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- Title
Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia: a web-based survey in the Netherlands.
- Authors
van Lith, Bas J H; Kerstens, Hans C J W; van den Bemd, Laura A C; der Sanden, Maria W G Nijhuis-van; Weerdesteyn, Vivian; Smeets, Rob J E M; Fheodoroff, Klemens; van de Warrenburg, Bart P C; Geurts, Alexander C H
- Abstract
Hereditary spastic paraplegia (HSP) is a group of inherited disorders characterized by progressive spastic paresis of the lower limbs. Treatment is often focused on reducing spasticity and its physical consequences. To better address individual patients' needs, we investigated a broad range of experienced complaints, activity limitations, and loss of motor capacities in pure HSP. In addition, we aimed to identify patient characteristics that are associated with increased fall risk and/or reduced walking capacity.
- Publication
Orphanet journal of rare diseases, 2020, Vol 15, Issue 1, p64
- ISSN
1750-1172
- Publication type
Journal Article
- DOI
10.1186/s13023-020-1338-4