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- Title
Rare childhood diseases: how should we respond?
- Authors
Zurynski, Y; Frith, K; Leonard, H; Elliott, E
- Abstract
Paradoxically, rare diseases are common, collectively affecting 6-10% of the population and have a huge impact on patients and families, health services, clinicians and the wider community. Accurate data are required to inform clinical practice, government policy and health service planning. We recommend a national approach, similar to that adopted in the USA and Europe, to support research and promote advocacy and equitable access to services for children with rare diseases.
- Publication
Archives of disease in childhood, 2008, Vol 93, Issue 12, p1071
- ISSN
1468-2044
- Publication type
Journal Article
- DOI
10.1136/adc.2007.134940