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CAUGHT IN THE MIDDLE: PROVIDING OBSTETRIC CARE WHEN PREGNANT WOMEN HAVE COMPLICATIONS.
- Published in:
- Utah Law Review, 2024, v. 2024, n. 4, p. 823
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- Publication type:
- Article
Protecting Privacy of Pregnant and LGBTQ+ Research Participants.
- Published in:
- JAMA: Journal of the American Medical Association, 2024, v. 331, n. 18, p. 1527, doi. 10.1001/jama.2024.4837
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- Publication type:
- Article
Mapping parents' journey following prenatal diagnosis of CHD: a qualitative study.
- Published in:
- Cardiology in the Young, 2023, v. 33, n. 8, p. 1387, doi. 10.1017/S1047951122002505
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- Publication type:
- Article
Intellectual conflicts of interest among cardiology and pulmonology clinical practice guidelines.
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- PLoS ONE, 2023, v. 18, n. 7, p. 1, doi. 10.1371/journal.pone.0288349
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- Publication type:
- Article
Managing re-identification risks while providing access to the All of Us research program.
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- Journal of the American Medical Informatics Association, 2023, v. 30, n. 5, p. 907, doi. 10.1093/jamia/ocad021
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- Publication type:
- Article
A game theoretic approach to balance privacy risks and familial benefits.
- Published in:
- Scientific Reports, 2023, v. 13, n. 1, p. 1, doi. 10.1038/s41598-023-33177-0
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- Publication type:
- Article
Dobbs and the future of health data privacy for patients and healthcare organizations.
- Published in:
- Journal of the American Medical Informatics Association, 2023, v. 30, n. 1, p. 155, doi. 10.1093/jamia/ocac155
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- Publication type:
- Article
LGBTQ+ Perspectives on Conducting Genomic Research on Sexual Orientation and Gender Identity.
- Published in:
- Behavior Genetics, 2022, v. 52, n. 4/5, p. 246, doi. 10.1007/s10519-022-10105-y
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- Publication type:
- Article
Implicit Incentives Among Reddit Users to Prioritize Attention Over Privacy and Reveal Their Faces When Discussing Direct-to-Consumer Genetic Test Results: Topic and Attention Analysis.
- Published in:
- JMIR Infodemiology, 2022, v. 2, n. 2, p. 97, doi. 10.2196/35702
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- Publication type:
- Article
Do research participants share genomic screening results with family members?
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- Journal of Genetic Counseling, 2022, v. 31, n. 2, p. 447, doi. 10.1002/jgc4.1511
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- Publication type:
- Article
The Public Perception of the #GeneEditedBabies Event Across Multiple Social Media Platforms: Observational Study.
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- Journal of Medical Internet Research, 2022, v. 24, n. 3, p. 605, doi. 10.2196/31687
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- Publication type:
- Article
Patients with Ehlers–Danlos syndrome on the diagnostic odyssey: Rethinking complexity and difficulty as a hero's journey.
- Published in:
- American Journal of Medical Genetics. Part C: Seminars in Medical Genetics, 2021, v. 187, n. 4, p. 416, doi. 10.1002/ajmg.c.31935
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- Publication type:
- Article
Direct-to-consumer genetic testing: Prospective users' attitudes toward information about ancestry and biological relationships.
- Published in:
- PLoS ONE, 2021, v. 16, n. 11, p. 1, doi. 10.1371/journal.pone.0260340
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- Publication type:
- Article
Protecting research data of publicly revealing participants.
- Published in:
- Journal of Law & the Biosciences, 2021, v. 8, n. 2, p. 1, doi. 10.1093/jlb/lsab028
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- Publication type:
- Article
Analysis of conflict of interest policies among organizations producing clinical practice guidelines.
- Published in:
- PLoS ONE, 2021, v. 16, n. 4, p. 1, doi. 10.1371/journal.pone.0249267
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- Publication type:
- Article
Enabling realistic health data re-identification risk assessment through adversarial modeling.
- Published in:
- 2021
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- Publication type:
- journal article
Combatting human trafficking in the United States: how can medical informatics help?
- Published in:
- 2021
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- Publication type:
- journal article
Returning Results in the Genomic Era: Initial Experiences of the eMERGE Network.
- Published in:
- Journal of Personalized Medicine, 2020, v. 10, n. 2, p. 30, doi. 10.3390/jpm10020030
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- Publication type:
- Article
Uncertainty of Prenatally Diagnosed Congenital Heart Disease: A Qualitative Study.
- Published in:
- JAMA Network Open, 2020, v. 3, n. 5, p. e204082, doi. 10.1001/jamanetworkopen.2020.4082
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- Publication type:
- Article
Online Pediatric Research: Addressing Consent, Assent, and Parental Permission.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, p. 129, doi. 10.1177/1073110520917038
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- Publication type:
- Article
Letter From The Editor.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 1, doi. 10.1177/1073110520917521
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- Publication type:
- Article
Introduction: The Crucial Role of Law in Supporting Successful Translation of Genomics into Clinical Care.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 7, doi. 10.1177/1073110520916993
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- Publication type:
- Article
From Genetics to Genomics: Facing the Liability Implications in Clinical Care.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 11, doi. 10.1177/1073110520916994
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- Publication type:
- Article
How Can Law and Policy Advance Quality in Genomic Analysis and Interpretation for Clinical Care?
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 44, doi. 10.1177/1073110520916995
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- Publication type:
- Article
Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 69, doi. 10.1177/1073110520916996
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- Publication type:
- Article
Key Expert Stakeholder Perceptions of the Law of Genomics: Identified Problems and Potential Solutions.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 87, doi. 10.1177/1073110520916997
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- Publication type:
- Article
The Streetlight Effect: Regulating Genomics Where the Light Is.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 105, doi. 10.1177/1073110520916998
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- Publication type:
- Article
The Implementation Chasm Hindering Genome-informed Health Care.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 119, doi. 10.1177/1073110520916999
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- Publication type:
- Article
Protecting Participants in Genomic Research: Understanding the "Web of Protections" Afforded by Federal and State Law.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 126, doi. 10.1177/1073110520917000
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- Publication type:
- Article
General-Purpose Privacy Regulation and Translational Genomics.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 142, doi. 10.1177/1073110520917002
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- Publication type:
- Article
The Future of DTC Genomics and the Law.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 151, doi. 10.1177/1073110520917003
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- Publication type:
- Article
A Right to Privacy and Confidentiality: Ethical Medical Care for Patients in United States Immigration Detention.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 161, doi. 10.1177/1073110520917004
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- Publication type:
- Article
Cop to Cop: Negotiating Privacy and Security in the Examining Room.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 169, doi. 10.1177/1073110520917006
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- Publication type:
- Article
From "Informed" to "Engaged" Consent: Risks and Obligations in Consent for Participation in a Health Data Repository.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 172, doi. 10.1177/1073110520917007
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- Publication type:
- Article
Dimensions of Research-Participant Interaction: Engagement is Not a Replacement for Consent.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 183, doi. 10.1177/1073110520917008
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- Publication type:
- Article
What Should We Be Asking of Informed Consent?
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- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 185, doi. 10.1177/1073110520917009
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- Publication type:
- Article
Whether to Waive Parental Permission in HIV Prevention Research Among Adolescents: Ethical and Legal Considerations.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 188, doi. 10.1177/1073110520917010
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- Publication type:
- Article
Navigating the Regulatory Framework for HIV Prevention Research in Adolescents.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 202, doi. 10.1177/1073110520917011
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- Publication type:
- Article
Australian Aboriginal and Torres Strait Islander Collections of Genetic Heritage: The Legal, Ethical and Practical Considerations of a Dynamic Consent Approach to Decision Making.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 205, doi. 10.1177/1073110520917012
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- Publication type:
- Article
Entwined Processes: Rescripting Consent and Strengthening Governance in Genomics Research with Indigenous Communities.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 218, doi. 10.1177/1073110520917020
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- Publication type:
- Article
Revisiting Legal Foundations of Crisis Standards of Care.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 221, doi. 10.1177/1073110520917022
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- Publication type:
- Article
Development of a National Public Pharmaceutical Research and Development Institute.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 225, doi. 10.1177/1073110520917023
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- Publication type:
- Article
Lost in Anonymization — A Data Anonymization Reference Classification Merging Legal and Technical Considerations.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, n. 1, p. 228, doi. 10.1177/1073110520917025
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- Publication type:
- Article
Letter to the Editor.
- Published in:
- 2020
- By:
- Publication type:
- Letter to the Editor
Be Ready to Talk With Parents About Direct-to-Consumer Genetic Testing.
- Published in:
- 2020
- By:
- Publication type:
- Opinion
ENCOMIUM FOR KAREN ROTHENBERG.
- Published in:
- Journal of Health Care Law & Policy, 2020, v. 22, p. 155
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- Publication type:
- Article
The law of genetic privacy: applications, implications, and limitations.
- Published in:
- Journal of Law & the Biosciences, 2019, v. 6, n. 1, p. 1, doi. 10.1093/jlb/lsz007
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- Publication type:
- Article
UNJUST TIMING LIMITATIONS IN GENETIC MALPRACTICE CASES.
- Published in:
- Albany Law Review, 2019, v. 83, n. 1, p. 61
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- Publication type:
- Article
Commercial Interests, the Technological Imperative, and Advocates: Three Forces Driving Genomic Sequencing in Newborns.
- Published in:
- Hastings Center Report, 2018, v. 48, p. S43, doi. 10.1002/hast.885
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- Publication type:
- Article
Insurance Coverage Policies for Pharmacogenomic and Multi-Gene Testing for Cancer.
- Published in:
- Journal of Personalized Medicine, 2018, v. 8, n. 2, p. 19, doi. 10.3390/jpm8020019
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- Publication type:
- Article