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- Title
Autosomal recessive polycystic kidney disease: the clinical experience in North America.
- Authors
Guay-Woodford, Lisa M; Desmond, Renee A
- Abstract
We designed a longitudinal clinical database for autosomal recessive polycystic kidney disease (ARPKD), recruited patients from pediatric nephrology centers in the United States and Canada, and examined their clinical morbidities and survival characteristics. We initially targeted enrollment to children who were born and diagnosed after January 1, 1990, so as to capture a cohort that is representative of ARPKD patients born in the last decade. When a significant number of older ARPKD patients were also referred, we extended our database to include all patients who met our inclusion criteria, thereby allowing direct comparisons between a long-term survivor subset and a cohort that included both neonatal survivors and nonsurvivors.
- Publication
Pediatrics, 2003, Vol 111, Issue 5 Pt 1, p1072
- ISSN
1098-4275
- Publication type
Journal Article
- DOI
10.1542/peds.111.5.1072