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Sickle Cell Transplantation Evaluation of Long-term and Late Effects Registry (STELLAR) to Compare Long-term Outcomes After Hematopoietic Cell Transplantation to Those in Siblings Without Sickle Cell Disease and in Nontransplanted Individuals With Sickle Cell Disease: Design and Feasibility Study
- Published in:
- JMIR Research Protocols, 2022, v. 11, n. 7, p. 1, doi. 10.2196/36780
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- Article
Long‐term quality of life after hematopoietic cell transplant for sickle cell disease in childhood: A STELLAR interim analysis.
- Published in:
- American Journal of Hematology, 2024, v. 99, n. 10, p. 2037, doi. 10.1002/ajh.27436
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- Article
Intranasal fentanyl and discharge from the emergency department among children with sickle cell disease and vaso‐occlusive pain: A multicenter pediatric emergency medicine perspective.
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- American Journal of Hematology, 2023, v. 98, n. 4, p. 620, doi. 10.1002/ajh.26837
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- Article
Adherence to NHLBI guidelines for the emergent management of vaso‐occlusive episodes in children with sickle cell disease: A multicenter perspective.
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- American Journal of Hematology, 2022, v. 97, n. 11, p. E412, doi. 10.1002/ajh.26696
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- Article
Safety of intravenous arginine therapy in children with sickle cell disease hospitalized for vaso‐occlusive pain: A randomized placebo‐controlled trial in progress.
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- American Journal of Hematology, 2022, v. 97, n. 1, p. E21, doi. 10.1002/ajh.26396
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- Article
Effects of Music Therapy on Quality of Life in Adults with Sickle Cell Disease (MUSIQOLS): A Mixed Methods Feasibility Study [Erratum].
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- Journal of Pain Research, 2022, v. 15, p. 1123, doi. 10.2147/JPR.S370799
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- Article
Effects of Music Therapy on Quality of Life in Adults with Sickle Cell Disease (MUSIQOLS): A Mixed Methods Feasibility Study.
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- Journal of Pain Research, 2022, v. 15, p. 71, doi. 10.2147/JPR.S337390
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- Article
Pain catastrophizing is associated with poorer health-related quality of life in pediatric patients with sickle cell disease.
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- Journal of Pain Research, 2018, v. 11, p. 947, doi. 10.2147/JPR.S151198
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- Article
Quantitative sensory testing is feasible and is well-tolerated in patients with sickle cell disease following a vaso-occlusive episode.
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- Journal of Pain Research, 2018, v. 11, p. 435, doi. 10.2147/JPR.S150066
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- Article
Presence of pain on three or more days of the week is associated with worse patient reported outcomes in adults with sickle cell disease.
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- Journal of Pain Research, 2018, v. 11, p. 313, doi. 10.2147/JPR.S150065
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- Article
The role of the arginine metabolome in pain: implications for sickle cell disease.
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- Journal of Pain Research, 2016, v. 9, p. 167, doi. 10.2147/JPR.S55571
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- Article
Sickle Cell Disease Treatment with Arginine Therapy (STArT): study protocol for a phase 3 randomized controlled trial.
- Published in:
- Trials, 2023, p. 1, doi. 10.1186/s13063-023-07538-z
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- Article
Acute Chest Syndrome in Children with Sickle Cell Disease.
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- Pediatric Allergy, Immunology & Pulmonology, 2017, v. 30, n. 4, p. 191, doi. 10.1089/ped.2017.0814
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- Article
Decision-making about gene therapy in transfusion dependent thalassemia.
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- 2022
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- Publication type:
- journal article
Characterizing User Engagement With a Digital Intervention for Pain Self-management Among Youth With Sickle Cell Disease and Their Caregivers: Subanalysis of a Randomized Controlled Trial.
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- 2022
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- journal article
Comparative Effectiveness of a Web-Based Patient Decision Aid for Therapeutic Options for Sickle Cell Disease: Randomized Controlled Trial.
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- 2019
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- journal article
Assessment of Patient and Caregiver Attitudes and Approaches to Decision-Making Regarding Bone Marrow Transplant for Sickle Cell Disease: A Qualitative Study.
- Published in:
- JAMA Network Open, 2020, v. 3, n. 5, p. e206742, doi. 10.1001/jamanetworkopen.2020.6742
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- Article
Management of Chronic Pain in Adults Living With Sickle Cell Disease in the Era of the Opioid Epidemic: A Qualitative Study.
- Published in:
- JAMA Network Open, 2019, v. 2, n. 5, p. e194410, doi. 10.1001/jamanetworkopen.2019.4410
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- Article
Parental perspective on the risk of infertility and fertility preservation options for children and adolescents with sickle cell disease considering hematopoietic stem cell transplantation.
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- Pediatric Blood & Cancer, 2023, v. 70, n. 7, p. 1, doi. 10.1002/pbc.30276
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- Article
Multimodal phenotyping and correlates of pain following hematopoietic cell transplant in children with sickle cell disease.
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- Pediatric Blood & Cancer, 2023, v. 70, n. 1, p. 1, doi. 10.1002/pbc.30046
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- Article
Primary caregiver decision-making in hematopoietic cell transplantation and gene therapy for sickle cell disease.
- Published in:
- 2021
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- journal article
The burden of respiratory syncytial virus infections among children with sickle cell disease.
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- 2021
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- journal article
Microbiology and radiographic features of osteomyelitis in children and adolescents with sickle cell disease.
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- 2020
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- journal article
Influenza vaccine effectiveness and disease burden in children and adolescents with sickle cell disease: 2012-2017.
- Published in:
- 2020
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- journal article
Incidence of invasive Haemophilus influenzae infections in children with sickle cell disease.
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- 2019
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- journal article
Bone marrow transplantation for adolescents and young adults with sickle cell disease: Results of a prospective multicenter pilot study.
- Published in:
- American Journal of Hematology, 2019, v. 94, n. 4, p. 446, doi. 10.1002/ajh.25401
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- Publication type:
- Article
From trust to skepticism: An in-depth analysis across age groups of adults with sickle cell disease on their perspectives regarding hydroxyurea.
- Published in:
- PLoS ONE, 2018, v. 13, n. 6, p. 1, doi. 10.1371/journal.pone.0199375
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- Article
Patient and family experience with chronic transfusion therapy for sickle cell disease: A qualitative study.
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- 2020
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- Publication type:
- journal article
Proponent or collaborative: Physician perspectives and approaches to disease modifying therapies in sickle cell disease.
- Published in:
- PLoS ONE, 2017, v. 12, n. 7, p. 1, doi. 10.1371/journal.pone.0178413
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- Article