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Identifying Research Priorities among Patients and Families of Children with Rheumatic Diseases Living in the United States.
Published in:
2020
By:
- Correll, Colleen K.;
- Dave, Mitali;
- Paul, Anne F.;
- Del Gaizo, Vincent;
- Schrandt, Suzanne;
- Partovi, Roushanac S.;
- Morgan, Esi M.;
- Gaizo, Vincent Del
Publication type:
journal article
Enhancing Care Partnerships Using a Rheumatology Dashboard: Bringing Together What Matters Most to Both Patients and Clinicians.
Published in:
ACR Open Rheumatology, 2023, v. 5, n. 4, p. 190, doi. 10.1002/acr2.11533
By:
- Van Citters, Aricca D.;
- Taxter, Alysha J.;
- Mathew, Stephanie D.;
- Lawson, Erica;
- Eseddi, Joad;
- Del Gaizo, Vincent;
- Ahmad, Jabeen;
- Bajaj, Puneet;
- Courtnay, Stacy;
- Davila, Lesley;
- Donaldson, Brittany;
- Kimura, Yukiko;
- Lee, Tzielan;
- Mecchella, John N.;
- Nelson, Eugene C.;
- Pompa, Scott;
- Tabussi, Doreen;
- Johnson, Lisa C.
Publication type:
Article
Co-design of an Electronic Dashboard to Support the Coproduction of Care in Pediatric Rheumatic Disease: Human-Centered Design and Usability Testing.
Published in:
Journal of Participatory Medicine, 2022, v. 14, n. 1, p. 51, doi. 10.2196/34735
By:
- Taxter, Alysha;
- Johnson, Lisa;
- Tabussi, Doreen;
- Kimura, Yukiko;
- Donaldson, Brittany;
- Lawson, Erica;
- Gaizo, Vincent Del;
- Vitelli, Daniela;
- Pinter, Corinne;
- Citters, Aricca Van;
- Nelson, Eugene;
- Lee, Tzielan
Publication type:
Article
First-line options for systemic juvenile idiopathic arthritis treatment: an observational study of Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans.
Published in:
Pediatric Rheumatology, 2022, v. 20, n. 1, p. 1, doi. 10.1186/s12969-022-00768-6
By:
- Beukelman, Timothy;
- Tomlinson, George;
- Nigrovic, Peter A.;
- Dennos, Anne;
- Del Gaizo, Vincent;
- Jelinek, Marian;
- Riordan, Mary Ellen;
- Schanberg, Laura E.;
- Mohan, Shalini;
- Pfeifer, Erin;
- Kimura, Yukiko;
- for the CARRA FROST Investigators;
- Agbayani, R.;
- Akoghlanian, S.;
- Allenspach, E.;
- Anderson, E.;
- Ardoin, S.;
- Armendariz, S.;
- Balboni, I.;
- Ballenger, L.
Publication type:
Article
Translating research into practice—implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat.
Published in:
Pediatric Rheumatology, 2022, v. 20, n. 1, p. 1, doi. 10.1186/s12969-022-00665-y
By:
- Yildirim-Toruner, Cagri;
- Pooni, Rajdeep;
- Goh, Y. Ingrid;
- Becker-Haimes, Emily;
- Dearing, James W.;
- Fernandez, Maria E.;
- Morgan, Esi M.;
- Parry, Gareth;
- Burnham, Jon M.;
- Ardoin, Stacy P.;
- Barbar-Smiley, Fatima;
- Chang, Joyce C.;
- Chiraseveenuprapund, Peter;
- Del Gaizo, Vincent;
- Eakin, Guy;
- Johnson, Lisa C.;
- Kimura, Yukiko;
- Knight, Andrea M.;
- Kohlheim, Melanie;
- Lawson, Erica F.
Publication type:
Article
Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks.
Published in:
Patient Related Outcome Measures, 2023, v. 14, p. 171, doi. 10.2147/PROM.S392174
By:
- Beukelman, Timothy;
- Long, Millie D;
- Rhee, Rennie L;
- Kappelman, Michael D;
- Merkel, Peter A;
- Nowell, William Benjamin;
- Clinton, Cassie;
- Ringold, Sarah;
- Del Gaizo, Vincent;
- Price, Brian;
- Shaw, Dianne G;
- Venkatachalam, Shilpa;
- Cuthbertson, David;
- Xie, Fenglong;
- Zhang, Xian;
- Curtis, Jeffrey R
Publication type:
Article
Toward Accelerated Authorization and Access to New Medicines for Juvenile Idiopathic Arthritis.
Published in:
Arthritis & Rheumatology, 2019, v. 71, n. 12, p. 1976, doi. 10.1002/art.41043
By:
- Schanberg, Laura E.;
- Ramanan, Athimalaipet V.;
- De Benedetti, Fabrizio;
- Beukelman, Timothy;
- Eakin, Guy S.;
- Del Gaizo, Vincent;
- Ringold, Sarah;
- Vesely, Richard;
- Schrandt, Suzanne;
- Jaki, Thomas;
- Bili, Androniki;
- Chung, James B.;
- De Bono, Stephanie;
- Douglass, Wendy;
- Enejosa, Jeffrey V.;
- Kanik, Keith S.;
- Knobe, Karin;
- Kunder, Rebecca;
- Leite‐Schnell, Juliana C.;
- Suehiro, Ricardo Maisse
Publication type:
Article
The importance of rigorous methods in observational comparative effectiveness studies of rare diseases: comment on the article by Ruperto et al.
Published in:
2022
By:
- Kimura, Yukiko;
- Ong, Mei‐Sing;
- Tomlinson, George;
- Ringold, Sarah;
- Schanberg, Laura E.;
- Feldman, Brian M.;
- Dennos, Anne;
- Del Gaizo, Vincent;
- Murphy, Katherine L.;
- Natter, Marc
Publication type:
Letter to the Editor
Optimizing the Start Time of Biologics in Polyarticular Juvenile Idiopathic Arthritis: A Comparative Effectiveness Study of Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans.
Published in:
Arthritis & Rheumatology, 2021, v. 73, n. 10, p. 1898, doi. 10.1002/art.41888
By:
- Kimura, Yukiko;
- Schanberg, Laura E.;
- Tomlinson, George A.;
- Riordan, Mary Ellen;
- Dennos, Anne C.;
- Del Gaizo, Vincent;
- Murphy, Katherine L.;
- Weiss, Pamela F.;
- Natter, Marc D.;
- Feldman, Brian M.;
- Ringold, Sarah;
- Agbayani, Rosabel;
- Akoghlanian, Shoghik;
- Anderson, Edwin;
- Andrew, Margaret;
- Baszis, Kevin;
- Becker, Mara;
- Bell‐Brunson, Heather;
- Benham, Heather;
- Benseler, Susanne
Publication type:
Article

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