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- Title
Ethics. Protecting communities in biomedical research.
- Authors
Weijer, C; Emanuel, E J
- Abstract
Although for the last 50 years, ethicists dealing with human experimentation have focused primarily on the need to protect individual research subjects and vulnerable groups, biomedical research, especially in genetics, now requires the establishment of standards for the protection of communities. We have developed such a strategy, based on five steps. (i) Identification of community characteristics relevant to the biomedical research setting, (ii) delineation of a typology of different types of communities using these characteristics, (iii) determination of the range of possible community protections, (iv) creation of connections between particular protections and one or more community characteristics necessary for its implementation, and (v) synthesis of community characteristics and possible protections to define protections appropriate for each type of community. Depending on the particular community, consent and consultation, consultation alone, or no added protections may be required for research.
- Publication
Science (New York, N.Y.), 2000, Vol 289, Issue 5482, p1142
- ISSN
0036-8075
- Publication type
Journal Article
- DOI
10.1126/science.289.5482.1142