Found: 24
Select item for more details and to access through your institution.
Exploring perceptions of and decision‐making about CFTR modulators.
- Published in:
- Pediatric Pulmonology, 2024, v. 59, n. 6, p. 1614, doi. 10.1002/ppul.26953
- By:
- Publication type:
- Article
Elevated creatine phosphokinase and rhabdomyolysis associated with elexacaftor/tezacaftor/ivacaftor use in cystic fibrosis.
- Published in:
- Pediatric Pulmonology, 2024, v. 59, n. 6, p. 1795, doi. 10.1002/ppul.26980
- By:
- Publication type:
- Article
Barriers of Acceptance to Hospice Care: a Randomized Vignette-Based Experiment.
- Published in:
- JGIM: Journal of General Internal Medicine, 2023, v. 38, n. 2, p. 277, doi. 10.1007/s11606-022-07468-7
- By:
- Publication type:
- Article
Assessing Practices, Beliefs, and Attitudes about Palliative Care among People with Cystic Fibrosis, Their Caregivers, and Clinicians: Results of a Content Analysis.
- Published in:
- Journal of Palliative Medicine, 2021, v. 24, n. 11, p. 1650, doi. 10.1089/jpm.2020.0725
- By:
- Publication type:
- Article
Development of an Advance Care Planning Protocol in a Cystic Fibrosis Outpatient Clinic.
- Published in:
- Journal of Palliative Medicine, 2021, v. 24, n. 9, p. 1383, doi. 10.1089/jpm.2021.0186
- By:
- Publication type:
- Article
Semiparametric estimation of the proportional rates model for recurrent events data with missing event category.
- Published in:
- Statistical Methods in Medical Research, 2021, v. 30, n. 7, p. 1624, doi. 10.1177/09622802211023975
- By:
- Publication type:
- Article
Enhancing care for individuals with advanced cystic fibrosis lung disease.
- Published in:
- Pediatric Pulmonology, 2021, v. 56, p. S69, doi. 10.1002/ppul.24937
- By:
- Publication type:
- Article
Models of Palliative Care Delivery for Individuals with Cystic Fibrosis: Cystic Fibrosis Foundation Evidence-Informed Consensus Guidelines.
- Published in:
- Journal of Palliative Medicine, 2021, v. 24, n. 1, p. 18, doi. 10.1089/jpm.2020.0311
- By:
- Publication type:
- Article
Highlights from the 2019 North American Cystic Fibrosis Conference.
- Published in:
- Pediatric Pulmonology, 2020, v. 55, n. 9, p. 2225, doi. 10.1002/ppul.24919
- By:
- Publication type:
- Article
Palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members.
- Published in:
- Pediatric Pulmonology, 2020, v. 55, n. 8, p. 2017, doi. 10.1002/ppul.24806
- By:
- Publication type:
- Article
Palliative Care Needs of Individuals with Cystic Fibrosis: Perspectives of Multiple Stakeholders.
- Published in:
- Journal of Palliative Medicine, 2020, v. 23, n. 7, p. 957, doi. 10.1089/jpm.2019.0464
- By:
- Publication type:
- Article
Symptom Burden and Unmet Existential Needs in Adults With Cystic Fibrosis.
- Published in:
- Western Journal of Nursing Research, 2019, v. 41, n. 10, p. 1448, doi. 10.1177/0193945919852585
- By:
- Publication type:
- Article
Pursuing parenthood with cystic fibrosis: Reproductive health and parenting concerns in individuals with cystic fibrosis.
- Published in:
- Pediatric Pulmonology, 2019, v. 54, n. 8, p. 1225, doi. 10.1002/ppul.24344
- By:
- Publication type:
- Article
Highlights from the 2018 North American cystic fibrosis conference.
- Published in:
- Pediatric Pulmonology, 2019, v. 54, n. 7, p. 941, doi. 10.1002/ppul.24356
- By:
- Publication type:
- Article
Exploring knowledge and perceptions of palliative care to inform integration of palliative care education into cystic fibrosis care.
- Published in:
- Pediatric Pulmonology, 2018, v. 53, n. 9, p. 1218, doi. 10.1002/ppul.24073
- By:
- Publication type:
- Article
Highlights from the 2017 North American Cystic Fibrosis Conference.
- Published in:
- Pediatric Pulmonology, 2018, v. 53, n. 7, p. 979, doi. 10.1002/ppul.24000
- By:
- Publication type:
- Article
Difficult conversations: Discussing prognosis with children with cystic fibrosis.
- Published in:
- Pediatric Pulmonology, 2018, v. 53, n. 5, p. 592, doi. 10.1002/ppul.23975
- By:
- Publication type:
- Article
Patient and Provider Perspectives on Communication About Body Image With Adolescents and Young Adults With Cystic Fibrosis.
- Published in:
- 2017
- By:
- Publication type:
- journal article
Highlights from the 2016 North American Cystic Fibrosis Conference.
- Published in:
- Pediatric Pulmonology, 2017, v. 52, n. 8, p. 1103, doi. 10.1002/ppul.23707
- By:
- Publication type:
- Article
Highlights from the 2015 North American Cystic Fibrosis Conference.
- Published in:
- Pediatric Pulmonology, 2016, v. 51, n. 6, p. 650, doi. 10.1002/ppul.23441
- By:
- Publication type:
- Article
Friendship Quality and Health-Related Outcomes Among Adolescents With Cystic Fibrosis.
- Published in:
- Journal of Pediatric Psychology, 2015, v. 40, n. 3, p. 349, doi. 10.1093/jpepsy/jsu063
- By:
- Publication type:
- Article
Barriers to Hospice for Children as Perceived by Hospice Organizations in North Carolina.
- Published in:
- 2012
- By:
- Publication type:
- Journal Article
Caregivers' perspectives on decision making about lung transplantation in cystic fibrosis.
- Published in:
- Progress in Transplantation, 2009, v. 19, n. 4, p. 318, doi. 10.1177/152692480901900406
- By:
- Publication type:
- Article
Safety and tolerability of inhaled hypertonic saline in young children with cystic fibrosis.
- Published in:
- Pediatric Pulmonology, 2008, v. 43, n. 11, p. 1100, doi. 10.1002/ppul.20909
- By:
- Publication type:
- Article