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1078: COMMITTED TO LIFE: ADOLESCENTS AND YOUNG ADULTS' EXPERIENCES OF LIVING WITH FONTAN CIRCULATION.
Published in:
Cardiovascular Journal of Africa, 2013, v. 24, n. 1, p. 122
By:
- Berghammer, Malin;
- Brink, Eva;
- Rydberg, Annika;
- Dellborg, Mikael;
- Ekman, Inger
Publication type:
Article
"The only thing I wonder is when I will have surgery again" – Everyday life for children with right ventricle outflow tract anomalies during assessment for heart surgery – CORRIGENDUM.
Published in:
2023
By:
- Svensson, Birgitta;
- Liuba, Petru;
- Wennick, Anne;
- Berghammer, Malin
Publication type:
Correction Notice
"The only thing I wonder is when I will have surgery again": everyday life for children with right ventricle outflow tract anomalies during assessment for heart surgery.
Published in:
Cardiology in the Young, 2023, v. 33, n. 3, p. 396, doi. 10.1017/S1047951122000907
By:
- Svensson, Birgitta;
- Liuba, Petru;
- Wennick, Anne;
- Berghammer, Malin
Publication type:
Article
Comparison of participants and non-participants in patient-reported outcome surveys: the case of Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study.
Published in:
2017
By:
- Berghammer, Malin C.;
- Mattsson, Eva;
- Johansson, Bengt;
- Moons, Philip;
- Dellborg, Mikael
Publication type:
journal article
Health care providers' attitudes towards transfer and transition in young persons with long term illness- a web-based survey.
Published in:
2017
By:
- Sparud-Lundin, Carina;
- Berghammer, Malin;
- Moons, Philip;
- Bratt, Ewa-Lena
Publication type:
journal article
Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients-An APPROACH-IS Substudy.
Published in:
Pediatric Cardiology, 2017, v. 38, n. 5, p. 965, doi. 10.1007/s00246-017-1604-y
By:
- Caruana, Maryanne;
- Apers, Silke;
- Kovacs, Adrienne;
- Luyckx, Koen;
- Thomet, Corina;
- Budts, Werner;
- Sluman, Maayke;
- Eriksen, Katrine;
- Dellborg, Mikael;
- Berghammer, Malin;
- Johansson, Bengt;
- Soufi, Alexandra;
- Callus, Edward;
- Moons, Philip;
- Grech, Victor
Publication type:
Article
Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system performance.
Published in:
European Journal of Cardiovascular Nursing, 2019, v. 18, n. 6, p. 465, doi. 10.1177/1474515119834484
By:
- Van Bulck, Liesbet;
- Luyckx, Koen;
- Goossens, Eva;
- Apers, Silke;
- Kovacs, Adrienne H;
- Thomet, Corina;
- Budts, Werner;
- Sluman, Maayke A;
- Eriksen, Katrine;
- Dellborg, Mikael;
- Berghammer, Malin;
- Johansson, Bengt;
- Caruana, Maryanne;
- Soufi, Alexandra;
- Callus, Edward;
- Moons, Philip
Publication type:
Article
Health behaviours reported by adults with congenital heart disease across 15 countries.
Published in:
European Journal of Preventive Cardiology, 2020, v. 27, n. 10, p. 1077, doi. 10.1177/2047487319876231
By:
- Holbein, Christina E;
- Peugh, James;
- Veldtman, Gruschen R;
- Apers, Silke;
- Luyckx, Koen;
- Kovacs, Adrienne H;
- Thomet, Corina;
- Budts, Werner;
- Enomoto, Junko;
- Sluman, Maayke A;
- Lu, Chun-Wei;
- Jackson, Jamie L;
- Khairy, Paul;
- Cook, Stephen C;
- Chidambarathanu, Shanthi;
- Alday, Luis;
- Eriksen, Katrine;
- Dellborg, Mikael;
- Berghammer, Malin;
- Johansson, Bengt
Publication type:
Article
Phenotypes of adults with congenital heart disease around the globe: a cluster analysis.
Published in:
2021
By:
- Callus, Edward;
- Pagliuca, Silvana;
- Boveri, Sara;
- Ambrogi, Federico;
- Luyckx, Koen;
- Kovacs, Adrienne H.;
- Apers, Silke;
- Budts, Werner;
- Enomoto, Junko;
- Sluman, Maayke A.;
- Wang, Jou-Kou;
- Jackson, Jamie L.;
- Khairy, Paul;
- Cook, Stephen C.;
- Chidambarathanu, Shanthi;
- Alday, Luis;
- Eriksen, Katrine;
- Dellborg, Mikael;
- Berghammer, Malin;
- Johansson, Bengt
Publication type:
journal article
Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries.
Published in:
2020
By:
- Van Bulck, Liesbet;
- Goossens, Eva;
- Luyckx, Koen;
- Apers, Silke;
- Oechslin, Erwin;
- Thomet, Corina;
- Budts, Werner;
- Enomoto, Junko;
- Sluman, Maayke A.;
- Lu, Chun-Wei;
- Jackson, Jamie L.;
- Khairy, Paul;
- Cook, Stephen C.;
- Chidambarathanu, Shanthi;
- Alday, Luis;
- Eriksen, Katrine;
- Dellborg, Mikael;
- Berghammer, Malin;
- Johansson, Bengt;
- Mackie, Andrew S.
Publication type:
journal article
Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries.
Published in:
2022
By:
- Chun-Wei Lu;
- Jou-Kou Wang;
- Hsiao-Ling Yang;
- Kovacs, Adrienne H.;
- Luyckx, Koen;
- Ruperti-Repilado, Francisco Javier;
- Van De Bruaene, Alexander;
- Junko Enomoto;
- Sluman, Maayke A.;
- Jackson, Jamie L.;
- Khairy, Paul;
- Cook, Stephen C.;
- Chidambarathanu, Shanthi;
- Alday, Luis;
- Oechslin, Erwin;
- Eriksen, Katrine;
- Dellborg, Mikael;
- Berghammer, Malin;
- Johansson, Bengt;
- Mackie, Andrew S.
Publication type:
journal article
Children's Anxiety and Factors Related to the COVID-19 Pandemic: An Exploratory Study Using the Children's Anxiety Questionnaire and the Numerical Rating Scale.
Published in:
International Journal of Environmental Research & Public Health, 2020, v. 17, n. 16, p. 5757, doi. 10.3390/ijerph17165757
By:
- Garcia de Avila, Marla Andréia;
- Hamamoto Filho, Pedro Tadao;
- Jacob, Francine Letícia da Silva;
- Alcantara, Léia Regina Souza;
- Berghammer, Malin;
- Jenholt Nolbris, Margaretha;
- Olaya-Contreras, Patricia;
- Nilsson, Stefan
Publication type:
Article
“I Dread the Heart Surgery but it Keeps My Child Alive”—Experiences of Parents of Children with Right Ventricular Outflow Tract Anomalies during the Assessment for Cardiac Reoperation.
Published in:
Congenital Heart Disease, 2023, v. 18, n. 3, p. 349, doi. 10.32604/chd.2023.028391
By:
- Svensson, Birgitta;
- Liuba, Petru;
- Wennick, Anne;
- Berghammer, Malin
Publication type:
Article
Committed to Life: Adolescents' and Young Adults' Experiences of Living with Fontan Circulation.
Published in:
Congenital Heart Disease, 2015, v. 10, n. 5, p. 403, doi. 10.1111/chd.12244
By:
- Berghammer, Malin C.;
- Brink, Eva;
- Rydberg, Annika M.;
- Dellborg, Mikael;
- Ekman, Inger
Publication type:
Article
Decline in Self-reported Health ( EQ-5 D) over Time after Surgical Reconstruction of the Right Ventricular Outflow Tract: A Longitudinal Cohort Study of 103 Patients.
Published in:
Congenital Heart Disease, 2015, v. 10, n. 2, p. E54, doi. 10.1111/chd.12208
By:
- Skoglund, Kristofer;
- Berghammer, Malin;
- Eriksson, Peter;
- Svensson, Gunnar;
- Thilén, Ulf;
- Dellborg, Mikael
Publication type:
Article
Anxiety among children a year after the onset of the COVID-19 pandemic: a Brazilian cross-sectional online survey.
Published in:
Frontiers in Public Health, 2024, p. 1, doi. 10.3389/fpubh.2024.1372853
By:
- Garcia de Avila, Marla Andréia;
- de Jesus Amorin, Tainara;
- Hamamoto Filho, Pedro Tadao;
- Ferraz de Almeida, Graziela Maria;
- Olaya-Contreras, Patricia;
- Berghammer, Malin;
- Jenholt Nolbris, Margaretha;
- Nilsson, Stefan
Publication type:
Article
Is being physically active the key to a good quality of life for patients living with Fontan circulation?
Published in:
2016
By:
- Berghammer, Malin
Publication type:
Editorial
Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS.
Published in:
European Journal of Cardiovascular Nursing, 2023, v. 22, n. 4, p. 339, doi. 10.1093/eurjcn/zvac057
By:
- Moons, Philip;
- Luyckx, Koen;
- Thomet, Corina;
- Budts, Werner;
- Enomoto, Junko;
- Sluman, Maayke A;
- Yang, Hsiao-Ling;
- Jackson, Jamie L;
- Khairy, Paul;
- Cook, Stephen C;
- Chidambarathanu, Shanthi;
- Alday, Luis;
- Oechslin, Erwin;
- Eriksen, Katrine;
- Dellborg, Mikael;
- Berghammer, Malin;
- Johansson, Bengt;
- Mackie, Andrew S;
- Menahem, Samuel;
- Caruana, Maryanne
Publication type:
Article
Enablers and barriers for being physically active: experiences from adults with congenital heart disease.
Published in:
European Journal of Cardiovascular Nursing, 2021, v. 20, n. 3, p. 276, doi. 10.1177/1474515120963314
By:
- Bay, Annika;
- Lämås, Kristina;
- Berghammer, Malin;
- Sandberg, Camilla;
- Johansson, Bengt
Publication type:
Article
Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life.
Published in:
European Journal of Cardiovascular Nursing, 2021, v. 20, n. 1, p. 48, doi. 10.1177/1474515120930496
By:
- Moons, Philip;
- Apers, Silke;
- Kovacs, Adrienne H;
- Thomet, Corina;
- Budts, Werner;
- Enomoto, Junko;
- Sluman, Maayke A;
- Wang, Jou-Kou;
- Jackson, Jamie L;
- Khairy, Paul;
- Cook, Stephen C;
- Chidambarathanu, Shanthi;
- Alday, Luis;
- Oechslin, Erwin;
- Eriksen, Katrine;
- Dellborg, Mikael;
- Berghammer, Malin;
- Johansson, Bengt;
- Mackie, Andrew S;
- Menahem, Samuel
Publication type:
Article

Found: 20