Found: 30
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Developing the WE BEAT Well-Being Education Programme to foster resilience and build connection in paediatric heart disease.
- Published in:
- Cardiology in the Young, 2024, v. 34, n. 8, p. 1701, doi. 10.1017/S1047951124000556
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- Publication type:
- Article
Return to School for Pediatric Solid Organ Transplant Recipients in the United States During the Coronavirus Disease 2019 Pandemic: Expert Opinion on Key Considerations and Best Practices.
- Published in:
- Journal of the Pediatric Infectious Diseases Society, 2020, v. 9, n. 5, p. 551, doi. 10.1093/jpids/piaa095
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- Article
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents.
- Published in:
- American Journal of Hospice & Palliative Medicine, 2020, v. 37, n. 12, p. 1009, doi. 10.1177/1049909120922973
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- Publication type:
- Article
Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study.
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- Palliative Medicine, 2020, v. 34, n. 3, p. 272, doi. 10.1177/0269216319874689
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- Publication type:
- Article
Paediatric cardiology training: burnout, fulfilment, and fears.
- Published in:
- Cardiology in the Young, 2023, v. 33, n. 11, p. 2274, doi. 10.1017/S1047951123000148
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- Publication type:
- Article
Patient and parent-reported outcomes in paediatric ventricular assist device support: a multi-center ACTION learning network feasibility and pilot experience.
- Published in:
- Cardiology in the Young, 2023, v. 33, n. 11, p. 2258, doi. 10.1017/S1047951122004048
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- Publication type:
- Article
State of the science and future research directions in palliative and end-of-life care in paediatric cardiology: a report from the Harvard Radcliffe Accelerator Workshop.
- Published in:
- 2022
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- Publication type:
- journal article
Psychological functioning in paediatric patients with single ventricle heart disease: a systematic review.
- Published in:
- Cardiology in the Young, 2022, v. 32, n. 2, p. 173, doi. 10.1017/S1047951122000063
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- Publication type:
- Article
Impact of the COVID-19 pandemic on CHD care and emotional wellbeing.
- Published in:
- 2021
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- Publication type:
- journal article
A systematic review of parent and family functioning in pediatric solid organ transplant populations.
- Published in:
- Pediatric Transplantation, 2017, v. 21, n. 3, p. n/a, doi. 10.1111/petr.12900
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- Publication type:
- Article
Medical and End-of-Life Decision-Making Preferences in Adolescents and Young Adults with Advanced Heart Disease and Their Parents.
- Published in:
- JAMA Network Open, 2023, v. 6, n. 5, p. e2311957, doi. 10.1001/jamanetworkopen.2023.11957
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- Publication type:
- Article
Primary Disease, Sex, and Racial Differences in Health-Related Quality of Life in Adolescents and Young Adults with Heart Failure.
- Published in:
- Pediatric Cardiology, 2022, v. 43, n. 7, p. 1568, doi. 10.1007/s00246-022-02884-2
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- Publication type:
- Article
Return to School and COVID-19 Vaccination for Pediatric Solid Organ Transplant Recipients in the United States: Expert Opinion for 2021-2022.
- Published in:
- Journal of the Pediatric Infectious Diseases Society, 2022, v. 11, n. 2, p. 43, doi. 10.1093/jpids/piab098
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- Publication type:
- Article
Resilient Hearts: Measuring Resiliency in Young People With Congenital Heart Disease.
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- Journal of the American Heart Association, 2023, v. 12, n. 21, p. 1, doi. 10.1161/JAHA.123.029847
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- Publication type:
- Article
Competencies for Psychology Practice in Pediatric Palliative Care.
- Published in:
- Journal of Pediatric Psychology, 2023, v. 48, n. 7, p. 614, doi. 10.1093/jpepsy/jsad007
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- Publication type:
- Article
Commentary: Posttraumatic Growth Following Pediatric Solid Organ Transplantation: Making Meaning Out of the Gift of Life.
- Published in:
- 2022
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- Publication type:
- journal article
Parenting Stress Among Caregivers of Children With Chronic Illness: A Systematic Review.
- Published in:
- Journal of Pediatric Psychology, 2013, v. 38, n. 8, p. 809, doi. 10.1093/jpepsy/jst049
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- Publication type:
- Article
Palliative care is not associated with decreased intensity of care: Results of a chart review from a large children's hospital.
- Published in:
- Pediatric Blood & Cancer, 2022, v. 69, n. 3, p. 1, doi. 10.1002/pbc.29391
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- Publication type:
- Article
Systematic Review of Father Involvement and Child Outcomes in Pediatric Chronic Illness Populations.
- Published in:
- Journal of Clinical Psychology in Medical Settings, 2020, v. 27, n. 1, p. 89, doi. 10.1007/s10880-019-09623-5
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- Publication type:
- Article
The Adolescent Transplant Recipient: An Overview of Neurocognitive Functioning and Implications for Long‐Term Outcomes.
- Published in:
- Pediatric Transplantation, 2024, v. 28, n. 6, p. 1, doi. 10.1111/petr.14837
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- Publication type:
- Article
Self‐reported quality of life in children with ventricular assist devices.
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- Pediatric Transplantation, 2022, v. 26, n. 4, p. 1, doi. 10.1111/petr.14237
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- Publication type:
- Article
Circumstances surrounding end‐of‐life in pediatric patients pre‐ and post‐heart transplant: a report from the Pediatric Heart Transplant Society.
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- Pediatric Transplantation, 2022, v. 26, n. 2, p. 1, doi. 10.1111/petr.14196
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- Publication type:
- Article
Learning networks in pediatric heart failure and transplantation.
- Published in:
- Pediatric Transplantation, 2021, v. 25, n. 5, p. 1, doi. 10.1111/petr.14073
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- Publication type:
- Article
Burnout, professional fulfillment, and post‐traumatic stress among pediatric solid organ transplant teams.
- Published in:
- Pediatric Transplantation, 2021, v. 25, n. 4, p. 1, doi. 10.1111/petr.14020
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- Publication type:
- Article
Psychosocial outcomes in pediatric patients with ventricular assist devices and their families: A systematic review.
- Published in:
- Pediatric Transplantation, 2021, v. 25, n. 4, p. 1, doi. 10.1111/petr.14001
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- Publication type:
- Article
Generalized and specific anxiety in adolescents following heart transplant.
- Published in:
- Pediatric Transplantation, 2020, v. 24, n. 1, p. N.PAG, doi. 10.1111/petr.13647
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- Publication type:
- Article
Educational needs in families of pediatric liver and kidney transplant recipients: A quality improvement project.
- Published in:
- Pediatric Transplantation, 2019, v. 23, n. 4, p. N.PAG, doi. 10.1111/petr.13412
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- Publication type:
- Article
Communication about prognosis and end‐of‐life in pediatric organ failure and transplantation.
- Published in:
- Pediatric Transplantation, 2019, v. 23, n. 3, p. N.PAG, doi. 10.1111/petr.13373
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- Publication type:
- Article
Psychosocial functioning in pediatric heart transplant recipients and their families.
- Published in:
- Pediatric Transplantation, 2018, v. 22, n. 2, p. 1, doi. 10.1111/petr.13110
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- Publication type:
- Article
Experiences at the End of Life From the Perspective of Bereaved Parents: Results of a Qualitative Focus Group Study.
- Published in:
- American Journal of Hospice & Palliative Medicine, 2020, v. 37, n. 6, p. 424, doi. 10.1177/1049909119895496
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- Publication type:
- Article