We found a match
Your institution may have access to this item. Find your institution then sign in to continue.
- Title
Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives.
- Authors
Oliver, J M; Slashinski, M J; Wang, T; Kelly, P A; Hilsenbeck, S G; McGuire, A L
- Abstract
Technological advancements are rapidly propelling the field of genome research forward, while lawmakers attempt to keep apace with the risks these advances bear. Balancing normative concerns of maximizing data utility and protecting human subjects, whose privacy is at risk due to the identifiability of DNA data, are central to policy decisions. Research on genome research participants making real-time data sharing decisions is limited; yet, these perspectives could provide critical information to ongoing deliberations.
- Publication
Public health genomics, 2012, Vol 15, Issue 2, p106
- ISSN
1662-8063
- Publication type
Journal Article
- DOI
10.1159/000334718