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- Title
Parental perspective of the benefits of genetic testing in children with congenital deafness.
- Authors
Geelhoed, E A; Harrison, K; Davey, A; Walpole, I R
- Abstract
The aim of the study was to assess the perceived value of genetic testing for congenital deafness in families attending a clinical genetic outpatients department at a children's hospital. The major testing objective was to provide information regarding deafness etiology, although families were advised that changes in treatment as a result of the test were unlikely. Using a 'willingness-to-pay' approach in the form of a questionnaire developed by Ryan et al. [J Med Genet 2003;40:1-5], parents were surveyed for their attitudes and willingness to pay for genetic testing.
- Publication
Public health genomics, 2009, Vol 12, Issue 4, p245
- ISSN
1662-8063
- Publication type
Journal Article
- DOI
10.1159/000203780