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Direct-to-Consumer Recruitment Methods via Traditional and Social Media to Aid in Research Accrual for Clinical Trials for Rare Diseases: Comparative Analysis Study.
Published in:
Journal of Medical Internet Research, 2023, v. 25, n. 1, p. 1, doi. 10.2196/39262
By:
- Applequist, Janelle;
- Burroughs, Cristina;
- Merkel, Peter A;
- Rothenberg, Marc;
- Trapnell, Bruce;
- Desnick, Robert;
- Sahin, Mustafa;
- Krischer, Jeffrey
Publication type:
Article
Patient involvement in medical research: what patients and physicians learn from each other.
Published in:
2019
By:
- Young, Kalen;
- Kaminstein, Dana;
- Olivos, Ana;
- Burroughs, Cristina;
- Castillo-Lee, Celeste;
- Kullman, Joyce;
- McAlear, Carol;
- Shaw, Dianne G.;
- Sreih, Antoine;
- Casey, George;
- Merkel, Peter A.;
- Vasculitis Patient-Powered Research Network
Publication type:
journal article
Self-Reported Data and Physician-Reported Data in Patients With Eosinophilic Granulomatosis With Polyangiitis: Comparative Analysis.
Published in:
Interactive Journal of Medical Research, 2022, v. 11, n. 1, p. 1, doi. 10.2196/27273
By:
- Doubelt, Irena;
- Springer, Jason M.;
- Kermani, Tanaz A.;
- Sreih, Antoine G.;
- Burroughs, Cristina;
- Cuthbertson, David;
- Carette, Simon;
- Khalidi, Nader A.;
- Koening, Curry L.;
- Langford, Carol;
- McAlear, Carol A.;
- Moreland, Larry W.;
- Monach, Paul A.;
- Shaw, Dianne G.;
- Seo, Philip;
- Specks, Ulrich;
- Warrington, Kenneth J.;
- Young, Kalen;
- Merkel, Peter A.;
- Pagnoux, Christian
Publication type:
Article
Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study.
Published in:
2020
By:
- Springer, Jason Michael;
- Kermani, Tanaz A;
- Sreih, Antoine;
- Shaw, Dianne G;
- Young, Kalen;
- Burroughs, Cristina M;
- Merkel, Peter A
Publication type:
journal article
Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study.
Published in:
2017
By:
- Krischer, Jeffrey;
- Cronholm, Peter F.;
- Burroughs, Cristina;
- McAlear, Carol A.;
- Borchin, Renee;
- Easley, Ebony;
- Davis, Trocon;
- Kullman, Joyce;
- Carette, Simon;
- Khalidi, Nader;
- Koening, Curry;
- Langford, Carol A.;
- Monach, Paul;
- Moreland, Larry;
- Pagnoux, Christian;
- Specks, Ulrich;
- Sreih, Antoine G.;
- Ytterberg, Steven;
- Merkel, Peter A.;
- Vasculitis Clinical Research Consortium
Publication type:
journal article
Diagnostic delays in vasculitis and factors associated with time to diagnosis.
Published in:
2021
By:
- Sreih, Antoine G.;
- Cronin, Keri;
- Shaw, Dianne G.;
- Young, Kalen;
- Burroughs, Cristina;
- Kullman, Joyce;
- Machireddy, Kirthi;
- McAlear, Carol A.;
- Merkel, Peter A.;
- Vasculitis Patient-Powered Research Network
Publication type:
journal article
A novel approach to conducting clinical trials in the community setting: utilizing patient-driven platforms and social media to drive web-based patient recruitment.
Published in:
2020
By:
- Applequist, Janelle;
- Burroughs, Cristina;
- Ramirez, Artemio;
- Merkel, Peter A.;
- Rothenberg, Marc E.;
- Trapnell, Bruce;
- Desnick, Robert J.;
- Sahin, Mustafa;
- Krischer, Jeffrey P.;
- Ramirez, Artemio Jr
Publication type:
journal article
Effects of the COVID‐19 Pandemic on Patients Living With Vasculitis.
Published in:
ACR Open Rheumatology, 2021, v. 3, n. 1, p. 17, doi. 10.1002/acr2.11204
By:
- Banerjee, Shubhasree;
- George, Michael;
- Young, Kalen;
- Venkatachalam, Shilpa;
- Gordon, Jennifer;
- Burroughs, Cristina;
- Curtis, David;
- Ferrada, Marcela;
- Gavigan, Kelly;
- Grayson, Peter C.;
- Kullman, Joyce;
- Danila, Maria I.;
- Curtis, Jeffrey R.;
- Shaw, Dianne G.;
- Benjamin Nowell, W.;
- Merkel, Peter A.
Publication type:
Article
Reproductive Outcomes for Women With Vasculitis.
Published in:
Journal of Rheumatology, 2024, v. 51, n. 10, p. 1003, doi. 10.3899/jrheum.2023-1246
By:
- Sims, Catherine A.;
- Eudy, Amanda M.;
- Larson, Kalen;
- Yeung, Christine;
- Tam, Heather;
- Kullman, Joyce;
- Borchin, Renée L.;
- Burroughs, Cristina;
- Merkel, Peter A.;
- Clowse, Megan E. B.
Publication type:
Article
Exploring Reproductive Experiences With Women Enrolled in the International Vasculitis Pregnancy Registry.
Published in:
Journal of Rheumatology, 2024, v. 51, n. 10, p. 997, doi. 10.3899/jrheum.2023-1055
By:
- Sims, Catherine A.;
- Perry, Brian;
- Yeung, Christine;
- Tam, Heather;
- Kullman, Joyce;
- Borchin, Renée L.;
- Burroughs, Cristina;
- Merkel, Peter A.;
- Clowse, Megan E. B.
Publication type:
Article
Data linkages between patient-powered research networks and health plans: a foundation for collaborative research.
Published in:
2019
By:
- Agiro, Abiy;
- Chen, Xiaoxue;
- Eshete, Biruk;
- Sutphen, Rebecca;
- Bourquardez Clark, Elizabeth;
- Burroughs, Cristina M;
- Nowell, W Benjamin;
- Curtis, Jeffrey R;
- Loud, Sara;
- McBurney, Robert;
- Merkel, Peter A;
- Sreih, Antoine G;
- Young, Kalen;
- Haynes, Kevin;
- Bourquardez Clark, Elizabeth
Publication type:
journal article
A study of implementation factors for a novel approach to clinical trials: constructs for consideration in the coordination of direct-to-patient online-based medical research.
Published in:
BMC Medical Research Methodology, 2024, v. 24, n. 1, p. 1, doi. 10.1186/s12874-024-02352-w
By:
- Cronholm, Peter F.;
- Applequist, Janelle;
- Krischer, Jeffrey;
- Fontenot, Ebony;
- Davis, Trocon;
- Burroughs, Cristina;
- McAlear, Carol A.;
- Borchin, Renée;
- Kullman, Joyce;
- Carette, Simon;
- Khalidi, Nader;
- Koening, Curry;
- Langford, Carol A.;
- Monach, Paul;
- Moreland, Larry;
- Pagnoux, Christian;
- Specks, Ulrich;
- Sreih, Antoine G.;
- Ytterberg, Steven R.;
- Merkel, Peter A.
Publication type:
Article
Harnessing health plan enrollee data to boost membership in patient-powered research networks.
Published in:
2020
By:
- Chen, Xiaoxue;
- Agiro, Abiy;
- Nowell, W. Benjamin;
- Loud, Sara;
- McBurney, Robert;
- Young, Kalen;
- Sutphen, Rebecca;
- Bourquardez Clark, Elizabeth;
- Burroughs, Cristina M.;
- Curtis, Jeffrey R.;
- Sreih, Antoine G.;
- Merkel, Peter A.;
- Haynes, Kevin
Publication type:
journal article
140. The vasculitis pregnancy registry (VPREG): baseline information for the first 3 years.
Published in:
2019
By:
- Golenbiewski, Jon;
- Young, Kalen;
- Burroughs, Cristina;
- Kullman, Joyce;
- Merkel, Peter;
- Clowse, Megan
Publication type:
Abstract
122. Diagnostic Delays in Vasculitis and Factors Associated with Time to Diagnosis.
Published in:
2019
By:
- Sreih, Antoine G;
- Shaw, Dianne;
- Young, Kalen;
- Burroughs, Cristina;
- Kullman, Joyce;
- Machireddy, Kirthi;
- McAlear, Carol A;
- Casey, George;
- Merkel, Peter A
Publication type:
Abstract

Found: 15