Found: 22
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Comorbidities Among Young Adults with Congenital Heart Defects: Results from the Congenital Heart Survey To Recognize Outcomes, Needs, and well-beinG - Arizona, Arkansas, and Metropolitan Atlanta, 2016-2019.
- Published in:
- 2021
- By:
- Publication type:
- journal article
Tracking the burden, distribution, and impact of Post-COVID conditions in diverse populations for children, adolescents, and adults (Track PCC): passive and active surveillance protocols.
- Published in:
- BMC Public Health, 2024, v. 24, n. 1, p. 1, doi. 10.1186/s12889-024-19772-4
- By:
- Publication type:
- Article
The International SCN8A Patient Registry: A Scientific Resource to Advance the Understanding and Treatment of a Rare Pediatric Neurodevelopmental Syndrome.
- Published in:
- Journal of Registry Management, 2023, v. 50, n. 1, p. 4
- By:
- Publication type:
- Article
Anxiety reduction after pre-procedure meetings in patients with CHD.
- Published in:
- 2020
- By:
- Publication type:
- journal article
Health services received by individuals with duchenne/becker muscular dystrophy.
- Published in:
- 2016
- By:
- Publication type:
- journal article
Sibling concordance for clinical features of Duchenne and Becker muscular dystrophies.
- Published in:
- Muscle & Nerve, 2014, v. 49, n. 6, p. 814, doi. 10.1002/mus.24078
- By:
- Publication type:
- Article
Correlates of care for young men with duchenne and becker muscular dystrophy.
- Published in:
- Muscle & Nerve, 2014, v. 49, n. 1, p. 21, doi. 10.1002/mus.23865
- By:
- Publication type:
- Article
Postfolate spina bifida lesion level change.
- Published in:
- Birth Defects Research, 2018, v. 110, n. 11, p. 949, doi. 10.1002/bdr2.1221
- By:
- Publication type:
- Article
Recognition of clinical characteristics for population‐based surveillance of fetal alcohol syndrome.
- Published in:
- Birth Defects Research, 2018, v. 110, n. 10, p. 851, doi. 10.1002/bdr2.1203
- By:
- Publication type:
- Article
Evaluating an Animal Model of Compulsive Hoarding in Humans.
- Published in:
- Review of General Psychology, 2013, v. 17, n. 4, p. 399, doi. 10.1037/a0032261
- By:
- Publication type:
- Article
Transparent deep learning to identify autism spectrum disorders (ASD) in EHR using clinical notes.
- Published in:
- Journal of the American Medical Informatics Association, 2024, v. 31, n. 6, p. 1313, doi. 10.1093/jamia/ocae080
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- Publication type:
- Article
Effect of comorbid neuropsychiatric disorders on children and adolescents undergoing surgery for moderate and severe congenital heart disease.
- Published in:
- Journal of Cardiac Surgery, 2020, v. 35, n. 11, p. 3048, doi. 10.1111/jocs.14972
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- Publication type:
- Article
Advance Care Directives Among a Population-Based Sample of Young Adults with Congenital Heart Defects, CH STRONG, 2016–2019.
- Published in:
- Pediatric Cardiology, 2021, v. 42, n. 8, p. 1775, doi. 10.1007/s00246-021-02663-5
- By:
- Publication type:
- Article
Characterization of individuals with selected muscular dystrophies from the expanded pilot of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) in the United States.
- Published in:
- Birth Defects Research, 2021, v. 113, n. 7, p. 560, doi. 10.1002/bdr2.1764
- By:
- Publication type:
- Article
Differentiation of Pediatric-Onset Duchenne and Becker Muscular Dystrophy Subphenotypes Using Data from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet).
- Published in:
- Journal of Neuromuscular Diseases, 2022, v. 9, n. 1, p. 171, doi. 10.3233/JND-210739
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- Publication type:
- Article
Duchenne and Becker muscular dystrophy in adolescents: current perspectives.
- Published in:
- Adolescent Health, Medicine & Therapeutics, 2018, v. 9, p. 53, doi. 10.2147/AHMT.S125739
- By:
- Publication type:
- Article
Palliative care services in families of males with muscular dystrophy: Data from MD STARnet.
- Published in:
- SAGE Open Medicine, 2019, p. N.PAG, doi. 10.1177/2050312119840518
- By:
- Publication type:
- Article
Palliative care services in families of males with muscular dystrophy: Data from MD STARnet.
- Published in:
- SAGE Open Medicine, 2019, v. 7, p. N.PAG, doi. 10.1177/2050312119840518
- By:
- Publication type:
- Article
Survival to Young Adulthood Among Individuals With Congenital Heart Defects and Genetic Syndromes: Congenital Heart Survey to Recognize Outcomes, Needs, and Well-Being.
- Published in:
- Journal of the American Heart Association, 2024, v. 13, n. 15, p. 1, doi. 10.1161/JAHA.124.036049
- By:
- Publication type:
- Article
Disability Among Young Adults With Congenital Heart Defects: Congenital Heart Survey to Recognize Outcomes, Needs, and Well-Being 2016-2019.
- Published in:
- 2021
- By:
- Publication type:
- journal article
Noninvasive Respiratory Care Received by Individuals With Duchenne Muscular Dystrophy Since 1979.
- Published in:
- 2017
- By:
- Publication type:
- Letter to the Editor
Respiratory Care Received by Individuals With Duchenne Muscular Dystrophy From 2000 to 2011.
- Published in:
- Respiratory Care, 2016, v. 61, n. 10, p. 1349, doi. 10.4187/respcare.04676
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- Publication type:
- Article