Works by BURQOL-RD Research Network

Results: 11

Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in Europe.

Published in:

2016

By:

Angelis, Aris;
Kanavos, Panos;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Brodszky, Valentin;
Schulenburg, Johann;
Chevreul, Karine;
Persson, Ulf;
Fattore, Giovanni;
von der Schulenburg, Johann Matthias Graf;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe.

Published in:

2016

By:

Chevreul, Karine;
Michel, Morgane;
Brigham, Karen;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Péntek, Márta;
Schulenburg, Johann;
Kanavos, Panos;
Persson, Ulf;
Fattore, Giovani;
Brigham, Karen Berg;
von der Schulenburg, Johann Matthias Graf;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and quality of life in patients with haemophilia in Europe.

Published in:

2016

By:

Cavazza, Marianna;
Kodra, Yllka;
Armeni, Patrizio;
De Santis, Marta;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Gulácsi, László;
Schulenburg, Johann;
Kanavos, Panos;
Chevreul, Karine;
Persson, Ulf;
Fattore, Giovanni;
von der Schulenburg, Johann Matthias Graf;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and health-related quality of life in patients with fragile X syndrome in Europe.

Published in:

2016

By:

Chevreul, Karine;
Gandré, Coralie;
Brigham, Karen;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Gulácsi, László;
Schulenburg, Johann;
Kanavos, Panos;
Persson, Ulf;
Fattore, Giovani;
Brigham, Karen Berg;
von der Schulenburg, Johann Matthias Graf;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and health-related quality of life in patients with juvenile idiopathic arthritis in Europe.

Published in:

2016

By:

Kuhlmann, A.;
Schmidt, T.;
Treskova, M.;
López-Bastida, J.;
Linertová, R.;
Oliva-Moreno, J.;
Serrano-Aguilar, P.;
Posada-de-la-Paz, M.;
Kanavos, P.;
Taruscio, D.;
Schieppati, A.;
Iskrov, G.;
Péntek, M.;
Delgado, C.;
Schulenburg, J.;
Persson, U.;
Chevreul, K.;
Fattore, G.;
von der Schulenburg, J M;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and health-related quality of life in patients with Prader-Willi syndrome in Europe.

Published in:

2016

By:

López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Posada-de-la-Paz, Manuel;
Serrano-Aguilar, Pedro;
Kanavos, Panos;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Baji, Petra;
Delgado, Claudia;
Schulenburg, Johann;
Persson, Ulf;
Chevreul, Karine;
Fattore, Giovanni;
von der Schulenburg, Johann Matthias Graf;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and health-related quality of life in patients with scleroderma in Europe.

Published in:

2016

By:

López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Kanavos, Panos;
Taruscio, Domenica;
Schieppati, Arrigo;
Iskrov, Georgi;
Péntek, Márta;
Delgado, Claudia;
Schulenburg, Johann;
Persson, Ulf;
Chevreul, Karine;
Fattore, Giovanni;
von der Schulenburg, Johann Mathias;
BURQOL-RD Research Network

Publication type:

journal article

Social/economic costs and health-related quality of life in patients with histiocytosis in Europe.

Published in:

2016

By:

Iskrov, Georgi;
Astigarraga, Itziar;
Stefanov, Rumen;
López-Bastida, Julio;
Linertová, Renata;
Oliva-Moreno, Juan;
Serrano-Aguilar, Pedro;
Posada-de-la-Paz, Manuel;
Schieppati, Arrigo;
Taruscio, Domenica;
Péntek, Márta;
Schulenburg, Johann;
Kanavos, Panos;
Chevreul, Karine;
Persson, Ulf;
Fattore, Giovanni;
von der Schulenburg, Johann Matthias Graf;
BURQOL-RD Research Network

Publication type:

journal article

Socioeconomic costs and health-related quality of life in juvenile idiopathic arthritis: a cost-of-illness study in the United Kingdom.

Published in:

2016

By:

Angelis, Aris;
Kanavos, Panos;
López-Bastida, Julio;
Linertová, Renata;
Serrano-Aguilar, Pedro;
BURQOL-RD Research Network

Publication type:

journal article

Social and economic costs and health-related quality of life in non-institutionalised patients with cystic fibrosis in the United Kingdom.

Published in:

2015

By:

Angelis, Aris;
Kanavos, Panos;
López-Bastida, Julio;
Linertová, Renata;
Nicod, Elena;
Serrano-Aguilar, Pedro;
BURQOL-RD Research Network

Publication type:

journal article

The economic burden and health-related quality of life associated with systemic sclerosis in France.

Published in:

Scandinavian Journal of Rheumatology, 2015, v. 44, n. 3, p. 238, doi. 10.3109/03009742.2014.976653

By:

Chevreul, K;
Brigham, K Berg;
Gandré, C;
Mouthon, L;
and the BURQOL-RD Research Network*

Publication type:

Article