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- Title
Major stressors facing patients with amyotrophic lateral sclerosis (ALS): a survey to identify their concerns and to compare with those of their caregivers.
- Authors
Trail, Marilyn; Nelson, Naomi; Van, John N; Appel, Stanley H; Lai, Eugene C
- Abstract
To identify and compare the primary existential, physical, and psychosocial stressors affecting patients with ALS and their caregivers. Health care providers, together with patients and their caregivers, are challenged to identify both physical and psychosocial concerns that have the greatest impact on quality of life over the course of a serious illness. It is also helpful to understand the priorities of these concerns from the patients' and caregivers' perspectives so that we can render optimal care and help patients and their families with the myriad problems that accompany a progressive and fatal disease.
- Publication
Amyotrophic lateral sclerosis and other motor neuron disorders : official publication of the World Federation of Neurology, Research Group on Motor Neuron Diseases, 2004, Vol 5, Issue 1, p40
- ISSN
1466-0822
- Publication type
Journal Article
- DOI
10.1080/14660820310016075