:
- Article
"Holistic Competence": How Is it Developed, Shared, and Shaped by Health Care Professionals Caring for Adolescents and Young Adults with Cancer?
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- Journal of Adolescent & Young Adult Oncology, 2021, v. 10, n. 5, p. 503, doi. 10.1089/jayao.2020.0120
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- Publication type:
- Article
'We don't know what tomorrow will bring': Parents' experiences of caring for a child with an undiagnosed genetic condition.
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- Child: Care, Health & Development, 2021, v. 47, n. 5, p. 588, doi. 10.1111/cch.12866
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- Publication type:
- Article
Mapping the current psychology provision for children and young people with juvenile dermatomyositis.
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- Rheumatology Advances in Practice, 2021, v. 5, n. 3, p. 1, doi. 10.1093/rap/rkab062
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- Publication type:
- Article
Access to and experience of education for children and adolescents with cancer: a scoping review protocol.
- Published in:
- Systematic Reviews, 2021, v. 10, n. 1, p. 1, doi. 10.1186/s13643-021-01723-4
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- Publication type:
- Article
Frontline Allied Health Professionals in a Tertiary Children's Hospital: Moving Forward Research Capacity, Culture and Engagement.
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- International Journal of Practice-based Learning in Health & Social Care, 2021, v. 9, n. 1, p. 29, doi. 10.18552/ijpblhsc.v9i1.692
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- Publication type:
- Article
Supporting families of children with an undiagnosed genetic condition: Using co‐design to ensure the right person is in the right post doing the right job.
- Published in:
- Child: Care, Health & Development, 2021, v. 47, n. 3, p. 300, doi. 10.1111/cch.12838
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- Publication type:
- Article
Association of Self-reported Presenting Symptoms With Timeliness of Help-Seeking Among Adolescents and Young Adults With Cancer in the BRIGHTLIGHT Study.
- Published in:
- JAMA Network Open, 2020, v. 3, n. 9, p. e2015437, doi. 10.1001/jamanetworkopen.2020.15437
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- Publication type:
- Article
Hospitalized children with intellectual disability: Parents as partners in their care.
- Published in:
- Journal of Applied Research in Intellectual Disabilities, 2020, v. 33, n. 5, p. 917, doi. 10.1111/jar.12713
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- Publication type:
- Article
BRIGHTLIGHT researchers as 'dramaturgs': creating There is a Light from complex research data.
- Published in:
- 2020
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- Publication type:
- Letter
Reducing unintentional injuries in under fives: Development and testing of a mobile phone app.
- Published in:
- Child: Care, Health & Development, 2020, v. 46, n. 2, p. 203, doi. 10.1111/cch.12729
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- Publication type:
- Article
Psychometric evaluation of the traditional Chinese version of the resilience Scale-14 and assessment of resilience in Hong Kong adolescents.
- Published in:
- 2020
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- Publication type:
- journal article
To flag or not to flag: Identification of children and young people with learning disabilities in English hospitals.
- Published in:
- Journal of Applied Research in Intellectual Disabilities, 2019, v. 32, n. 5, p. 1176, doi. 10.1111/jar.12608
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- Publication type:
- Article
Being on the juvenile dermatomyositis rollercoaster: a qualitative study.
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- Pediatric Rheumatology, 2019, v. 17, n. 1, p. N.PAG, doi. 10.1186/s12969-019-0332-7
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- Publication type:
- Article
Learning disability nurse provision in children's hospitals: hospital staff perceptions of whether it makes a difference.
- Published in:
- 2019
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- Publication type:
- journal article
Reducing pain in children with cancer: Methodology for the development of a clinical practice guideline.
- Published in:
- 2019
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- Publication type:
- journal article
The culture of young people's cancer care: A narrative review and synthesis of the UK literature.
- Published in:
- European Journal of Cancer Care, 2019, v. 28, n. 3, p. N.PAG, doi. 10.1111/ecc.13099
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- Publication type:
- Article
Studying Children's Experiences in Interactions With Clinicians: Identifying Methods Fit for Purpose.
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- Qualitative Health Research, 2019, v. 29, n. 3, p. 393, doi. 10.1177/1049732318801358
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- Publication type:
- Article
Health professional perceptions of communicating with adolescents and young adults about bone cancer clinical trial participation.
- Published in:
- 2019
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- Publication type:
- journal article
Measurement properties of instruments to assess pain in children and adolescents with cancer: a systematic review protocol.
- Published in:
- Systematic Reviews, 2019, v. 8, n. 1, p. N.PAG, doi. 10.1186/s13643-019-0945-4
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- Publication type:
- Article
Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: insights from 10 years of user involvement.
- Published in:
- Research Involvement & Engagement, 2018, v. 4, n. 1, p. N.PAG, doi. 10.1186/s40900-018-0135-x
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- Publication type:
- Article
Transitioning adolescent and young adult cancer care research out of its adolescence.
- Published in:
- 2018
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- Publication type:
- Editorial
R11 Understanding juvenile dermatomyositis from a young person's perspective.
- Published in:
- 2018
- By:
- Publication type:
- Abstract
Conceptualizing age-appropriate care for teenagers and young adults with cancer: a qualitative mixed-methods study.
- Published in:
- Adolescent Health, Medicine & Therapeutics, 2018, v. 9, p. 149, doi. 10.2147/AHMT.S182176
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- Publication type:
- Article
Parents' Experiences of Caring for Their Child at the Time of Discharge After Cardiac Surgery and During the Postdischarge Period: Qualitative Study Using an Online Forum.
- Published in:
- 2018
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- Publication type:
- journal article
Mapping staff perspectives towards the delivery of hospital care for children and young people with and without learning disabilities in England: a mixed methods national study.
- Published in:
- 2018
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- Publication type:
- journal article
Review: Using poetry to explore normalcy as a coping mechanism for young people with cystic fibrosis.
- Published in:
- Journal of Research in Nursing, 2017, v. 22, n. 6/7, p. 492, doi. 10.1177/1744987117735393
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- Publication type:
- Article
Cancer-Related Fatigue in Adolescents and Young Adults After Cancer Treatment: Persistent and Poorly Managed.
- Published in:
- Journal of Adolescent & Young Adult Oncology, 2017, v. 6, n. 3, p. 489, doi. 10.1089/jayao.2017.0037
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- Publication type:
- Article
Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis.
- Published in:
- Journal of Adolescent & Young Adult Oncology, 2017, v. 6, n. 2, p. 200, doi. 10.1089/jayao.2016.0055
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- Publication type:
- Article
Multi-Professional Perspectives on Adolescent and Young Adult Oncology Across Europe: An e-Delphi Survey.
- Published in:
- Journal of Adolescent & Young Adult Oncology, 2017, v. 6, n. 1, p. 178, doi. 10.1089/jayao.2016.0051
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- Publication type:
- Article
Psychosocial Interventions for Adolescents and Young Adults Diagnosed with Cancer During Adolescence: A Critical Review.
- Published in:
- Journal of Adolescent & Young Adult Oncology, 2016, v. 5, n. 4, p. 310, doi. 10.1089/jayao.2016.0025
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- Publication type:
- Article
Building the Evidence for Nursing Practice: Learning from a Structured Review of SIOP Abstracts, 2003-2012.
- Published in:
- 2015
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- Publication type:
- journal article
Self-management and skills acquisition in boys with haemophilia.
- Published in:
- Health Expectations, 2015, v. 18, n. 5, p. 1105, doi. 10.1111/hex.12083
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- Publication type:
- Article